scholarly journals Quality of life and psychological status of thoracic and abdominal pediatric cancer survivors

2019 ◽  
Vol 21 (2) ◽  
pp. 55-60
Author(s):  
Svetlana N Mikhailova ◽  
Olga V Sachuk ◽  
Elena N Sukhanovskaya ◽  
Timur T Valiev ◽  
Anatolii P Kazantsev ◽  
...  

Relevance. The integrated approach in the treatment of malignant tumors in the chest or abdomen combined with achievements of surgery, chemotherapy and accompanying therapy significantly increased survival rate and recovery in paediatric patients and then specialists faced the new challenge - to improve indicators of the quality of life (QOL) in cured patients. The aim. To study indicators of the QOL and psychological characteristics of personality development in patients cured in childhood of tumors in the chest or abdomen. Materials and methods. The study included 184 patient aged between 8 and 18 years, cured of tumors in the chest or abdomen in RAMS N.N.Blokhin RCRC Pediatric Oncology and Hematology Research Institute of Ministry of Health of Russia from 1979 to 2015. The follow-up period was 3-25 years after the end of the complex antitumor treatment. The QOL analysis was held in 92 (50%) of patients. The QOL analysis was performed according to the examining children’s questioning in the PedsQL questionary. In addition, we assessed the psychological state and social adaptation measures in patients cured of tumors in the chest or abdomen. Results. The analysis demonstrated the reduction of the indicators of the QOL and psychosocial adaptation in patients cured of tumors in the chest or abdomen. Most often the reduction of adaptation occurred in adolescents (78%). We marked the increase in the frequency of medical care encounters of non-oncological profile, the decrease in cognitive function, hypererethism, indecisiveness and low self-confidence. Conclusions. We showed guidelines for the individual rehabilitation of patients cured of tumors in the chest or abdomen: sanatorium resort therapy, psychocorrective work, psychological rehabilitation for family of the patient.

Author(s):  
A. V. Petrichenko ◽  
E. A. Bukreeva ◽  
A. V. Korneeva ◽  
I. A. Shavyrin ◽  
A. A. Ochkurenko ◽  
...  

Ninety five patients (mean age 13.72±4.2) with complaints on loco-motor system disorders after special treatment for malignant tumors were under observation of orthopaedic surgeon. The most common sequelae of treatment were muscular hypotrophy (66 children), I-III degree scoliosis (75), rigidity (61), bone metabolism disorder and osteopenia (47), one limb shortening even in presence of “growing” endoprosthesis (46). Individual rehabilitation course was performed in 43 (45.3%) children and resulted in increase of joint movement range, improvement of posture, and increase in muscular tension. Timely performed complex of rehabilitation measures enabled to correct sequelae of special treatment at early terms that significantly decreased disability of children, increases their social adaptation and quality of life.


2021 ◽  
Vol 2 (2) ◽  
pp. 22-33
Author(s):  
I. V. Pustovaya ◽  
M. A. Engibaryan ◽  
P. V. Svetitskiy ◽  
I. V. Aedinova ◽  
V. L. Volkova ◽  
...  

Relevance. Staged orthopedic treatment was used to improve the quality of life of patients who underwent radical maxillofacial surgeries for cancer.Patients and methods. 197 patients receiving treatment for maxillofacial cancer were observed at the Department of head and neck tumors, National Medical Research Centre for Oncology of the Ministry of Health of Russia, in 1998- 2018. All patients underwent radical surgical treatment resulting in postoperative defects of the upper jaw, soft tissues of the zygomatic- buccal-orbital region, nose, or auricle.Results. Removable obturator prostheses with various supporting and retaining elements were made for 159 (80.7 %) patients. Individual facial prostheses were made for 38 (19.3 %) patients: 17 (44.7 %) – external orbital prostheses, 14 (36.8 %) – external nasal prostheses, 6 (15.8 %) – external zygomatic- buccal-orbital prostheses, 1 (2.7 %) – external auricle prosthesis. Combined prostheses were made for 4 patients– removable upper jaw obturator and nose prosthe[1]sis; removable upper jaw obturator and eye prosthesis. Combined prostheses were fixed to each other using magnets. The results of maxillofacial prosthetics were evaluated according to the aesthetic requirements of the patients and their quality of life. Maxillofacial prostheses allowed a complete restoration of chewing, swallowing, and speaking, restored facial deformation, and improved the appearance of patients.Conclusions. Timely and comprehensive orthopedic treatment of patients with postoperative maxillofacial defects after radical surgeries for malignant tumors takes the main place in the complex of rehabilitation measures. Early elimination of extensive defects is aimed at maximum restoration of oral dysfunctions and appearance preservation. The apparent advantages of maxillofacial prostheses involve improvement of social adaptation and the quality of life of patients, which promotes complete rehabilitation and a return to socially useful activities.


