scholarly journals Paradox of life among survivors of bladder cancer and treatments

2016 ◽  
Vol 50 (2) ◽  
pp. 224-231 ◽  
Author(s):  
Miriam Lopes ◽  
Lucila Castanheira Nascimento ◽  
Márcia Maria Fontão Zago
Keyword(s):  
Bladder Cancer ◽  
Methodological Approach ◽  
University Hospital ◽  
Social Dimensions ◽  
Structured Interviews ◽  
Hospital Data ◽  
Narrative Methodology ◽  
Journal Entries ◽  
Inductive Thematic Analysis

Abstract OBJECTIVE: To interpret the meanings attributed to the experience of bladder cancer among survivors in therapeutic follow-up. METHOD: Qualitative methodological approach, based on medical anthropology and narrative methodology. After approval by the research ethics committee of a public university hospital, data were collected from January 2014 to February 2015, by means of recorded semi-structured interviews, direct observation and field journal entries on daily immersion with a group of six men and six women, aged between 57 and 82 years, in therapeutic follow-up. Narratives were analyzed by means of inductive thematic analysis. RESULTS: The meanings revealed difficulties with the processes of disease and treatment, such as breakdown of normal life, uncertainty about the future due to possible recurrence of the disease, difficulty with continuity of care and emotional control, relating it to conflicting ways of understanding the present life. Thus, the meaning of this narrative synthesis is paradox. CONCLUSION: Interpretation of the meaning of experience with bladder cancer among patients provides nurses with a comprehensive view of care, which encompasses biological, psychological and social dimensions, and thereby systematizes humanized care.

scholarly journals Experiences of recovery from colorectal cancer surgery after hospital discharge among the oldest old: A qualitative study

2021 ◽  
pp. 205715852199445
Author(s):  
Kristina Sundt Eriksen ◽  
Sissel Iren Eikeland Husebø ◽  
Hartwig Kørner ◽  
Kirsten Lode
Keyword(s):  
Colorectal Cancer ◽  
Thematic Analysis ◽  
Oldest Old ◽  
Healthcare Services ◽  
Hospital Data ◽  
Colorectal Cancer Surgery ◽  
Discharge From Hospital ◽  
Depth Interviews ◽  
Inductive Thematic Analysis

Colorectal cancer affects a large number of people aged ≥80 years. Little is known about how they manage after discharge from hospital. The aim of this study was to explore the experiences of individuals aged ≥80 years recovering from surgery for colorectal cancer, and the challenges they may encounter after discharge from hospital. Data were collected between January and March 2016 through in-depth interviews with ten participants approximately one month after surgery. Inductive thematic analysis was employed to analyse the data. The COREQ checklist was used in reporting this study. Two themes were identified: Managing the recovery from CRC surgery, and Insufficient follow-up from the healthcare services after CRC surgery. The findings indicate that older people treated for colorectal cancer manage surprisingly well after discharge despite challenges in their recovery; however, there are seemingly areas of improvement in their follow-up healthcare.

scholarly journals Nursing Students and Nurses’ Recommendations Aiming at Improving the Development of the Humanistic Caring Competency

2021 ◽  
pp. 084456212110489
Author(s):  
Dimitri Létourneau ◽  
Johanne Goudreau ◽  
Chantal Cara
Keyword(s):  
Nursing Education ◽  
Nursing Students ◽  
Methodological Approach ◽  
University Hospital ◽  
Hospital Data ◽  
Interpretive Phenomenology ◽  
Pedagogical Strategies ◽  
Individual Interviews ◽  
Progressive Development ◽  
Regulatory Bodies

