scholarly journals Palliative Care of Auto Immune Diseases through Ayurveda with Special Emphasis on Rasaushadhi

2021 ◽  
Vol 9 (10) ◽  
pp. 91-93
Author(s):  
Dr. Dhanashree Ghotkar
Keyword(s):  
Palliative Care ◽  
Chronic Diseases ◽  
Health Professionals ◽  
Chronic Conditions ◽  
Health Issues ◽  
Immune Disease ◽  
Mind And Body ◽  
Growing Economy

Abstract: With the growing economy and increasing challenges of day to day life, the chances of getting ill with serious diseases are increasing and had become very common. One of the group of diseases is the auto immune diseases. According to modern medicines an auto immune disease is supposed not to be cure completely whereas it can just be controlled for progression. Therefore, palliative care concept has got much importance in the treatment ailments. Ayurveda now experiencing its golden days due to the increasing awareness with in people for their health issues. Now people are choosing Ayurveda for their chronic conditions which were told to be impossible to cure by health professionals. There is one special branch in Ayurveda called as Rasa Shastra which is concerned about making herbo- mineral, metallo-mineral and metallic preparations. This branch is evolved during 8th century and had focused on stability of mind and body which is called as Dehavada. So it has got all the ability to treat acute as well as chronic diseases. After achieving stability of body it added Rasayana therapy to maintain the subtleness in every aspect. This article “Palliative care of Auto immune diseases through Ayurveda with special emphasis on Rasaushadhi” will discuss in detail with what is auto-immune disease palliative care and Ayurvedic Rasaushadhi. Keywords: Palliative care, auto immune disease, Ayurveda, Rasashastra, Rasauhadhi, Rasayana.

scholarly journals Mobile electronic devices as means of facilitating patient activation to seek information on chronic conditions and medications: qualitative study (Preprint)

2020 ◽  
Author(s):  
Hyllore Imeri ◽  
Shane Desselle ◽  
Dardan Hetemi ◽  
Kreshnik Hoti
Keyword(s):  
Chronic Disease ◽  
Focus Groups ◽  
Chronic Diseases ◽  
Health Professionals ◽  
Information Seeking ◽  
Chronic Conditions ◽  
Electronic Devices ◽  
Patient Activation ◽  
Related Information ◽  
The Impact

BACKGROUND Patient Activation (PA) has an impact on the management of patients' health condition, clinical outcomes and treatment cost. Mobile electronic devices (MEDs) have shown potential to engage patients in wellness behavior. OBJECTIVE This study was aimed at exploring the impact of MEDs on PA and identifying key motivational factors related to the use of MEDs to search for information on chronic diseases and medications. METHODS Six focus groups were conducted, two focus groups with students, two with health professionals, and another two with patients. A protocol of eight questions was used to guide the discussions. The audio-recorded data were transcribed verbatim and analyzed thematically. With the view of analyzing the relevance of themes and subthemes identified, a ranking system was employed, using a coding system depicted by + symbol, to indicate different relevance levels. RESULTS Findings of this study suggested that MEDs have a positive impact on patients’ activation through facilitating information-seeking behavior on chronic diseases and medications. Key drivers leading to patient activation to seek chronic disease and medication related information through MEDs were accessibility and abundance of available and detailed information, reduced search time, information updates, and convenience to find information at any time and place. In this regard, our findings also suggest a positive relationship between patient’s level of self-care and their activation through use of MEDs. Lack of accurate information in native language, access to incorrect information and limited access to the internet were the key obstacles to seeking information related to chronic conditions and medications via MEDs. CONCLUSIONS Use of MEDs may assist to activate patients in seeking chronic disease and medication-related information, potentially leading to better management of their chronic conditions and medications. Findings also highlight the need for health professionals to empower patients through specific education that addresses MED utilization for chronic disease and medication information seeking. CLINICALTRIAL na

Māori Research(er) in Three Poems

2018 ◽  
Vol 2 (1) ◽  
pp. 35
Author(s):  
Jacquie Kidd
Keyword(s):  
Palliative Care ◽  
Health Literacy ◽  
Cultural Identity ◽  
Focus Groups ◽  
Health Professionals ◽  
Bell Hooks ◽  
Face To Face ◽  
The Third ◽  
Ruth Behar ◽  
Seeking Help