Author(s):  
A. G. Solopova ◽  
E. E. Achkasov ◽  
V. S. Moskvichyova ◽  
E. Grigorevskaya ◽  
D. M. Ampilogova

Aim: to systematize data on rehabilitation methods and management tactics for women with external form of genital endometriosis.Materials and Methods. We searched for publications in international scientific databases: scientific electronic library eLibrary, Scholar, ScienceDirect, Cochrane Library, PubMed/MEDLINE for the last 5 years. The data on the modern approach to the therapy and rehabilitation of women with external genital endometriosis are presented. Search terms in Russian and English were used: “endometriosis”, “rehabilitation”, “gynecology”, “quality of life”.Results. Endometriosis is considered an independent risk factor for the development of malignant tumors not only of the reproductive system, but also of the large intestine, bladder, mammary glands. The review presents a current view of the treatment and rehabilitation of women with external genital endometriosis. Endometriosis is a polyetiological disease that can manifest itself as dysmenorrhea, dyspareunia, chronic pelvic pain, as well as dysuria and dyshesia when involving adjacent organs in the pathological process. Relapses, infertility, emotional and psychosexual disorders, problems with socialization are often detected in these patients.Conclusion. It is necessary not only to conduct comprehensive treatment, but also to develop personalized rehabilitation programs that can improve the quality of life, as well as create comfortable conditions for social adaptation in society.


2020 ◽  
Vol 34 ◽  
pp. 205873842093462
Author(s):  
Angela Rizzi ◽  
Alessia Di Rienzo ◽  
Alessandro Buonomo ◽  
Arianna Aruanno ◽  
Valentina Carusi ◽  
...  

Nickel (Ni) oral hyposensitization treatment (NiOHT) is an effective management approach for Ni allergy. No health-related quality of life (HRQoL) data exist for the pre- and post-treatment with NiOHT in systemic nickel allergy syndrome (SNAS). The aims of this study were (a) to explore HRQoL in SNAS patients, (b) to assess changes of HRQoL after 1 year of NiOHT; (c) to evaluate psychological status of patients. SNAS patients completed the Short-Form 36-Item Health Survey and Psychological General Well-Being Index before and 1 week after the end of NiOHT. Moreover, psychological state was assessed with the Minnesota Multiphasic Personality Inventory (MMPI-2). A total of 52 patients self-reported pre- and post-treatment questionnaires. HRQoL was poor at baseline. After 1 year of NiOHT, all outcome measure scores improved by about 20% with respect to baseline data ( P < 0.01 for all indices, except depressed mood). Finally, 33 patients performed the MMPI-2. High rates for hypochondriasis and depression were noted. Furthermore, most of the patients had high scores for anxiety, depression, and health concerns. This is the first study showing that NiOHT improves HRQoL of SNAS patients, which can be considered a “personalized medicine” approach.


