scholarly journals Systematic Review: Tele-Nursing a Universal Access to Care for Oncology Patients

2021 ◽  
Vol 8 (3) ◽  
pp. 393-400
Author(s):  
Yuli Pilar Osorio-Calle ◽  
Katterin Joely Sebastián-Aquino ◽  
Mónica Elisa Meneses -La-Riva
Keyword(s):  
Universal Access ◽  
Care Service ◽  
Scientific Evidence ◽  
Self Care ◽  
Relevant Information ◽  
Oncology Patients ◽  
Oncology Treatment ◽  
Nursing Professionals ◽  
And Control ◽  
At Home

Telenursing is a way of caring for and educating oncology patients to promote self-care management at home. The objective of the study was to analyze the scientific evidence on telenursing in the care of oncology patients. This was a systematic and descriptive review in Spanish, Portuguese and English which was available in 3 databases: BMC, Pubmed and Scielo. The articles were selected in English, Spanish and Portuguese with data from 2010-2020. It was found that tele-nursing, a new form of access to the care service provided by nursing professionals to patients with oncology treatment, including technological tools allow a direct and timely relationship to respond to the detection of adverse events after chemotherapy, promote self-care and control and monitor the patient's health status at home. Conclusions: There is a need to use tele-nursing as an opportunity to care for the patient at home through virtual means by providing relevant information to promote self-care and quality of life.

A study protocol: co-designing a mobile application to enhance communication, safety and wellbeing for people living at home with early stage dementia (Preprint)

2020 ◽  
Author(s):  
Karen Davies ◽  
Bie Nio Ong ◽  
Sudeh Cheraghi-Sohi ◽  
Katherine Perryman ◽  
Caroline Sanders
Keyword(s):  
Mobile Application ◽  
Design Research ◽  
Early Stage ◽  
Design Method ◽  
Mobile Apps ◽  
Care Service ◽  
Normalisation Process Theory ◽  
Policy And Practice ◽  
People With Dementia ◽  
At Home

BACKGROUND Background: There is a growing interest in using mobile applications in supporting health and wellbeing. Evidence directly from people with dementia regarding the acceptability, usability and usefulness of mobile apps is limited. It builds on ‘My Health Guide’ which was co-designed with people with cognitive disabilities. . OBJECTIVE Objective This paper describes the protocol of a study evaluating an app designed for supporting wellbeing with people living with dementia, specifically focusing on enhanced safety through improved communication METHODS Method: The study will employ design research, using participatory qualitative research methods over three cycles of evaluation with service users, their families and practitioners. The study will be developed in partnership with a specialist home care service in England. A purposive case selection will be used to ensure that the cases exemplify differences in experiences. The app will be evaluated in a ‘walkthrough’ workshop by people living with early stage dementia and then trialled at home by up to 12 families in a ‘try-out’ cycle. An amended version will be evaluated in a final ‘walkthrough’ workshop in cycle 3. Data will be collected from at least four data sources during the try-out phase and analysed thematically (people with dementia, carers, practitioners and app usage). An explanatory, multiple-case study design will be used to synthesise and present the evidence from the three cycles drawing on Normalisation Process Theory to support interpretation of the findings. RESULTS Results: The study is ready to be implemented but has been paused to protect vulnerable individuals during the Coronavirus in 2020. The findings will be particularly relevant for understanding how to support vulnerable people living in the community during social distancing and the period following the pandemic, as well as providing insight into the challenges of social isolation arising from living with dementia CONCLUSIONS Discussion: Evaluating a mobile application for enhancing communication, safety and wellbeing for people living with dementia contributes to key ambitions enshrined in policy and practice, championing the use of digital technology and supporting people with dementia to live safely in their own homes. The study uses a co-design method to enable the voice of users with dementia to highlight the benefits and challenges of technology and shape future development of apps that potentially enhances safety through improved communication.

scholarly journals PEP-CoV protocol: a PEP flute-self-care randomised controlled trial to prevent respiratory deterioration and hospitalisation in early COVID-19

