scholarly journals When young children grieve: Supporting daycare children following bereavement—A parent’s perspective

2021 ◽  
pp. 003022282199770
Author(s):  
Martin Lytje ◽  
Atle Dyregrov
Keyword(s):  
Young Child ◽  
Young Children ◽  
Parental Care ◽  
Support Needs ◽  
Life Situation ◽  
Structured Interviews ◽  
Care Burden ◽  
Grief Support ◽  
Proactive Support ◽  
Understanding Of Illness

Thirteen parents who lost the mother or father to their child were interviewed, using semi-structured interviews. Participants reflect on their young children’s (3–6) grief, support needs, and what they learned from this trying time. The event scarred all participants. While some moved on, others were still struggling years after. The study uncovers difficulties associated with informing a young child, with a limfited understanding of illness and loss, in a life-situation where parents themselves are clinging to hope. While support is available from daycare, it can be better organised and structured. Proactive support that assists the child through illness and death relieves the parental care burden.

We Speak a Different Language: End-of-Life and Bereavement Experiences of Older Lesbian, Gay, and Bisexual Women Who Have Lost a Spouse or Partner

2021 ◽  
pp. 104973232110028
Author(s):  
Korijna G. Valenti ◽  
Leah M. Janssen ◽  
Susan Enguidanos ◽  
Kate de Medeiros
Keyword(s):  
End Of Life ◽  
Health Care Professionals ◽  
Support Needs ◽  
Bisexual Women ◽  
Compassionate Care ◽  
Structured Interviews ◽  
Grief Support ◽  
Care Practices ◽  
And Bisexual ◽  
Purposive Sample

We examine the end-of-life (EOL) experiences, communications, and grief support during and after their loved one’s death of older lesbian, gay, and bisexual women (LGB) ages 60 to 85 who have lost a spouse or partner. Queer gerontology was used as a theoretical framework, and descriptive qualitative analytical methods were used to discern themes. Through semi-structured interviews with a purposive sample of 16 participants, we identified two main themes: Gathering the Women and Compassionate Care. Although older LGB women may have some similar support needs as non-LGB adults, other needs are distinct but often unmet. While our participants’ interactions with health care professionals were overtly positive, there was often a lack of communication about grief resources, including lesbian and women-specific grief groups. Overall researchers, policymakers, and practitioners should be mindful of the importance of fully integrating and including populations into their care practices to avoid creating systems of superficial tolerance.

Cancer treatment decisions for people living with dementia: experiences of family carers

2020 ◽  
Vol 70 (suppl 1) ◽  
pp. bjgp20X711545
Author(s):  
Catherine Hynes ◽  
Caroline Mitchell ◽  
Lynda Wyld
Keyword(s):  
Cancer Treatment ◽  
Healthcare Professionals ◽  
Cancer Recurrence ◽  
Treatment Decisions ◽  
Support Needs ◽  
Family Carers ◽  
Structured Interviews ◽  
Power Of Attorney ◽  
Cancer Data ◽  
People With Dementia

BackgroundDementia and cancer are both diseases associated with older age. The National Cancer Data Audit in England found that 4.4% of people diagnosed with cancer also had cognitive impairment. Decisions about cancer treatment can be very complex when someone already has dementia. Often someone’s closest relative may be asked to make decisions on their behalf. Little is known about the psychosocial impact that this has on carers, or what their support needs are during this time.AimTo explore the experiences of family carers who have been involved in making cancer treatment decisions on behalf of a relative with dementia, in particular identifying challenges and support needs.MethodThe authors are conducting semi-structured interviews with carers of people with dementia who have been involved in making decisions about cancer treatment on their behalf. Data is being thematically analysed using an inductive approach. Two researchers will independently verify themes.ResultsThe authors expect to have completed 14–18 interviews and will report their preliminary findings. Family carers experience many difficulties in the context of cancer and dementia, including lack of support when coping with the aftereffects of cancer treatment, lack of awareness among healthcare professionals regarding the authority granted by a lasting power of attorney and the anxiety created by feeling responsible for identifying cancer recurrence.ConclusionThis study will highlight that supporting someone with dementia through cancer treatment, and having to make decisions about it on their behalf, creates unique challenges for carers. Currently there is a significant lack of support for those facing this distressing experience.

scholarly journals 4580 Development of a play-based coaching intervention to improve quality of life and wellbeing for mothers with cancer and their young children

