scholarly journals Staying moving, staying strong: Protocol for developing culturally appropriate information for Aboriginal people with osteoarthritis, rheumatoid arthritis, lupus and gout

PLoS ONE ◽  
2021 ◽  
Vol 16 (12) ◽  
pp. e0261670
Author(s):  
Penny O’Brien ◽  
Brooke Conley ◽  
Samantha Bunzli ◽  
Jonathan Bullen ◽  
Juli Coffin ◽  
...  

Introduction Addressing disparities in arthritis care is an important yet unmet health need for Aboriginal and Torres Strait Islander people in Australia (respectfully Aboriginal people herewith). Despite the significant prevalence and burden of arthritis within Aboriginal communities, access to care for arthritis is low. One means to reduce existing disparities in health care is to address current challenges relating to the appropriateness and acceptability of health care information resources for Aboriginal people. Health information sources can help to empower patients and their families to have greater involvement in their care and to engage in self-management of their condition. Despite an extensive range of arthritis information resources being available, currently no resources have been culturally adapted and developed in collaboration with Aboriginal consumers with arthritis. This paper outlines the processes that will be undertaken within the Staying Moving, Staying Strong project. This project aims to develop culturally secure arthritis information for Aboriginal people with osteoarthritis, rheumatoid arthritis, lupus and gout. Methods and analysis The overarching principle guiding this project is cultural security, referring to the incorporation of processes such that the research will not compromise the cultural rights, values and expectations of Aboriginal people. This project will prioritise partnerships, community engagement, community benefit, sustainability, transferability, and capacity building and therefore uphold the cultural rights and values of Aboriginal people. In this six-phase project we will; 1) Establish a community reference group and advisory committee; 2) Explore the health information needs and preferences of Aboriginal people with arthritis; 3) Synthesise the existing key recommendations in high quality clinical practice guidelines on arthritis care; 4) Culturally adapt key clinical recommendations; 5) Develop culturally appropriate arthritis resources and; 6) Qualitatively evaluate the developed resources.

2012 ◽  
Vol 17 (sup2) ◽  
pp. 30-45 ◽  
Author(s):  
Nandita Kapadia-Kundu ◽  
Tara M. Sullivan ◽  
Basil Safi ◽  
Geetali Trivedi ◽  
Sanjanthi Velu

2008 ◽  
Vol 3 (1) ◽  
pp. 78
Author(s):  
Martha Ingrid Preddie

A review of: McKibbon, K. Ann, and Douglas B. Fridsma. “Effectiveness of Clinician-selected Electronic Information Resources for Answering Primary Care Physicians’ Information Needs.” Journal of the American Medical Informatics Association 13.6 (2006): 653-9. Objective – To determine if electronic information resources selected by primary care physicians improve their ability to answer simulated clinical questions. Design – An observational study utilizing hour-long interviews and think-aloud protocols. Setting – The offices and clinics of primary care physicians in Canada and the United States. Subjects – 25 primary care physicians of whom 4 were women, 17 were from Canada, 22 were family physicians, and 24 were board certified. Methods – Participants provided responses to 23 multiple-choice questions. Each physician then chose two questions and looked for the answers utilizing information resources of their own choice. The search processes, chosen resources and search times were noted. These were analyzed along with data on the accuracy of the answers and certainties related to the answer to each clinical question prior to the search. Main results – Twenty-three physicians sought answers to 46 simulated clinical questions. Utilizing only electronic information resources, physicians spent a mean of 13.0 (SD 5.5) minutes searching for answers to the questions, an average of 7.3 (SD 4.0) minutes for the first question and 5.8 (SD 2.2) minutes to answer the second question. On average, 1.8 resources were utilized per question. Resources that summarized information, such as the Cochrane Database of Systematic Reviews, UpToDate and Clinical Evidence, were favored 39.2% of the time, MEDLINE (Ovid and PubMed) 35.7%, and Internet resources including Google 22.6%. Almost 50% of the search and retrieval strategies were keyword-based, while MeSH, subheadings and limiting were used less frequently. On average, before searching physicians answered 10 of 23 (43.5%) questions accurately. For questions that were searched using clinician-selected electronic resources, 18 (39.1%) of the 46 answers were accurate before searching, while 19 (42.1%) were accurate after searching. The difference of one correct answer was due to the answers from 5 (10.9%) questions changing from correct to incorrect, while the answers to 6 questions (13.0%) changed from incorrect to correct. The ability to provide correct answers differed among the various resources. Google and Cochrane provided the correct answers about 50% of the time while PubMed, Ovid MEDLINE, UpToDate, Ovid Evidence Based Medicine Reviews and InfoPOEMs were more likely to be associated with incorrect answers. Physicians also seemed unable to determine when they needed to search for information in order to make an accurate decision. Conclusion – Clinician-selected electronic information resources did not guarantee accuracy in the answers provided to simulated clinical questions. At times the use of these resources caused physicians to change self-determined correct answers to incorrect ones. The authors state that this was possibly due to factors such as poor choice of resources, ineffective search strategies, time constraints and automation bias. Library and information practitioners have an important role to play in identifying and advocating for appropriate information resources to be integrated into the electronic medical record systems provided by health care institutions to ensure evidence based health care delivery.


