scholarly journals Living “day-by-day”

2020 ◽  
Vol 56 (1) ◽  
pp. 85-95
Author(s):  
Anita Džombić ◽  
Jelena Ogresta
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Paediatric Cancer ◽  
Structured Interviews ◽  
Community Members ◽  
Disease Trajectory ◽  
Physical Conditions ◽  
Additional Burden ◽  
Parental Protectiveness ◽  
Day By Day ◽  
Insight Into

The aim of this study was to explore the experience of parents whose children are in active treatment for various types of cancer. Semi-structured interviews were conducted with 11 parents. Through interpretative phenomenological analysis, five themes were derived: a) response to the diagnosis, b) parental “navigating” through the new life situation, c) “being in the hospital”, d) sources of additional “burden”, and e) those who made the process of treatment easier. The majority of parents used active coping strategies; for example, they tried to mobilise existing resources, focused on the present and lived a “day-by-day” kind of life. As aggravating circumstances of treatment, they noted inadequate physical conditions, increased costs of living, inadequate support of family members and a prejudicial environment. During the process of medical treatment, parents found the following factors helpful: child's strength, other parents’ support, community members, and the expertise of medical staff. This paper emphasises the complexities and importance of understanding parenting processes that can operate throughout the disease trajectory for families experiencing paediatric cancer. The findings on the experience of parents gives increasing insight into difficulties but also into parental protectiveness, which can contribute to defining the interventions for strengthening their parental role.

A Tsunami of Love: Overcoming the Violence of Curiosity—The Lived Experiences of Young Adults Born with Variations of Sex Characteristics

2021 ◽  
Vol 14 (2) ◽  
pp. 11-35
Author(s):  
Eva De Clercq
Keyword(s):  
Young Adults ◽  
Interpretative Phenomenological Analysis ◽  
Quality Care ◽  
Phenomenological Analysis ◽  
Sex Characteristics ◽  
Health Providers ◽  
Structured Interviews ◽  
Patient Centered ◽  
Medical Settings ◽  
Insight Into

This study provides insight into the experiences of young adults born with variations of sex characteristics to identify aspects of care and social support that need improvement. Semi-structured interviews with intersex youths in Switzerland were analyzed using interpretative, phenomenological analysis. Young adults desire timely, patient-centered information about their diagnoses. Peer support is key to delivering high-quality care but rarely systematically implemented. Intersex youth often face misrepresentation, stigma, and discrimination in medical settings and in society. Increased visibility alone cannot tackle these issues, but a feminist curiosity of care will enable health providers and society to overcome preconceptions of body normativity.

An interpretative phenomenological analysis of prisoners’ experience of riotous behaviour in an adult male prison

2014 ◽  
Vol 16 (3) ◽  
pp. 203-215 ◽  
Author(s):  
Niamh Kennedy
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Motivational Factors ◽  
Future Research ◽  
Structured Interviews ◽  
Prison Staff ◽  
Content Type ◽  
The Future ◽  
The Individual ◽  
Insight Into

Purpose – Prison violence generates much public interest with concerns for the financial costs, staff safety and public safety. The purpose of this paper is to explore the experience of riotous behaviour from the perspective of prisoners in a maximum secure adult prison. It also seeks gather information and to generate discussion on areas for future research. Design/methodology/approach – A purposive sampling method and in-depth semi-structured interviews were carried out. Interpretative phenomenological analysis identified super ordinate themes and related sub-themes within the participants’ narratives. Emergent themes were then considered in relation to the theories and concepts that underpinned and connected them. Findings – Super ordinate themes emerged centred around the subject of social processing and relationships. Prisoners emphasised the role of prisoner-staff relationships in feeling valued as part of the social structure and considered riotous behaviour the best method of communication at that time. Social comparison highlighted the value they placed in being part of the prisoner culture and the nostalgic nature of the riotous behaviour for them. It lends support to earlier theory on prison adjustment and social psychological explanations for rioting. Research limitations/implications – It is not assumed that the findings of this study can be universally applied given the sample size and the idiosyncratic nature of participants’ experiences. This research may provide greater insight into the motivational factors related to individuals involved in riotous behaviour. With such insight prison staff may be more able to consider whether prisoners’ needs are being sufficiently met to help prevent such behaviour in the future. Practical implications – This research may help inform training on the identification and management of potential riots. With insight into the individual motivational factors prison staff may be more able to consider whether prisoners’ needs are being sufficiently met to help prevent such behaviour in the future. Originality/value – This paper reports on the prisoners’ individual experience of being involved in riotous behaviour. Due to the paucity of literature on this behaviour, this exploratory study is intended to add to existing knowledge.