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e050582
Author(s):  
Annette Mollerup ◽  
Sofus Christian Larsen ◽  
Anita Selmer Bennetzen ◽  
Marius Henriksen ◽  
Mette Kildevaeld Simonsen ◽  
...  
Keyword(s):  
Randomised Controlled Trial ◽  
Hospital Admission ◽  
Usual Care ◽  
Pulmonary Disease ◽  
Controlled Trial ◽  
Self Care ◽  
Secondary Outcome ◽  
Link Type ◽  
Randomised Controlled ◽  
At Home

IntroductionInfection with SARS-CoV-2 may progress to severe pulmonary disease, COVID-19. Currently, patients admitted to hospital because of COVID-19 have better prognosis than during the first period of the pandemic due to improved treatment. However, the overall societal susceptibility of being infected makes it pivotal to prevent severe courses of disease to avoid high mortality rates and collapse of the healthcare systems. Positive expiratory pressure (PEP) self-care is used in chronic pulmonary disease and has been shown to prevent pneumonia in a high-risk cohort of patients with leukaemia. PEP flute self-care to prevent respiratory deterioration and hospitalisation in early COVID-19: a randomised trial (The PEP-CoV trial) examines the effectiveness on respiratory symptoms and need of hospital admission by regular PEP flute use among non-hospitalised individuals with confirmed SARS-CoV-2 infection and COVID-19 symptoms.Methods and analysisIn this randomised controlled trial, we hypothesise that daily PEP flute usage as add-on to usual care is superior to usual care as regards symptom severity measured by the COPD Assessment Test (CAT) at 30-day follow-up (primary outcome) and hospital admission through register data (secondary outcome). We expect to recruit 400 individuals for the trial. Participants in the intervention group receive a kit of 2 PEP flutes and adequate resistances and access to instruction videos. A telephone hotline offers possible contact to a nurse. The eight-item CAT score measures cough, phlegm, chest tightness, dyspnoea, activities of daily living at home, feeling safe at home despite symptoms, sleep quality and vigour. The CAT score is measured daily in both intervention and control arms by surveys prompted through text messages.Ethics and disseminationThe study was registered prospectively at www.clinicaltrials.gov on 27 August 2020 (NCT04530435). Ethical approval was granted by the local health research ethics committee (Journal number: H-20035929) on 23 July 2020. Enrolment of participants began on 6 October 2020. Results will be published in scientific journals.Trial registration numberNCT04530435; Pre-results.

Prenatal Genetic Screening, Epistemic Justice, and Reproductive Autonomy

Hypatia ◽  
2021 ◽  
Vol 36 (1) ◽  
pp. 1-21
Author(s):  
Amber Knight ◽  
Joshua Miller
Keyword(s):  
Prenatal Testing ◽  
Relevant Information ◽  
Medical Professionals ◽  
Reproductive Decisions ◽  
Reproductive Autonomy ◽  
Noninvasive Prenatal Testing ◽  
Epistemic Justice ◽  
Reproductive Decision Making ◽  
Testimonial Injustice ◽  
And Control

AbstractNoninvasive prenatal testing (NIPT) promises to enhance women's reproductive autonomy by providing genetic information about the fetus, especially in the detection of genetic impairments like Down syndrome (DS). In practice, however, NIPT provides opportunities for intensified manipulation and control over women's reproductive decisions. Applying Miranda Fricker's concept of epistemic injustice to prenatal screening, this article analyzes how medical professionals impair reproductive decision-making by perpetuating testimonial injustice. They do so by discrediting positive parental testimony about what it is like to raise a child with DS. We argue that this testimonial injustice constitutes a twofold harm: (1) people with DS and their family members who claim that parenting a child with DS may be a rewarding and joyous experience are harmed when they are systematically silenced, disbelieved, and/or denied epistemic credibility by medical professionals, and (2) pregnant women are harmed since they might make poorly informed choices without access to all relevant information. The broader implication of the analysis is that epistemic justice is a precondition of reproductive autonomy. We conclude by calling for federal oversight of the acquisition and dissemination of information that prospective parents receive following a positive diagnosis of DS to ensure that it is comprehensive and up to date.

scholarly journals What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents

2021 ◽  
pp. 026921632110233
Author(s):  
Cari Malcolm ◽  
Katherine Knighting
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Care Service ◽  
Life Care ◽  
Care Providers ◽  
Specialist Care ◽  
Bereaved Parents ◽  
Home Based ◽  
Qualitative Interview Study ◽  
At Home

