scholarly journals What Makes Chinese Adult Children Behave Differently during Parents’ End of Life: A Discriminant Analysis of Macao Chinese

2021 ◽  
Vol 18 (20) ◽  
pp. 10737
Author(s):  
Wai I. Ng ◽  
Sok Leng Che ◽  
Xiang Li ◽  
Ming Xia Zhu
Keyword(s):  
Discriminant Analysis ◽  
End Of Life ◽  
Filial Piety ◽  
Daily Practice ◽  
Chinese Patients ◽  
Good Death ◽  
Cross Sectional ◽  
Web Based ◽  
Chinese Adult ◽  
Family Perspective

The daily practice of filial piety (FP) is well prescribed under the traditional filial norms in the Chinese community. However, exploration of FP practices at the end of parents’ lives is limited. The current study explored the FP representation and good death preferences of Macao Chinese. A cross-sectional web-based survey was conducted and discriminant analysis was used to identify possible predictors of FP representation in the context of parents’ end of life. Results showed that Macao Chinese were inclined to perform most of the filial duties in the last journey of their parents. Among 705 participants, 150 (21.3%) tended to practice authoritarian FP, and 555 (78.7%) tended to practice reciprocal FP. Age, education, religion, and good death preferences were identified as predictors of different FP representation groups. The findings could help clinicians to obtain a preliminary perception of FP representation of Chinese patients and to determine the appropriate approach for end-of-life care from a family perspective.

The relationship between caregivers’ perceptions of end-of-life care in long-term care and a good resident death

2020 ◽  
Vol 18 (6) ◽  
pp. 683-690
Author(s):  
Eunyoung Lee ◽  
Tamara Sussman ◽  
Sharon Kaasalainen ◽  
Pamela Durepos ◽  
Lynn McCleary ◽  
...  
Keyword(s):  
End Of Life ◽  
Long Term Care ◽  
Critical Role ◽  
Good Death ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Term Care ◽  
Spiritual Issues ◽  
Eol Care

AbstractObjectiveQuality end-of-life (EOL) care is critical for dying residents and their family/friend caregivers. While best practices to support resident comfort at EOL in long-term care (LTC) homes are emerging, research rarely explores if and how the type of care received at EOL may contribute to caregivers’ perceptions of a good death. To address this gap, this study explored how care practices at EOL contributed to caregivers’ perceptions of a good resident death.MethodThis study used a retrospective cross-sectional survey design. Seventy-eight participants whose relative or friend died in one of five LTC homes in Canada completed self-administered questionnaires on their perceptions of EOL care and perceptions of a good resident death.ResultsOverall, caregivers reported positive experiences with EOL care and perceived residents to have died a good death. However, communication regarding what to expect in the final days of life and attention to spiritual issues were often missing components of care. Further, when explored alongside direct resident care, family support, and rooming conditions, staff communication was the only aspect of EOL care significantly associated with caregivers’ perceptions of a good resident death.Significance of resultsThe findings of this study suggest that the critical role staff in LTC play in supporting caregivers’ perceptions of a good resident death. By keeping caregivers informed about expectations at the very end of life, staff can enhance caregivers’ perceptions of a good resident death. Further, by addressing spiritual issues staff may improve caregivers’ perceptions that residents were at peace when they died.

Comparison of Thai older patients’ wishes and nurses’ perceptions regarding end-of-life care

2019 ◽  
Vol 26 (7-8) ◽  
pp. 2006-2015 ◽  
Author(s):  
Manchumad Manjavong ◽  
Varalak Srinonprasert ◽  
Panita Limpawattana ◽  
Jarin Chindaprasirt ◽  
Srivieng Pairojkul ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Older Patients ◽  
Cross Sectional Study ◽  
Self Report ◽  
Good Death ◽  
Life Care ◽  
Cross Sectional ◽  
Adequate Knowledge

