Adaptation of the Quality of Life in Autism Scale for use in Bangladesh

2021 ◽  
Vol 7 (1) ◽  
pp. 960-966
Author(s):  
SM Abul Kalam Azad ◽  
Nur E Nahid Shilvy ◽  
Ata A Rabby
Keyword(s):  
Quality Of Life ◽  
Pearson Correlation ◽  
Correlation Coefficients ◽  
Parent Report ◽  
Autism Spectrum ◽  
World Health ◽  
Special Schools ◽  
Test Retest Reliability ◽  
Parent Version

Parents of children with developmental disabilities, particularly Autism Spectrum disorder, are known to be at risk for high levels of psychological distress. The present study aimed to adapt the Quality of Life in Autism Questionnaire (QoLA, parent-version) in the context of Bangladeshi culture. The sample included 50 participants. Participants were selected from the Institute of Paediatric Neurology and Autism (IPNA, BSMMU) and some special schools of Dhaka city. World Health Organization’s (WHO, 2009) guidelines were followed in translating the QoLA and adaptation for use in Bangladesh. For the parent-report version of the QoLA, Cronbach’s coefficients were 0.880 and 0.725 for part A and part B subscale items, respectively. The Pearson correlation coefficients for the test-retest reliability were r =0.964 for part A of the scale and r = 0.954 for part B. These psychometric properties are comparable to those obtained in the initial QoLA validation study (Eapen et al. 2014). Results of this study demonstrate that the Bangla version of the QoLA (Parent version) provides a valid measure of quality of life and is suitable for use in Bangladesh. Bioresearch Commu. 7(1): 960-966, 2021 (January

scholarly journals Correlations Between Clinical Trial Outcomes Based on Symptoms, Functional Impairments, and Quality of Life in Children and Adolescents With ADHD

2017 ◽  
Vol 23 (13) ◽  
pp. 1578-1591 ◽  
Author(s):  
David R. Coghill ◽  
Alain Joseph ◽  
Vanja Sikirica ◽  
Mark Kosinski ◽  
Caleb Bliss ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Rating Scale ◽  
Controlled Trial ◽  
Pearson Correlation ◽  
Correlation Coefficients ◽  
Parent Report ◽  
Functional Impairments ◽  
Risk Avoidance

Objective: To assess relationships between treatment-associated changes in measures of ADHD symptoms, functional impairments, and health-related quality of life in children and adolescents with ADHD. Method: Pearson correlation coefficients were calculated post hoc for changes from baseline to endpoint in outcomes of one randomized, placebo- and active-controlled trial of lisdexamfetamine (osmotic-release methylphenidate reference) and one of guanfacine extended-release (atomoxetine reference). Results: Changes in ADHD Rating Scale IV (ADHD-RS-IV) total score generally correlated moderately with changes in Child Health and Illness Profile−Child Edition: Parent Report Form (CHIP-CE:PRF) Achievement and Risk Avoidance ( r ≈ .4), but weakly with Resilience, Satisfaction, and Comfort ( r ≈ .2); and moderately with Weiss Functional Impairment Rating Scale–Parent (WFIRS-P) total score ( r ≈ .5). CHIP-CE:PRF Achievement and Risk Avoidance correlated moderately to strongly with WFIRS-P total score ( r ≈ .6). Conclusion: The ADHD-RS-IV, CHIP-CE:PRF, and WFIRS-P capture distinct but interconnected aspects of treatment response in individuals with ADHD.

Test–retest reliability of the Swedish version of the Orthotics and Prosthetics Users’ Survey

2013 ◽  
Vol 38 (1) ◽  
pp. 21-26 ◽  
Author(s):  
Gustav Jarl ◽  
Marie Holmefur ◽  
Liselotte MN Hermansson
Keyword(s):  
Quality Of Life ◽  
Functional Status ◽  
Client Satisfaction ◽  
Correlation Coefficients ◽  
Health Related Quality ◽  
Retest Reliability ◽  
Related Quality ◽  
Health Related ◽  
Test Retest Reliability

