scholarly journals Patient and Health Care Provider Needs and Preferences in Understanding Pharmacogenomic and Genomic Testing: A Meta-Data Analysis

2019 ◽  
Vol 30 (1) ◽  
pp. 43-59 ◽  
Author(s):  
Sophie Veilleux ◽  
Maud Bouffard ◽  
Mijanou Bourque Bouliane

Tests that feature genomic indicators can now be used to guide the pharmacological treatment of patients. To better identify the needs and preferences of patients and health care providers in facilitating their understanding of information related to such pharmacogenomic tests (PGx), a review of literature on knowledge translation and health literacy in the context of testing was conducted. Using a grounded theory-based approach, a comparative analysis of data from 36 studies meeting the criteria for the meta-data analysis has revealed the recurrence of three principal themes: (a) knowledge and understanding of genetics and pharmacogenomics; (b) experiences with genetic, genomic, or PGx testing (decision about the test, information delivery, and understanding of test results); and (c) educational/informational resources. This synthesis sheds light on each theme from the standpoint of both patients and health care providers and suggests avenues in which to direct efforts to support the introduction of pharmacogenomic tests in current practice.

2020 ◽  
Vol 18 (4) ◽  
pp. 191-197
Author(s):  
Lisette P. Irarrázabal ◽  
Judith A. Levy ◽  
Rosina Cianelli ◽  
Kathleen F. Norr ◽  
L. Michele Issel ◽  
...  

Objectives: To understand key factors influencing Chilean health care providers’ perceived comfort performing oral rapid HIV testing. Design: One hundred and fifty health care providers completed a self-administered questionnaire that included a five-item scale measuring self-perceived comfort in conducting HIV pretest counseling, oral rapid testing, finger-prick testing, and delivering test results. Results: Most participants (60%) envisioned good overall comfort performing oral rapid HIV testing (mean score of 16.21; range 0-20), including doing at least four of the five steps. They perceived least comfort delivering HIV-positive test results during posttest counseling. HIV stigmatizing attitudes reduced self-perceived comfort. Conclusions: Providing training to counter HIV stigmatization while increasing comfort in performing oral rapid testing would help facilitate its successful implementation.


2007 ◽  
Vol 15 (8) ◽  
pp. 773-791 ◽  
Author(s):  
KAREN E. STC. HAMILTON ◽  
VIVIEN COATES ◽  
BILLY KELLY ◽  
JENNIFER R. P. BOORE ◽  
Jill H. Cundell ◽  
...  

2018 ◽  
Vol 36 (1) ◽  
pp. 13-23 ◽  
Author(s):  
Debra L. Wiegand ◽  
Jooyoung Cheon ◽  
Giora Netzer

Withdrawal of life-sustaining therapy at the end of life is a complex phenomenon. Intensive care nurses and physicians are faced with caring for patients and supporting families, as these difficult decisions are made. The purpose of this study was to explore and describe the experience of critical care nurses and physicians participating in the process of withdrawal of life-sustaining therapy. A hermeneutic phenomenological approach was used to guide this qualitative investigation. Interviews were conducted with critical care nurses and physicians from 2 medical centers. An inductive approach to data analysis was used to understand similarities between the nurses and the physicians’ experiences. Methodological rigor was established, and data saturation was achieved. The main categories that were inductively derived from the data analysis included from novice to expert, ensuring ethical care, uncertainty to certainty, facilitating the process, and preparing and supporting families. The categories aided in understanding the experiences of nurses and physicians, as they worked individually and together to see patients and families through the entire illness experience, withdrawal of life-sustaining therapy decision-making process and dying process. Understanding the perspectives of health-care providers involved in the withdrawal of life-sustaining therapy process will help other health-care providers who are striving to provide quality care to the dying and to their families.


2004 ◽  
Vol 13 (1) ◽  
pp. 32-41 ◽  
Author(s):  
Gerry J. Barker ◽  
Joel B. Epstein ◽  
Karen B. Williams ◽  
Meir Gorsky ◽  
Judith E. Raber-Durlacher

Author(s):  
Ricky Indra Alfaray ◽  
Rahmat Sayyid Zharfan ◽  
Yudhistira Pradnyan Kloping ◽  
Yudith Annisa Ayu Rezkitha ◽  
Rafiqy Sa’adiy Faizun ◽  
...  