Background: Achieving a “good death” is a major goal of palliative care. Nurses play a key role in the end-of-life care of older patients. Understanding the perceptions of both older patients and nurses in this area could help improve care during this period. Objectives: To examine and compare the preferences and perceptions of older patients and nurses with regard to what they feel constitutes a “good death.” Research design: A cross-sectional study. Participants and research context: This study employed a self-report questionnaire that asked about various options for end-of-life care. It was distributed to older patients who attended the outpatient clinic of internal medicine and nurses who worked at two medical schools in Thailand from September 2017 to February 2018. Patients were asked to respond to the questions as if they were terminally ill, and nurses were asked to imagine how older patients would answer the questions. Ethical consideration: Approval from Institutional Review Board was obtained. Findings: A total of 608 patients and 665 nurses responded to the survey. Nurses agreed with concepts of palliative care, but they rated themselves as having poor knowledge. The patient respondents felt that it was most important that they receive the full truth about their illnesses (29.2%). The nurses thought the most important issue was relief of uncomfortable symptoms (25.2%). On seven out of the 13 questions, nurses overestimated the importance of the relevant issue to patients and underestimated the importance on one question (p < 0.05). Discussion: Both nurses and older patients signified concepts of palliative care, but nurses felt that they lacked adequate knowledge. Nurses estimated that patients would have positive attitudes toward autonomy and the closure of life affairs to a significantly greater degree than the patient respondents. Conclusions: We recommend that palliative care education be improved and that steps be taken to allow for more effective nurse–patient communication with regard to the patients’ end-of-life wishes.

Perceptions on good death among parents of pediatric patients with hematology-oncology disease in advance.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e21532-e21532
Author(s):  
Ji Yoon Kim ◽  
Bu Kyung Park
Keyword(s):  
End Of Life ◽  
Pediatric Patients ◽  
Living Will ◽  
Good Death ◽  
Cultural Issues ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Pediatric Hematology ◽  
National University

e21532 Background: It is difficult to perceive the preparation of a good death for children because of its social and cultural issues. Among the children with serious diseases, they can be alienated and the whole processes are done by the decision of the parent's proxy even when they have to prepare for death. The purpose of this study was to examine the perception of "Good Death" in advance among parents of pediatric patients with hematology-oncology diseases. Methods: We conducted a cross-sectional survey to parents of pediatric patients in Kyungpook National University Children’s Hospital. Participants were recruited from the outpatient department of pediatric hematology and oncology. The Good Death Inventory (GDI), a tool developed for the perspectives of end-of-life care from bereaved family members, has a total of 54 items, including 30 in 10 core domains and 24 in 8 optional domains. Higher GDI scores mean better quality of death. A total of 109 questionnaires were analyzed using SPSS 23.0. Results: Most patients were diagnosed with hematology (48%), followed by leukemia and lymphoma (31%), and solid oncology (21%). Patients had diagnosed with diseases 3.7 years ago. Among the characteristics of parents, parents who did religious activity had significantly higher optional GDI score (p = .048). Among the characteristics of patients, female patients had significantly higher optional GDI score (p = .041). Optional GDI score of middle school or higher patients was significantly higher than preschool patients (p = .010). Patients with good perceived health status patients had significantly higher scores in GDI core, optional, and total (p = .048, .044, .013). Patients who had discussed their end-of-life plan with parents or others had significantly higher GDI total scores (p = .045). Parents who agreed with having patients’ living will had significantly higher GDI optional and total scores (p = .012, .026). Patients who already had living will had significantly higher GDI total score (p = .036). Interestingly, parents who wanted to receive all possible treatments to prolong life for their children had higher GDI core score (p = .054). Conclusions: Discussing a living will as well as a willingness to treat would be important for care. To improve quality of life and decreasing the disease stress burden, individualized and multidisciplinary education should be performed regularly.

scholarly journals The Most Important Aspects for a Good Death: Perspectives from Parents of Children with Cancer

2021 ◽  
Vol 58 ◽  
pp. 004695802110285
Author(s):  
Ji Yoon Kim ◽  
Bu Kyung Park
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Linear Regression Analysis ◽  
Living Will ◽  
Good Death ◽  
Pediatric Palliative Care ◽  
Children With Cancer ◽  
Cross Sectional ◽  
Cancer Data

