scholarly journals The Dignity of Middle Adult Palliative Patients at Home in Bantul

2021 ◽  
Vol 9 (T4) ◽  
pp. 347-353
Author(s):  
Bertha Tesma Wulandari ◽  
Arianti Arianti
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
Data Collection ◽  
Phenomenological Approach ◽  
Self Esteem ◽  
Care Needs ◽  
Thick Description ◽  
Collection Data ◽  
At Home

BACKGROUND: The condition of middle adult patients with palliative disease is prone to experiencing physical weakness and psychological suffering, disrupting dignity. As a caregiver at home, the family plays an essential role in providing support to maintain patient dignity. AIM: This study aims to determine the image of the dignity of the middle adult patient with palliative care needs by family at home. METHODS: This research is a qualitative study with a phenomenological approach. Participants were seven people with the purposive sampling method. Data collection methods were conducted using in-depth interviews and semi-structured observation. Research instruments included interview guidelines, field notes, and an observation form. Data validity used reference material, rich and thick description, and peer debriefing. Data analysis included data collection, data reduction, data presentation, and conclusion. RESULTS: The results showed that the dignity of patients was considered by six themes; self-esteem went up and down, the meaning of illness and death, family response to the patient, sources of decision-making, an image of the quality of life, and future wishes. CONCLUSION: This study had six themes depicting the dignity of patients that consisted of subthemes. The themes included self-esteem went up and down, the meaning of illness and death, family response to the patient, sources of decision-making, an image of the quality of life, and future wishes.

scholarly journals Perempuan Pencari Nafkah Selama Pandemi Covid-19

2021 ◽  
Vol 4 (1) ◽  
pp. 13-29
Author(s):  
Eka Kartika Sari ◽  
Biko Nabih Fikri Zufar
Keyword(s):  
Quality Of Life ◽  
Qualitative Research ◽  
Research Methods ◽  
Phenomenological Approach ◽  
Qualitative Research Methods ◽  
Economic Conditions ◽  
Condition Of Women ◽  
At Home

The perception of women as the number two role in society continues to this day. This knowledge has an impact on women's inferiority and subordination. In addition, the conditions of the Covid-19 pandemic have increased the workload for women at home. The workload for women has increased threefold, including earning a living in it. The woman breadwinner in Kampung Kue Rungkut Lor II experienced this during the pandemic. This article uses qualitative research methods and a phenomenological approach, in order to obtain data on the quality of life in the Kampung Kue Rungkut Lor II community. The purpose of this study was to determine descriptively the condition of women breadwinners during the pandemic. As a result, the “Pembatasan Sosial Berskala Besar” (PSBB) affected the economic conditions in the Kampung Kue Rungkut Lor II community, and women also experienced three times more workload than men at home. The pandemic has actually added to the exploitation and oppression of women in the Kampung Kue Rungkut Lor II community. Therefore, it is necessary to have further research on the quality of life of women breadwinners in Kampung Kue Rungkut Lor II before the pandemic to find out the differences in the quality of life of women breadwinners in the same location.

scholarly journals The Priorities of People with Mesothelioma: A Qualitative Study of Trial Participation and Treatment Decisions

2021 ◽  
Author(s):  
Anna Bibby ◽  
Anna J Morley ◽  
Emma Keenan ◽  
Nick A Maskell ◽  
Rachael Gooberman-Hill
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
Treatment Options ◽  
Randomised Trial ◽  
Research Participation ◽  
Trial Participation ◽  
Structured Interviews ◽  
Care Needs ◽  
Physical Strength

Abstract BackgroundTreatment options for mesothelioma are increasing, as are the number of clinical trials available to patients. However, little is known about patients’ and relatives’ priorities when making decisions about treatment and trial participation. MethodsFace to face, semi-structured interviews were undertaken with mesothelioma patients who were participating in the TILT trial (a randomised trial of intra-pleural immunotherapy) and their relatives. Interviews were audio-recorded, transcribed and analysed thematically. ResultsTwelve people were interviewed, comprising five mesothelioma patients and seven relatives. Four themes were identified relating to the experience of mesothelioma: physicality, quality of life, uncertainty and risk, and anxiety and the future. A further theme related to attitudes to research participation.Participants valued physical strength and were careful not to jeopardise this with potential side effects of medication. Quality of life was important and was often prioritised over survival. Participants found ambiguity challenging and sought certainty, potentially in response to the uncertainty surrounding their future. The desire for certainty impacted on risk perception; an important factor in decision-making. Relatives often advocated on behalf of patients and were more reluctant about research participation due to concern about potential risks.ConclusionThe study confirmed previous qualitative findings around physicality, uncertainty and relatives as advocates, building on these themes to highlight their influence on decision-making. Important findings for practice include the challenges associated with risk communication and the differing care needs of relatives.

