scholarly journals PARE0003 MY RA STORY - PERSONAL ACCOUNTS OF LIVING WITH RHEUMATOID ARTHRITIS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1287.3-1288
Author(s):  
B. Lynch
Keyword(s):  
Rheumatoid Arthritis ◽  
Social Media ◽  
Media Coverage ◽  
Well Being ◽  
Education Programme ◽  
Emotional Impact ◽  
Patient Organisation ◽  
Newly Diagnosed ◽  
Personal Accounts ◽  
Surgery Education

Background:Over 2,000 people are diagnosed with rheumatoid arthritis (RA) in Ireland each year; three in four are of working age. In total, RA affects some 45,000 people in the country; 70 per cent of whom are women.For someone newly diagnosed with RA, coming to terms with the news can seem overwhelming.Such a dramatic shift in life circumstances can impact one’s physical and mental well-being. While there is no shortage of information available about the condition, it can be overwhelming trying to filter this, assess what is trustworthy and reliable.Objectives:•To provide information and hope to people newly diagnosed with RA, and to give a voice to those living with the condition;•To increase awareness and understanding of RA – encourage engagement with HCPs, contributing to early diagnosis and better outcomes;•To increase awareness of work of Arthritis Ireland as a patient organisation.Methods:Arthritis Ireland approached best-selling author and RA patient, Sinead Moriarty, to front an RA awareness campaign, called My RA Story.The purpose of the campaign was to increase awareness and understanding of rheumatoid arthritis, of what it is like to live with this chronic condition with its invisible pain and life-changing impact. In so doing, Arthritis Ireland wanted to give a platform to people to tell their own story, so that they could be heard. We then wanted to publish these experiences in book form.In April 2019, we launched a video on social media featuring Sinead Moriarty speaking about her experience of living with RA. The video generated lots of engagement across social media and also helped garner national and regional media coverage in print and broadcast.The call for RA stories received a fantastic response from the public and the reading panel had a tough job in selecting the contributions which would feature in the published volume. Once the successful contributions were chosen, Arthritis Ireland proceeded to design a book, which could be sold in the book trade and online.Results:In September 2019, Arthritis Ireland published My RA Story: Personal accounts of living with rheumatoid arthritis. Launched in the National Library of Ireland by Sinead Moriarty, the 46 contributions touched upon themes of pain, fatigue, emotional impact, disability, surgery, education, career, family, goal-setting, self-management, connecting with others, hope, etc.The contributors came from people who were living with RA for over 40 years, as well as from those who were more recently diagnosed.The book is a hugely valuable contribution to health literature. Arthritis Ireland now plans to make the book available for sale internationally, through Amazon and other retail channels, as well as promoting it more extensively in rheumatology clinics.In October, one of the contributors was interviewed on national television about her RA story, as part of a feature on World Arthritis Day.Conclusion:This campaign gave people living with RA a platform to write about and share about their condition. Fronted by an RA champion with significant name recognition and an enormous audience in her own right, best-selling author, Sinéad Moriarty, the book, My RA Story. Crucially, the book is a valuable resource for people who are newly diagnosed with the disease and uncertain of what the future holds.Acknowledgments:This project was supported by an educational grant from MSD.Disclosure of Interests:Brian Lynch Grant/research support from: Arthritis Ireland received a grant from MSD to develop this patient education programme. Brian Lynch has not benefited personally in any way.

scholarly journals Empathy Cultivation through (Pro)Social Media: A Counter to Compassion Fatigue

2021 ◽  
Vol 2 (4) ◽  
pp. 819-829
Author(s):  
Jessica Roberts
Keyword(s):  
New York ◽  
Social Media ◽  
Compassion Fatigue ◽  
Media Coverage ◽  
Positive Emotions ◽  
Emotional Impact ◽  
News Stories ◽  
Linguistic Inquiry Word Count ◽  
Social Empathy ◽  
Linguistic Inquiry

While a sizable body of literature suggests that repeated exposure to images of suffering may provoke compassion fatigue and news avoidance in audiences, this paper examines whether a different kind of representation can allow viewers to connect with the subjects of media coverage, cultivating empathy for them. The hope is that understanding the emotional impact of the way people are represented in news stories will help journalists better serve the public’s need for what Schudson called “social empathy”, “stories that—often in a human-interest vein—inform citizens about neighbors and groups they may not know or understand” and create a space where audiences can express positive emotions about their fellow citizens. This paper considers the reactions of followers of the “Humans of New York” (HONY) social media feed to the subjects of the feed’s posts, who are not portrayed as tragic victims, but humanized through portrayals of commonplace concerns, such as family, career, and romantic relationships. Comments on more than 8000 HONY posts over a year were analyzed using the Linguistic Inquiry Word Count program. Results indicate that comments on HONY are overwhelmingly positive and socially oriented, suggesting that this type of representation may be effective in countering compassion fatigue and allowing for better social connection.

