Patient-initiated approach to prevent oxaliplatin induced peripheral neuropathy: A social media experiment.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e16140-e16140
Author(s):  
Dana Cardinas ◽  
Manju George ◽  
Amber Norton ◽  
Renee Gentzel
Keyword(s):  
Clinical Trial ◽  
Social Media ◽  
Peripheral Neuropathy ◽  
Standard Of Care ◽  
Medical Community ◽  
Entire Group ◽  
Caregiver Support ◽  
Large Patient ◽  
Use Of Social Media ◽  
Hands And Feet

e16140 Background: Oxaliplatin continues to be the standard of care in the adjuvant and palliative setting in colorectal cancer (CRC). Although effective in CRC treatment, it is associated with a high risk of chemotherapy induced peripheral neuropathy (CIPN), which can debilitate the patient, prevent completion of care, and deteriorate their quality of life. Methods: Colontown is a Facebook-based CRC patient and caregiver support, education and advocacy group. Live Wire, a Colontown neighborhood that was formed in 2018 to help members manage CIPN, consists of over 700 CRC patients. One member of this group applied ice on hands and feet (‘icing’) during oxaliplatin infusion to limit exposure to chemotherapy via cold-induced vasoconstriction. The member was able to prevent CIPN, gaining the attention of the entire group. Results: Subsequently, popularization of icing occurred, as administrators communicated patient experiences and relayed published results on the effect of oral icing to patients. Several Colontown members voluntarily tried it during their chemotherapy, and reported successful outcomes. Live Wire created an “icing protocol” and distributed it to patients, oncologists, and care teams, both in-person and on social media (sm). Conclusions: This real-world example highlights the role of educated patient advocates on sm. Working with these groups directly can provide insights for the medical community on measures patients can do to prevent chemotherapy-associated side effects. The limited publications on icing to prevent CIPN, although promising, have not been enough to make it a recommended standard practice. Meanwhile, voluntary participation using icing for CIPN is growing in Colontown. At this time, Colontown is discussing with oncologists and cancer centers the potential of creating a clinical trial to verify the efficacy icing has during oxaliplatin infusion as a strategy to counter CIPN. Our hope is that this patient-informed icing protocol will be able to guide the design of a clinical trial on icing. Furthermore, with this “experiment”, we hope to illustrate the advantages of serious engagement with a large patient population through the modern use of social media.

scholarly journals The Role of Social Media in Enhancing Clinical Trial Recruitment: Scoping Review (Preprint)

2020 ◽  
Author(s):  
Ida Darmawan ◽  
Caitlin Bakker ◽  
Tabetha A Brockman ◽  
Christi A Patten ◽  
Milton Eder
Keyword(s):  
Clinical Trial ◽  
Social Media ◽  
Clinical Trials ◽  
Trial Participation ◽  
Trial Recruitment ◽  
Recruitment Methods ◽  
Enrollment Rates ◽  
Clinical Trial Recruitment ◽  
Use Of Social Media ◽  
Traditional Approaches

BACKGROUND Recruiting participants into clinical trials continues to be a challenge, which can result in study delay or termination. Recent studies have used social media to enhance recruitment outcomes. An assessment of the literature on the use of social media for this purpose is required. OBJECTIVE This study aims to answer the following questions: (1) How is the use of social media, in combination with traditional approaches to enhance clinical trial recruitment and enrollment, represented in the literature? and (2) Do the data on recruitment and enrollment outcomes presented in the literature allow for comparison across studies? METHODS We conducted a comprehensive literature search across 7 platforms to identify clinical trials that combined social media and traditional methods to recruit patients. Study and participant characteristics, recruitment methods, and recruitment outcomes were evaluated and compared. RESULTS We identified 2371 titles and abstracts through our systematic search. Of these, we assessed 95 full papers and determined that 33 studies met the inclusion criteria. A total of 17 studies reported enrollment outcomes, of which 9 achieved or exceeded their enrollment target. The proportion of participants enrolled from social media in these studies ranged from 0% to 49%. Across all 33 studies, the proportion of participants recruited and enrolled from social media varied greatly. A total of 9 studies reported higher enrollment rates from social media than any other methods, and 4 studies reported the lowest cost per enrolled participant from social media. CONCLUSIONS While the assessment of the use of social media to improve clinical trial participation is hindered by reporting inconsistencies, preliminary data suggest that social media can increase participation and reduce per-participant cost. The adoption of consistent standards for reporting recruitment and enrollment outcomes is required to advance our understanding and use of social media to support clinical trial success.

scholarly journals The Role of Social Media in Enhancing Clinical Trial Recruitment: Scoping Review

10.2196/22810 ◽  
2020 ◽  
Vol 22 (10) ◽  
pp. e22810
Author(s):  
Ida Darmawan ◽  
Caitlin Bakker ◽  
Tabetha A Brockman ◽  
Christi A Patten ◽  
Milton Eder
Keyword(s):  
Clinical Trial ◽  
Social Media ◽  
Clinical Trials ◽  
Trial Participation ◽  
Trial Recruitment ◽  
Recruitment Methods ◽  
Enrollment Rates ◽  
Clinical Trial Recruitment ◽  
Use Of Social Media ◽  
Traditional Approaches

