scholarly journals Gaining Longitudinal Accounts of Carers' Experiences Using IPA and Photograph Elicitation

2020 ◽  
Vol 11 ◽  
Author(s):  
Val Morrison ◽  
Karina Williams

Fluctuations in positive and negative caregiving experiences remain only partially explained as the significant variability over time of potential predictive factors themselves is understudied. The current study aims to gain considerable insight into caregiving experiences and perceptions over time by using photovoice methodology to support semi-structured interviews. A case study, longitudinal design is taken with three female caregivers who provide detailed insight into their caregivers' experiences over a 12 month period. The interview transcripts were analyzed using IPA- Interpretative Phenomenological Analysis. This innovative combination of methods resulted in the emergence of three related themes which included consuming the role, feeling consumed by the role, and letting go of the role. The idiographic approach taken allowed both within case differences to be examined over time, and also between carer differences to be highlighted. Implications of illness type and its characteristics, and of attachment and relationship quality with the care recipient were seen in terms of how and when the caregivers moved between the themes identified. The use of others' support or respite care is examined vis-a vis caregiver's own beliefs, emotions, relationship attachment and motivations to care. Caregivers self-efficacy beliefs also shifted over time and were influential in caregiver experience as the care recipient condition or needs changed. No previous studies have found that negative caregiving consequences are, in part, under volitional control and yet our data on the underlying reasons for consuming caregiving or allowing themselves to consume, would suggest this may in part be true. This is important because it suggests that interventions to support caregivers should address relational and motivational factors more fully.

2021 ◽  
Vol 14 (2) ◽  
pp. 11-35
Author(s):  
Eva De Clercq

This study provides insight into the experiences of young adults born with variations of sex characteristics to identify aspects of care and social support that need improvement. Semi-structured interviews with intersex youths in Switzerland were analyzed using interpretative, phenomenological analysis. Young adults desire timely, patient-centered information about their diagnoses. Peer support is key to delivering high-quality care but rarely systematically implemented. Intersex youth often face misrepresentation, stigma, and discrimination in medical settings and in society. Increased visibility alone cannot tackle these issues, but a feminist curiosity of care will enable health providers and society to overcome preconceptions of body normativity.


2019 ◽  
Vol 26 (2) ◽  
pp. 285-306 ◽  
Author(s):  
Torbjörn Ljungkvist ◽  
Börje Boers ◽  
Joachim Samuelsson

Purpose The purpose of this paper is to understand the development of the five dimensions of entrepreneurial orientation (EO) over time by taking a founder’s perspective. Design/methodology/approach The paper draws on an in-depth single-case study. It combines semi-structured interviews in the company with archival data, such as annual reports, press clips and interviews in business magazines. Findings The results indicate that the EO dimensions change from being personalized and directly solution-oriented to being intangible value-creation-oriented. Originality/value By suggesting ownership-based EO configurations, this study contributes insights into how different ownership forms propel EO. These configurations – that is, personal, administrative based and intangible focused – show the impact of the EO dimensions and provide a systematic and theoretical understanding of EO change over time.


Author(s):  
Andrew Muir Wood ◽  
James Moultrie ◽  
Claudia Eckert

Companies are coming round to the idea that function and form are complimentary factors in improving the user’s experience of a product and competing in today’s saturated consumer goods markets. However, consumer perception of form is constantly changing, and this manifests itself in the evolving forms of the products that they adopt. From clothes to cameras to cars, change in form is inevitable, and design teams must account for these trends in their product design and development strategies. Through literature, semi-structured interviews with design and trend practitioners, and an archival case study of mobile phone evolution, the authors have developed theories about the continuities that occur in product forms over time, and the forces that can disrupt this behaviour. They then go on to suggest how this view of form as evolving trajectories can benefit future product design strategies.


