Preserving Self: Theorizing the Social and Psychological Processes of Living With Parkinson Disease

2017 ◽  
Vol 27 (7) ◽  
pp. 964-982 ◽  
Author(s):  
Terrie Vann-Ward ◽  
Janice M. Morse ◽  
Kathy Charmaz
Keyword(s):  
Parkinson Disease ◽  
Daily Living ◽  
Disease Status ◽  
Constructivist Grounded Theory ◽  
Stage Theory ◽  
Psychological Processes ◽  
Making Sense ◽  
Loss Of Self ◽  
The Social ◽  
Depth Interviews

The purpose of this constructivist grounded theory article is to identify, explore, and theorize the social and psychological processes used by people with Parkinson disease. Analytic procedures generated the five-stage theory of Preserving self of people with Parkinson disease: (a) making sense of symptoms, (b) defining turning points, (c) experiencing identity dilemmas, (d) reconnecting the self, and (e) envisioning a future. Reminders of former selves and capabilities were painful; participants desperately sought normalcy. Participants developed creative methods for maintaining independence but frequently overestimated their abilities and took risks. Participants were 15 men and 10 women (ages 40–95), most of whom lived with their families. Disease status was ascertained through medication logs and two scales: Hoehn and Yahr staging and Activities of Daily Living. Data included 62 in-depth interviews, nonparticipant observation, and participant photos, videos, and related documents. Recommendations were derived from the theory to support processes of Preserving Self as interventions designed to reduce the loss of self and to enhance Preserving self. These recommendations included developing relationships, teaching expected and unexpected feelings and behaviors, and involvement with sensory integrating activities.

Rhythmanalysis: Rethinking the politics of everyday negotiations in ordinary public spaces

2021 ◽  
pp. 239965442110200
Author(s):  
Marie Gibert-Flutre
Keyword(s):  
Public Spaces ◽  
Daily Basis ◽  
Time Sharing ◽  
Temporal Dimension ◽  
The Public ◽  
Making Sense ◽  
The Social ◽  
Local Actors ◽  
Depth Interviews

The nature of everyday life in metropolitan public spaces is an unprecedented entanglement of activities, emerging from the presence of multiple actors competing for a limited space. Making sense of this complexity is a longstanding challenge in the social sciences: how can such a mesmerizing ‘urban ballet’ be explained in the absence of overall orchestration? I hypothesize thatthis urban rhythm – the temporal alternation of activities in the public spaces of a city – is not neutral, but reveals entrenched power relations which are renegotiated and reaffirmed on a daily basis. Building on the notion of rhythmanalysis, I develop a methodology combining a visual timeline called ‘urban tempo’ with in-depth interviews. I present a case study of a market in pericentral Ho Chi Minh City (Vietnam), where local actors negotiate access to more or less valuable time slots and spaces throughout the day. I show that such negotiations pertaining to time result in a very practical sense in the production of ordinary public spaces. The findings reveal four types of actors, classified according to their negotiating power. Broadly, the rhythmanalysis presented here reiterates our understanding of power as relational, highlighting the unequal conditions of negotiations in public spaces at a micro-level. By adding a temporal dimension to the politics of the everyday, it also opens up a promising research agenda, inviting comparisons of ‘time-sharing regimes’ across metropolitan contexts.

scholarly journals Making sense of algorithms: Relational perception of contact tracing and risk assessment during COVID-19

2021 ◽  
Vol 8 (1) ◽  
pp. 205395172199521
Author(s):  
Chuncheng Liu ◽  
Ross Graham
Keyword(s):  
Public Health ◽  
Risk Assessment ◽  
Contact Tracing ◽  
Making Sense ◽  
Trade Offs ◽  
The Social ◽  
Citizen Data ◽  
Relational Interactions ◽  
Depth Interviews ◽  
Chinese Public

