scholarly journals How do parents deal with their children's chronic kidney disease? A qualitative study for identifying factors related to parent's adaptation

2020 ◽  
Author(s):  
Fatemeh Khorsandi ◽  
Naser Parizad ◽  
Aram Feizi ◽  
Masumeh Hemmati maslakpak

Abstract Background: Parents’ adaptation affects the health outcomes of children with chronic kidney diseases (CKD). Identifying factors that affect parents’ adaptation is necessary to understand their adaptation status. This study aims to explore factors related to the adaptation of parents who have children with CKD.Methods: This was a qualitative study with a content analysis approach. Seventeen parents of children with CKD were selected by using purposive sampling. The leading researcher performed semi-structured, in-depth, face-to-face interviews to collect data. Conventional content analysis was used to analyze data.Results: Two main categories extracted from the data were “adaptation facilitators” and “adaptation barriers.” Adaptation facilitators were supported by three sub-categories: "social support", "family capability" and "spiritual beliefs". Four sub-categories of “adaptation barriers” were revealed as: “family-related barriers,” “mental stress by others,” “the chronic nature of the disease,” and “unfavorable treatment conditions.”Conclusions: Identifying the factors influencing parental adaptation helps the medical staff to make the necessary interventions to support the parents. According to this study, increasing parent access to the required information, supporting them financially and emotionally, and helping them identify support resources can facilitate their adaptation to their child's chronic illness. Also, identifying and eliminating adaptation barriers can help parents deal better with their child’s chronic disease.

2020 ◽  
Author(s):  
Fatemeh Khorsandi ◽  
Naser Parizad ◽  
Aram Feizi ◽  
Masumeh Hemmati maslakpak

Abstract Background: Parents’ adaptation affects the health outcomes of children with chronic kidney diseases (CKD). Identifying factors that affect parents’ adaptation is necessary to understand their adaptation status. This study aims to explore factors related to the adaptation of parents who have children with CKD. Methods: This was a qualitative study with a content analysis approach. Seventeen parents of children with CKD were selected by using purposive sampling. One of the researchers performed semi-structured, in-depth, face-to-face interviews to collect data. Conventional content analysis was used to analyze data. Results: Two main categories extracted from the data were “adaptation facilitators” and “adaptation barriers.” Adaptation facilitators supported by three sub-categories: “social support,” “family capability,” “spiritual beliefs.” Four sub-categories of “adaptation barriers” were revealed as follows: “family-related barrier,” “mental stress by others,” “the chronic nature of the disease,” and “unfavorable treatment conditions.” Conclusions: Identifying the factors influencing parental adaptation helps the medical staff to make the necessary interventions to support the parents. According to this study, increasing parent access to the required information, supporting them financially and emotionally, and helping them identify support resources can facilitate their adaptation to their child's chronic illness. Also, identifying and eliminating adaptation barriers can help parents deal better with their child’s chronic disease.


2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Fatemeh Khorsandi ◽  
Naser Parizad ◽  
Aram Feizi ◽  
Masumeh Hemmati MaslakPak

Abstract Background Parents’ adaptation affects the health outcomes of children with chronic kidney diseases (CKD). Identifying factors that affect parents’ adaptation is necessary to understand their adaptation status. This study aims to explore factors related to the adaptation of parents who have children with CKD. Methods This was a qualitative study with a content analysis approach. Seventeen parents of children with CKD were selected by using purposive sampling. The leading researcher performed semi-structured, in-depth, face-to-face interviews to collect data. Conventional content analysis was used to analyze data. Results Two main categories extracted from the data were “adaptation facilitators” and “adaptation barriers.” Adaptation facilitators were supported by three sub-categories: “social support”, “family capability” and “spiritual beliefs”. Four sub-categories of “adaptation barriers” were revealed as: “family-related barriers,” “mental stress by others,” “the chronic nature of the disease,” and “unfavorable treatment conditions.” Conclusions Identifying the factors influencing parental adaptation helps the medical staff to make the necessary interventions to support the parents. According to this study, increasing parent access to the required information, supporting them financially and emotionally, and helping them identify support resources can facilitate their adaptation to their child’s chronic illness. Also, identifying and eliminating adaptation barriers can help parents deal better with their child’s chronic disease.