Background Recruiting participants into clinical trials continues to be a challenge, which can result in study delay or termination. Recent studies have used social media to enhance recruitment outcomes. An assessment of the literature on the use of social media for this purpose is required. Objective This study aims to answer the following questions: (1) How is the use of social media, in combination with traditional approaches to enhance clinical trial recruitment and enrollment, represented in the literature? and (2) Do the data on recruitment and enrollment outcomes presented in the literature allow for comparison across studies? Methods We conducted a comprehensive literature search across 7 platforms to identify clinical trials that combined social media and traditional methods to recruit patients. Study and participant characteristics, recruitment methods, and recruitment outcomes were evaluated and compared. Results We identified 2371 titles and abstracts through our systematic search. Of these, we assessed 95 full papers and determined that 33 studies met the inclusion criteria. A total of 17 studies reported enrollment outcomes, of which 9 achieved or exceeded their enrollment target. The proportion of participants enrolled from social media in these studies ranged from 0% to 49%. Across all 33 studies, the proportion of participants recruited and enrolled from social media varied greatly. A total of 9 studies reported higher enrollment rates from social media than any other methods, and 4 studies reported the lowest cost per enrolled participant from social media. Conclusions While the assessment of the use of social media to improve clinical trial participation is hindered by reporting inconsistencies, preliminary data suggest that social media can increase participation and reduce per-participant cost. The adoption of consistent standards for reporting recruitment and enrollment outcomes is required to advance our understanding and use of social media to support clinical trial success.

scholarly journals History of Social Media in Surgery

2017 ◽  
Vol 30 (04) ◽  
pp. 233-239 ◽  
Author(s):  
Cedrek McFadden ◽  
Natalie Tully ◽  
Christian Jones ◽  
Heather Logghe
Keyword(s):  
Social Media ◽  
Minimally Invasive Surgery ◽  
Laparoscopic Surgery ◽  
Minimally Invasive ◽  
Invasive Surgery ◽  
Medical Community ◽  
Professional Networking ◽  
History Of ◽  
Initial Resistance ◽  
Use Of Social Media

AbstractIn many ways, the history of surgeons on Twitter echoes the initial resistance and ultimate mass adoption of laparoscopic surgery that led to the field of minimally invasive surgery. At its inception, social media was similarly met with skepticism and concerns of threats to professionalism. Despite these concerns, numerous surgeons and other physicians pioneered the use of social media to establish a virtual medical community and share scientific knowledge regarding a variety of topics including medical conferences, journal publications, and more. After these initial successes, surgeons' views have evolved, leading to mass adoption of social media and participation on Twitter as a means of professional networking and dissemination of science. This article chronicles that history.

Web-Based Financial Reporting: An Interpretative Model for Corporate Communications on Social Media

2017 ◽  
pp. 79-112
Author(s):  
Paola Ramassa ◽  
Costanza Di Fabio
Keyword(s):  
Social Media ◽  
Financial Reporting ◽  
Building Blocks ◽  
Corporate Communications ◽  
Distinctive Features ◽  
Financial Communication ◽  
Use Of Social Media ◽  
Key Aspects ◽  
And Diffusion ◽  
Interpretative Model

This paper aims at contributing to financial reporting literature by proposing a conceptual interpretative model to analyse the corporate use of social media for financial communication purposes. In this perspective, the FIRE model provides a framework to study social media shifting the focus on the distinctive features that might enhance web investor relations. The model highlights these features through four building blocks: (i) firm identity (F); (ii) information posting (I); (iii) reputation (R); and (iv) exchange and diffusion (E). They represent key aspects to explore corporate communication activities and might offer a framework to interpret to what degree corporate web financial reporting exploits the potential of social media. Accordingly, the paper proposes metrics based on this model aimed at capturing the interactivity of corporate communications via social media, with a particular focus on web financial reporting. It tries to show the potential of this model by illustrating an exploratory empirical analysis investigating to what extent companies use social media for financial reporting purposes and whether firms are taking advantage of Twitter distinctive features of interaction and diffusion.

Maqâṣid Al-Qur’ân In The Interpretation of M. Quraish Shihab About The Verse of Social Media Usage

2020 ◽  
Vol 28 (1) ◽  
pp. 44
Author(s):  
Johar Arifin ◽  
Ilyas Husti ◽  
Khairunnas Jamal ◽  
Afriadi Putra
Keyword(s):  
Social Media ◽  
Law Enforcement ◽  
Quality Of Information ◽  
Media Usage ◽  
Large Group ◽  
Six Elements ◽  
Written Law ◽  
Use Of Social Media ◽  
The Universe