Governments and citizens of nearly every nation have been compelled to respond to COVID-19. Many measures have been adopted, including contact tracing and risk assessment algorithms, whereby citizen whereabouts are monitored to trace contact with other infectious individuals in order to generate a risk status via algorithmic evaluation. Based on 38 in-depth interviews, we investigate how people make sense of Health Code ( jiankangma), the Chinese contact tracing and risk assessment algorithmic sociotechnical assemblage. We probe how people accept or resist Health Code by examining their ongoing, dynamic, and relational interactions with it. Participants display a rich variety of attitudes toward privacy and surveillance, ranging from fatalism to the possibility of privacy to trade-offs for surveillance in exchange for public health, which is mediated by the perceived effectiveness of Health Code and changing views on the intentions of institutions who deploy it. We show how perceived competency varies not just on how well the technology works, but on the social and cultural enforcement of various non-technical aspects like quarantine, citizen data inputs, and cell reception. Furthermore, we illustrate how perceptions of Health Code are nested in people’s broader interpretations of disease control at the national and global level, and unexpectedly strengthen the Chinese authority’s legitimacy. None of the Chinese public, Health Code, or people’s perceptions toward Health Code are predetermined, fixed, or categorically consistent, but are co-constitutive and dynamic over time. We conclude with a theorization of a relational perception and methodological reflections to study algorithmic sociotechnical assemblages beyond COVID-19.

Pedagang Kaki Lima, Profil Entrepreneurship Sejati, Pelaku Ekonomi Kerakyatan, Ciptakan Jiwa Kewirausahaan Mandiri

2019 ◽  
Vol 20 (1) ◽  
pp. 30-35
Author(s):  
Agus Prasetya
Keyword(s):  
Qualitative Research ◽  
Data Analysis ◽  
Data Display ◽  
Job Seekers ◽  
Street Vendor ◽  
Street Vendors ◽  
The Social ◽  
Collection Data ◽  
Definition Of ◽  
Depth Interviews

This article is motivated by the fact that the existence of the Street Vendor (PKL) profession is a manifestation of the difficulty of work and the lack of jobs. The scarcity of employment due to the consideration of the number of jobs with unbalanced workforce, economically this has an impact on the number of street vendors (PKL) exploding ... The purpose of being a street vendor is, as a livelihood, making a living, looking for a bite of rice for family, because of the lack of employment, this caused the number of traders to increase. The scarcity of jobs, causes informal sector migration job seekers to create an independent spirit, entrepreneurship, entrepreneurship, with capital, managed by traders who are true populist economic actors. The problems in street vendors are: (1) how to organize, regulate, empower street vendors in the cities (2) how to foster, educate street vendors, and (3) how to help, find capital for street vendors (4) ) how to describe grief as a Five-Foot Trader. This paper aims to find a solution to the problem of street vendors, so that cases of conflict, cases of disputes, clashes of street vendors with Satpol PP can be avoided. For this reason, the following solutions must be sought: (1) understanding the causes of the explosions of street vendors (2) understanding the problems of street vendors. (3) what is the solution to solving street vendors in big cities. (4) describe Street Vendors as actors of the people's economy. This article is qualitative research, the social paradigm is the definition of social, the method of retrieving observational data, in-depth interviews, documentation. Data analysis uses Interactive Miles and Huberman theory, with stages, Collection Data, Display Data, Data Reduction and Vervying or conclusions.

The Science and Art of Interviewing

2020 ◽  
Author(s):  
Kathleen Gerson ◽  
Sarah Damaske
Keyword(s):  
Social Research ◽  
Research Question ◽  
Research Process ◽  
Social Contexts ◽  
Science And Art ◽  
The Social ◽  
Interview Guide ◽  
Hidden Patterns ◽  
User Friendly ◽  
Depth Interviews

Qualitative interviewing is one of the most widely used methods in social research, but it is arguably the least well understood. To address that gap, this book offers a theoretically rigorous, empirically rich, and user-friendly set of strategies for conceiving and conducting interview-based research. Much more than a how-to manual, the book shows why depth interviewing is an indispensable method for discovering and explaining the social world—shedding light on the hidden patterns and dynamics that take place within institutions, social contexts, relationships, and individual experiences. It offers a step-by-step guide through every stage in the research process, from initially formulating a question to developing arguments and presenting the results. To do this, the book shows how to develop a research question, decide on and find an appropriate sample, construct an interview guide, conduct probing and theoretically focused interviews, and systematically analyze the complex material that depth interviews provide—all in the service of finding and presenting important new empirical discoveries and theoretical insights. The book also lays out the ever-present but rarely discussed challenges that interviewers routinely encounter and then presents grounded, thoughtful ways to respond to them. By addressing the most heated debates about the scientific status of qualitative methods, the book demonstrates how depth interviewing makes unique and essential contributions to the research enterprise. With an emphasis on the integral relationship between carefully crafted research and theory building, the book offers a compelling vision for what the “interviewing imagination” can and should be.