2020 ◽  
Vol 56 (1) ◽  
pp. 85-95
Author(s):  
Anita Džombić ◽  
Jelena Ogresta

The aim of this study was to explore the experience of parents whose children are in active treatment for various types of cancer. Semi-structured interviews were conducted with 11 parents. Through interpretative phenomenological analysis, five themes were derived: a) response to the diagnosis, b) parental “navigating” through the new life situation, c) “being in the hospital”, d) sources of additional “burden”, and e) those who made the process of treatment easier. The majority of parents used active coping strategies; for example, they tried to mobilise existing resources, focused on the present and lived a “day-by-day” kind of life. As aggravating circumstances of treatment, they noted inadequate physical conditions, increased costs of living, inadequate support of family members and a prejudicial environment. During the process of medical treatment, parents found the following factors helpful: child's strength, other parents’ support, community members, and the expertise of medical staff. This paper emphasises the complexities and importance of understanding parenting processes that can operate throughout the disease trajectory for families experiencing paediatric cancer. The findings on the experience of parents gives increasing insight into difficulties but also into parental protectiveness, which can contribute to defining the interventions for strengthening their parental role.


2020 ◽  
Vol 15 (3) ◽  
pp. 428-438 ◽  
Author(s):  
Vitor Ciampolini ◽  
Alexandre VB Tozetto ◽  
Fabrício J Milan ◽  
Martin Camiré ◽  
Michel Milistetd

Coach developers play essential roles in “coaching the coaches,” and investigating their lifelong learning pathway is key for better understanding the mechanisms that lead certain coaches to become coach developers. Thus, the purpose of the paper was to conduct a case study to investigate the lifelong learning pathway of a coach developer operating in a national sport federation. The case investigated is Mille, a certified coach developer in charge of the Brazilian Rugby Federation’s coach education program. Data were collected through the Rappaport Time Line and two semi-structured interviews. An interpretative phenomenological analysis was adopted to explore the lived experiences reported by the participant. The results highlighted that Mille is an individual driven by challenges provided either by external factors (i.e. school, university, work) or by his own choices (i.e. becoming a coach, becoming a coach developer, starting a PhD) for personal and professional development. Specific life events led him to make decisions for evolving in his roles, from athlete, to coach, to coach developer, and to “master trainer,” which is the highest level of certification provided by World Rugby. Practical implications are suggested to contribute to the organization of education initiatives for coach developers through a lifelong learning perspective.


2020 ◽  
pp. 030573562094423
Author(s):  
Melissa Forbes

This article explores spouse caregivers’ experiences of a community singing group for people with Parkinson’s disease and their carers. Previous studies have demonstrated the health and wellbeing benefits of group singing for a range of populations including people with Parkinson’s, however, caregivers’ experiences of these same groups remain under-researched. Semi-structured interviews were conducted with six spouse caregivers who regularly attended a joint caregiver/care recipient Parkinson’s singing group for a minimum period of 18 months. Interpretative Phenomenological Analysis (IPA) was used to explore and interpret caregivers’ experiences of group singing. Using the “social cure approach” as a theoretical lens in the later stages of analysis, findings demonstrated that group singing created a social identity which helped fulfill caregivers’ basic psychological needs for belonging, meaning and purpose, social support, and agency within the marital relationship. Caregivers’ new and valued social identity helped counteract the diminishing effects of life impacted by Parkinson’s. These findings support the recognition and further understanding of group singing as an accessible and cost-effective community-based psychosocial intervention for Parkinson’s spouse caregivers.


2020 ◽  
Vol 2 (2) ◽  
pp. 111-129
Author(s):  
Frances Costello

PurposeResearch was undertaken to understand whether taught resilience programmes which highlight the protective factors of resilience would impact individual resilience outcomes. The research focussed on specific resilience dimensions, change agility, physical, emotional and mental resilience, purpose in life and recovery; in an attempt to bridge the gap in understanding whether it is possible through taught programmes to improve resilience through the creation of new habits.Design/methodology/approachThe research was conducted using interpretative phenomenological analysis methods and used semi-structured interviews with 12 participants to understand participants lived experience of a one-day personal resilience programme, conducted within a private global manufacturing organisation.FindingsThe research found that all 12 participants interviewed 12–18 months post-programme made sustainable habits changes increasing personal resilience levels. Participants built new habits into their everyday lives, in the physical dimension exercising more regularly, taking breaks, changes in nutrition and creating better sleep patterns. Through increased understanding of emotional intelligence participants were able to react more favourably to adverse situations and through mental increased resilience focus achieve work and home priorities. In understanding the change journey participants found that they were able to move more quickly through the change cycle. Almost all participants found understanding their life purpose difficult and were not able to give a conclusive answer to what this might be, they found that attending the programme helped reflection in this dimension.Originality/valueThe paper includes an overview of previous resilience research but differs in its examination of the impact of a specific taught resilience programme in a large private sector organisation using IPA methodology.