Emotional Impact Feedback Changes How We Remember Negative Autobiographical Experiences

2010 ◽  
Vol 57 (5) ◽  
pp. 354-359 ◽  
Author(s):  
Melanie K. T. Takarangi ◽  
Deryn Strange
Keyword(s):  
Well Being ◽  
The Other ◽  
Personal Perspective ◽  
Emotional Impact ◽  
Potential Mechanism ◽  
Negative Experiences ◽  
Negative Memory ◽  
The Relationship ◽  
Negative Memories ◽  
Over Time

When people are told that their negative memories are worse than other people’s, do they later remember those events differently? We asked participants to recall a recent negative memory then, 24 h later, we gave some participants feedback about the emotional impact of their event – stating it was more or less negative compared to other people’s experiences. One week later, participants recalled the event again. We predicted that if feedback affected how participants remembered their negative experiences, their ratings of the memory’s characteristics should change over time. That is, when participants are told that their negative event is extremely negative, their memories should be more vivid, recollected strongly, and remembered from a personal perspective, compared to participants in the other conditions. Our results provide support for this hypothesis. We suggest that external feedback might be a potential mechanism in the relationship between negative memories and psychological well-being.

Examining the accuracy of estimated smartphone use: How well-being and usage level predict discrepancies between estimated and actual use

2019 ◽  
Author(s):  
Craig Sewall ◽  
Daniel Rosen ◽  
Todd M. Bear
Keyword(s):  
Public Health ◽  
Social Media ◽  
Life Satisfaction ◽  
Mobile Device ◽  
Screen Time ◽  
Well Being ◽  
Actual Use ◽  
Smartphone Use ◽  
Usage Level

The increasing ubiquity of mobile device and social media (SM) use has generated a substantial amount of research examining how these phenomena may impact public health. Prior studies have found that mobile device and SM use are associated with various aspects of well-being. However, a large portion of these studies relied upon self-reported estimates to measure amount of use, which can be inaccurate. Utilizing Apple’s “Screen Time” application to obtain actual iPhone and SM use data, the current study examined the accuracy of self-reported estimates, how inaccuracies bias relationships between use and well-being (depression, loneliness, and life satisfaction), and the degree to which inaccuracies were predicted by levels of well-being. Among a sample of 393 iPhone users, we found that: a.) participants misestimated their weekly overall iPhone and SM use by 22.1 and 16.6 hours, respectively; b.) the correlations between estimated use and well-being variables were consistently stronger than the correlations between actual use and well-being variables; and c.) the amount of inaccuracy in estimated use is associated with levels of participant well-being as well as amount of use. These findings suggest that estimates of device/SM use may be biased by factors that are fundamental to the relationships being investigated. **This manuscript is currently under review**

Revolutionizing Mental Health with Social Media

2019 ◽  
pp. 259-284
Author(s):  
Munmun De Choudhury
Keyword(s):  
Social Media ◽  
Well Being ◽  
Linguistic Expression ◽  
Ethical Considerations ◽  
Self Disclosure ◽  
Vulnerable Communities ◽  
Tailored Interventions ◽  
Challenges And Opportunities ◽  
Social Media Platforms

Social media platforms have emerged as rich repositories of information relating to people’s activities, emotions, and linguistic expression. This chapter highlights how these data may be harnessed to reason about human mental and psychological well-being. It also discusses the emergent role of social media in providing a platform of self-disclosure and support to distressed and vulnerable communities. It reflects on how this new line of research bears potential for informing the design of timely and tailored interventions, provisions for improved personal and societal well-being assessment, privacy and ethical considerations, and the challenges and opportunities of the increasing ubiquity of social media.

scholarly journals Young adults’ coping strategies against loneliness during the COVID-19-related quarantine in Greece

2021 ◽  
Author(s):  
Adrianos Golemis ◽  
Panteleimon Voitsidis ◽  
Eleni Parlapani ◽  
Vasiliki A Nikopoulou ◽  
Virginia Tsipropoulou ◽  
...  
Keyword(s):  
Social Media ◽  
Young Adults ◽  
Social Responsibility ◽  
Coping Strategies ◽  
Online Survey ◽  
Adult Population ◽  
Psychological Impact ◽  
Well Being ◽  
Daily Routine ◽  
Cross Sectional