Background Most nursing education programs prepare their students to embody humanism and caring as it is expected by several regulatory bodies. Ensuring this embodiment in students and nurses remains a challenge because there is a lack of evidence about its progressive development through education and practice. Purpose This manuscript provides a description of nursing students’ and nurses’ recommendations that can foster the development of humanistic caring. Methods Interpretive phenomenology was selected as the study's methodological approach. Participants (n = 26) were recruited from a French-Canadian university and an affiliated university hospital. Data was collected through individual interviews. Data analysis consisted of an adaptation of Benner’s (1994) phenomenological principles that resulted in a five-stage interpretative process. Results The following five themes emerged from the phenomenological analysis of participants’ recommendations: 1) pedagogical strategies, 2) educators’ approach, 3) considerations in teaching humanistic caring, 4) work overload, and 5) volunteerism and externship. Conclusion The findings suggest the existence of a challenge when using mannikins in high-fidelity simulations with the intention of developing humanistic caring. The findings also reaffirm the importance of giving concrete and realistic exemplars of humanistic caring to students in order to prevent them from making “communication” synonymous to “humanization of care”.

scholarly journals Patterns of knowledge used by nurses in caring for the patient in the first psychotic outbreak

2017 ◽  
Vol 21 (3) ◽  
Author(s):  
Andressa de Oliveira ◽  
Ana Paula Rigon Francischetti Garcia ◽  
Vanessa Pellegrino Toledo
Keyword(s):  
Psychosocial Care ◽  
Ways Of Knowing ◽  
Phenomenological Approach ◽  
University Hospital ◽  
Psychiatric Ward ◽  
Structured Interviews ◽  
Hospital Data ◽  
Know How ◽  
Patterns Of Knowing ◽  
Action Methods

Abstract Objective: To know how the nurse provides care in the first psychotic outbreak of patients, and to identify the Barbara Carper patterns of knowing used for this action. Methods: A qualitative study using a phenomenological approach was performed in four Psychosocial Care Centers and in a psychiatric ward of a university hospital. Data collection was carried out with ten nurses participating in semi-structured interviews using the following guiding question: "Tell me your experience in caring for a patient in their first psychotic outbreak". Results: Carper's fundamental ways of knowing (empirical, aesthetic, ethical and personal) were identified in the caring of the patient in their first psychotic outbreak. Conclusion and Implications: A fragmented practice is implied when patterns of knowledge are taken in isolation. This reflects on specific actions of nursing work, such as the nursing practice and its stages.

scholarly journals Telemedicine in The Context of Covid-19- A Qualitative Study of Cancer Patients and Clinicians

2021 ◽  
Author(s):  
Dylan Chan Tai Kong ◽  
Ashfaq Chauhan ◽  
Anaïs Tiffany Ah Leung ◽  
Melvin Chin
Keyword(s):  
Qualitative Study ◽  
Theory Approach ◽  
Structured Interviews ◽  
Hospital Data ◽  
Metropolitan Regions ◽  
Theoretical Sampling ◽  
Proper Training ◽  
Grounded Theory Approach

Abstract Background:Prior to the Covid-19 pandemic, telemedicine was only used to deliver health care to patients living in remote areas of Australia. However, the spread of the Covid-19 virus pushed the widespread uptake of telemedicine across Australia, including in metropolitan regions. This qualitative study will explore the medical oncology (MO) patient and clinician experience of telemedicine in a metropolitan setting as a result of Covid-19.Method:Participants were selected and invited to participate by theoretical sampling from MO clinicians and patients attending MO clinics at Prince of Wales Hospital. Data was collected by in-depth semi-structured interviews. Thematic analysis was performed to analyse the interview data. Transcripts were coded using the grounded theory approach to identify overarching themes.Results:Twelve participants were recruited to the study. Most participants viewed the adoption of telemedicine positively because it was considered as convenient, efficient and could be used in order to reduce the spread of Covid-19. Nonetheless, participants complained about the poor implementation of telemedicine, technical difficulties and lack of proper training. Finally, providers expressed mixed views over the lack of personal interaction and the lack of physical examination from telemedicine. However, both clinicians and patients viewed telemedicine as acceptable to be used in the context of routine follow-ups.Conclusion:Although some operational improvements are necessary, the role of telemedicine in the follow up of MO patients seems likely to continue beyond Covid-19.

scholarly journals Markers of vulnerability for cervical cancer in HIV-infected women

