scholarly journals PELAKSANAAN SUPPORT GROUP PADA ORANGTUA ANAK DENGAN CEREBRAL PALSY

2020 ◽  
Vol 2 (2) ◽  
pp. 208
Author(s):  
Adina Riska Anindita ◽  
Nurliana Cipta Apsari
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Social Workers ◽  
Support Groups ◽  
Support Group ◽  
Scientific Journal ◽  
The Other ◽  
Group Support ◽  
The People ◽  
Children With Cerebral Palsy

 AbstrakKeluarga, khususnya orangtua merupakan orang yang paling dekat dengan anak, sehingga orangtua memiliki peranan yang sangat penting di dalam kehidupan anak, terutama anak yang memiliki kondisi cerebral palsy. Namun, di sisi lain, orangtua yang memiliki anak dengan cerebral palsy memiliki peluang lebih besar untuk mengalami kondisi yang menyebabkan stres. Metode yang digunakan dalam jurnal ilmiah ini adalah dengan studi literatur. Agar dapat menjalankan peranannya sebagai orangtua bagi anaknya yang memiliki kondisi cerebral palsy, orangtua memerlukan dukungan sosial. Pekerja sosial dapat berperan dalam mengatasi hal ini yaitu dengan pemberian pelayanan kelompok melalui support group. Support group memiliki kekuatan penyembuhan karena orangtua yang memiliki anak dengan cerebral palsy akan mendapatkan dukungan yang sifatnya timbal balik.  AbstrackFamily, especially parents are the people closest to children, so parents have a very important role in the lives of children, especially children who have a condition of cerebral palsy. However, on the other hand, parents who have children with cerebral palsy have a greater chance of experiencing stressful conditions. The method used in this scientific journal is the study of literature. In order to be able to carry out its role as a parent for children who have cerebral palsy, parents need social support. Social workers can play a role in overcoming this, namely by providing group services through a support group. Support groups have therapeutic powers because parents who have children with cerebral palsy will get reciprocal support.

scholarly journals MOTHERS CARING FOR CHILDREN LIVING WITH CEREBRAL PALSY: SUGGESTIONS FOR PSYCHO-SOCIAL SUPPORT

2021 ◽  
Vol 57 (3) ◽  
Author(s):  
Phumudzo Raphulu ◽  
Modjadji Linda Shirindi ◽  
Mankwane Daisy Makofane
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Data Analysis ◽  
Qualitative Study ◽  
Social Workers ◽  
Health Professionals ◽  
Snowball Sampling ◽  
Structured Interviews ◽  
Children With Cerebral Palsy ◽  
Thematic Data

Caring for children with cerebral palsy presents numerous circumstances which may contribute to mothers’ inability to cope with the demands of meeting their children’s needs. A qualitative study supported by explorative, descriptive and contextual designs was undertaken. Purposive and snowball sampling facilitated the identification of twelve participants who were interviewed through semi-structured interviews. The enquiry was based on the ecosystems approach. Thematic data analysis was followed through Tesch’s eight steps and Guba’s model was used for data verification. The findings highlighted the necessity to enhance the psycho-social functioning of mothers through collaboration of social workers, health professionals and various organisations.

A Structured Support Group for Midlife and Older Adults with Vision Loss

1994 ◽  
Vol 88 (2) ◽  
pp. 152-156 ◽  
Author(s):  
K.J. McCulloh ◽  
I. Crawford ◽  
J.D. Resnick
Keyword(s):  
Social Support ◽  
Older Adults ◽  
Support Groups ◽  
Support Group ◽  
Visually Impaired ◽  
Vision Loss

This article describes an eight-week structured social support group for midlife and older adults who are adventitiously visually impaired. The group objectives, topics covered, and issues encountered are presented, along with recommendations for developing future support groups for this population.

Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey

2019 ◽  
Vol 4 (3) ◽  
pp. 173-186 ◽  
Author(s):  
Mia Pépin ◽  
Linda Kwakkenbos ◽  
Marie-Eve Carrier ◽  
Sandra Peláez ◽  
Ghassan El-Baalbaki ◽  
...  
Keyword(s):  
Social Support ◽  
Factor Analysis ◽  
Systemic Sclerosis ◽  
North America ◽  
Confirmatory Factor Analysis ◽  
Support Groups ◽  
Support Group ◽  
Factor Model ◽  
The United States ◽  
Confirmatory Factor

Peer-facilitated support groups are an important source for receiving disease-related information and support for people with systemic sclerosis (or scleroderma). A recent survey explored reasons for attending systemic sclerosis support groups in Europe and Australia and used exploratory factor analysis to group reasons for attendance into three main themes: (1) interpersonal and social support, (2) disease treatment and symptom management strategies, and (3) other aspects of living with systemic sclerosis. The objective of the present study was to replicate this study in a sample of patients from North America using confirmatory factor analysis. A 30-item survey was used to assess reasons for attendance and organizational preferences among systemic sclerosis patients in Canada and the United States. In total, 171 members completed the survey. In the confirmatory factor analysis, the three-factor model showed good fit to the data (χ2(399) = 646.0, p < 0.001, Tucker–Lewis index = 0.97, comparative fit index = 0.97, root mean square error approximation = 0.06). On average, respondents rated 22 (73%) of 30 items as “important” or “very important” reasons for attending support groups. Among organizational preferences, respondents emphasized the importance of the ability to share feelings and concerns, as well as educational aspects. Findings of our study suggest that reasons for attending support groups are similar for patients from Europe, Australia, and North America and that support groups should facilitate social support as well as disease education. These results inform the development of training programs for current and future systemic sclerosis support group leaders across the globe.