Summary COVID-19 and the related quarantine disrupted young adults’ academic and professional life, daily routine and socio-emotional well-being. This cross-sectional study focused on the emotional and behavioural responses of a young adult population during the COVID-19-related quarantine in April 2020, in Greece. The study was conducted through an online survey. A total of 1559 young adults, aged 18−30 years, completed Steele’s Social Responsibility Motivation Scale and the De Jong Gierveld Loneliness Scale, and answered questions about compliance with instructions, quarantine-related behaviours and coping strategies. According to the results, participants displayed a relatively high sense of social responsibility (M = 16.09, SD = 2.13) and a trend towards moderate feeling of loneliness (M = 2.65, SD = 1.62); young women reported significantly higher levels of loneliness than men. The majority complied with instructions often (46.4%) or always (44.8%). Significantly more women created a new social media account and used the social media longer than 5 h/day, compared with men. Resorting to religion, practicing sports and sharing thoughts and feelings about COVID-19 with others predicted higher levels of social responsibility; humour, practicing sports and sharing thoughts and feelings about COVID-19 with others predicted lower levels of loneliness. Conclusively, COVID-19 is expected to have a significant psychological impact on young adults. Currently, Greece is going through the second quarantine period. This study raises awareness about loneliness in young adults during the COVID-19-related quarantine and highlights the importance of developing online programmes, attractive to younger people, to nurture adaptive coping strategies against loneliness.

scholarly journals Understanding the Emotional Impact of GIFs on Instagram through Consumer Neuroscience

2021 ◽  
Vol 11 (8) ◽  
pp. 108
Author(s):  
Idoia Rúa Hidalgo ◽  
Maria Galmes-Cerezo ◽  
Carmen Cristofol-Rodríguez ◽  
Irene Aliagas
Keyword(s):  
Social Media ◽  
Emotional Valence ◽  
Marketing Strategies ◽  
Emotional Impact ◽  
Media Campaigns ◽  
Biometric Analysis ◽  
Neuroscience Research ◽  
Explicit Measure ◽  
Two Phases ◽  
Emotional Level

The ability of GIFs to generate emotionality in social media marketing strategies is analyzed. The aim of this work is to show how neuroscience research techniques can be integrated into the analysis of emotions, improving the results and helping to guide actions in social networks. This research is structured in two phases: an experimental study using automated biometric analysis (facial coding, GSR and eye tracking) and an analysis of declared feelings in the comments of Instagram users. Explicit valence, type of emotion, length of comment and proportion of emojis are extracted. The results indicate that the explicit measure of emotional valence shows a higher and more positive emotional level than the implicit one. This difference is influenced differently by the engagement and the proportion of emojis in the comment. A further step has been taken in the measurement of user emotionality in social media campaigns, including not only content analysis, but also providing new insights thanks to neuromarketing.

scholarly journals Stand against anti-Asian racial discrimination during COVID-19: A call for action

2020 ◽  
pp. 002087282097061
Author(s):  
Qin Gao ◽  
Xiaofang Liu
Keyword(s):  
United States ◽  
Social Media ◽  
Racial Discrimination ◽  
Asian Americans ◽  
Well Being ◽  
Political Rhetoric ◽  
The United States ◽  
Psychological Well Being ◽  
Negative Impacts

Racial discrimination against people of Chinese and other Asian ethnicities has risen sharply in number and severity globally amid the COVID-19 pandemic. This rise has been especially rapid and severe in the United States, fueled by xenophobic political rhetoric and racist language on social media. It has endangered the lives of many Asian Americans and is likely to have long-term negative impacts on the economic, social, physical, and psychological well-being of Asian Americans. This essay reviews the prevalence and consequences of anti-Asian racial discrimination during COVID-19 and calls for actions in practice, policy, and research to stand against it.

Social Media and Emotional Well-being: Pursuit of Happiness or Pleasure

2021 ◽  
pp. 1326365X2110037
Author(s):  
D. Guna Graciyal ◽  
Deepa Viswam
Keyword(s):  
Social Media ◽  
Social Networking ◽  
Virtual World ◽  
Mixed Methods Research ◽  
Well Being ◽  
Pursuit Of Happiness ◽  
Social Dysfunction ◽  
Combining Data ◽  
Social Media Platforms ◽  
Depth Interviews

Virtual engagement of lives has been made possible with the advent of social media. Almost 80% of the day are spent virtually on Facebook, Instagram, Twitter, YouTube, Snapchat, etc. Usage of social media to connect to and communicate with the ones we care about is always healthy, termed as social networking. Social dysfunction occurs when the constant communication leads to the point where our real or offline life gets replaced by virtual or online life. There is a slight boundary between social networking and social dysfunction. When social networking is advantageous, social dysfunction affects emotional well-being. When emotional well-being is affected, many users experience a compulsion to dissociate from the real world as they find virtual world, full of fantasy and enjoyment. When the Internet was created, perhaps no one was aware of its potential. More than the convenience for sharing of information it has brought the world so close to crumbling the geographical boundaries. The more people-to-people communication is, the more is the strengthening of relationships, bonds grow stronger with ‘more’ social media platforms. Being on ‘more’ social media platforms has become a benchmark for living amidst the younger generation. Either as an activity of happiness or as an activity of pleasure, users tend to use social media at varying levels. This paper aims to conceptualize the the intricacies of social media in young lives and to discern whether their association is happiness or pleasure activity. The research method of this paper has a mixed-methods research design combining data from structured survey with information outputs from in-depth interviews.

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