2020 ◽  
Author(s):  
Fatemeh Khorsandi ◽  
Naser Parizad ◽  
Aram Feizi ◽  
Masumeh Hemmati MaslakPak

Abstract Background: Parents’ adaptation has an impact on the health outcomes of children with chronic kidney diseases (CKD). Identifying factors that affect parents’ adaptation is necessary to fully understand their adaptation status. This study aims to explore parents’ adaptation with their child chronic disease and to determine related factors.Methods: This was a qualitative study with a content analysis approach. Sixteen parents of children with CKD were selected by using the purposive sampling. The nursing PhD candidate performed semi-structured in-depth face-to-face interviews to collect data. Conventional content analysis was used to analyze data.Results: Two main categories were extracted from the data were “adaptation facilitators” and “adaptation barriers”. Adaptation facilitators supported by three sub-categories: “social support”, “positive aspects of life”, “spiritual beliefs”. Five sub-categories of “adaptation barriers” were revealed as follows: “parents’ confusion”, “the disease related issues”, “pressures from peers and acquaintances”, “inappropriate treatment conditions” and “children and family limitation”.Conclusions: Two types of factors that influence parents’ adaptation were identified. The treatment team must evaluate these factors to help parents to adapt to their child’s illness by identifying and eliminating the adaptation barriers, and identifying and using the adaptation facilitators.


Author(s):  
Nafiseh Hekmati Pour ◽  
Gholam Reza Mahmoodi-Shan ◽  
Abbas Ebadi ◽  
Nasser Behnampour

AbstractObjectivesOne of the existential questions during adolescence is about the ambiguity in spiritual realms. Adolescents at this age not only have the spiritual, psychological, and unique needs, but also have spiritual needs that help them to relax and solve problems. Therefore, this qualitative study aimed to understand the concept of spiritual self-care in Iranian adolescents in 2019.MethodsThis qualitative study with content analysis approach was conducted on 14 adolescents with the age range of 14–20 years, who had been selected by purposeful sampling method. Data were collected by semi-structured interviews which were carried out between 4 March 2019 and 20 August 2019.ResultsThe interviews were transcribed immediately after the recording, and then were analyzed using direct content analysis. A total of 252 primary codes related to the adolescents’ spiritual self-care were extracted from the analysis, which determined 4 main aspects of spiritual self-care (spiritual belief, spiritual experience, social-religious activities, and spiritual growth).ConclusionsThe findings of this study showed that, spiritual self-care is a form of self-care by which a person uses his or her spiritual beliefs, teachings, and experiences as a source of control over stress and crises, and will be able to cope with problems.


Author(s):  
Sunhee Lee ◽  
Jeong-Ah Ahn

Mothers of children with complex congenital heart disease face unique challenges and emotional burdens, while their children go through physical and psychological difficulties during disease progression. In this study, we aimed to explore the in-depth experiences and feelings of mothers facing the prognosis of their children with complex congenital heart disease that was surgically corrected. This is a descriptive qualitative study. We conducted semi-structured, face-to-face interviews with 12 mothers of children with complex congenital heart disease at a tertiary hospital in Seoul, Korea. The interview data were analyzed by content analysis. Participants were mothers aged between 40–58 years whose children were diagnosed with complex congenital heart disease which was surgically corrected. Based on the content analysis, the mothers’ experiences and feelings were categorized as immense suffering and adapting to a new life. Under the main categories, the concepts included feeling of abandonment, anxiety with potentially losing their children, having hope, seeking reassurance, being encouraged, and trying to embrace the situation. Mothers who cared for their children with complex congenital heart disease expressed emotions that changed sequentially alongside physical and psychosocial changes in the children. The results of this study are valuable for understanding the experiences and emotions of mothers facing the prognosis of their children with complex congenital heart disease in order to aid in the development of programs that support these mothers.


2015 ◽  
Vol 8 (6) ◽  
pp. 55 ◽  
Author(s):  
Rasool Eslami Akbar ◽  
Nasrin Elahi ◽  
Eesa Mohammadi ◽  
Masoud Fallahi Khoshknab

<p><strong>BACKGROUND: </strong>Nursing staff encounter a lot of physical, psychological and social stressors at work. Because the adverse effects of job stress on the health of this group of staff and subsequently on the quality of care services provided by nurses; study and identify how nurses cope with the job stress is very important and can help prevent the occurrence of unfavorable outcomes.</p> <p><strong>OBJECTIVES: </strong>The aim of this study was to explore the experiences of nurses to identify the strategies they used to cope with the job stress.</p> <p><strong>METHODS: </strong>In this qualitative study content analysis approach was used. Purposive sampling approach was applied. The sample population included 18 nurses working in three hospitals. Data collection was conducted through face to face unstructured interview and was analyzed using conventional content analysis approach.<strong></strong></p> <p><strong>FINDINGS: </strong>The analysis of the data emerged six main themes about the strategies used by nurses to cope with job stress, which, include: situational control of conditions, seeking help, preventive monitoring of situation, self-controlling, avoidance and escape and spiritual coping.<strong></strong></p> <p><strong>CONCLUSIONS: </strong>exploring experiences of nurses on how to cope with job stress emerged context-dependent and original strategies and this knowledge can pave the ground for nurses to increase self-awareness of how to cope with job stress. And could also be the basis for planning and the adoption of necessary measures by the authorities to adapt nurses with their profession better and improves their health which are essential elements to fulfill high-quality nursing care.</p>