This article aims to explain maqâṣid al-Qur’ân according to M. Quraish Shihab and its application in interpreting verses related to the use of social media. The problem that will be answered in this article covers two main issues, namely how the perspective of maqâṣid al-Qur’ân according to M. Quraish Shihab and how it is applied in interpreting the verses of the use of social media. The method used is the thematic method, namely discussing verses based on themes. Fr om this study the authors concluded that according to M. Quraish Shihab there are six elements of a large group of universal goals of the al-Qur’ân, namely strengthening the faith, humans as caliphs, unifying books, law enforcement, callers to the ummah of wasathan, and mastering world civilization. The quality of information lies in the strength of the monotheistic dimension which is the highest peak of the Qur’anic maqâṣid. M. Quraish Shihab offers six diction which can be done by recipients of information in interacting on social media. Thus, it aims to usher in the knowledge and understanding of what is conveyed in carrying out human mission as caliph, enlightenment through oral and written, law enforcement, unifying mankind and the universe to the ummah of wasathan, and mastery of world civilization

The Use of Social Media by the Botswana Government and Governance of Liquid Communication

Mousaion ◽  
2019 ◽  
Vol 37 (1) ◽  
Author(s):  
Tshepho Lydia Mosweu
Keyword(s):  
Social Media ◽  
Customer Service ◽  
Community Involvement ◽  
Media Content ◽  
Service Access ◽  
Communication Tool ◽  
African Countries ◽  
The World ◽  
The Government ◽  
Use Of Social Media

Social media as a communication tool has enabled governments around the world to interact with citizens for customer service, access to information and to direct community involvement needs. The trends around the world show recognition by governments that social media content may constitute records and should be managed accordingly. The literature shows that governments and organisations in other countries, particularly in Europe, have social media policies and strategies to guide the management of social media content, but there is less evidence among African countries. Thus the purpose of this paper is to examine the extent of usage of social media by the Botswana government in order to determine the necessity for the governance of liquid communication. Liquid communication here refers to the type of communication that goes easily back and forth between participants involved through social media. The ARMA principle of availability requires that where there is information governance, an organisation shall maintain its information assets in a manner that ensures their timely, efficient and accurate retrieval. The study adopted a qualitative case study approach where data were collected through documentary reviews and interviews among purposively selected employees of the Botswana government. This study revealed that the Botswana government has been actively using social media platforms to interact with its citizens since 2011 for increased access, usage and awareness of services offered by the government. Nonetheless, the study revealed that the government had no official documentation on the use of social media, and policies and strategies that dealt with the governance of liquid communication. This study recommends the governance of liquid communication to ensure timely, efficient and accurate retrieval when needed for business purposes.

Social Media Use and Students’ Health-Lifestyle Modification in University of Calabar, Nigeria

2019 ◽  
Vol 5 (1) ◽  
pp. 47
Author(s):  
Ntongha Eni Ikpi ◽  
Veronica Akwenabuaye Undelikwo
Keyword(s):  
Social Media ◽  
Undergraduate Students ◽  
Lifestyle Modification ◽  
Media Use ◽  
Survey Design ◽  
Health Sector ◽  
Positive Health ◽  
Social Media Use ◽  
Health Lifestyle ◽  
Use Of Social Media

The use of social media platforms has over the years become a veritable tool for individuals, groups, institutions and corporate bodies for the promotion of health and wellness. In recent times, social media has become one of the most potent agents of the media through which health issues are addressed as well as generated and disseminated to different populations in society. The study was conducted to examine social media use and students’ health lifestyle modification in the University of Calabar, Nigeria. It sought to determine the extent to which students’ use of social media (Facebook, Twitter, and WhatsApp) influences the modification of their health-related lifestyles such as eating habits, sexual behaviour, cigarette and alcohol consumption, drug use and the engagement in fitness activities. The study adopted a randomized descriptive survey design and used a sample of 300 undergraduate students. The questionnaire was the main instrument used for collection of data while simple percentages and means were used to determine the difference between the expected mean of 2.50 and the observed means across various items in the questionnaire. The results showed that apart from Twitter, social media use by University of Calabar students has significantly influenced the modification of their health lifestyles. Since social media has become a veritable tool for the promotion of positive health lifestyle, effort should be made by government through the health sector to create more awareness among students and the entire population of social media users, on the health benefits accruing from use of social media.

Pembelajaran Integrasi tentang Etika Penggunaan Media Sosial dalam Materi Ajar Pendidikan Agama Islam di Sekolah Menangah Atas

2019 ◽  
Vol 3 (1) ◽  
pp. 72
Author(s):  
Irfan Afandi
Keyword(s):  
Social Media ◽  
Industrial Revolution ◽  
Hate Speech ◽  
Islamic Education ◽  
Learning Models ◽  
Negative Effects ◽  
Education Material ◽  
Use Of Social Media ◽  
The Waves ◽  
Critical Reason

The humanitarian problem in the development of the industrial revolution 4.0 is very complex and is at the stage of worrying. No human being separated from the effect of the waves. High school is active users (user) of the results of the industrial revolution the 4.0. The problem that arises in the use of social media including the demise of expertise, the dissemination of hate speech and fabricated news. Teaching Islamic education material should be able to respond to this by providing normative information in the Qur'an and Hadith so that students can escape from its negative effects. One of the solutions offered was to integrate these materials with integratsi learning models in the themes that have been arranged in the school's learning policy. Integrating this material must through the phases between the awarding phase of learning, information or materials to grow a critical reason, generate hypotheses and generalities.

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