A good death is an important concept in pediatric palliative care. To improve the quality of pediatric palliative care, it is imperative to identify which domain is most important for a good death among children with cancer and their parents. This study aimed to (1) assess the essential domains for a good death from the perspectives of parents whose children have cancer using the Good Death Inventory (GDI) and (2) examine which characteristics are associated with the perception of a good death. An anonymous cross-sectional questionnaire was administered to 109 parents of children with cancer. Data were collected using a validated Korean version of the GDI. Descriptive statistics, t-test, and ANOVA were used to identify the preferred GDI domains. Multiple linear regression analysis was performed to identify factors associated with the GDI scores. The most essential domains for a good death included “maintaining hope and pleasure” and “being respected as an individual.” The factors most strongly associated with the perception of a good death were end-of-life plan discussion with parents or others and parental agreement with establishing a living will. Encouraging families to discuss end-of-life care and establish a living will in advance can improve the quality of death among children with cancer.

The Blessings and the Curses of Filial Piety on Dignity at the End of Life: Lived Experience of Hong Kong Chinese Adult Children Caregivers

2012 ◽  
Vol 21 (4) ◽  
pp. 277-296 ◽  
Author(s):  
Cecilia L. W. Chan ◽  
Andy H. Y. Ho ◽  
Pamela P. Y. Leung ◽  
Harvey M. Chochinov ◽  
Robert A. Neimeyer ◽  
...  
Keyword(s):  
Hong Kong ◽  
Lived Experience ◽  
End Of Life ◽  
Adult Children ◽  
Filial Piety ◽  
Hong Kong Chinese ◽  
Chinese Adult

scholarly journals Applicability of Motivational Interviewing for Chronic Disease Management in Primary Care Following a Web-Based E-Learning Course: Cross-Sectional Study

10.2196/12540 ◽  
2019 ◽  
Vol 6 (4) ◽  
pp. e12540
Author(s):  
Karoline Lukaschek ◽  
Nico Schneider ◽  
Mercedes Schelle ◽  
Ulrik Bak Kirk ◽  
Tina Eriksson ◽  
...  
Keyword(s):  
Medical Students ◽  
Motivational Interviewing ◽  
Daily Practice ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Web Based ◽  
Level Of Education ◽  
E Learning ◽  
Expected Benefits ◽  
The Cost

Background Motivational interviewing (MI) is an established communication method for enhancing intrinsic motivation for changing health behavior. E-learning can reduce the cost and time involved in providing continuing education and can be easily integrated into individual working arrangements and the daily routines of medical professionals. Thus, a Web-based course was devised to familiarize health professionals with different levels of education and expertise with MI techniques for patients with chronic conditions. Objective The aim of this study was to report participants’ opinion on the practicality of MI (as learned in the course) in daily practice, stratified by the level of education. Methods Participants (N=607) of the MI Web-based training course evaluated the course over 18 months, using a self-administered questionnaire. The evaluation was analyzed descriptively and stratified for the level of education (medical students, physicians in specialist training [PSTs], and general practitioners [GPs]). Results Participants rated the applicability of the skills and knowledge gained by the course as positive (medical students: 94% [79/84] good; PSTs: 88.6% [109/123] excellent; and GPs: 51.3% [182/355] excellent). When asked whether they envisage the use of MI in the future, 79% (67/84) of the students stated to a certain extent, 88.6% (109/123) of the PSTs stated to a great extent, and 38.6% (137/355) of GPs stated to a great extent. Participants acknowledged an improvement of communication skills such as inviting (medical students: 85% [72/84]; PSTs: 90.2% [111/123]; GPs: 37.2% [132/355]) and encouraging (medical students: 81% [68/84]; PSTs: 45.5% [56/123]; GPs: 36.3% [129/355]) patients to talk about behavior change and conveying respect for patient’s choices (medical students: 72% [61/84]; PSTs: 50.0% [61/123]; GPs: 23.4% [83/355]). Conclusions Participants confirmed the practicality of MI. However, the extent to which the practicality of MI was acknowledged as well as its expected benefits depended on the individual’s level of education/expertise.