Background:The Orthotics and Prosthetics Users’ Survey consists of five modules to assess outcomes of orthotic and prosthetic interventions: lower extremity functional status, upper extremity functional status, client satisfaction with device, client satisfaction with services and health-related quality of life.Objectives:To investigate the test–retest reliability and calculate the smallest detectable difference for all modules of the Swedish Orthotics and Prosthetics Users’ Survey.Study design:Test–retest reliability study design.Methods:A total of 69 patients at a Department of Prosthetics and Orthotics completed Orthotics and Prosthetics Users’ Survey on two occasions separated by a 2-week interval, giving 18 answers on lower extremity functional status, 41 on upper extremity functional status, 53 on client satisfaction with device, 12 on client satisfaction with services and 67 answers on health-related quality of life. Raw scores were converted into Orthotics and Prosthetics Users’ Survey units on a 0–100 scale. Intra-class correlation coefficients, Bland–Altman plots, common person linking plots and t-tests of person mean measures were used to investigate the reliability. The 95% confidence level smallest detectable differences were calculated.Results:The intra-class correlation coefficients ranged from 0.77 to 0.96 for the modules, and no systematic differences were detected between the response occasions. The smallest detectable differences ranged from 7.4 to 16.6 units.Conclusions:The test–retest reliability was satisfactory for all Orthotics and Prosthetics Users’ Survey modules. The smallest detectable difference was large on all modules except the health-related quality of life module.Clinical relevanceThe Orthotics and Prosthetics Users’ Survey modules are reliable and, thus, can be recommended for repeated measurements of patients over time. Relatively large changes are needed to achieve statistical significance when assessing individual patients.

scholarly journals Development, initial validation and reliability testing of a web-based, generic feline health-related quality-of-life instrument

2018 ◽  
Vol 21 (2) ◽  
pp. 84-94 ◽  
Author(s):  
Cory E Noble ◽  
Lesley M Wiseman-Orr ◽  
Marian E Scott ◽  
Andrea M Nolan ◽  
Jacky Reid
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Correlation Coefficients ◽  
Health Related Quality ◽  
Web Based ◽  
Scoring Algorithm ◽  
Related Quality ◽  
Health Related ◽  
Test Retest Reliability

Objectives The objective of this study was to develop a valid, reliable, web-based generic feline health-related quality-of-life (HRQoL) questionnaire instrument to measure the affective impact of chronic disease. Methods A large initial item pool, obtained through interviews with cat owners, was reduced using predetermined criteria, survey scores for relevance and clarity, and the ability of individual items to discriminate between healthy and sick cats when owners completed a prototype questionnaire. Using these data, factor analysis was used to derive a scoring algorithm and provide evidence for factorial validity. Validity was demonstrated further in a field trial using a ‘known groups’ approach (sick vs healthy cats will have a different HRQoL profile, and the HRQoL profile of cats will deteriorate as comorbidities increase). Test–retest reliability was assessed using intra-class correlation coefficients (ICCs). Results In total, 165 items were reduced to 20 and, on the basis of a factor analysis that explained 72.3% of the variation in scores input by 71 owners of 30 healthy and 41 sick cats using the prototype, these were allocated to three domains (vitality, comfort and emotional wellbeing [EWB]) with a scoring algorithm derived using item loadings. Subsequently, the owners of 36 healthy and 58 sick cats completed one or two (n = 48) assessments. Median scores (healthy vs sick) for all domains were significantly different ( P <0.001), 78% of cats were correctly classified as healthy or sick and for comorbidities the correlation coefficients were moderate (vitality 0.64; comfort 0.63; EWB 0.50). Test–retest reliability was good (ICC vitality 0.635; comfort 0.716; EWB 0.853). Conclusions and relevance This study provides initial evidence for the validity and reliability of a novel HRQoL instrument to aid the assessment and management of chronic diseases of cats.