2020 ◽  
Vol 1 ◽  
pp. 97-102
Author(s):  
Olha Shevchuk-Kravchenko ◽  
Oksana Penderetska ◽  
Ivan Garazdiuk ◽  
Oleksandr Garazdiuk ◽  
Viktor Bachynskiy

The aim of the study was to identify the terror of death and anxiety level in patients with end-stage renal disease receiving renal replacement therapy using chronic hemodialysis (HD) and to evaluate the impact of patients' psychological status on medical staff, selection of basic methods of psychotherapeutic care for patients in this category. We involved 37 patients, aged 33-72 years (mean, 45.6 ± 3.8 years). The duration of chronic HD ranged from 8 months to 10 years, with an average of 4.6 years. All the patients had a stable nutritional status, HD regimen and drug therapy for at least 3 months. To diagnose the psychological state of patients we used: the scale of self-assessment of the level of situational and personal anxiety (Spielberger-Hanin’s Scale), personal questionnaire for changes at the onset of HD therapy, elements of a clinical interview, image apperception test (simplified version of Thematic apperception test., Bechterev’s Institute Personal Questionnaire for Diagnosis of Type of Illness (LOBI), Locus of control and personal changes after initiation of HD therapy. We found that the: adaptation of the patient to HD therapy is complicated due to the high degree of anxiety and maladaptive terror of death, which reduce the patient’s quality of life. The HD procedure increases the level of situational anxiety and requires psycho-correction. HD therapy requires activation of the patient's psychological protection mechanisms, since the dominant protective mechanisms of the psyche in this type of substitution treatment are displacement and negation. The inflexible and rigid use of the latter provokes maladaptive reactions when interacting with healthcare providers, a non-constructive approach to lifestyle choices, work-rest regime, and diet. Patients with a maladaptive mode of adjustment to HD therapy require psychotherapy assistance. There is a need to monitor the psychological status of not only patients, but also medical staff, which due to the specificity of the contingent increases the level of contingent own terror of death. Doctors of HD units require participation in mutual support groups.


2020 ◽  
Vol 18 (2) ◽  
Author(s):  
Najwa Hanim Md Rosli

Introduction: Huntington's disease (HD) is an inherited progressive neurodegenerative disorder which affects motor function, cognition and the psychological state of HD patients. Its triad of unique symptoms compared to other neurodegenerative disorders might give rise to a higher level of burden for their carers. The aim of this study was to explore factors associated with the quality of life in patients with HD. Materials and Method: Eighty-one HD patients and their carers participated in this study. Cognitive impairment was assessed with the Neuropsychiatry Unit Cognitive Assessment Tool (NUCOG), motor disturbances was scored using the Unified Huntington's Disease Rating Scale (UHDRS) motor scale, psychological status of both patient and carer were assessed using the Depression Anxiety Stress scale (DASS21), behavior of the patient was assessed using Revised Cambridge Behavioural Inventory (CBI-r) and patient's quality of life was assessed with WHOQOL-BREF questionnaire. Results: Patients' psychological conditions, motor disturbances and behavior of the patient are correlated with low QOL in HD patient. Conclusion: Other than regular motor symptoms, psychological and behaviour of HD assessment should be assessed regularly to ensure the patients having good quality of life.


Author(s):  
Miguel-Ángel Serrano-Rosa ◽  
Eva León-Zarceño ◽  
Cristina Giglio ◽  
Salvador Boix-Vilella ◽  
Antonio Moreno-Tenas ◽  
...  

The aim of this study was to investigate how physical limitations after ACS influence patients’ quality of life and health perception. This was a longitudinal clinical study. We recruited 146 patients diagnosed with ACS. The patients performed a stress test (Bruce’s protocol) for the evaluation of physical limitations and were classified according to the test result: without physical limitations (more than 10 METS), with some physical limitations (7 to 9 METS), and with high physical limitations (less than 6 METS). Significant differences were found between the three groups immediately after the diagnosis of ACS and after a period of three months, regarding health perception, anxiety, depression, sexual relationships, distress, and adjustment to disease. These differences resulted larger between the group with less limitations and the group with higher limitations. After 3 months, however, there was an overall improvement in all variables. In conclusion, physical limitations after ACS seem to influence perceived quality of life determined by measuring general health, vitality, total adaptation, emotional role, social adaptation, depression, and anxiety. Therefore, the highest the physical limitations, the poorer the psychological conditions and vice versa, even 3 months after ACS diagnosis.


