Social support in women with potential Essure-related complaints: an analysis of Facebook group content (Preprint)
BACKGROUND Social support groups are an important resource for people to cope with problems. Previous studies have reported the different types of support in these groups, but little is known about the type of reactions that sharing of personal experiences induce among members. It is important to know how and to what extent members of support groups influence each other regarding the consumption of medical care. We researched this in a online Facebook group of women sterilized with Essure®. Essure® was a device for permanent contraception. From 2015 onwards, women treated with Essure® for tubal occlusion raised safety concerns and experience numerous of complaints. OBJECTIVE To evaluate the use of social support in a Facebook community of Essure® Problems Netherlands. METHODS All post in a closed online Facebook group named: Essure Problems Netherlands between March 8 and May 8 of 2018 were included. In total 3,491 Facebook posts were analysed using a modified version on the social support behaviour code created by Cutrona and Suhr (1992). Posts were abstracted and aggregated into a database. Two investigators evaluated the posts, developed a modified version on the social support behaviour code book, and applied codes to data. RESULTS Results show that 92% messages contained a form of social support. In 68,8% of posting social support was given and in 31,2% social support was received. Informational and emotional support are the most frequently used form of given social support (53.4 and 43.6%, respectively). The same distribution is seen with receiving social support: informational support in 81,5% and emotional in 17,4% of the cases. CONCLUSIONS The main purpose of women in the Essure® problems group was to give and receive informational and/or emotional support.