These three poems re-present the findings from a research project that took place in 2013 (Kidd et al. 2018, Kidd et al. 2014). The research explored what health literacy meant for Māori patients and whānau when they accessed palliative care. Through face-to-face interviews and focus groups we engaged with 81 people including patients, whānau, bereaved loved ones, support workers and health professionals. The poems are composite, written to bring some of our themes to life. The first poem is titled Aue. This is a Māori lament that aligns to English words such as ‘oh no’, or ‘arrgh’, or ‘awww’. Each stanza of the poem re-presents some of the stories we heard throughout the research. The second poem is called Tikanga. This is a Māori concept that encompasses customs, traditions and protocols. There are tikanga rituals and processes that guide all aspects of life, death, and relationships. This poem was inspired by an elderly man who explained that he would avoid seeking help from a hospice because ‘they leave tikanga at the door at those places’. His choice was to bear his pain bravely, with pride, within his cultural identity. The third poem is called ‘People Like Me’. This is an autoethnographical reflection of what I experienced as a researcher which draws on the work of scholars such as bell hooks (1984), Laurel Richardson (1997) and Ruth Behar (1996). These and many other authors encourage researchers to use frustration and anger to inform our writing; to use our tears to fuel our need to publish our research.

scholarly journals Palliative care and complex chronic conditions since the perspective of healthcare professionals

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
A Doñate-Martínez ◽  
L Llop ◽  
J Garcés
Keyword(s):  
Primary Care ◽  
Palliative Care ◽  
Early Identification ◽  
Chronic Conditions ◽  
Healthcare Professionals ◽  
Care Pathway ◽  
Holistic View ◽  
Complex Chronic Conditions ◽  
Symptom Intensity

Abstract Background According to the WHO, palliative care (PC) is applicable early in the course of illness together with other curative therapies. Early PC has demonstrated beneficial effects on quality of life and symptom intensity among cancer patients. However, PC is not as early integrated on the care pathway of complex chronic conditions (CCC). This abstract presents barriers and needs identified to effectively implement early PC on CCC performed under the EU-funded InAdvance project (ref.: 825750). Methods Semi-structured interviews were performed with 16 healthcare professionals (HPs) from primary care and hospital settings working with older patients with CCC in Valencia (Spain). Results Interviews reported that main needs identified to provide early PC are: (a) coordinated strategies between multi-setting HPs to an early identification of CCC patients in need of PC; (b) adequate resources to attend patients' PC needs from a holistic view, i.e. psychosocial and spiritual needs; and (c) early integration of basic PC at primary care teams. The main barriers identified were: (a) stereotypes associated to the traditional PC approach; (b) poor knowledge from HPs of the PC holistic approach; and (c) lack of specific protocols or pathways for CCC in need of PC. Conclusions Specific skills and resources are the most relevant needs to effectively provide early PC among patients with CCC. First, it is urgent to demystify the negative culture-related vision of PC that is commonly associated to sedation and last days of a person's life. Also, multidisciplinary HPs require specific training to identify and provide early PC tailored to CCC. And, it is required a strategic and multi-setting organizational approach with fluent information flow and coordinated roles. Key messages Healthcare expenditure would be considerably reduced, especially at hospital and emergency units, with an early identification of patients with CCC in need of PC. Empowering primary HPs in PC would improve the quality of care of patients with CCC.

scholarly journals 13.D. Workshop: SDGs in the focus of environmental and health issues

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  
Keyword(s):  
Public Health ◽  
Climate Change ◽  
Sustainable Development ◽  
Community Engagement ◽  
Health Professionals ◽  
Health Issues ◽  
The Sustainable Development ◽  
The World ◽  
Environmental And Health Issues ◽  
The Impact

Abstract This workshop is dedicated on SDGs in the focus of environmental and health issues, as very important and actual topic. One of the characteristics of today's societies is the significant availability of modern technologies. Over 5 billion (about 67%) people have a cellphone today. More than 4.5 billion people worldwide use the Internet, close to 60% of the total population. At the same time, one third of the people in the world does not have access to safe drinking water and half of the population does not have access to safe sanitation. The WHO at UN warns of severe inequalities in access to water and hygiene. Air, essential to life, is a leading risk due to ubiquitous pollution and contributes to the global disease burden (7 million deaths per year). Air pollution is a consequence of traffic and industry, but also of demographic trends and other human activities. Food availability reflects global inequality, famine eradication being one of the SDGs. The WHO warns of the urgency. As technology progresses, social inequality grows, the gap widens, and the environment continues to suffer. Furthermore, the social environment in societies is “ruffled” and does not appear to be beneficial toward well-being. New inequalities are emerging in the availability of technology, climate change, education. The achievement reports on the Sustainable Development Goals (SDGs), also point out to the need of reviewing individual indicators. According to the Sustainable Development Agenda, one of the goals is to reduce inequalities, and environmental health is faced by several specific goals. The Global Burden of Disease is the most comprehensive effort to date to measure epidemiological levels and trends worldwide. It is the product of a global research collaborative and quantifies the impact of hundreds of diseases, injuries, and risk factors in countries around the world. This workshop will also discuss Urban Health as a Complex System in the light of SDGs. Climate Change, Public Health impacts and the role of the new digital technologies is also important topic which is contributing to SDG3, improving health, to SDG4, allowing to provide distance health education at relatively low cost and to SDG 13, by reducing the CO2 footprint. Community Engagement can both empower vulnerable populations (so reducing inequalities) and identify the prior environmental issues to be addressed. The aim was to search for public health programs using Community Engagement tools in healthy environment building towards achievement of SDGs. Key messages Health professionals are involved in the overall process of transformation necessary to achieve the SDGs. Health professionals should be proactive and contribute to the transformation leading to better health for the environment, and thus for the human population.