Property

2020 ◽  
pp. 276-292
Author(s):  
J. E. Penner
Keyword(s):  
Property Rights ◽  
Case Law ◽  
Property Law ◽  
Private Law ◽  
Making Sense ◽  
The Social ◽  
Bundle Of Rights ◽  
High Level

This chapter discusses property law. It considers the idea that property had a “nominalist” ontology, and it was in danger of “disintegration” as a working legal category for that very reason. Nominalism about property has had a significant impact in U.S. case law. The concern here, however, is whether it is a helpful stance to take as a theorist of property. The chapter argues that it is not. There are indeed “high” level abstractions about property which one cannot plausibly do without if one is to understand property rights and property law doctrine. Moreover, the “bundle of rights” (BOR) challenge does not assist one in making sense of these abstractions. The chapter then looks at the conceptual failure of BOR and the New Private Law as it relates to property. BOR is generally regarded as being underpinned by what might be called the Hohfeld-Honoré synthesis. The synthesis rests upon a fairly serious mistake, which is that while the Hohfeldian examination of jural norms is analytic if it is anything, Honor’s elaboration of the incidents making up ownership is anything but—it is functional. This means that Honoré describes the situation of the owner not principally in terms of his Hohfeldian powers, duties, and rights vis-à-vis others, but in terms of the social or economic advantages that an owner has by virtue of his position, and the terms and limitations of those advantages.

scholarly journals Political Vigilante Groups in Ghana: Violence or Democracy?

2020 ◽  
Vol 55 (3) ◽  
pp. 321-338
Author(s):  
Justice Richard Kwabena Owusu Kyei ◽  
Lidewyde H. Berckmoes
Keyword(s):  
Democratic Governance ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Political Field ◽  
Political Actors ◽  
Electoral Campaigns ◽  
The Social ◽  
Group Members ◽  
Organisational Structures ◽  
Depth Interviews

Literature on political vigilante groups has centred on the violence and conflict that emanate from their activities. This article approaches political vigilante groups as political actors who engage in political mobilisation and participation and therewith also contribute to nation state building. It explores how such groups participate in Ghana’s democratic governance and asks whether violence is an inevitable characteristic. The article builds on individual in-depth interviews and focus group discussions with political vigilante group members in Kumasi and Tamale in 2019. Findings show that political vigilante “youth” appeared to refer primarily to the social position attributed to non-elite groups in the political field. Political vigilante groups are multi-faceted in their organisational structures, membership, and activities both during electoral campaigns and during governing periods. While some groups revert to violence occasionally, the study concludes that political vigilante groups, in enabling different voices to be heard, are also contributing to democratic governance.

scholarly journals The construction of leadership practice: Making sense of leader competencies

Leadership ◽  
2021 ◽  
pp. 174271502199649
Author(s):  
Dag Jansson ◽  
Erik Døving ◽  
Beate Elstad
Keyword(s):  
Professional Practice ◽  
Leadership Competencies ◽  
The Self ◽  
Leadership Practice ◽  
Choral Conductors ◽  
Making Sense ◽  
Sensemaking Process ◽  
The Face ◽  
Depth Interviews ◽  
Selection Of