Preferences for a good death: a cross-sectional survey in advanced cancer patients

2019 ◽  
pp. bmjspcare-2018-001750 ◽  
Author(s):  
Xiaoting Hou ◽  
Yuhan Lu ◽  
Hong Yang ◽  
Renxiu Guo ◽  
Yun Wang ◽  
...  
Keyword(s):  
Advanced Cancer ◽  
Chinese Patients ◽  
Good Death ◽  
Advanced Cancer Patients ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Effective Response ◽  
Convenience Sample ◽  
Good Relationship ◽  
Past Experiences

ObjectiveThe aim of this study was to describe preferences for a good death among Chinese patients with advanced cancer and then to explore factors contributing to their preferences including patient demographics and disease variables.MethodsA convenience sample of 275 patients with advanced cancer was recruited from a tertiary cancer hospital in Beijing, China, between February and December 2017. A Chinese version of the Good Death Inventory (GDI) was used to measure patients’ preferences for dying and death. Besides, data were collected using a multi-itemed questionnaire focusing on demographic and disease characteristics of patients.ResultsOf the 275 questionnaires returned, 248 responses were analysed (effective response rate 90.2%). According to the total scores for each of the 20 domains, the five most important domains of a good death were: good relationship with family (19.80±2.39), independence (19.66±2.56), maintaining hope and pleasure (19.56±2.55), good relationship with medical staff (18.92±3.73), not being a burden to others (18.89±3.30). Patients’ characteristics including age, educational status, religious belief, medical payment types, family economic status, past experiences of the death of others, the period since cancer diagnosis, past experiences of hospitalisation and subjective physical condition influenced their preferences for a good death (all p<0.05).ConclusionsWe had an in-depth knowledge and understanding of their preferences for good death among Chinese patients with advanced cancer. Meanwhile, we found some patients’ factors contributed to different preferences for a good death. These findings have the potential to guide hospice care services aimed at achieving a good death for patients with advanced cancer.

scholarly journals Knowledge and attitudes about end-of-life decisions, good death and principles of medical ethics among doctors in tertiary care hospitals in Sri Lanka: a cross-sectional study

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Thashi Chang ◽  
Saumya Darshani ◽  
Pavithra Manikavasagam ◽  
Carukshi Arambepola
Keyword(s):  
Sri Lanka ◽  
Medical Ethics ◽  
End Of Life ◽  
End Of Life Care ◽  
Tertiary Care ◽  
Cross Sectional Study ◽  
Good Death ◽  
Life Care ◽  
Cross Sectional ◽  
Knowledge And Attitudes

Abstract Background Competent end-of-life care is an essential component of total health care provision, but evidence suggests that it is often deficient. This study aimed to evaluate the knowledge and attitudes about key end-of-life issues and principles of good death among doctors in clinical settings. Methods A cross-sectional study was conducted among allopathic medical doctors working in in-ward clinical settings of tertiary care hospitals in Sri Lanka using a self-administered questionnaire with open- and close-ended questions as well as hypothetical clinical scenarios. Univariate and logistic regression analysis were used to identify the independent factors associated with knowledge and attitudes. Results Of the responders who had not been a caregiver for a terminally ill relative (n = 390), 57.9% were men with a mean age of 36.5 years (SD = 8.2). Compared to undergraduate (65.6%; n = 256), only 27.4% (n = 107) had received end-of-life care training at postgraduate level. Only 65.9% of doctors favoured disclosing terminal prognosis to patients; 27.7% of doctors were aware of advance directives; 14.6% were aware of the correct time of death when certifying brain death; 70.3% felt more comfortable in withholding than withdrawing life-sustaining treatment; 61.3% were aware of do-not-attempt cardiopulmonary resuscitation (DNACPR) decisions while 26.7% felt reluctant to administer it; 15.1% thought that all life-sustaining therapy should be withdrawn with a DNACPR decision; and only17.9% were able to name the four principles of medical ethics while 57.9% could not name a single. Participants scored a mean of 9.2 (SD = 3.9) of a maximum 14 points when tested on principles of a ‘good death’. Doctors who had pursued postgraduate studies were more likely to be aware of breaking bad news (adjusted-Odds-Ratio:1.99; 95%CI = 1.19–3.32), advance directives (adjusted-OR: 4.15; 95%CI = 2.49–6.94), aware of certifying the correct time of death (adjusted-OR:2.37; 95%CI = 1.33–4.2) and less reluctant to make DNACPR decisions (adjusted-OR:1.74; 95%CI = 1.13–2.68). Doctors who had worked in ICU were more comfortable withholding than withdrawing treatment (adjusted-OR:1.99; 95%CI = 1.2–3.31). Conclusions Knowledge and attitudes about end-of-life care, good death and principles of medical ethics among doctors in Sri Lanka were suboptimal. Structured training of end-of-life care needs to be integrated within curricula and in-service training.