2015 ◽  
Vol 33 (1) ◽  
pp. 103-119 ◽  
Author(s):  
Grace Ada Ajuwon ◽  
Sunday O. Popoola

Purpose – This study aims to determine the influence of motivational factors: perceived ease of use (PEU), perceived enjoyment (PEJ) and perceived usefulness (PU) on utilisation of Internet health information resources among resident doctors in tertiary health-care institutions in Nigeria. The Internet has become a major source of health information for practitioners and the general public. Despite the availability of health information resources on the Internet, some resources are underutilised. There are numerous studies on Internet use among health-care workers; however, there is a dearth of information on motivational factors influencing utilisation of Internet health information resources among resident doctors in Nigeria. Design/methodology/approach – A descriptive survey design was used. Total enumeration technique was adopted to cover 1,280 resident doctors in 13 tertiary health-care institutions in southwestern Nigeria. A validated, self-administered questionnaire was used for data collection. The questionnaire has four sections covering the demographic profile of the respondents, PEU, PEJ and PU. Four hypotheses were tested at the p < 0.0 1 level of significance. Data were analyzed using descriptive statistics, Pearson product-moment correlation and multiple regression analysis. Findings – There were more males (69.0 per cent) than females (31 per cent); respondents mean age was 34 years. The result revealed that PEU(r = 0.181, p < 0.01), PEJ(r = 0.166, p < 0.01) and PU(r = 0.121, p < 0.01) have significant relationship with utilisation of Internet health information resources by the respondents. Also, PEU, PEJ and PU collectively (F = 15.366, df = 3; 897, p < 0.01) have significant influence on utilisation of Internet health information resources of the respondents. Individually, PEU (B = 0.864, df = 897, t = 3.90, p < 0.01) and PEJ (B = 0.349, df = 897, t = 3.060, p [lt] 0.01) were found to have significant influence on utilisation while PU (B = 0.232, df = 897, t = 1.328, p > 0.01) does not significantly influence the utilisation of Internet health information resource of the respondents. Research limitations/implications – One major implication of this study is that system designers and web content developers should design programs and websites that are compatible with the user’s abilities. Medical librarians have a role to play in providing quality health content that is easy to navigate and pleasurable to use. Both the institutions and the government have a role to play in providing information and communication technology facilities to enable doctors access relevant health information resources easily. Practical implications – Introduction of information literacy training in the residency programme or inclusion as a component of the continuing professional development will enable resident doctors to know relevant online searching tools and search techniques for accessing health information resources which will be useful to their work. This will in turn increase their PU of Internet resources. Health sciences librarians (medical librarians) in the various institutions/centres have a role to play in training resident doctors on how to access, retrieve and evaluate online health information. Librarians should also train resident doctors on how to search evidence-based Medicine resources such as the Cochrane Library and PubMed Clinical Queries and Critical Appraisal of the medical literature to make informed decision in the management of their patients and for research purposes. They should be trained on how to organise bibliographic references using reference manager tools such as Endnote, Zotero or Mendeley. Social implications – The social implication of this findings is that systems that are easy to use should be designed, so that doctors will be able to access relevant information for research and patient care for better health outcomes. The easier and enjoyable the system is to use, the more resident doctors will access and use health information resources to improve their service and save more lives. Originality/value – This study examined three motivational factors (PEU, PEJ and PU) that influence the utilisation of Internet health information resources by resident doctors in tertiary health-care institutions in Nigeria. The result revealed that collectively PEU, PEJ and PU have significant relationship with the utilisation of Internet health information resources, but PEU and PEJ are the main drivers of use of Internet health information resources among the resident doctors studied. This study adds to the literature of motivational factors influencing utilisation of Internet health information resources by resident doctors in southwestern Nigeria. This paper is original because, to the best of our knowledge, there is no other study on motivational factors influencing Internet use among resident doctors in Nigeria.