scholarly journals Catharsis Through Cinema: An Italian Qualitative Study on Watching Tragedies to Mitigate the Fear of COVID-19

2021 ◽  
Vol 12 ◽  
Author(s):  
Ines Testoni ◽  
Emil Rossi ◽  
Sara Pompele ◽  
Ilaria Malaguti ◽  
Hod Orkibi
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Real Life ◽  
Phenomenological Analysis ◽  
Qualitative Approach ◽  
Snowball Sampling ◽  
Psychological Function ◽  
Structured Interviews ◽  
Ways Of Coping ◽  
Insight Into ◽  
Peculiar Phenomenon

Background: Among different ways of coping with the unsettling situation of the COVID-19 pandemic, a very peculiar one has been identified: a more frequent request, by the general population, of movies or TV series related to the very theme of viruses, contagions, and epidemics.Objectives: The aim of the present study was to explore this peculiar phenomenon, in order to identify people's emotions and cognitions during and after the process, and to better understand the possible psychological function cinema can have during moments of intense and generalized crisis like the present COVID-19 pandemic.Participants: Fifteen Italian adults took part in the study – eight women and seven men (average age = 30 years, SD = 10.54). Participants were recruited through social media via a specific announcement, and subsequently, through a “snowball sampling.”Method: For the present study a qualitative approach was adopted, and more specifically, the principles of Interpretative Phenomenological Analysis (IPA) have been followed. Semi-structured interviews were conducted by telephone or through online meeting platforms (Zoom or Skype). The written texts obtained from the transcription of each interview were analyzed using thematic analysis with the support of the software Atlas.ti, in order to highlight their fundamental contents.Results: From the data analysis, four main areas of thematic prevalence emerged, which reflected the participants' condition during the pandemic that actually led them to watch epidemic-themed movies or TV series: the need to document themselves concerning the theme of epidemics, the need to exorcize contagion anxiety, the desire to find a character with which they could identify, and the casual condition of finding a peculiar movie related to the theme of pandemics and being interested in it because of the striking resemblance with real life.Conclusions: The findings suggest that cinema could indeed represent a powerful tool to help people face the intense uncertainty of the new COVID-19 epidemic, since it allows spectators to both obtain more insight into the current situation, and to project their fears and uncertainties into the movie or TV series, thus reaching a sort of cathartic liberation that offers them hope toward the future.

An Interpretative Phenomenological Analysis of Coach Perceptions in the Practice Environment

2020 ◽  
Vol 34 (4) ◽  
pp. 257-267
Author(s):  
Steve M. Smith ◽  
Stewart T. Cotterill ◽  
Hazel Brown
Keyword(s):  
Data Analysis ◽  
Influencing Factors ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Practice Environment ◽  
Structured Interviews ◽  
Sporting Activity ◽  
Basketball Coaches ◽  
Performance Perceptions ◽  
Insight Into

The psychological environment where sporting activity is undertaken has been suggested to influence performance. The coach orchestrates practice activities and their perception of the psychological environment has been regularly evaluated in competition research but not in practice. The aim of this study was to explore coach perceptions of the psychological influencing factors present in the practice environment. Participants were six U.K. academy basketball coaches (mean age = 35 years). Data were collected through semi-structured interviews and analyzed using interpretative phenomenological analysis. Five superordinate themes were constructed from data analysis, which were player characteristics, team-first orientation, current performance perceptions, coach characteristics, and coaching structure. Results suggest that the coach has a unique insight into the psychological influencing factors of the practice environment. Combined with the practice environment framework offered by Smith, Cotterill, and Brown, a model is offered to aid practitioners in understanding the interrelatedness of psychological influencing factors in the practice environment.