scholarly journals Feasibility and Acceptability of Nurse-Led Primary Palliative Care for Older Adults with Chronic Conditions: A Pilot Study

2018 ◽  
Vol 21 (8) ◽  
pp. 1114-1121 ◽  
Author(s):  
Shigeko (Seiko) Izumi ◽  
Basilia Basin ◽  
Margo Presley ◽  
Jean McCalmont ◽  
Jon P. Furuno ◽  
...  
Keyword(s):  
Older Adults ◽  
Palliative Care ◽  
Pilot Study ◽  
Chronic Conditions

scholarly journals The impact of the environment on patient experiences of hospital admissions in palliative care

2015 ◽  
Vol 8 (4) ◽  
pp. 485-492 ◽  
Author(s):  
Jackie Robinson ◽  
Merryn Gott ◽  
Clare Gardiner ◽  
Christine Ingleton
Keyword(s):  
Palliative Care ◽  
Health Professionals ◽  
Hospital Admissions ◽  
Hospital Setting ◽  
Prognostic Indicators ◽  
Care Needs ◽  
Acute Hospitals ◽  
Almost All ◽  
The Impact ◽  
Palliative Care Needs

ObjectiveTo explore the impact of environment on experiences of hospitalisation from the perspective of patient's with palliative care needs.MethodsA qualitative study design using longitudinal semistructured, face-to-face interviews were used to elicit the views of patients with palliative care needs admitted to hospital in 1 large urban acute hospital in New Zealand. The sample comprised of 14 patients admitted to hospital between July 2013 and March 2014 who met one of the Gold Standard Framework Prognostic Indicators for palliative care need.ResultsAlmost all participants described a range of factors associated with the environment which impacted negatively on their experiences of hospitalisation. This included challenges with the physical surroundings, the impact on social relationships with other patients, families and health professionals and the influence of the cultural milieu of the hospital setting.ConclusionsEmulating the ‘ideal’ environment for palliative care such as that provided in a hospice setting is an unrealistic goal for acute hospitals. Paying attention to the things that can be changed, such as enabling family to stay and improving the flexibility of the physical environment while improving the social interplay between patients and health professionals, may be a more realistic approach than replicating the hospice environment in order to reduce the burden of hospitalisations for patients with palliative care needs.

scholarly journals Cuidados paliativos pediátricos: análise de estudos de enfermagem

2018 ◽  
Vol 12 (5) ◽  
pp. 1409
Author(s):  
Thaís Cristina Flexa Souza ◽  
Antonio Jorge Silva Correa Júnior ◽  
Mary Elizabeth de Santana ◽  
Jacira Nunes Carvalho
Keyword(s):  
Palliative Care ◽  
Pain Control ◽  
Chronic Conditions ◽  
Scientific Evidence ◽  
Descriptive Statistics ◽  
Care Plans ◽  
On Line ◽  
La Red ◽  
Specific Symptoms ◽  
Oncological Nursing

