scholarly journals A Failed Method? Reflections on Using Audio Diaries in Uganda With Young People Growing Up With HIV in the BREATHER Trial

2018 ◽  
Vol 29 (5) ◽  
pp. 719-730 ◽  
Author(s):  
Sarah Bernays ◽  
Sara Paparini ◽  
Stella Namukwaya ◽  
Janet Seeley
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Randomized Control Trial ◽  
Illness Narratives ◽  
Local Context ◽  
Growing Up ◽  
Diary Method ◽  
Randomized Control ◽  
Living With Hiv

In this article, we present a case study in which we consider our use of the audio diary method with young people (aged 10–24) living with HIV in Uganda in a longitudinal qualitative study conducted in a clinical randomized control trial. Despite initial enthusiasm for the method among participants to capture accounts of participants’ experiences outside of the confines of the HIV clinic, the constraints the young people encountered in accessing sufficient privacy to confidently make recordings meant that no one elected to use them again in the study. Despite the insights the use of the method generated, the lack of acceptability led to its relative failure. This demonstrates that despite the call for innovation, there is an unwavering necessity when selecting methods that they align with the needs and preferences of our participants and with an attentive assessment of the local context in which illness narratives are produced.

scholarly journals A feasibility trial of Power Up: A smartphone app to support patient activation and shared decision making for mental health in young people (Preprint)

2018 ◽  
Author(s):  
Julian Edbrooke-Childs ◽  
Chloe Edridge ◽  
Phoebe Averill ◽  
Louise Delane ◽  
Michael P Craven ◽  
...  
Keyword(s):  
Mental Health ◽  
Decision Making ◽  
Young People ◽  
Shared Decision Making ◽  
Randomized Control Trial ◽  
Patient Activation ◽  
Shared Decision ◽  
Cluster Randomized Control Trial ◽  
Randomized Control ◽  
Cluster Randomized

BACKGROUND Digital tools have the potential to support patient activation and shared decision making in the face of increasing levels of mental health problems in young people. There is a need for feasibility trials of digital interventions to determine the usage and acceptability of interventions. In addition, there is a need to determine the ability to recruit and retain research participants to plan rigorous effectiveness trials and therefore, develop evidence-based recommendations for practice. OBJECTIVE To determine the feasibility of undertaking a cluster randomized control trial to test the effectiveness of a smartphone app, Power Up, co-designed with young people to support patient activation and shared decision making for mental health. METHODS Overall, 270 young people were screened for participation and 53% (N = 142) were recruited and completed baseline measures across eight specialist child mental health services (n = 62, mean (SD) age = 14.66 (1.99) years, 52% female) and two mainstream secondary schools (n = 80; mean (SD) age = 16.88 (0.68) years, 46% female). Young people received Power Up in addition to management as usual or received management as usual only. Post-trial interviews were conducted with 11 young people from the intervention arms (specialist services n = 6; schools n = 5). RESULTS Usage data showed that there were an estimated 50 (out of 64) users of Power Up in the intervention arms. Findings from the interviews indicated that young people found Power Up to be acceptable. Young people reported: 1) their motivation for use of Power Up, 2) the impact of use, and 3) barriers to use. Out of the 142 recruited participants, 45% (64/142) completed follow up measures, and the approaches to increase retention agreed by the steering group are discussed. CONCLUSIONS The findings of the present research indicate that the app is acceptable and it is feasible to examine the effectiveness of Power Up in a prospective cluster randomized control trial. CLINICALTRIAL ISRCTN: ISRCTN77194423, ClinicalTrials.gov NCT02552797

scholarly journals How adolescents understand their values: A qualitative study

2020 ◽  
pp. 135910452096450 ◽  
Author(s):  
Iona Lewis-Smith ◽  
Laura Pass ◽  
Shirley Reynolds
Keyword(s):  
Decision Making ◽  
Young People ◽  
Qualitative Study ◽  
Behaviour Change ◽  
Thematic Analysis ◽  
Personal Values ◽  
Childhood And Adolescence ◽  
Growing Up ◽  
Individual Interviews ◽  
Psychological Therapies