The quality of life in parents raising children with an autism spectrum disorder from Poland, Belarus and France

2016 ◽  
Vol 6 (1) ◽  
pp. 102-107
Author(s):  
A. Ślifirczyk ◽  
E. Krajewska - Kułak ◽  
A. Brayer ◽  
M. Sobolewski ◽  
E. Maciorkowska
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
World Health ◽  
World Health Organization Quality ◽  
Raising Children ◽  
Children With Asd ◽  
Health Organization

Purpose: To assess the health-related quality of life (HRQL) in parents of children with autism spectrum disorder (ASD). Materials and methods: The sample consisted of 83 families with children with ASD, including 30 families from Poland, 25 from Belarus, and 28 from France. Parental HRQL was surveyed with the World Health Organization Quality of Life–BREF (WHOQOL–BREF) and KINDLR questionnaires. Results: This study showed that Polish parents reported the lowest quality of life according to the WHOQOL–BREF. Parents from Belarus reported slightly worse HRQL than parents from France, though other aspects of quality of life (e.g, social sphere, somatic sphere) did not differ significantly between these parents. Parents from Poland also reported lower HQOL according to the KINDLR questionnaire, while parents from Belarus had a higher HQRL in the mental, physical, and self-esteem domains compared to parents from Poland and France. Conclusion: Parents from Poland with children with ASD reported lower HRQL both on the WHOQOL–BREF and KINDL R questionnaires compared to parents from Belarus and France.

scholarly journals Investigation of Relationship Between Physical Activity Levels and Quality of Life of University Students

2019 ◽  
Vol 12 (4) ◽  
pp. 110
Author(s):  
Süleyman Gönülateş ◽  
Mehmet Ali Ozturk
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Pearson Correlation ◽  
World Health ◽  
Homogeneous Distribution ◽  
Activity Levels ◽  
Correlation Test ◽  
Physical Activity Levels ◽  
Pearson Correlation Test

The aim of this study is to investigate whether there is a positive or negative relationship between the quality of life of the students and their physical activity levels (PAL). A total of 469 students participated in the study (female = 209, male = 260). The physical activity levels of the participants were determined as "International Physical Activity Questionnaire Short Form (IPAQ-SF)" and their quality of life was determined by the World Health Organization (WHOQOL-BREF). In the statistical analysis, parametric tests were used because of the normal and homogeneous distribution of the data. The difference between PAL and quality of life scores was evaluated by MANOVA test. The relationship between PAL and quality of life of the participants was tested by Pearson Correlation test. The overall health status of the participants was 87% (n = 408) good-very good and the level of physical activity was 88.1% (n = 413) moderate-high active. There was no statistically significant difference between the PAL and quality of life scores of the participants. After Pearson Correlation test, there was no correlation between PAL and quality of life at r2 at p

scholarly journals Validation of the Iranian Version of the ECOS-16 Questionnaire in Patients with Osteoporotic Vertebral Fractures

2017 ◽  
Vol 11 (4) ◽  
pp. 586-593
Author(s):  
Parisa Azimi ◽  
Taravat Yazdanian ◽  
Ali Montazeri
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Vertebral Fractures ◽  
World Health ◽  
Life Questionnaire ◽  
Retest Reliability ◽  
Osteoporotic Vertebral Fractures ◽  
Sf 36 ◽  
Test Retest Reliability

<sec><title>Study Design</title><p>Prospective clinical study.</p></sec><sec><title>Purpose</title><p>To translate and validate the Quality of Life Questionnaire of the European Foundation for Osteoporosis (ECOS-16) in patients with osteoporotic vertebral fractures in Iran.</p></sec><sec><title>Overview of Literature</title><p>It is important to assess the psychometric properties of instruments measuring patient-reported outcomes.</p></sec><sec><title>Methods</title><p>The translation was performed using the backward-forward translation method. The final version was generated by consensus among the translators. Every woman who had a T-score of &lt;−2.5 completed ECOS-16. Patients were divided into two study groups according to the World Health Organization's criteria: those with at least one vertebral fracture (surgery group) and those with no fractures (control group). They were asked to respond to the questionnaire at three points in time: preoperative and twice within 1-week interval after surgery assessments (6-month follow-up). The 36-item short-form health survey (SF-36) also was completed. The psychometric properties of the questionnaire were assessed using internal consistency, test-retest reliability, convergent validity, discriminant validity, and responsiveness.</p></sec><sec><title>Results</title><p>Of 137 recruited women, 39 underwent surgery and 98 did not. Analysis of the ECOS-16 scales showed an appropriate reliability with Cronbach's alpha of &gt;0.70 for all scales. Test-retest reliability as indicated by intraclass correlation coefficient was found to be 0.85 (0.68–0.91). Additionally, the correlation of each item with its hypothesized domain of the ECOS-16 showed acceptable results, suggesting that the items had a substantial relationship with their own domains. Further analysis also indicated that the questionnaire was responsive to change (effect size, 0.85; standardized response mean, 0.93) (<italic>p</italic>&lt;0.001). Significant correlations existed between scores of similar subscales of ECOS-16 and SF-36 (<italic>p</italic>&lt;0.001).</p></sec><sec><title>Conclusions</title><p>ECOS-16 is an acceptable, reliable, valid, and responsive measure to assess the quality of life in patients with osteoporotic vertebral fractures.</p></sec>