Background: End-of-life care for children with life-shortening conditions is provided in a range of settings including hospital, hospice and home. What home-based, end-of-life care should entail or what best practice might look like is not widely reported, particularly from the perspective of parents who experienced the death of a child at home. Aim: To explore the value and assess the effectiveness of an innovative model of care providing home-based, end-of-life care as perceived by families who accessed the service. Design: A qualitative descriptive study design was employed with in-depth semi-structured interviews conducted with bereaved parents. Setting/participants: Thirteen bereaved parents of 10 children supported by the home-based end-of-life care service. Results: Parents reported effective aspects of end-of-life care provided at home to include: (1) ability to facilitate changes in preferred place of death; (2) trusted relationships with care providers who really know the child and family; (3) provision of child and family-centred care; (4) specialist care and support provided by the service as and when needed; and (5) quality and compassionate death and bereavement care. Parents proposed recommendations for future home-based end-of-life care including shared learning, improving access to home-based care for other families and dispelling hospice myths. Conclusion: Parents with experience of caring for a dying child at home offer valuable input to future the policy and practice surrounding effective home-based, end-of-life care for children. New models of care or service developments should consider the key components and attributes for effective home-based end-of-life identified by bereaved parents in this study.

scholarly journals The problems of increasing transparency on uncertainty

2017 ◽  
Vol 27 (2) ◽  
pp. 131-138 ◽  
Author(s):  
Magda Osman ◽  
Amanda J. Heath ◽  
Ragnar Löfstedt
Keyword(s):  
Decision Making ◽  
Disease Prevention ◽  
Prevention And Control ◽  
Scientific Evidence ◽  
European Medicines Agency ◽  
Scientific Process ◽  
The Public ◽  
And Control ◽  
Current Guidelines ◽  
Practical Implications

Public regulators (such as European Food Safety Authority, European Medicines Agency, and European Centre for Disease Prevention and Control) are placing increasing demands on scientists to make uncertainties about their evidence transparent to the public. The stated goal is utilitarian, to inform and empower the public and ensure the accountability of policy and decision-making around the use of scientific evidence. However, it is questionable what constitutes uncertainty around the evidence on any given topic, and, while the goal is laudable, we argue the drive to increase transparency on uncertainty of the scientific process specifically does more harm than good, and may not serve the interests of those intended. While highlighting some of the practical implications of making uncertainties transparent using current guidelines, the aim is to discuss what could be done to make it worthwhile for both public and scientists.

The prevalence of the technocratic model in obstetric care from the perspective of health professionals

2021 ◽  
Vol 74 (suppl 4) ◽  
Author(s):  
Marli Therezinha Stein Backes ◽  
Karini Manhães de Carvalho ◽  
Larissa Nascimento Ribeiro ◽  
Tamiris Scoz Amorim ◽  
Evanguelia Kotzias Atherino dos Santos ◽  
...  
Keyword(s):  
Health Professionals ◽  
Scientific Evidence ◽  
Obstetric Care ◽  
Ethics Committees ◽  
Obstetric Nurses ◽  
Data Collection And Analysis ◽  
Maternity Hospitals ◽  
Theoretical Sampling ◽  
Centered Care ◽  
Nursing Professionals

ABSTRACT Objectives: to identify the reasons for the prevalence of the technocratic model in obstetric care from the perspective of health professionals. Methods: Grounded Theory. Study approved by two Research Ethics Committees and conducted by theoretical sampling, from July 2015 to June 2017. Twenty-nine interviews were conducted with health professionals from two maternity hospitals in the Southern Region of Brazil. Data collection and analysis was performed alternately; and analysis by open, axial, and selective coding/integration. Results: the technocratic model still persists because the assistance is performed in a mechanized way, centered on the professionals. There is a lack of systematization of care, and under-dimensioning of the nursing staff. Final Considerations: obstetric nurses need to review their performance in obstetric centers, the internal organization, the dimensioning of nursing professionals, and become protagonists of care. Investment in academic training/updating the knowledge of midwifery professionals, based on scientific evidence and user-centered care is necessary.