Exploring occupation in recovery from bulimia nervosa: An interpretative phenomenological analysis

2021 ◽  
pp. 030802262110452
Author(s):  
Elysa Roberts ◽  
Jessica Skipsey
Keyword(s):  
Bulimia Nervosa ◽  
Interpretative Phenomenological Analysis ◽  
Self Care ◽  
Phenomenological Analysis ◽  
Adult Women ◽  
Structured Interviews ◽  
Occupational Science ◽  
Meal Preparation ◽  
Recovery Experiences ◽  
Insight Into

Introduction Recovering from bulimia nervosa challenges a person to learn, revise, and do occupations that contribute to rather than detract from health. This study utilized Interpretative Phenomenological Analysis to (a) explore the recovery experiences of six adult women with histories of bulimia nervosa and (b) interpret how their accounts reflected the assumptions and characteristics of occupation. Methods Data were collected via audio-recorded, semi-structured interviews. Data analysis within and between cases identified six superordinate themes, which included interpretation in terms of criteria of occupation. Findings Superordinate themes reflect (1) occupation emerged in recovering from bulimia nervosa through committed action, not doing what fueled bulimia nervosa, adopting new ways of living, prioritizing self-care, connecting with others, and creating supportive environments and (2) recovery from bulimia nervosa can be construed as an occupation. Conclusion This study provides insight into nuances of recovery from bulimia nervosa. Results offer novel implications distinct to an occupational therapy lens, for example, consideration of self-care beyond eating and meal preparation; modification of the home, work, and social environment; and setting goals associated with not doing versus doing. Further, the interpretative finding of recovery as occupation holds implications for the evolving philosophical considerations within occupational science and therapy.

Adoptive parents’ experiences of dyadic developmental psychotherapy

2018 ◽  
Vol 24 (4) ◽  
pp. 661-679
Author(s):  
Megan Wingfield ◽  
Ben Gurney-Smith
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Evidence Base ◽  
Adoptive Parents ◽  
Structured Interviews ◽  
Foster Families ◽  
The Core ◽  
Qualitative Evidence ◽  
National Guidance ◽  
Insight Into ◽  
Parents Experiences

Dyadic developmental psychotherapy (DDP) is an attachment-focused therapy frequently used with adoptive and foster families. While the evidence base for DDP is building, national guidance has called for further trials and qualitative evidence. This study aimed to understand the experience of adoptive parents who have completed DDP therapy. Semi-structured interviews with 12 adoptive parents were analysed using interpretative phenomenological analysis. Four superordinate themes were identified: (1) increased understanding, (2) ‘It’s a different method of parenting generally’, (3) the DDP journey and (4) ‘It’s a shared kind of experience you go through and come out together’. Parents felt they had increased insight into their child’s mind and how to better support their child. They felt DDP was a good fit to their unique situations and it appeared to promote acceptance. The DDP journey started with parents feeling uncertainty and questioning the effectiveness of DDP. However, generally parents became committed to the therapy once they saw change and expressed fear and sadness at ending. Parents acknowledged the dyadic nature of DDP, feeling it helped build trust and security and supported co-regulation. Parents also acknowledged the therapist’s role in conveying the core DDP principles. Further implications for practice and research are highlighted.

scholarly journals Experience of exercise in people with severe haemophilia: A qualitative study

2017 ◽  
Vol 4 (1) ◽  
pp. 65-71 ◽  
Author(s):  
Stephanie Taylor ◽  
Francine Toye ◽  
Karen Barker
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Joint Damage ◽  
Severe Haemophilia ◽  
The European Union ◽  
Structured Interviews ◽  
Therapeutic Environment ◽  
Level Of Activity ◽  
Barriers To Exercise ◽  
Common Barriers ◽  
Insight Into