scholarly journals Resilience, quality of life and symptoms of depression among elderlies receiving outpatient care

2019 ◽  
Vol 27 ◽  
Author(s):  
Gabriella Santos Lima ◽  
Isabela Maria Oliveira Souza ◽  
Luana Baldin Storti ◽  
Mônica Maria de Jesus Silva ◽  
Luciana Kusumota ◽  
...  
Keyword(s):  
Quality Of Life ◽  
World Health Organization ◽  
Pearson Correlation ◽  
World Health ◽  
World Health Organization Quality ◽  
Symptoms Of Depression ◽  
The World ◽  
Organization Quality ◽  
Health Organization

Objective: to analyze the relation between resilience and demographic variables, quality of life and symptoms of depression in elderlies attended at a Geriatric Outpatient Clinic. Method: analytical cross-sectional study, conducted with 148 elderlies, with a questionnaire of sociodemographic and health characterization, the Resilience Scale, the World Health Organization Quality of Life Bref, the World Health Organization Quality of Life Old, and the Center for Epidemiologic Survey - Depression Scale. Descriptive statistics, Student’s t-test and Pearson correlation were used for data analysis. Results: there was a positive correlation between resilience and schooling (r = 0.208; p = 0.010), income (r = 0.194; p = 0.017), the World Health Organization Quality of Life Bref (r = 0.242; p = 0.003), and the World Health Organization Quality of Life Old (r = 0.522; p <0.001), and negative correlation regarding symptoms of depression (r = -0.270; p = 0.001). Conclusion: Resilience presented relation to schooling, income, quality of life and symptoms of depression in the elderly. These results are expected to help the multidisciplinary team plan actions aimed at developing resilience towards the promotion of health and good quality of life in old age.

scholarly journals The correlation between health status and quality of life in southern Brazil

2008 ◽  
Vol 126 (5) ◽  
pp. 257-261 ◽  
Author(s):  
Carlos Zubaran ◽  
Karina Persch ◽  
Desire Tarso ◽  
Ana Ioppi ◽  
Juan Mezzich
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Pearson Correlation ◽  
Linear Regression Analysis ◽  
Correlation Coefficients ◽  
Healthcare Services ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Health Related

CONTEXT AND OBJECTIVE: The interconnections between quality of life and health status as assessed via questionnaires have not been thoroughly investigated. The objective of this study was to investigate a possible correlation between the constructs of general health status and quality of life as assessed by the Portuguese versions of two questionnaires recently adapted and tested in Brazil. DESIGN AND SETTING: This was a cross-sectional study in which two self-administered questionnaires were used. This investigation was conducted at healthcare services associated with the Universidade de Caxias do Sul, Brazil. METHODS: This study presents data from a sample of 120 volunteers who completed the Portuguese versions of the Personal Health Scale and the Multicultural Quality of Life Index questionnaires. Bivariate linear regression analysis and Pearson correlation coefficients were generated from the scores of the two questionnaires. RESULTS: A significant correlation between the concepts of quality of life and health status as evaluated by the Portuguese versions of both questionnaires was observed. Almost all of the health-related questions displayed strong correlations with the overall concept of quality of life. The magnitude of this correlation accounted for almost half of the observed variance. CONCLUSIONS: These findings indicate that, within this sample, health-related issues were key factors for the overall experience of wellbeing and quality of life. The similarities observed across the different groups indicate that the interrelation between health status and quality of life was homogenous, regardless of presence and/or type of ailments.

scholarly journals The use of the computerized version of quality of life and health status questionnaires in a community sample in southern Brazil