The notion of leadership competencies is a much-debated issue. In this article, we propose that how the leader makes sense of his or her competencies is key to leadership practice. Specifically, we look at how leaders reconcile discrepancies between the self-perceived proficiency of various competencies and their corresponding importance. Empirically, we study leaders within the music domain – how choral conductors make sense of their competencies in the shaping of their professional practice. We investigated how choral leaders in Scandinavia ( N = 638) made sense of their competencies in the face of demands in their working situations. A mixed methodology was used, comprising a quantitative survey with qualitative comments and in-depth interviews with a selection of the respondents. The results show that when choral leaders shape their practice, they frequently face competency gaps that compel them to act or adjust their identity. The key to this sensemaking process is how they move competency elements they master to the foreground and wanting elements to the background. The concept of ‘sensemaking affordance’ is introduced to account for how various leader competency categories are negotiated to safeguard overall efficacy.

scholarly journals Narratives of Change: Identity and Recognition Dynamics in the Process of Moving Away From a Life Dominated by Drug Use

2021 ◽  
pp. 009145092110270
Author(s):  
Inger Eide Robertson ◽  
Hildegunn Sagvaag ◽  
Lillian Bruland Selseng ◽  
Sverre Nesvaag
Keyword(s):  
Drug Use ◽  
Identity Formation ◽  
Recovery Process ◽  
Way Of Life ◽  
Positive Identity ◽  
The Social ◽  
Changing Practices ◽  
Struggle For Recognition ◽  
Depth Interviews

The concepts of identity and recovery capital are recognized as being an embedded part of moving away from a life dominated by drug use. However, the link between these two concepts and the effect of broader social structures, and the normative assumptions underpinning the condition of recovery, is less explored. This article focuses on the social practices of everyday life in the foreground of identity formation, meaning that “who I am” is an inseparable part of “what I do.” A narrative approach was employed to analyze qualitative follow-up data extracted from 48 in-depth interviews with 17 males and females with drug-using experience that were conducted posttreatment on three separate occasions over a period of 2.5 years. Theories of identity formation were employed to analyze the interdependent dynamic between social structure, persona and social resources, and way of life and identity. The analyses identified four narratives related to how people present themselves through the process of changing practices. Following the work of Honneth, we argue that the positive identity formation revealed in these narratives is best understood as a struggle for recognition via the principle of achievement. However, the participants’ self-narratives reflected cultural stories—specified as formula stories—of “normality,” “addiction,” and the “addict,” which work into the concepts of self and confine options of storying experiences during the recovery process. This study demonstrate that the process of recovery is culturally embedded and constitutes a process of adaption to conventional social positions and roles. We suggest challenging dominant discourses related to “addiction as a disease” and “normality” in order to prevent stigma related to drug use and recovery. In so doing, it may contribute to broaden conditions for identity (trans)formation for people in recovery.

scholarly journals Transference of Citizen Science Program Impacts: A Theory Grounded in Public Participation in Scientific Research

Diversity ◽  
2021 ◽  
Vol 13 (8) ◽  
pp. 339
Author(s):  
Louise I. Lynch-O’Brien ◽  
Wayne A. Babchuk ◽  
Jenny M. Dauer ◽  
Tiffany Heng-Moss ◽  
Doug Golick
Keyword(s):  
Citizen Science ◽  
Social Process ◽  
Informal Science Education ◽  
Constructivist Grounded Theory ◽  
Science Program ◽  
Program Leaders ◽  
The Public ◽  
The Social ◽  
Added Benefit

Citizen science is known for increasing the geographic, spatial, and temporal scale from which scientists can gather data. It is championed for its potential to provide experiential learning opportunities to the public. Documentation of educational outcomes and benefits for citizen scientists continues to grow. This study proposes an added benefit of these collaborations: the transference of program impacts to individuals outside of the program. The experiences of fifteen citizen scientists in entomology citizen science programs were analyzed using a constructivist grounded theory methodology. We propose the substantive-level theory of transference to describe the social process by which the educational and attitudinal impacts intended by program leaders for the program participants are filtered by citizen scientists and transferred to others. This process involves individual and external phases, each with associated actions. Transference occurred in participants who had maintained a long-term interest in nature, joined a citizen science program, shared science knowledge and experiences, acquired an expert role to others, and influenced change in others. Transference has implications for how citizen scientists are perceived by professional communities, understanding of the broader impacts and contributions of citizen science to wicked problems, program evaluation, and the design of these programs as informal science education opportunities.

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