Awareness of the preventive measures against Covid -19 spread among small shop owners

2020 ◽  
Vol 11 (SPL1) ◽  
pp. 1144-1150
Author(s):  
Muralidharan V A ◽  
Gheena S
Keyword(s):  
Infectious Disease ◽  
Data Analysis ◽  
Preventive Measures ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Positive Perception ◽  
Cross Sectional ◽  
Web Based ◽  
Small Shop ◽  
Structured Questionnaire

Covid -19 is an infectious disease caused by the newly discovered strain of coronavirus. As there is no vaccine discovered, the only way to prevent the spread is through following the practice of social isolation. But prolonged isolation may also lead to psychological stress and problems. The objective of the survey was to assess the knowledge and awareness of preventive measures against Covid 19 amongst small shop owners. A web-based cross-sectional study was conducted amongst the small shop owners.  A structured questionnaire comprising 15-17 questions had been put forth to assess the Covid 19 related knowledge and perception. The shopkeepers were contacted telephonically and responses recorded. The data analysis was performed using IBM SPSS statistics. Although the majority of the population had a positive perception about the preventive measures against the Covid spread, 36% of the shopkeepers were not aware of the preventive measures against the Covid spread. This study found optimal knowledge and perception of the preventive measures against Covid spread among the shopkeepers but misinformation and misunderstanding still prevailing. The shopkeepers are crucial in the prevention of the spread of Covid 19 and educating them might aid us in the fight against Covid- 19. 

Fraud Detection Protocol for Web-Based Research Among Men Who Have Sex With Men: Development and Descriptive Evaluation (Preprint)

2018 ◽  
Author(s):  
April M Ballard ◽  
Trey Cardwell ◽  
April M Young
Keyword(s):  
Survey Research ◽  
Hiv Transmission ◽  
Personal Information ◽  
Fraud Detection ◽  
Detection Algorithm ◽  
Cross Sectional ◽  
Web Based ◽  
Young Msm ◽  
Data Survey ◽  
Sex With Men

BACKGROUND Internet is becoming an increasingly common tool for survey research, particularly among “hidden” or vulnerable populations, such as men who have sex with men (MSM). Web-based research has many advantages for participants and researchers, but fraud can present a significant threat to data integrity. OBJECTIVE The purpose of this analysis was to evaluate fraud detection strategies in a Web-based survey of young MSM and describe new protocols to improve fraud detection in Web-based survey research. METHODS This study involved a cross-sectional Web-based survey that examined individual- and network-level risk factors for HIV transmission and substance use among young MSM residing in 15 counties in Central Kentucky. Each survey entry, which was at least 50% complete, was evaluated by the study staff for fraud using an algorithm involving 8 criteria based on a combination of geolocation data, survey data, and personal information. Entries were classified as fraudulent, potentially fraudulent, or valid. Descriptive analyses were performed to describe each fraud detection criterion among entries. RESULTS Of the 414 survey entries, the final categorization resulted in 119 (28.7%) entries identified as fraud, 42 (10.1%) as potential fraud, and 253 (61.1%) as valid. Geolocation outside of the study area (164/414, 39.6%) was the most frequently violated criterion. However, 33.3% (82/246) of the entries that had ineligible geolocations belonged to participants who were in eligible locations (as verified by their request to mail payment to an address within the study area or participation at a local event). The second most frequently violated criterion was an invalid phone number (94/414, 22.7%), followed by mismatching names within an entry (43/414, 10.4%) and unusual email addresses (37/414, 8.9%). Less than 5% (18/414) of the entries had some combination of personal information items matching that of a previous entry. CONCLUSIONS This study suggests that researchers conducting Web-based surveys of MSM should be vigilant about the potential for fraud. Researchers should have a fraud detection algorithm in place prior to data collection and should not rely on the Internet Protocol (IP) address or geolocation alone, but should rather use a combination of indicators.

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