An important component of some psychological therapies is the use of clients’ values to motivate behaviour change. Values are understood to be developed during childhood and adolescence but there has been limited exploration of how young people experience values and their function across contexts. This study aimed to explore adolescents’ understanding of the concept of ‘values’ and to elicit their experiences of values. Semi-structured, individual interviews were conducted with 11 adolescents aged 12–17 years. Thematic analysis was used to identify themes. Young people were readily able to discuss the meaning of ‘values’ and their own personal values. Three main themes were identified: (1) what values are (in general, and specific to themselves), (2) where values come from (relationships, education, growing up), and (3) why values are important (prioritising/decision making, reflecting on values is helpful). The adolescents in this study demonstrated an in-depth understanding of the meaning, origins and functions of values. The results suggest young people may welcome and benefit from opportunities to discuss their values, including in therapy.

scholarly journals Implementasi Prehospital Stroke Scale sebagai Screening Tools Serangan Stroke bagi Komunitas Risiko Tinggi

2020 ◽  
Vol 3 (2) ◽  
pp. 46
Author(s):  
Linda Widyarani ◽  
Cecilya Kustanti
Keyword(s):  
Cohort Study ◽  
Los Angeles ◽  
Qualitative Study ◽  
Literature Review ◽  
Randomized Control Trial ◽  
Screening Tools ◽  
Google Scholar ◽  
Fast Time ◽  
Speech Time ◽  
Randomized Control

Pendahuluan : Stroke merupakan penyebab kematian tertinggi di Indonesia, dengan prosentase 21,1%. Deteksi dini stroke oleh individu berisiko tinggi beserta keluarga (layperson), dengan prehospital stroke scales merupakan konsep utama chain of survivals stroke. Tujuan dari penelitian ini adalah mensintesis artikel-artikel tentang prehospital stroke scales yang dapat diajarkan pada individu berisiko tinggi beserta keluarga (layperson), agar individu berisiko tinggi beserta keluarga (layperson) terbekali dengan baik dan keberhasilan program terapi serta pengobatan dapat optimalMetode : Desain penelitian ini adalah literature review, yaitu menelaah hasil-hasil penelitian sebelumnya pada artikel yang telah terpublikasi. Penelusuran artikel dilakukan melalui PubMed, EBSCO, Science Direct dan Google Scholar. Kriteria inklusi meliputi a) publikasi artikel dalam sepuluh tahun terakhir 2010-2020, b) artikel menggunakan Bahasa Inggris dan memiliki fulltext, c) studi yang terdiri dari randomized control trial, cohort study dan qualitative study, sedangkan kriteria ekslusi meliputi artikel yang tidak memenuhi kriteria inklusi pada penelitian ini.Hasil : Hasil dari sintesis artikel yang telah ditemukan yaitu prehospital stroke scales dengan Cincinnati Prehospital Stroke Scale (CPSS), The Los Angeles Prehopsital Stroke Screen (LAPSS) dan juga Face Arm Speech Time (FAST) time dapat dikampanyekan dan diajarkan pada individu berisiko tinggi beserta keluarga (layperson) agar individu berisiko tinggi beserta keluarga (layperson) terbekali dengan baik dan keberhasilan program terapi.Kesimpulan : Pengobatan dapat optimal sehingga angka morbiditas dan mortalitas pasien stroke dalam diminimalkan.    

scholarly journals Qualitative study of the BREATHER trial (Short Cycle antiretroviral therapy): is it acceptable to young people living with HIV?

BMJ Open ◽  
2017 ◽  
Vol 7 (2) ◽  
pp. e012934 ◽  
Author(s):  
Sarah Bernays ◽  
Sara Paparini ◽  
Janet Seeley ◽  
Stella Namukwaya Kihika ◽  
Diana Gibb ◽  
...  
Keyword(s):  
Antiretroviral Therapy ◽  
Young People ◽  
Qualitative Study ◽  
People Living With Hiv ◽  
Short Cycle ◽  
Living With Hiv

scholarly journals Literacy Geography and Pedagogy

2017 ◽  
Vol 66 (1) ◽  
pp. 53-72 ◽  
Author(s):  
Barbara Comber
Keyword(s):  
Social Justice ◽  
Young People ◽  
Critical Literacy ◽  
Culturally Diverse ◽  
Economic Inequality ◽  
Literacy Education ◽  
Wicked Problem ◽  
Growing Up ◽  
Research Alliances