2021 ◽  
pp. 174239532110494
Author(s):  
Arezoo Shahsavari ◽  
Fatemeh Estebsari ◽  
Foroozan Atashzadeh-Shoorideh ◽  
Mahnaz Ilkhani

Objectives This study aimed to identify the perceptions of challenges in access to diabetes-related support resources among patients with type 2 diabetes and their family caregivers. Methods This qualitative study was conducted with 18 patients with type 2 diabetes and nine of their family caregivers, using the conventional content analysis method, in 2020 in Lorestan Province, Iran. The participants were selected through purposive sampling and the process continued until the data was saturated. Thirty semi-structured interviews, carried out from February to April 2020, were used to collect the data; they were analyzed using Graneheim and Lundman’s content analysis (2004). Results The study showed two main categories of structural challenges (subcategories: shortage of skilled professionals and defects in executive processes) and destructive inefficiencies (subcategories: service bottlenecks, uncertain support, and irresponsibility of medical team), indicating the dimensions of the participants’ perceptions of barriers to support. Discussion The findings of the study showed that barriers relating to the structure and function of healthcare organizations were among the most important challenges perceived by patients with diabetes when pursuing their care. However, there may be other barriers that have not been addressed due to the lack of support resources in deprived areas and the lack of awareness of patients.


2021 ◽  
pp. 105477382110374
Author(s):  
Su-Hui Chen ◽  
Kuang-Hui Yu ◽  
Yi-Chun Kao ◽  
Jung-Hua Shao

Rheumatoid arthritis results in progressive destruction of the joints. However, descriptions of patient’s experiences with the disease are limited. This qualitative study aimed to explore patients’ personal experiences with rheumatoid arthritis in Taiwan. Face-to-face interviews were conducted with 30 patients from January to May 2019; interview data were analyzed with content analysis. Most participants were female (90%); their mean age was 57 years. Three main categories emerged from analysis of the data: “physical suffering,” “limitations of abilities,” and “coexisting with the disease.” Physical suffering was due to personal lifelong hardships from chronic pain and stiffness. Limitations of abilities occurred from loss of physical function and limited social life, due to participants discomfort with joint deformities and their appearance to others. Participants coexisted with the disease by making changes in their outlook and comparing their lives with others in order to gain a positive perspective.


BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Yaser Moradi ◽  
Rahim Baghaei ◽  
keyvan Hosseingholipour ◽  
Farzin Mollazadeh

Abstract Background The exponential spread of COVID-19 has caused a huge threat to public health worldwide. Providing care for patients with COVID-19 is a stressful experience for ICU nurses, which can affect their protective reactions. The present study was conducted to explore the protective reactions of ICU nurses providing care for patients with COVID-19. Methods This qualitative descriptive study was conducted to discover the protective reactions of nurses providing care for patients with COVID-19. A total of 14 ICU nurses were selected by purposive sampling. Data were collected using individual semi-structured face-to-face interviews. All interviews were recorded, and then codes and themes were extracted using content analysis method. Finding Seventeen subcategories, six categories and two themes were extracted from the analysis of data. These themes include “Unbalanced self-protective reactions” and “Responsible self-protective reactions”. Conclusion During the COVID-19 epidemic and crisis, ICU nurses exhibit different self-protective reactions when providing care for patients with COVID-19, which include unbalanced and responsible reactions. Nursing managers can mitigate these unbalanced reactions by identifying them and their roots. Identifying the protective reactions of ICU nurses in providing care for patients with COVID-19 could assist in developing the necessary interventions to promote positive reactions and reduce unbalanced reactions by finding their root causes.


2015 ◽  
Vol 14 (5) ◽  
pp. 495-502 ◽  
Author(s):  
Lisa Martinsson ◽  
Bertil Axelsson ◽  
Christina Melin-Johansson

ABSTRACTObjective:During the course of their disease, patients with cancer receiving palliative chemotherapy receive extensive amounts of information from physicians. The objective of our study was to describe patients' perspectives on the information they received from physicians during palliative chemotherapy with regard to their cancer diagnosis, treatments, prognosis, and future planning.Method:A total of 15 semistructured face-to-face interviews with patients who had incurable cancer were conducted, transcribed verbatim, and analyzed with qualitative content analysis.Results:Three categories were defined during the analytical process: “having a chronic disease,” “depending on chemotherapy,” and “living with an unpredictable future.”Significance of results:Our study demonstrated that patients undergoing palliative chemotherapy perceived that their disease was incurable and chronic, that they were dependent on chemotherapy, and that their future was uncertain. Compared with other studies, the patients in our study seemed to be more aware of their prognosis and the goals of care.


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