2020 ◽  
Vol 4 (s1) ◽  
pp. 27-27
Author(s):  
Rosa Roman-Oyola ◽  
Anita Bundy ◽  
Eida Castro ◽  
Osiris Castrillo
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Depression Symptoms ◽  
Improve Quality ◽  
Structured Interviews ◽  
Yield Data ◽  
Implementation Phase ◽  
Coaching Intervention ◽  
Phase 1B

OBJECTIVES/GOALS: Mothers with cancer who have young children experience life disruptions when treatment procedures limit mother-child interactions. This study proposes the development of an intervention combining the Coaching approach with the Model of Playfulness to improve Quality of Life (QoL) and wellbeing of these patients and their young children. METHODS/STUDY POPULATION: This embedded mixed method study will be guided by the two initial phases of the ORBIT Model for the development of behavioral interventions for patients with chronic diseases. Participants will be mothers in the post-acute treatment stage of cancer (n = 6) and their children who are between 2 years and a half and 6 years, 11 months. Phase 1A, Definition, builds on qualitative data from a concurrent study exploring the experiences of mothers with cancer playing with their young children. As part of this phase, we will develop a play-based coaching intervention. In Phase 1B, Refinement, we will employ in-depth semi-structured interviews and standardized tools to evaluate acceptability of the intervention and preliminary outcomes. This will serve to further refine the intervention. RESULTS/ANTICIPATED RESULTS: Phase 1A will yield a plan for the intervention and data to enhance its initial implementation. Phase 1B will yield data, from the perspective of the mothers, about acceptability of the intervention procedures (e.g., delivery strategy, place for the intervention, time devoted, and outcome measures). This will enable modifications to the intervention. Additionally, Phase IB will yield preliminary data from specific QoL and wellbeing measures. For the mother, data about anxiety and depression symptoms, stress levels, and parental self-efficacy; for the child, emotional and behavioral indicators; for both: playfulness. DISCUSSION/SIGNIFICANCE OF IMPACT: This study entails the development of an intervention to enhance QoL and wellbeing of mothers with cancer and their children. Play moments as the centerpiece of the intervention, represent an innovative approach. Findings will guide the design of future feasibility studies to advance the development of this outcome driven intervention.

scholarly journals ‘I was really, really shocked’: A sociological exploration of the transition experiences of English Youth Academy male footballers from school to work

2021 ◽  
pp. 101269022110054
Author(s):  
Nicola Hague ◽  
Graeme Law
Keyword(s):  
Young Children ◽  
Children And Adolescents ◽  
Thematic Analysis ◽  
School To Work ◽  
Structured Interviews ◽  
Professional Career ◽  
Professional Experiences ◽  
Transitional Experiences ◽  
The World ◽  
Different Types

The world of football arguably brings together and unites people in support of their teams and countries, while inspiring young children and adolescents to dream of a professional career. Existing research in the field has sought to begin to understand what professional footballers experience on their journey through the game. However, much of this UK-based research has focused on first team players and their professional experiences, including transitions from youth team to first team and to retirement. This study, therefore, aimed to examine players during their youth academy scholarship at one English Championship club. This study focused on the transitional experiences of youth players from school to the academy and their resulting embodying of a footballer’s identity. Twelve semi-structured interviews with players aged 17–19, were conducted and then analysed by thematic analysis using figurational sociology concepts. Three different types of transition were identified. Among other reasons, early specialisation in football was a prevalent factor that partly influenced the way the players experienced their transition. The transition into the academy coincided with the transition from youth to adulthood that was arguably anything but linear as players managed the dominant sub-cultures present in the club.

scholarly journals Young children’s information-seeking practices in center-based childcare

2021 ◽  
pp. 096100062096216
Author(s):  
Sarah Barriage
Keyword(s):  
Young Children ◽  
Information Seeking ◽  
Day Care ◽  
Participant Observation ◽  
Photo Elicitation ◽  
Structured Interviews ◽  
Information Practices ◽  
The Usa ◽  
Concept Of Information ◽  
Classroom Resources

Many children in the USA spend a significant amount of time in center-based childcare. However, research has yet to explore their information practices in this setting. This study investigates young children’s perceptions of the concept of information and their own information-seeking practices within the context of their day care classroom. The participants included 13 children between three and five years of age. Data was collected using participant observation, semi-structured interviews, child-led photo tours, and photo-elicitation interviews. The findings indicate that the children did not perceive the concept of information in a manner consistent with adult understandings of the term, and that they engaged in information-seeking related to finding out new things on their own, through interactions with others, and through classroom resources, activities, and routines. The findings have implications for both researchers and practitioners working with young children.

scholarly journals Diet, Nutrition, and Oral Health: What Influences Mother’s Decisions on What to Feed Their Young Children?