This article explores the possible relationships between geography, literacy, pedagogy, and poverty. It characterizes poverty as a wicked problem, which sees economic inequality escalating in a number of neoliberal democracies. Key insights from theorists of economic inequality are summarized. The enduring nature of poverty in particular places is noted, and the associated risks of “fickle literacies” are considered. A case study of one child growing up and attending school in a location with intergenerational unemployment is discussed as an example of the risks associated with literacy policy and pedagogy in an era of global educational reform. Drawing on the work of Foucault and Massey, it is argued that despite the discourses of standardization, teachers can continue to educate culturally diverse young people in ways that help them to negotiate and imagine positive and productive ways of learning together. The possibilities for working against deficit views of people in poverty are explored through three classroom examples of place-conscious pedagogies which position young people as critically literate cosmopolitan citizens. The article concludes by advocating the need for translocal research alliances to work explicitly for social justice through place-conscious pedagogies and critical literacy education.

Teens and Territory in 'Post-Conflict' Belfast

2017 ◽  
Author(s):  
Madeleine Leonard
Keyword(s):  
Young People ◽  
City Centre ◽  
Growing Up ◽  
Political Consequences ◽  
Post Conflict ◽  
The Social ◽  
People’S Attitudes ◽  
Insight Into

This book provides a timely and necessary response to the neglect of the perceptions and experiences of young people growing up in ‘post conflict’ societies using Belfast as a case study. Despite a great deal of research on the social, economic and political consequences of sectarianism in Northern Ireland, few studies have examined young people’s attitudes to and experiences of territory. We still know relatively little about how young people relate to concepts such as space, place and territory in divided societies. This book addresses this vacuum. By presenting a detailed rich ethnographic account of how teenagers living in segregated localities in Belfast access and use local and city centre space, the book contributes to knowledge about the role of young people in both sustaining conflict and overcoming divisions. Teenagers’ spatial practices provide insight into how the regenerated, rebranded, repacked, ‘post conflict’ city is experienced, perceived, negotiated and imagined by a group whose voices are often absent or regarded as peripheral. While the book presents a case study of Belfast, its appeal is not limited to those interested in Ireland. Rather, through this detailed case study, the book aims to address wider questions concerning the role of young people in politically contested societies. The book underlines the need to take on board young people’s ways of seeing and contributes to knowledge about appropriate ways to engage young people in research.

scholarly journals Psychosocial and mental health challenges faced by emerging adults living with HIV and support systems aiding their positive coping: a qualitative study from the Kenyan coast

2021 ◽  
Author(s):  
Moses K. Nyongesa ◽  
Carophine Nasambu ◽  
Rachael Mapenzi ◽  
Hans M. Koot ◽  
Pim Cuijpers ◽  
...  
Keyword(s):  
Mental Health ◽  
Young Adults ◽  
Young People ◽  
Qualitative Study ◽  
Emerging Adults ◽  
Adult Life ◽  
Positive Coping ◽  
The Individual ◽  
Living With Hiv ◽  
Different Levels

Abstract Background: In sub-Saharan Africa, there is little data on the challenges faced by young people living with HIV transitioning into adult life. Adapting the socio-ecological framework, this qualitative study investigated the challenges faced by emerging adults living with HIV from a rural Kenyan setting. Additionally, the study explored support systems that aid positive coping among these young adults. Methods: In April 2018, in-depth interviews were conducted with a convenience sample of 22 young adults living with HIV (12 females), 18-24 years old, from rural Kilifi, coast of Kenya. Data were analyzed thematically using NVIVO 11 software. Results: Young adults living with HIV from this setting face various challenges at different levels of the social ecosystem. At the individual level, key challenges they reported included acceptance of HIV positive status, antiretroviral adherence, economic burden associated with access to healthcare, building an intimate relationship, mental health problems, and HIV status disclosure. At the family level, death of parents, poverty, and being unaccepted were the commonly mentioned challenges. At the community level, socialization difficulties and long waiting time at the HIV clinic were highlighted. HIV stigma and discrimination were frequently reported across the different levels. Economic independence, social support (from families, friends, organizations, healthcare providers and peer meetings), and reliance on spirituality aided positive coping among these young adults amidst the challenges of living with HIV.Conclusions: In this rural setting, emerging adults living with HIV face various challenges at the individual, family, and community level, some of which are cross-cutting. Our findings underscore the need for designing multi-level youth-friendly interventions that can address modifiable challenges encountered by emerging adults living with HIV in this and similar settings. Such interventions should incorporate appropriate context-specific support structures that may help these young people smoothly transit into adult life.

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