Relationships among Hope, Self-care Agency and Quality of Life of Female Oncology Patients with Lymphedema

2017 ◽  
Vol 17 (4) ◽  
pp. 213 ◽  
Author(s):  
Ka Ryeong Bae ◽  
Young Soon Im ◽  
Gie Ok Noh ◽  
Yoojung Son ◽  
Han Gil Seo
Keyword(s):  
Quality Of Life ◽  
Self Care ◽  
Oncology Patients ◽  
Care Agency

scholarly journals ACTUAL PROBLEMS OF MARITIME SAFETY AND MODERN WAYS OF ENSURING THE SHIP SECURITY

2021 ◽  
Vol 6 (166) ◽  
pp. 204-210
Author(s):  
O. Melnyk ◽  
S. Onyshchenko ◽  
O. Lohinov ◽  
V. Okulov ◽  
I. Pulyaev
Keyword(s):  
Relevant Information ◽  
Current Control ◽  
Professional Experience ◽  
Maritime Industry ◽  
Maritime Safety ◽  
Safety Requirements ◽  
Passenger Traffic ◽  
Ship Security ◽  
And Control

Maritime security in recent decades has always been a separate issue, one that has been acute for both shipowners and crews of seagoing vessels. It has been marked by periods of relative stability and periods of emerging and growing threats, from the days of the sailing fleet to the era of ironclad steam shipbuilding. Certainly, it is difficult to overestimate the significant role of the scientific community, which has long investigated this problem, revealing its theoretical and practical sides. The professional experience of maritime industry specialists has also sufficiently served to ensure that systematic interest in the issue has provided the basis for the development of strategies and integrated approaches that ensure the safety of vessels and crews at modern levels. Without the latest advances in maritime safety, shipping, as an industry, would not be able to achieve the current level of reliability in ensuring shipboard processes. Every generation of mankind has prioritized maritime safety, contributing to improving its standards and stressing the importance of continuous development of the theoretical framework. At least more than twenty million tons of cargo and more than five hundred thousand passengers move daily by water transport, so the concept of maritime safety extends not only to the safety of life at sea, the safety of vessels and the safety of cargo, but also to the prevention of maritime accidents and pollution. The increasing share of maritime and river transport in international freight and passenger traffic has led to the need for increased maritime safety requirements due to the technical upgrading of maritime transport. This process is based on the principles of current control over the process of vessel operation and prompt acquisition of necessary data and relevant information during the voyage, anticipated route and control over the state of work parameters of technical means of the vessel, but the key aspect of safety is assessment of existing threats and development of ways and methods of ensuring vessel safety.

scholarly journals RESPON GEREJA ATAS PANDEMIK CORONA VIRUS DESEASE 2019 DAN IBADAH DI RUMAH

2020 ◽  
Vol 6 (2) ◽  
pp. 86-111
Author(s):  
Roedy Silitonga
Keyword(s):  
Live Streaming ◽  
Word Of God ◽  
House Church ◽  
Triune God ◽  
The Government ◽  
The Times ◽  
And Control ◽  
The Church ◽  
Digital Equipment ◽  
At Home

The church is present on earth as an extension of the presence of the kingdom of God among humanity. The church is always present to respond to the conditions and situations of the times in a variety of challenges and temptations. But the church always sided with God's sovereignty and will govern and control everything, including the pandemics experienced by humans on this earth. The Church, currently dealing directly with the Covid-19 pandemic, which has worldwide, and its spread is so massive, and its impact is so wide in various sectors of life. The church was sent to bring the peace of Christ in truth and love. That is why the church responds to the appeal of the Government and health protocols from WHO by carrying out church services at home. Worship at home is not an attempt to establish a house church as a new institution. Worship at home is a form of faith that is responsible for the lives of fellow humans, and at the same time as an expression of love for others. Home worship is a service that is held based on the worship and liturgy of a church institution, where the congregation is part of its members. Principles and mechanisms of worship at home are regulated in such a way that using all available and available digital equipment and technology. The important and most important thing in conducting worship at home is that the congregation continues to truly worship the Triune God, sing praises to God, pray, and the peak and center is to listen to the word of God through preaching live (live streaming) or in recorded form or in printed form.

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