2011 ◽  
Vol 129 (1) ◽  
pp. 36-40 ◽  
Author(s):  
Carlos Zubaran ◽  
Ivanor Tres
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Data Collection ◽  
Pearson Correlation ◽  
Community Sample ◽  
Correlation Coefficients ◽  
Southern Brazil ◽  
Cross Sectional ◽  
Study Results

CONTEXT AND OBJECTIVE: Computerized data collection is an efficient process and well accepted by patients with different disorders. Although computer-based systems have been used to assess health status and quality of life in various areas of healthcare, there is a lack of studies to investigate the effectiveness of these instruments in Brazil. The aims here were to assess the usability of the Portuguese-language versions of the Personal Health Scale (PHS) and the Multicultural Quality of Life Index (MQLI) in southern Brazil and to determine the correlation between these two questionnaires. DESIGN AND SETTING: This was a cross-sectional community-based survey in which participants completed computerized versions of these two questionnaires. METHODS: In a survey conducted in 16 different locations, 458 volunteers completed both questionnaires. Pearson correlation coefficients were generated between the scores of the two questionnaires. The inclusion criteria allowed all volunteers who were able to understand the questions in both questionnaires to participate in the study. RESULTS: The percentage of proper data collection via the computerized versions of the two questionnaires combined was 97.45%. A significant correlation (P < 0.01) between the PHS and the MQLI was observed. CONCLUSION: The computerized versions of the PHS and MQLI demonstrated efficient data collection patterns during the field survey trials. Health-related issues were significantly correlated with the overall experience of wellbeing and quality of life. The computerized versions of the PHS and MQLI are valid tools for research and clinical use in Brazil

Single- versus multiple-item assessment of quality of life in patients with advanced cancer

2009 ◽  
Vol 27 (15_suppl) ◽  
pp. e20528-e20528
Author(s):  
S. H. Bush ◽  
H. A. Parsons ◽  
J. L. Palmer ◽  
R. Chacko ◽  
Z. Li ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Regression Analysis ◽  
Correlation Coefficient ◽  
Pearson Correlation ◽  
Correlation Coefficients ◽  
Well Being ◽  
Pearson Correlation Coefficient ◽  
Spearman Correlation ◽  
Symptom Intensity

e20528 Background: The main objective of palliative cancer care is to improve quality of life (QOL). As multiple dimensions impact on the construct of QOL, multi-dimensional instruments are usually used in its measurement. These are time consuming and burdensome for repeated use. Recent authors have suggested that brief single-item global assessments can provide a reliable measure of QOL. We assessed the performance of the Edmonton Symptom Assessment System ‘feeling of well-being’ item (ESAS WB) using the Functional Assessment of Cancer Therapy - General (FACT-G) instrument as a gold standard. Methods: After obtaining IRB approval, we reviewed the data from 213 advanced cancer patients who had participated in six studies from March 2006 to June 2008 and determined the level of association between baseline ESAS WB and FACT-G total score and subscale domains (Physical (Pwb), Social/Family (Swb), Emotional (Ewb), and Functional (Fwb) Well-Being) and also the 9 ESAS symptom intensity scores using Spearman correlation coefficients. We also calculated the change between the baseline (T1) and second (T2) observations of ESAS WB and of FACT-G total score and determined their level of association using a Pearson correlation coefficient. In addition, we predicted the change in FACT-G as predicted by the change in ESAS WB score using regression analysis. Results: Mean age was 60 (SD 12) years and 48% were female. At T1, the Spearman correlation coefficient of ESAS WB and FACT-G was -0.48 (p<0.0001). Spearman correlation coefficients for ESAS WB and FACT-G subscale domains and ESAS symptom intensity scores were also highly significant (p<0.0001) for all physical and emotional symptoms (other than p=0.003 for nausea) except for FACT Swb (p=0.08). The Pearson correlation coefficient for difference between T1 and T2 in ESAS WB and FACT-G for 146 patients was -0.36 (p<0.0001). The regression analysis was highly significant (p<0.0001). The change in ESAS WB corresponding to FACT-G published minimally important difference (MID) was -0.24 for 3, -1.55 for 5, and -2.87 for 7, respectively. Conclusions: ESAS WB is a practical instrument for clinical use and best reflects the Pwb, Ewb and Fwb domains of FACT-G as compared to Swb. No significant financial relationships to disclose.

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