2011 ◽  
Vol 19 (3) ◽  
pp. 500-507 ◽  
Author(s):  
Daniele Mary Silva de Brito ◽  
Marli Teresinha Gimeniz Galvão ◽  
Maria Lúcia Duarte Pereira
Keyword(s):  
Health Care ◽  
Cervical Cancer ◽  
Early Detection ◽  
Social Dimensions ◽  
Structured Interviews ◽  
Preventive Actions ◽  
Quality Of Health Services ◽  
Supply Information

This study identifies the dimensions and markers of vulnerability among women infected with HIV regarding the development of cervical cancer. A total of 76 HIV-infected women cared for in Fortaleza, CE, Brazil from October 2007 to June 2008 participated in the study. Semi-structured interviews were used to collect socio-demographic, clinical, and sexual data, as well as situations related to health care follow-up and the prevention of cervical cancer. Identified situations were grouped according to the dimensions and markers of vulnerability. HIV-infected women experience different situations linked to individual, programmatic and social dimensions that leave them vulnerable to the development of cervical cancer. The conclusion is that this population is vulnerable to cervical cancer and specific preventive actions are necessary to supply information associated with early detection, improve knowledge, encourage self-care, and improve the quality of health services directed to this population.

scholarly journals Patient-reported outcome measures in the interaction between patient and clinician – a multi-perspective qualitative study

2020 ◽  
Vol 4 (1) ◽  
Author(s):  
Caroline Trillingsgaard Mejdahl ◽  
Liv Marit Valen Schougaard ◽  
Niels Henrik Hjollund ◽  
Erik Riiskjær ◽  
Kirsten Lomborg
Keyword(s):  
Qualitative Study ◽  
Patient Involvement ◽  
Methodological Approach ◽  
Patient Activation ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Phone Call ◽  
Structured Interviews ◽  
Patient Reported

Abstract Background This article addresses patient-reported outcome (PRO)-based follow-up used as a substitute for regularly scheduled follow-ups. In PRO-based follow-up, patients’ PRO data filled in by the patients at home are used by clinicians as a decision aid to identify those who need clinical attention based on an automated PRO algorithm, clinical attention being either a phone call or a physical consultation. A physical consultation in the outpatient clinic prompted by the patient’s PRO is termed a “PRO consultation.” In this multi-perspective qualitative study, we explored the influence of patients’ self-reported data on patient-clinician interaction during PRO consultations in epilepsy outpatient clinics. Interpretive description was the methodological approach, applying data from participant observations, informal interviews with clinicians, and semi-structured interviews with clinicians and patients. Results We found that application and deliberate use of patients’ PRO measures can affect patient-clinician interaction, promoting patient involvement in terms of improved communication and increased patient activation. These findings reflect the general patterns that have been reported in the literature. In addition, we found that PRO measures also may induce unmet expectations among some patients that can have a negative effect on patients’ experiences of the interaction and their follow-up experience in general. We extracted two thematic patterns that represent PRO measures’ potential for patient involvement in the patient-clinician interaction. The first pattern represents enablers, and the second pattern represents barriers for PRO measures to affect patient involvement. Conclusions Applying PRO measures in clinical practice does not automatically enhance the patient-clinician interaction. To strengthen the benefits of PRO measures, the following supplementary clinical initiatives are suggested: summarizing and reporting the PRO measures back to the patient, considering carefully which PRO measures to include, training clinicians and assuring that the patients’ introduction to PRO-based follow-up clarifies expectations.

scholarly journals Incident investigations by the regulatory authority of Swedish healthcare – a 20-year perspective

2015 ◽  
Vol 4 (6) ◽  
pp. 68 ◽  
Author(s):  
Jonas Wrigstad ◽  
Johan Bergström ◽  
Pelle Gustafson
Keyword(s):  
Healthcare System ◽  
Regulatory Authority ◽  
Qualitative Interviews ◽  
Healthcare Providers ◽  
University Hospital ◽  
Office Work ◽  
Structured Interviews ◽  
Incident Investigation ◽  
Micro Level