2021 ◽  
Vol 18 (15) ◽  
pp. 8159
Author(s):  
Amit Arora ◽  
Louise Chew ◽  
Kaye Kang ◽  
Lily Tang ◽  
Mohamed Estai ◽  
...  
Keyword(s):  
Young Children ◽  
Food Choices ◽  
Time Constraints ◽  
Birth Cohort Study ◽  
Critical Factors ◽  
Structured Interviews ◽  
Educational Materials ◽  
Nutrition And Health ◽  
Access To Health ◽  
Study Participants

The purpose of this study was to learn about mothers’ experiences with food choices for their pre-school children in underprivileged communities in Greater Western Sydney (GWS). A total of 20 mother-child dyads living in GWS were recruited to a qualitative study from an ongoing birth cohort study. Participants’ houses were visited for semi-structured interviews, which were recorded, transcribed verbatim, and analysed thematically. The interviews yielded five main themes: (i) food choices, nutrition, and health; (ii) accessibility and availability of foods (iii) buying time for parents; (iv) child’s age and their preference on food choices; (v) conditioning certain behaviours by family and cultural factors. Nutrition literacy, child’s preferences, unhealthy food intake by family members, child’s demand, advertising and availability of harmful foods, and time constraints were all mentioned as hurdles to mothers making appropriate meal choices for their children. However, some identified facilitators were promoting parents’ knowledge, increasing access to health educational materials, upskilling mothers to providing healthier alternatives, regulating the marketing of unhealth foods. Although, the present study identified critical factors that influence mothers’ food choices for their young children, making healthy food choices is a complex practice as it is shaped by individual, social and environmental influences.

scholarly journals Meanings of Family Support in the Treatment of Drug Dependence

2018 ◽  
Vol 28 (0) ◽  
Author(s):  
Laís Ramos Sanches ◽  
Tassiana Gonçalves Constantino dos Santos ◽  
Thaísa Borges Gomes ◽  
Marcelo Dalla Vecchia
Keyword(s):  
Social Support ◽  
Family Support ◽  
Family Involvement ◽  
Drug Dependence ◽  
Support Needs ◽  
Family Participation ◽  
Structured Interviews ◽  
Problematic Use ◽  
The Family ◽  
Alcohol And Other Drugs

Abstract The family is a key element of social support in the treatment of people who experience problems resulting from the use of alcohol and other drugs. This article aimed to understand the meanings of individuals under treatment due to the problematic use of alcohol and other drugs in relation to family participation. Six semi-structured interviews were carried out with people who adhered or not to the treatment proposed by an institution similar to a therapeutic community, analyzed later by analysis of thematic content. It was possible to observe (a) the low family involvement during the treatment, (b) the stigmatization and the individualization of the problematic use of alcohol and other drugs, and (c) the care focused on the figure of women. Guidance, listening and support needs for family members need to be properly examined during treatment to promote adherence.

scholarly journals THE DIALOGICAL EXPERIENCE OF BEING A MOTHER OF A CHILD AND A NURSE IN THE COVID-19 PANDEMIC

2020 ◽  
Vol 29 ◽  
Author(s):  
Diene Monique Carlos ◽  
Monika Wernet ◽  
Aline Cristiane Cavicchioli Okido ◽  
Wanderlei Abadio de Oliveira ◽  
Aline Oliveira Silveira ◽  
...  
Keyword(s):  
Open Access ◽  
Data Collection ◽  
Parental Care ◽  
Research Study ◽  
Family Relationship ◽  
Institutional Support ◽  
Qualitative Approach ◽  
Structured Interviews ◽  
Institutional Policies ◽  
Virtual Communication