Abstract The benefits of regular activity and exercise are well established, yet a third of the population of the European Union does not achieve the recommended levels of activity. For patients with haemophilia, some activity can cause bleeding into joints, leading to potential joint damage, whereas other activities can protect the joint from bleeds and further destruction. This study investigates the understanding and experience of exercise and activity in people with haemophilia (PWH). We conducted semi-structured interviews with six men with severe haemophilia using a consecutive sampling framework and Interpretative Phenomenological Analysis (IPA). We identified five themes: • “I don’t think about haemophilia, I’ve just got to deal with it” A level of acceptance of awareness of their condition, but they do not want it to rule their lives. • “I don’t let my limitations hold me back” Striving to find activities they can participate in, despite joint impairment. • ”The worst thing anyone can do is stop being active” Belief that activity helps to strengthen joints, gives confidence and improves both body and mind. • ”The best thing they did was to not wrap me up in cotton wool” Knowledge of haemophilia, how to treat and recognise bleeds, and finding activities to suit their bodies. • “Time constraints at home” Common barriers to exercise, as in the general population. Our findings provide clinicians with insight into understanding the barriers to exercise and activity in men with severe haemophilia. This can help clinicians to offer the most appropriate support and allow PWH to find an activity or exercise that suits them. Our findings demonstrate that even those with severe haemophilia wish to remain active and do not want to let their limitations prevent them from exercising. Findings also indicate that being given the education and freedom to make independent decisions about exercise and activities are valued. This suggests that clinicians need to provide a therapeutic environment where their patients can feel safe to make sensible choices about types and level of activity.

scholarly journals Gaining Longitudinal Accounts of Carers' Experiences Using IPA and Photograph Elicitation

2020 ◽  
Vol 11 ◽  
Author(s):  
Val Morrison ◽  
Karina Williams
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Longitudinal Design ◽  
Care Recipient ◽  
Structured Interviews ◽  
Idiographic Approach ◽  
Letting Go ◽  
Combination Of Methods ◽  
Insight Into ◽  
Over Time

Fluctuations in positive and negative caregiving experiences remain only partially explained as the significant variability over time of potential predictive factors themselves is understudied. The current study aims to gain considerable insight into caregiving experiences and perceptions over time by using photovoice methodology to support semi-structured interviews. A case study, longitudinal design is taken with three female caregivers who provide detailed insight into their caregivers' experiences over a 12 month period. The interview transcripts were analyzed using IPA- Interpretative Phenomenological Analysis. This innovative combination of methods resulted in the emergence of three related themes which included consuming the role, feeling consumed by the role, and letting go of the role. The idiographic approach taken allowed both within case differences to be examined over time, and also between carer differences to be highlighted. Implications of illness type and its characteristics, and of attachment and relationship quality with the care recipient were seen in terms of how and when the caregivers moved between the themes identified. The use of others' support or respite care is examined vis-a vis caregiver's own beliefs, emotions, relationship attachment and motivations to care. Caregivers self-efficacy beliefs also shifted over time and were influential in caregiver experience as the care recipient condition or needs changed. No previous studies have found that negative caregiving consequences are, in part, under volitional control and yet our data on the underlying reasons for consuming caregiving or allowing themselves to consume, would suggest this may in part be true. This is important because it suggests that interventions to support caregivers should address relational and motivational factors more fully.

STUDI KUALITATIF : KEBUTUHAN IBU HAMIL DENGAN DIABETES MELITUS GESTASIONAL DI KABUPATEN KARANGANYAR JAWA TENGAH

2020 ◽  
pp. 17-26
Author(s):  
Arista Apriani ◽  
M Mufdlilah ◽  
Menik Sri Daryanti
Keyword(s):  
Social Support ◽  
Pregnant Women ◽  
Health Center ◽  
Blood Sugar ◽  
Interpretative Phenomenological Analysis ◽  
Health Workers ◽  
Phenomenological Analysis ◽  
Lifestyle Changes ◽  
Structured Interviews ◽  
Diabetes Melitus