RESUMOObjetivo: analisar as evidências científicas acerca dos cuidados paliativos pediátricos.Método: estudo bibliométrico de publicações brasileiras realizado com 23 artigos disponíveis on-line, no período de 2012 a 2016 nas bases de dados LILACS, MEDLINE e BDENF, analisados pela estatística descritiva simples em figuras e posteriormente segundo a análise de conteúdo. Resultados: os artigos encontrados estão em revistas B1 e B2 majoritariamente, com publicações no ano de 2014. Os sujeitos mais estudados foram enfermeiros e equipe de enfermagem e os descritores mais indexados: cuidados paliativos, criança, enfermagem oncológica, enfermagem, saúde da criança e neoplasias. A totalidade referiu-se a oncologia e as evidências para o suporte humanístico: assistência ao cuidador, controle da dor oncológica, engendrar cuidados com vista em atividades lúdicas e manter comunicação eficaz com a equipe, criança e família. Conclusão: a análise mostrou uma literatura focada na oncologia e assistência ao cuidador, revelando ainda baixa publicação de outras condições crônicas na pediatria. Os temas que podem contribuir para o avanço da enfermagem em estudos posteriores são: ampliações de planos de cuidados para sintomas específicos; pesquisas sobre a administração e gestão; tipificações e o conteúdo da comunicação na internação; e complexidade da rede de atendimento hospitalar e domiciliar. Descritores: Bibliometria; Cuidados Paliativos; Pediatria; Enfermagem Pediátrica; Criança; Doença Crônica.ABSTRACTObjective: to analyze the scientific evidence about pediatric palliative care. Method: this is a bibliometric study of Brazilian publications with 23 articles available online, between 2012 and 2016 in the LILACS, MEDLINE and BDENF databases analyzed by simple descriptive statistics in figures and later according to content analysis. Results: the articles found are in journals B1 and B2, with publications in 2014. The most studied subjects were nurses and nursing staff and the most indexed descriptors were palliative care, child, oncological nursing, nursing, child health, and neoplasms. All of them referred to the oncology and evidence for humanistic support: caregiver care, oncological pain control, engendering care for recreational activities and maintaining effective communication with staff, children, and family. Conclusion: the analysis showed a literature focused on oncology and caregiver care, revealing still low publication of other chronic conditions in pediatrics. The themes that may contribute to the advancement of nursing in later studies are an expansion of care plans for specific symptoms; research on administration and management; typification and content of the communication during hospitalization; and complexity of the hospital and home care network. Descriptors: Bibliometrics; Palliative Care; Pediatrics; Pediatric Nursing; Child; Chronic Disease.RESUMENObjetivo: analizar las evidencias científicas acerca de los cuidados paliativos pediátricos.Método: estudio bibliométrico de publicaciones brasileras realizado con 23 artículos disponibles online, en el período de 2012 a 2016 en las bases de datos LILACS, MEDLINE y BDENF analizados por la estadística descriptiva simple en figuras y posteriormente según análisis de contenido. Resultados: los artículos encontrados están en revistas B1 y B2 mayoritariamente, con publicaciones en 2014. Los sujetos más estudiados fueron enfermeros y equipo de enfermería y los descriptores más indexados fueron cuidados paliativos, niño, enfermería oncológica, enfermería, salud del niño y neoplasias. La totalidad apuntó la oncología y las evidencias para el soporte humanístico: asistencia al cuidador, control del dolor oncológica, engendrar cuidados para actividades lúdicas y mantener comunicación eficaz con el equipo, niño y familia. Conclusión: el análisis mostró una literatura enfocada en la oncología y asistencia al cuidador, revelando aún baja publicación de otras condiciones crónicas en la pediatría. Los temas que pueden contribuir para el avance de la enfermería en estudios posteriores son: ampliaciones de planos de cuidados para síntomas específicos; investigaciones sobre la administración y gestión; tipificaciones y el contenido de la comunicación en la internación; y complejidad de la red de atendimiento hospitalario y domiciliario. Descriptores: Bibliometría; Cuidados Paliativos; Pediatría; Enfermería Pediátrica; Niño; Enfermedad Crónica.

scholarly journals Compreensão Emocional da Morte Pelas Crianças em Idade Pré-escolar: Uma Dimensão Esquecida

2020 ◽  
Vol 33 (10) ◽  
pp. 649
Author(s):  
Filipa Martins Silva ◽  
Ana Filipa Lopes ◽  
Vânia Carneiro ◽  
Álvaro Campelo
Keyword(s):  
Palliative Care ◽  
Health Professionals ◽  
Scientific Evidence ◽  
Emotional Understanding ◽  
Priority Area ◽  
Care Network ◽  
Emotional Dimension ◽  
Hypothetical Scenario ◽  
A Priority ◽  
Depth View

Introduction: Scientific evidence regarding children’s understanding of the concept of death is scarce. This has recently been pointed out by the International Children’s Palliative Care Network as a priority area of research. In particular, the avoidance of emotion in this area of research is an important shortcoming. This study aims to develop an in-depth view of the emotional dimension of the child’s understanding of death, also seeking to relate it to the cognitive dimension.Material and Methods: We interviewed children (three to six years old) using a book illustrating a hypothetical scenario in which a child faced the death of a relative. We asked questions to assess the cognitive subconcepts of death and the emotional dimension (what the child would feel and what parents should say).Results: Of the 54 participants, the majority said that the child would feel sad (n = 46, 85%) and that parents should inform her/him (n = 47, 87%); these responses did not vary significantly with age. The cognitive understanding of the concept of death in children who reported sadness was significantly higher.Discussion: Even the youngest children feel death, and it is not possible to disconnect cognitive and emotional understanding. Additionally, children should be informed in order to foster a proper and multidimensional elaboration of death.Conclusion: This study provides valuable information to health professionals and other interested adults about the way preschoolers position themselves in relation to death.

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