ABSTRACT Objective: to understand the experience of being a mother of a child and a nurse working in the COVID-19 pandemic. Method: a research study with a qualitative approach, conducted with 17 participants from different cities of the state of São Paulo, Brazil. Data collection took place in the months of April and May 2020, through semi-structured interviews conducted via an open access virtual communication platform. The data were thematically analyzed, based on the Complexity Paradigm. Results: the absence and mismatch of scientific and systematic information at the beginning of the pandemic, the fragile institutional support, and the concern of contamination of the children generated stress and anguish in the mother-nurses. The support previously offered by schools and family members was hindered by the pandemic, leading to a greater demand for parental care. Creative strategies to provide distraction, as well as religiousness and spirituality were valued to face the chaos experienced. Conclusion: nurses, while being valued as important frontline professionals in the fight against the pandemic, are invisible in their personal-affective dimension and in that of being a mother. The study indicates the need for structural institutional policies so that mother-nurses are placed in a position of equality and safety for the full exercise of the profession and a healthy intra-family relationship, especially in contexts of adversity such as that experienced during the COVID-19 pandemic.

scholarly journals The rights and duties of post-adolescent daughters: Daughters' and parents' accounts

Sociologija ◽  
2008 ◽  
Vol 50 (4) ◽  
pp. 391-416 ◽  
Author(s):  
Metka Kuhar
Keyword(s):  
Decision Making ◽  
Adolescent Girls ◽  
Balance Of Power ◽  
Parental Home ◽  
Life Situation ◽  
Structured Interviews ◽  
Biological Parents ◽  
Adolescence Period ◽  
University City ◽  
Insight Into

The article deals with the conceptualisation and negotiation of post-adolescent daughters' rights and duties in their families of origin. More and more young Europeans and particularly many young Slovenians are staying with their parents in the post-adolescence period (and even later) or come home from their university city every weekend. This means that two adult generations live together in the same household; so they have to negotiate the rights and duties of the younger generation in different areas, from very personal domains (e.g. appearance) to more far-reaching life decisions (e.g. the post-study life situation, moving out of the parental home). The study provides at least a partial insight into the processes involved in the negotiation of rights and duties in families with post-adolescent daughters. The data stem from semi-structured interviews conducted in autumn 2006 in Slovenia with 70 first-born post-adolescent girls and both of their biological parents. The respondents answered closed- and open-ended questions referring to four vignettes suggesting controversial situations. The answers allow a view of the conceptualisations of post-adolescents' rights and duties, the distribution of decision-making power and the way of dealing with such situations. The results show that post-adolescent daughters are very dependent on their parents in various areas. It turned out that the contemporary Slovenian family with post-adolescent daughters is prepared to negotiate: patterns of intrafamilial communication range from the traditionally grounded commanding pattern where children have to obey unequivocally (but less than 10% of parents resort to the bare use of authority), to an open, active negotiation pattern where the balance of power is more equal and the achievement of consensus is very important.

Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers

Dementia ◽  
2021 ◽  
pp. 147130122110564
Author(s):  
Deborah Brooks ◽  
Elizabeth Beattie ◽  
Elaine Fielding ◽  
Katy Wyles ◽  
Helen Edwards
Keyword(s):  
Long Term Care ◽  
Intervention Development ◽  
Care Facility ◽  
Spousal Caregivers ◽  
Support Needs ◽  
Structured Interviews ◽  
Term Care ◽  
Long Term Care Facility ◽  
Facility Staff

Background and objectives Many spousal caregivers experience stress, depression, loneliness, guilt and grief when placing a partner with dementia into long-term care. However, there is little research about their transitional support experiences, needs and preferences. This study aimed to gain a deeper understanding of these issues from spousal caregiver and long-term care facility staff perspectives, to inform subsequent support and intervention development. Research design and methods Semi-structured interviews and small group discussions were held separately with spousal caregivers ( n = 9) and care facility staff ( n = 11). Criterion and variation sampling aimed to ensure a range of experiences and perspectives. The ‘Framework’ approach was utilised for data analysis. Interpretation was with respect to underpinning models of stress-grief process in dementia caregiving. Findings A range of informational, psychoeducational and psychosocial supports were identified to help spousal caregivers cope better with the stressors and losses experienced throughout the transition from home to long-term care. Improved education about disease progression, information relating to long-term care provision, peer support and dementia-specific grief counselling were deemed important. Opportunities for better support within care facilities were also identified. Support should be tailored to individual needs and preferences. Discussion and implications The findings suggest a supportive care framework be developed, encompassing the trajectory from assessment for and admission into long-term care to end-of-life and post-bereavement support. Spousal caregivers should have their support needs assessed by trained health or social care professionals and be offered a range of support options as appropriate.

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