Author(s):  
Nadine C Wathen ◽  
Roma Harris

Various models of community health information delivery exist in Canada. Spiraling health care costs have many governments seeking to promote more judicious (and presumably more cost-effective) use of health care by consumers. One such method is through centralized, government-run health information services that rely heavily on information and communication technologies.


10.2196/19747 ◽  
2020 ◽  
Vol 22 (12) ◽  
pp. e19747
Author(s):  
Cailbhe Doherty ◽  
Arash Joorabchi ◽  
Peter Megyesi ◽  
Aileen Flynn ◽  
Brian Caulfield

Background The widespread availability of internet-connected smart devices in the health care setting has the potential to improve the delivery of research evidence to the care pathway and fulfill health care professionals’ information needs. Objective This study aims to evaluate the frequency with which physiotherapists experience information needs, the capacity of digital information resources to fulfill these needs, and the specific types of resources they use to do so. Methods A total of 38 participants (all practicing physiotherapists; 19 females, 19 males) were randomly assigned to complete three 20-question multiple-choice questionnaire (MCQ) examinations under 3 conditions in a randomized crossover study design: assisted by a web browser, assisted by a federated search portal system, and unassisted. MCQ scores, times, and frequencies of information needs were recorded for overall examination-level and individual question-level analyses. Generalized estimating equations were used to assess differences between conditions for the primary outcomes. A log file analysis was conducted to evaluate participants’ web search and retrieval behaviors. Results Participants experienced an information need in 55.59% (845/1520) MCQs (assisted conditions only) and exhibited a mean improvement of 10% and 16% in overall examination scores for the federated search and web browser conditions, respectively, compared with the unassisted condition (P<.001). In the web browser condition, Google was the most popular resource and the only search engine used, accounting for 1273 (64%) of hits, followed by PubMed (195 hits; 10% of total). In the federated search condition, Wikipedia and PubMed were the most popular resources with 1518 (46% of total) and 1273 (39% of total) hits, respectively. Conclusions In agreement with the findings of previous research studies among medical physicians, the results of this study demonstrate that physiotherapists frequently experience information needs. This study provides new insights into the preferred digital information resources used by physiotherapists to fulfill these needs. Future research should clarify the implications of physiotherapists’ apparent high reliance on Google, whether these results reflect the authentic clinical environment, and whether fulfilling clinical information needs alters practice behaviors or improves patient outcomes.


2000 ◽  
Vol 16 (1) ◽  
pp. 28-33 ◽  
Author(s):  
Jean A. Bachman ◽  
Patricia Flatley Brennan ◽  
Timothy B. Patrick ◽  
Marjorie Cole

Two hundred ninety-two school nurses in Missouri participated in a mailed survey to aid in the design of SchoolhealthLink a World Wide Web (WWW)–based information service for Missouri school nurses and children. The nurses identified specific health information resources likely to benefit school nurses and school children and prioritized these resources. The school nurses assigned high priority to 11 types of health information resources: individualized health care plans, emergency care plans, communicable disease control plans, acute illness, injuries, communicable diseases, hotline numbers, medications in schools, immunization protocols and standards, community-based health care resources, and Department of Elementary and Secondary Education regulations that affect school nurse practice. The four most common health problems school nurses identified were asthma, attention deficit disorder, diabetes, and head lice. SchoolhealthLink will provide a one-stop WWW-based resource for school nurses and school children.