Abstract A preliminary study showed that most health workers in primary health care (PHC) claimed that they need a refreshing course because of their lack of updated knowledge and skill. This study enrolled 27 primary healthcare workers recruited from the PHC. The intervention used were classic lectures and workshops. The knowledge was evaluated using a paper-based test and practice, while the skill was evaluated using a practice test. Multiple questions (pre-test and post-test) based on current emergency management for pediatric were used for paper-based evaluation. Semi-structured interviews were conducted to confirm the subject's perspective on the intervention. A paired t-test was used for evaluating the pre- and post-test results, which was confirmed by a triangulation approach. There was a significant difference between the pre- and post-test results (p<0.001), and 8 of 10 subjects can demonstrate the procedure learned correctly after the intervention. A total of 14 interviewed subjects stated great effectiveness of the intervention, with several limitations on applicability in daily clinical practice. Classic lecture and workshop as an intervention in health education effectively increase health workers' knowledge and skill in PHC. This study might help other rural areas PHC apply the same method so the professionalism and quality of health workers in PHC providers can be maintained.Keywords                : primary health care, classic lecture; workshop; knowledge; skillCorrespondence     : [email protected]


2009 ◽  
Vol 142 (5) ◽  
pp. 234-239 ◽  
Author(s):  
Kelly A. Grindrod ◽  
Meagen Rosenthal ◽  
Larry Lynd ◽  
Carlo A. Marra ◽  
David Bougher ◽  
...  

Background: Several practice models have been developed to support pharmacists in providing chronic disease management. However, most of these models have not been readily accepted by pharmacists, which has led to low uptake and short-term change. Methods: Pharmacists were recruited to participate in focus groups held in Alberta and British Columbia. Qualitative methodologies involving a phenomenological approach with content analysis were used to gather and analyze information. Results: In total, 36 pharmacists participated in 8 focus groups. Analysis of their discussions revealed 4 main themes: the current practice environment and the need for education about, remuneration for and a plan for the implementation of chronic disease management services. Participants cited several challenges to the provision of this type of care, as experienced in the current practice environment: time constraints; relationships with physicians, patients and employers; limited access to clinical information; and absence of a model for chronic disease management in pharmacy practice. However, these perceptions were not universal, and pharmacists with experience in this area described some of these commonly cited “challenges” (e.g., relationships with physicians) as enablers in their own practices. In addition, staff pharmacists, regional managers and owners often had differing opinions about the key challenges and the role of remuneration. Conclusion: Some of the perceived challenges to providing chronic disease management described by staff pharmacists were not consistently supported by employers or those with experience in this practice area. This observation suggests that the greatest challenge to developing a successful model of chronic disease management for pharmacists lies in pharmacists' own perceptions about their relationships with other health care providers and their own role as health care professionals. These issues must be addressed if the practice of pharmacy is to move forward.


Author(s):  
Gloria Duke

End - of - life care is encumbered with many complex issues that can impede quality of life, especially in populations for which little is known. This study addresses spirituality and preferences for last days of life in persons born in Japan and living in eastern and south central Texas. Descriptive, qualitative methods were used for data collection and data analysis. Two major themes emerged for spirituality: Spirituality as Culture and Universality of Spirituality, and three major themes reflected preferences for the last days of life: Environmental Peace and Comfort, Interconnectedness, and Communication is Key. Nurses and health care providers can use this evidence to facilitate quality of life for these persons and their loved ones to achieve a peaceful an d dignified death. K.


2014 ◽  
Vol 26 (02) ◽  
pp. 1450020 ◽  
Author(s):  
Mohammed A. Al-Zoube ◽  
Yazan A. Alqudah

The advent of cloud computing and the ubiquity of broadband wireless coverage and wide spread usage of smart phones around the world carries the potential for transforming health care services, reducing health care cost and ensuring faster care for urgent cases. To these objectives, we present a cloud-based mobile health monitoring solution that takes advantage of cloud infrastructure and mobile processing capability to address the rising cost of health care monitoring. The solution enables health care providers to remotely analyze, monitor and diagnose patient's data. The solution integrates a powerful data analysis tool, cloud computing and mobile services. This paper presents a proof of concept that has been developed to monitor, record and analyze heart rate. The design enables a physician to develop custom analysis and monitoring to collect key indicator or set alerts without a need for infrastructure implementations to store or transfer the data.


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