ABSTRAK GDM dapat berpotensi menimbulkan komplikasi serius yang dapat mengakibatkan risiko kesehatan jangka pendek dan jangka panjang bagi ibu dan bayinya. diagnosis GDM menimbulkan efek emosional yang negatif. Persepsi ibu hamil tentang GDM dapat memengaruhi perubahan gaya hidup. Garis pertama penatalaksanaan DMG yaitu dengan perubahan gaya hidup. Tujuan menggali secara mendalam kebutuhan ibu dengan diagnosis diabetes melitus gestasional. Metode penelitian kualitatif dengan pendekatan  fenomenologi. Lokasi di Kabupaten Karanganyar yaitu Puskesmas Jaten I, Puskesmas Matesih dan RSUD Kabupaten Karanganyar, pada bulan Oktober 2019 - Januari 2020. Sampel secara criterion sampling Pengumpulan data dengan semistructure interview dengan one on one interview. Uji Keabsahan Data dengan Credibility pada penelitian ini menggunakan strategi validitas triangulasi, Tranferability, Dependability, Confirmability. Analisis data dengan Interpretative Phenomenological Analysis (IPA). Hasil penelitian kebutuhan ibu hamil dengan DMG teridentifikasi empat tema, yaitu dukungan keluarga dalam hal mengontrol pola makan, mengatarkan periksa ke tenaga kesehatan, dan mengingatkan untuk aktifitas olah raga. Dukungan sosial, yaitu cara mengontrol gula darah. Dukungan tenaga kesehatan, yaitu saran dan motivasi untuk mengontrol gula darah. Informasi mendapat saran atau perawatan DMG dalam kehamilan adalah dari tenaga kesehatan yaitu bidan, dokter, serta selain tenaga kesehatan dari teman dan internet. Kesimpulannya kebutuhan ibu hamil dengan DMG teridentifikasi empat tema, yaitu dukungan keluarga, dukungan sosial, dukungan tenaga kesehatan dan informasi.   Kata kunci: diabetes melitus gestasional, kehamilan, kebutuhan.   ABSTRACT GDM can overcome serious problems that can overcome short-term and long-term health problems for mother and baby. a diagnosis of GDM has a negative emotional effect. Pregnant women 's perception of GDM can affect lifestyle changes. The first line of management of DMG is lifestyle changes. Diagnosis of gestational diabetes mellitus. Qualitative research methods by studying phenomenology. Locations in Karanganyar Regency are Jaten I Health Center, Matesih Health Center and Karanganyar District Public Hospital, in October 2019 - January 2020. Sample sampling criteria Data collection by semi-structured interviews with one-on-one interviews. Data Validity Test with Credibility in this study using the triangulation validity strategy, Transparency, Dependability, Confirmability. Data analysis with Interpretative Phenomenological Analysis (IPA). The results of the study of the needs of pregnant women with DMG identified four themes, namely supporting the family in terms of controlling diet, sending check to health workers, and reminding for sports activities. Social support, which is a way to control blood sugar. Support of Health Workers, namely advice and motivation to control blood sugar. The information obtained from DMG advice or treatment in the assessment is from health workers, namely midwives, doctors, and also health workers from friends and the internet. In conclusion, the needs of pregnant women with DMG identified four themes, namely family support, social support, support of health workers and information.  

Care for delirium superimposed on dementia at an early stage

2020 ◽  
Keyword(s):  
Behavioral Problems ◽  
Healthcare Professionals ◽  
Early Stage ◽  
Good Care ◽  
Structured Interviews ◽  
Ethical Considerations ◽  
Appropriate Care ◽  
Adequate Care ◽  
Insight Into ◽  
Delirium Superimposed On Dementia

Delirium is a common serious complication in dementia that is associated with poor prognosis and a high burden on caregivers and healthcare professionals. Appropriate care is therefore important at an early stage for patients with delirium superimposed on dementia To gain insight into the care of six patients with delirium superimposed on dementia, 19 semi-structured interviews were conducted focused on the experiences of caregivers and professionals. The interviews revealed four themes that appeared to play a role: 1. experiences with and views on behavioral problems of these patients, 2. recognition and diagnosis of delirium in dementia, 3. views on good care and 4. organizational aspects. Knowledge gaps about delirium in dementia, as well as ethical considerations, play an important role in organizing timely and adequate care for patients with delirium superimposed on dementia.

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