Author(s):  
Cordelia Erickson-Davis ◽  
Helma Korzybska

AbstractIntroduction: Retinal implants have now been approved and commercially available for certain clinical populations for over 5 years, with hundreds of individuals implanted, scores of them closely followed in research trials. Despite these numbers, however, few data are available that would help us answer basic questions regarding the nature and outcomes of artificial vision: what do participants see when the device is turned on for the first time, and how does that change over time?Methods: Semi-structured interviews and observations were undertaken at two sites in France and the UK with 16 participants who had received either the Argus II or IRIS II devices. Data were collected at various time points in the process that implant recipients went through in receiving and learning to use the device, including initial evaluation, implantation, initial activation and systems fitting, re-education and finally post-education. These data were supplemented with data from interviews conducted with vision rehabilitation specialists at the clinical sites and clinical researchers at the device manufacturers (Second Sight and Pixium Vision). Observational and interview data were transcribed, coded and analyzed using an approach guided by Interpretative Phenomenological Analysis (IPA).Results: Implant recipients described the perceptual experience produced by their epiretinal implants as fundamentally, qualitatively different than natural vision. All used terms that invoked electrical stimuli to describe the appearance of their percepts, yet the characteristics used to describe the percepts varied significantly between participants. Artificial vision for these participants was a highly specific, learned skill-set that combined particular bodily techniques, associative learning and deductive reasoning in order to build a “lexicon of flashes” - a distinct perceptual vocabulary that they then used to decompose, recompose and interpret their surroundings. The percept did not transform over time; rather, the participant became better at interpreting the signals they received. The process of using the device never ceased to be cognitively fatiguing, and did not come without risk or cost to the participant. In exchange, participants received hope and purpose through participation, as well as a new kind of sensory signal that may not have afforded practical or functional use in daily life but, for some, provided a kind of “contemplative perception” that participants tailored to individualized activities.Conclusion: Attending to the qualitative reports of participants regarding the experience of artificial vision provides valuable information not captured by extant clinical outcome measures. These data can both inform device design and rehabilitative techniques, as well as grant a more holistic understanding of the phenomenon of artificial vision.


2016 ◽  
Vol 28 (3) ◽  
pp. 25-36 ◽  
Author(s):  
Greg Hall ◽  
Jennifer Boddy ◽  
Lesley Chenoweth

INTRODUCTION: This paper explores a reform to worker relationships at the frontline of the Australian income support and government service provider (Centrelink). Reform involved social workers providing guidance to customer service workers and working closely with them in order to improve interactions with people seeking assistance.METHODS: A case study traced reform in two Centrelink offices over one year, and included semi-structured interviews and observations with social workers and customer service workers. A thematic analysis highlighted the nature of changes to worker relationships over time, and how new relationships supported new organizational practices.FINDINGS: Customer service workers initially reported both anxiety and excitement, expressing admiration of social workers’ skills and knowledge. Over time, they emphasised the inspiration and interpersonal support social workers provided them, how this helped them deal with difficult situations and was missed when not available. Social workers’ initial scepticism around demands on their time and challenges to their professionalism gave way (in part) to a sense of influencing and guiding workers towards more humanising interactions, although some concerns and organizational tensions remained.CONCLUSION: Guidance to other workers is a form of leadership which fits well with social work’s relational, supportive potential. Tensions in the welfare context mean that providing guidance is both rewarding and challenging, taking social workers on an adventurous journey involving adversity and (self) discovery.


Author(s):  
Karel Joris Bert Lootens ◽  
Marina Efthymiou

Network-centric sharing of data between all Air Traffic Management (ATM) stakeholders can improve the aviation network substantially. The System Wide Information Management (SWIM) platform is a platform for the open sharing of all information between aircraft operators, airports, air navigation services providers (ANSPs), and meteorology services, but has struggled to find a following. This article aims to identify the potential reasons for the slow adoption of the SWIM platform, and to investigate how to better communicate its potential. To gain insight into the drivers for each of the stakeholders, a series of semi-structured interviews was conducted with airlines, airports and ANSPs. Moreover, an Airport Collaborative Decision Making (A-CDM) initiative at the airport in Dublin was included as a case study. Recommendations are provided on how to address the results from a governance point of view.


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