STRATEGI PENINGKATAN KUALITAS HIDUP MELALUI PROGRAM TAHU PANAS (TAK TAKUT KEHUJANAN, TAK TAKUT KEPANASAN) OLEH DINAS SOSIAL KOTA SURABAYA

Publika ◽  
2021 ◽  
pp. 295-306
Author(s):  
Filandita Ananda Kusuma Pratama ◽  
Fitrotun Niswah
Keyword(s):  
Quality Of Life ◽  
Data Collection ◽  
Social Service ◽  
City Government ◽  
The Poor ◽  
The Social ◽  
Collection Data ◽  
Social Empowerment ◽  
The Village

Pemerintah Kota Surabaya menggandeng Dinsos Kota Surabaya untuk meningkatkan kualitas hidup warga. Salah satu upaya dilakukan dengan  membuat suatu program inovasi yang berfokus pada hunian yang layak untuk masyarakat miskin. Program tersebut yaitu Tahu Panas, program ini dimaksudkan untuk memperbaiki rumah yang tidak layak huni. Karena masih adanya warga Surabaya yang rumahnya belum layak huni, dengan adanya program ini diharapkan masyarakat miskin yang memiliki rumah tidak layak huni mendapatkan rumah yang layak dan meningkatkan kualitas hidupnya lebih baik lagi. Tujuan penelitian ini untuk mengetahui strategi peningkatan kualitas hidup melalui program tahu panas oleh Dinsos Kota Surabaya. Penelitian ini menggunakan pendekatan kualitatif deskriptif. Teknik pengumpulan data dengan cara observasi,wawancara,dan dokumentasi. Teknik analisis data dengan pengumpulan data, Reduksi data,Penyajian data, hingga penarikan kesimpulan atau verifikasi. Fokus penelitian terdiri dari tiga indikator yaitu Goal Directed Actions yaitu organisasi dan bagaimana mengimplementasikannya, mempertimbangkan semua kekuatan internal (sumber daya dan kapabilitas), serta memperhatikan peluang dan tantangan. Hasil penelitian menunjukkan bahwa dalam pelaksanaanya program ini : Dinsos bertujuan untuk meningkatkan kesejahteraan dan kualitas hidup warga surabaya dalam memliki rumah sederhana dan sehat melalui program Tahu Panas. Dalam pelaksanaanya juga dibantu oleh UPKM atau Pokmas yang sudah dipilih oleh lurah dimana UPKM ini bertugas untuk memanage segala urusan pembangunan. Dari pihak Dinsos ada pendampingan sebanyak 31 orang yang berada dibidang pemberdayaan sosial dan 1 pendamping memegang 4-5 kelurahan dengan total 154 kelurahan yang ada di Surabaya dalam pelaksanaan program Tahu Panas. Dalam pelaksanaannya sering mengalami kendala terutama pada UPKMnya. Kata Kunci: Strategi,Program Tahu Panas,Kualitas hidup   The Surabaya City Government is collaborating with the Surabaya City Social Service to improve the quality of life of its citizens. One of the efforts is to create an innovation program that focuses on decent housing for the poor. The program, namely Tahu Panas, is intended to repair houses that are unfit for habitation. Because there are still residents of Surabaya whose houses are not yet livable, with this program it is hoped that the poor who have houses that are not suitable for habitation will get decent houses and improve their quality of life to be even better. The purpose of this study was to determine the strategy for improving the quality of life through the Tahu Panas program by the Surabaya City Social Service. This research uses a descriptive qualitative approach. Data collection techniques by means of observation, interviews, and documentation. Data analysis techniques with data collection, data reduction, data presentation, to drawing conclusions or verification. The research focus consists of three indicators, namely Goal Directed Actions, namely the organization and how to implement it, considering all internal strengths (resources and capabilities), and paying attention to opportunities and challenges. The results showed that in implementing this program: Dinsos aims to improve the welfare and quality of life of Surabaya residents in having a simple and healthy house through the Tahu Panas program. In its implementation, it is also assisted by the UPKM or Pokmas who have been selected by the village head where the UPKM is in charge of managing all development matters. From the Social Agency, 31 people are assisted in the field of social empowerment and 1 assistant holds 4-5 urban villages with a total of 154 villages in Surabaya in implementing the Hot Tofu program. In its implementation, there are often obstacles, especially in the UPKM. Keywords: Strategic ,Tahu Panas Program, quality of life