2012 ◽  
Vol 03 (01) ◽  
pp. 1-13 ◽  
Author(s):  
L. Zach ◽  
Y. An ◽  
P. Dalrymple ◽  
M. Rogers

SummaryBackground: This paper reports on work carried out to elicit information needs at a trans-disciplinary, nurse-managed health care clinic that serves a medically disadvantaged urban population. The trans-disciplinary model provides a “one-stop shop” for patients who can receive a wide range of services beyond traditional primary care. However, this model of health care presents knowledge sharing challenges because little is known about how data collected from the non-traditional services can be integrated into the traditional electronic medical record (EMR) and shared with other care providers. There is also little known about how health information technology (HIT) can be used to support the workflow in such a practice.Objectives: The objective of this case study was to identify the information needs of care providers in order to inform the design of HIT to support knowledge sharing and distributed decision making.Methods: A participatory design approach is presented as a successful technique to specify requirements for HIT applications that can support a trans-disciplinary model of care.Results: Using this design approach, the researchers identified the information needs of care providers working at the clinic and suggested HIT improvements to integrate non-traditional information into the EMR. These modifications allow knowledge sharing among care providers and support better health decisions.Conclusions: We have identified information needs of care providers as they are relevant to the design of health information systems. As new technology is designed and integrated into various workflows it is clear that understanding information needs is crucial to acceptance of that technology.


Author(s):  
Victoria Gallo Stampino

Canada's immigrant and refugee population is a vulnerable group in our health care system with specific information needs. Newcomers to Canada face certain socioeconomic, cultural–linguistic, and systemic barriers to access to health care that government, social agencies, and health care organizations work to overcome. To address some of the communication barriers, many health organizations develop information resources such as online brochures and education handouts. Several organizations offer specifically tailored multilingual publications to meet newcomers' information needs and write them using cross-cultural approaches. However, multilingual health information may be hard to locate and is not readily available through major Canadian consumer Web sites. This article discusses the advantages of sharing multilingual publications online and asks whether a central portal or repository is a possible solution for making publications more widely available across Canada.


2020 ◽  
Author(s):  
Cailbhe Doherty ◽  
Arash Joorabchi ◽  
Peter Megyesi ◽  
Aileen Flynn ◽  
Brian Caulfield

BACKGROUND The widespread availability of internet-connected smart devices in the health care setting has the potential to improve the delivery of research evidence to the care pathway and fulfill health care professionals’ information needs. OBJECTIVE This study aims to evaluate the frequency with which physiotherapists experience information needs, the capacity of digital information resources to fulfill these needs, and the specific types of resources they use to do so. METHODS A total of 38 participants (all practicing physiotherapists; 19 females, 19 males) were randomly assigned to complete three 20-question multiple-choice questionnaire (MCQ) examinations under 3 conditions in a randomized crossover study design: assisted by a web browser, assisted by a federated search portal system, and unassisted. MCQ scores, times, and frequencies of information needs were recorded for overall examination-level and individual question-level analyses. Generalized estimating equations were used to assess differences between conditions for the primary outcomes. A log file analysis was conducted to evaluate participants’ web search and retrieval behaviors. RESULTS Participants experienced an information need in 55.59% (845/1520) MCQs (assisted conditions only) and exhibited a mean improvement of 10% and 16% in overall examination scores for the federated search and web browser conditions, respectively, compared with the unassisted condition (<i>P</i>&lt;.001). In the web browser condition, Google was the most popular resource and the only search engine used, accounting for 1273 (64%) of hits, followed by PubMed (195 hits; 10% of total). In the federated search condition, Wikipedia and PubMed were the most popular resources with 1518 (46% of total) and 1273 (39% of total) hits, respectively. CONCLUSIONS In agreement with the findings of previous research studies among medical physicians, the results of this study demonstrate that physiotherapists frequently experience information needs. This study provides new insights into the preferred digital information resources used by physiotherapists to fulfill these needs. Future research should clarify the implications of physiotherapists’ apparent high reliance on Google, whether these results reflect the authentic clinical environment, and whether fulfilling clinical information needs alters practice behaviors or improves patient outcomes.


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