scholarly journals GANGGUAN BERBAHASA PADA PENDERITA CEREBRAL PALSY SEBUAH KAJIAN LINGUISTIK KLINIS

2020 ◽  
Vol 6 (2) ◽  
pp. 175-186
Author(s):  
Agus Syahid
Keyword(s):  
Cerebral Palsy ◽  
Brain Damage ◽  
Language Disorders ◽  
Motor Center ◽  
The People ◽  
Children With Cerebral Palsy ◽  
The Brain ◽  
Motor Disturbances

This study describes language disorders in the people with cerebral palsy and what kind of treatments to people with cerebral palsy related to language disorders. Cerebral palsy is a series of disorders with problems regulating muscle movements where it is as a result of some damage to the motor centers in the brain. Damage to the motor center in the brain that causes cerebral palsy can occur prenatal (before birth), perinatal (during the birth), or even postnatal (immediately after birth). There are several main problems that are often found and faced by children with cerebral palsy, they are: (1) difficulty in eating and swallowing caused by motor disturbances in the mouth, (2) difficulty in speaking, (3) difficulty in hearing, and (4) language disorders.

Short Term Support Groups for Recently Separated People

1984 ◽  
Vol 9 (3) ◽  
pp. 13-16
Author(s):  
Joy Rainey
Keyword(s):  
Social Support ◽  
Support Groups ◽  
Self Report ◽  
Support Program ◽  
Group Support ◽  
Present Program ◽  
Short Term ◽  
Critical Variable ◽  
Anonymous Questionnaire ◽  
The Individual

This paper describes a group support program for separated people. A simple self-report anonymous questionnaire was the only evaluative device used: the feedback was overwhelmingly positive. The present program raised a number of issues, in particular – who are the most appropriate personnel to deliver the service; whether volunteer or professional. It is also noted that various researchers view social support as a critical variable for the eventual adjustment of the individual. Given the high number of those affected by separation and divorce, inclusion of such services would seem important as part of any preventive community program.

scholarly journals Parental Stress and Social Support of Caregivers of Children With Cerebral Palsy

2016 ◽  
Vol 26 (64) ◽  
pp. 207-214 ◽  
Author(s):  
Mayara Barbosa Sindeaux Lima ◽  
Vagner dos Santos Cardoso ◽  
Simone Souza da Costa Silva
Keyword(s):  
Social Support ◽  
Cerebral Palsy ◽  
Parental Stress ◽  
Capital City ◽  
Stress Index ◽  
Medical Outcomes ◽  
Children With Cerebral Palsy ◽  
Relevant Variables ◽  
Outcomes Study ◽  
The Impact

Abstract Stress and social support are relevant variables for understanding the impact of disability on the care relationship. Thus, this study investigates the association between the parental stress index, social support indicators, and the sociodemographic variables of caregivers of children with cerebral palsy in a capital city of the Eastern Amazon. The following instruments were applied to 100 caregivers: the Sociodemographic Inventory, the Gross Motor Function Classification System, the Parenting Stress Index, and the Medical Outcomes Study Social Support Survey. For data analysis, descriptive statistics were used, in addition to techniques of multivariate analysis. It was found that most participants had high parental stress and a high perception of social support. Specific aspects of the perception of social support and sociodemographic indicators were associated with stress. This knowledge favors the design of more assertive interventions because it outlines the aspects of these variables that appear to have a more effective impact on parental stress.

Parenting stress and life satisfaction in mothers of children with cerebral palsy: The mediating effect of social support

2017 ◽  
Vol 25 (3) ◽  
pp. 416-425 ◽  
Author(s):  
Yongli Wang ◽  
Zhaoming Huang ◽  
Feng Kong
Keyword(s):  
Social Support ◽  
Life Satisfaction ◽  
Cerebral Palsy ◽  
Parenting Stress ◽  
Family Support ◽  
Mediating Effect ◽  
Significant Other ◽  
Friend Support ◽  
Children With Cerebral Palsy ◽  
The Relationship

In this study, we investigated the mediating effect of social support on the relationship between parenting stress and life satisfaction in Chinese mothers of children with cerebral palsy ( N = 369). The results showed that family support and friend support, but not significant-other support, had mediating effects on the relationship between parenting stress and life satisfaction. Moreover, the mediating effect of friend support was equal to family support. These results suggest that the focus should be on reducing parenting stress and increasing support from family and friends to help improve life satisfaction in mothers of children with cerebral palsy.

scholarly journals Teleconferencing as a Source of Social Support for Older Spousal Caregivers

2012 ◽  
Vol 27 (6) ◽  
pp. 381-387 ◽  
Author(s):  
Joanna Edel McHugh ◽  
Joseph P. Wherton ◽  
David K. Prendergast ◽  
Brian A. Lawlor
Keyword(s):  
Social Support ◽  
Support Groups ◽  
Support Group ◽  
Group Processes ◽  
Spousal Caregivers ◽  
Structured Interviews ◽  
Dementia Caregivers ◽  
Pilot Studies ◽  
Facilitators And Barriers ◽  
User Friendly

Teleconferencing is increasingly being used as a medium of delivering social support for dementia caregivers. Further direction is required from pilot studies before the optimal clinical service can be delivered. Following a 6-week pilot support group for spousal caregivers, delivered via teleconferencing software, we interviewed 8 participants for their feedback. Semi-structured interviews were conducted and analyzed using grounded theory analysis. Themes of “group processes” and “barriers,” containing subcategories of “functions of the group,” “responsibilities of facilitators,” and “barriers to communication” were discussed. According to caregivers, successful teleconferencing support groups should acknowledge the caregiver as the dementia expert, allow participants to meet before the deployment of the support group, provide active facilitation and leadership via the researcher, employ user-friendly technologies, and facilitate for the group to self-maintain following the pilot deployment period. These issues should be taken into consideration when designing future teleconferencing applications for caregivers.

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