2020 ◽  
Author(s):  
Jingwen Nie ◽  
Shuang Zhu ◽  
Wenlong Cui ◽  
Huixin Wu ◽  
Yaping Cai ◽  
...  

Abstract Background An outbreak of novel coronavirus disease 2019 (COVID-19) is a newly discovered contagious disease, which first broke out in China.Based on the psychological state, maintenance hemodialysis (MHD) patients might bear psychological problemsunder the COVID-19epidemic situation.To evaluate the psychological health of MHDpatients and explore the corresponding intervention strategies.Methods Acluster sampling approach was employed to obtain a sample of 206 MHD patients from two hospitals in Yunnan province: a COVID-19-designated hospital and a non-COVID-19-designated hospital. Post-traumatic stress disorder (PTSD) checklistwas used to assess the psychological status,while Kidney Diseaseand Quality of Life --Short Form(KDQOL-SF)was applied to assess the quality of life(QOL). The factorsinfluencing thepsychological status in MHD patients were employed by binary logistic regression.Results Among MHD participants (age 53.4 ± 15.3 years), 61 cases showed mild to moderate positive PTSD, and 72 casespresented severe positive PTSD.The level of education, capital income, hospital, depressive tendency, and QOL were the influence factors for the occurrence of PTSD. Moreover, the PTSD was negatively correlated with QOL and positively correlated with COVID-19-designated hospital and the depressive tendency.Conclusion During the COVID-19 epidemic, MHD patients, especially in COVID-19-designated hospitals, with low QOL and depressive tendency had a high incidence of positive PTSD, which requires prompt psychological counseling and effective measures from medical staff to ensure timely treatment of patients.


2014 ◽  
Vol 21 (4) ◽  
pp. 54-58
Author(s):  
A. V Petrichenko ◽  
E. A Bukreeva ◽  
A. V Korneeva ◽  
I. A Shavyrin ◽  
A. A Ochkurenko ◽  
...  

Ninety five patients (mean age 13.72±4.2) with complaints on loco-motor system disorders after special treatment for malignant tumors were under observation of orthopaedic surgeon. The most common sequelae of treatment were muscular hypotrophy (66 children), I-III degree scoliosis (75), rigidity (61), bone metabolism disorder and osteopenia (47), one limb shortening even in presence of “growing” endoprosthesis (46). Individual rehabilitation course was performed in 43 (45.3%) children and resulted in increase of joint movement range, improvement of posture, and increase in muscular tension. Timely performed complex of rehabilitation measures enabled to correct sequelae of special treatment at early terms that significantly decreased disability of children, increases their social adaptation and quality of life.


Background: Multiple Sclerosis (MS) is a chronic and progressive disease and getting along with the social activities ages have a significant impact on the quality of life and psychological status of these patients. Because the psychological state of patients is an effective factor in the treatment process and life in chronic conditions, The aim of this study was to identify the psychological status of these patients from the viewpoint of patients and experts. Methods: The current qualitative study was conducted in thematic analysis approach. In this study, participated 24 MS patients with maximum diversity in gender, age, illness duration and illness severity, and 8 experts in Neurology, Psychiatry, Psychology and Nursing from Guilan province. Participants were selected by purposive sampling method and Then, the data were gathered through unstructured interviews up to data saturation. Data analysis was done using thematic analysis approach by Attride-Stirling method. Findings: From the total information, three global themes (individual problems, interactive problems, and disease-related problems) were identified. Interactive problems included (interpersonal sensitivity, aggression, sexual, social, and dependence) and disease-related problems (disease reaction). Conclusion: The results of this study showed that MS patients are involved in several psychological problems in the domains include; individual, interactive, and disease-related, Accordingly, it is necessary to develop psychological interventions based on these problems and present for improving the mental status, quality of life and their compatibility.


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