Objective: The purpose of this study was to describe procedural changes in hospital incident investigations and show the consequences of these changes over time.Methods: A two-stage method was used. First component of the study was a content analysis of 87 incident investigation sconducted 1995-2014 by the regulatory authority after adverse events in a Swedish university hospital. Second component was conducting semi-structured interviews with 11 investigators from all regulatory authority regional offices in Sweden.Results: In a minority of incident investigations, where further demands for action were required by the regulatory authority, a major portion of these were aimed at the micro-level. A plan for follow-up was expressed in only one tenth of the investigations. All investigators had a background from the healthcare system and saw this as advantageous. Their personal memory was claimed to be the only tool when referring to previous cases. Less fieldwork, more office work and more uniformity of language were recognised changes in comparison over time. The role of doing “auditing” was the most common description by the investigators themselves.Conclusions: The micro-level focus of the investigations reflected an organisational structure within the regulatory authority. We saw signs of parallel system weaknesses within the Swedish healthcare system with a clear absence of formalised organisational memory and a malfunctioning follow-up system of incident investigations. This can be seen both regarding the healthcare providers and the regulatory authority. The reports from the qualitative interviews data indicated that “auditing at the office” was considered the main occupation in incident investigations conducted by the regulatory authority.

scholarly journals Sex Differences in Overall Survival and the Effect of Radiotherapy in Merkel Cell Carcinoma—A Retrospective Analysis of A Swedish Cohort

Cancers ◽  
2021 ◽  
Vol 13 (2) ◽  
pp. 265
Author(s):  
Hannah Björn Andtback ◽  
Viveca Björnhagen-Säfwenberg ◽  
Hao Shi ◽  
Weng-Onn Lui ◽  
Giuseppe V. Masucci ◽  
...  
Keyword(s):  
Overall Survival ◽  
Cell Carcinoma ◽  
Merkel Cell Carcinoma ◽  
University Hospital ◽  
Prognostic Impact ◽  
Merkel Cell ◽  
Hospital Data ◽  
Increased Risk ◽  
Significant Difference

Merkel cell carcinoma (MCC) is a rare and aggressive skin cancer where Merkel cell Polyomavirus (MCPyV) contributes to the pathogenesis. In an adjuvant setting, radiotherapy (RT) is believed to give a survival benefit. The prognostic impact of sex related to MCPyV-status and adjuvant RT were analyzed in patients referred to Karolinska University Hospital. Data were collected from 113 patients’ hospital records and MCPyV analyses were made in 54 patients (48%). We found a significantly better overall survival (OS) for women compared to men and a significant difference in OS in patients receiving adjuvant RT. Furthermore, we found that men with virus negative MCC have an increased risk for earlier death (HR 3.6). This indicates that MCPyV positive and negative MCC act as two different diseases, and it might be due to different mechanism in the immune response between male and female patients. This could have significance in tailoring treatment and follow-up in MCC patients in the future.

scholarly journals Non-invasive technologies in assisting high-risk parturient women: nurse-midwives’ perceptionss

Rev Rene ◽  
2021 ◽  
Vol 22 ◽  
pp. e61385
Author(s):  
Lana Priscila Meneses Ares ◽  
Juliana Amaral Prata ◽  
Jane Marcia Progianti ◽  
Adriana Lenho de Figueiredo Pereira ◽  
Ricardo José Oliveira Mouta ◽  
...  
Keyword(s):  
High Risk ◽  
Collaborative Work ◽  
Maternity Hospital ◽  
University Hospital ◽  
Limiting Factors ◽  
Structured Interviews ◽  
Hospital Data ◽  
Non Invasive ◽  
Female Autonomy ◽  
Nurse Midwives

Objective: to know nurse-midwives’ perceptions about factors related with the use of non-invasive care technologies in the care of high-risk parturient women. Methods: qualitative study, with 10 nurse-midwives from the obstetric center of a high-risk maternity hospital in a university hospital. Data were collected by semi-structured interviews and subjected to content analysis. Results: prenatal care with a focus on female autonomy, the availability of specific materials and the sector’s infrastructure are facilitating factors. Work overload, the devaluation of nurse-midwives’ knowledge by some medical professionals and the lack of institutional support for teamwork are limiting factors. Conclusion: the factors referred to show the need to boost collaborative work in assisting high obstetric risk, encourage the use of non-invasive care technologies and improve nurses’ working conditions.

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