Quality of Life Through the Prism of the Roy Adaptation Model

2020 ◽  
Vol 34 (1) ◽  
pp. 67-73
Author(s):  
Khalid Bandar Almasloukh ◽  
Pamela Stewart Fahs
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
Life Events ◽  
Theoretical Basis ◽  
Self Esteem ◽  
Concept Analysis ◽  
Roy Adaptation Model ◽  
Analysis Methodology ◽  
Adaptation Model

This concept analysis is to expand knowledge about quality of life within the Roy adaptation model. The Walker and Avant concept analysis methodology is utilized. The perception of life events influences quality of life, and quality of life influences decision-making and actions. Balance, self-esteem, and satisfaction are essentials of quality of life. The authors in this concept analysis provide a basis for further research studies measuring quality of life using the theoretical basis of the Roy adaptation model.

Mental Health Status and Health-Related Quality of Life among Systemic Lupus Erythematosus (SLE) Patients in Thailand: A Multi-Site Study

2020 ◽  
Vol 103 (11) ◽  
pp. 1185-1193
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Health Status ◽  
Lupus Erythematosus ◽  
Self Esteem ◽  
Mental Health Status ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background: The systemic lupus erythematosus (SLE) patients oftentimes suffer from both physical and psychosocial challenges that may lead to low health-related quality of life (HRQoL). However, limited research has been done in this area. Objective: To examined mental health status and HRQoL among SLE patients in Thailand. Materials and Methods: The present study was a cross-sectional study conducted at the rheumatology clinic of four major hospitals in Thailand. The paper-based questionnaire consisted of demographic, health history such as depression, anxiety, stress Scale (DASS-21), and the Rosenberg self-esteem scale (RSE), and the disease-specific Lupus Quality of Life scale (LupusQoL). Depending on the variable’s level of measurement such as categorical or continuous, Spearman’s Rho or Pearson’s product moment correlation coefficients were used to explore the relationships among the variables. Hierarchical multiple regression was used to identify the predictors of LupusQoL. Results: Among the 387 participants, many might have experienced depression, anxiety, and stress (30%, 51%, and 29%, respectively). Self-esteem among the participants was good (31.8 out of 40). All eight domains of LupusQoL were affected with intimate relationship domain being impacted the most. The overall LupusQoL was significantly associated with the number of prescribed medications (r=–0.23), depression (r=–0.70), anxiety (r=–0.58), stress (r=–0.67), and self-esteem (r=0.59), p<0.001. Significant predictors of the overall LupusQoL were mental health status (depression, anxiety, and stress) and self-esteem, F (3, 81)=43.10, p<0.001, adjusted R²=0.60. Conclusion: SLE patients should be holistically assessed in both physical and psychological aspects. In addition to proper medical treatments, healthcare providers should use a multidisciplinary team approach to resolve the patients’ psychosocial issues, which in turn, may increase the patients’ quality of life. Self-care education may be necessary to help the patients manage the condition and decrease the number of medications. Keywords: Mental health, Quality of life, SLE, Thailand

PSYCHOLOGICAL REHABILITATION AND SCREENING OF EMOTIONAL STRESS IN CANCER PATIENTS

2017 ◽  
Vol 63 (2) ◽  
pp. 316-319 ◽  
Author(s):  
Valentina Chulkova ◽  
Tatyana Semiglazova ◽  
Margarita Vagaytseva ◽  
Andrey Karitskiy ◽  
Yevgeniy Demin ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Patient ◽  
Cancer Patients ◽  
Emotional Stress ◽  
Self Esteem ◽  
Breast Cancer Patients ◽  
Psychological Study ◽  
Psychological Assistance

Psychological rehabilitation is an integral part of rehabilitation of a cancer patient. Psychological rehabilitation is aimed at a patient adaptation in the situation of the disease and improvement his quality of life. Understanding of an oncological disease is extreme and (or) crisis situation and monitoring dynamics of the psychological statement of a patient allows using differentiated approach in the provision of professional psychological assistance. The modified scale of self-esteem level of distress (IPOS) was used for screening of mental and emotional stress of cancer patients. There were selected groups of cancer patients who were most in need of professional psychological assistance. Results of a psychological study of one of these groups - breast cancer patients - are presented.

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