Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP

2015 ◽  
Vol 43 (1) ◽  
pp. 187-193 ◽  
Author(s):  
Peter P. Cheung ◽  
Maarten de Wit ◽  
Clifton O. Bingham ◽  
John R. Kirwan ◽  
Amye Leong ◽  
...  

Objective.Patient participation in research is increasing; however, practical guidelines to enhance this participation are lacking. Specifically within the Outcome Measures in Rheumatology (OMERACT) organization, although patients have participated in OMERACT meetings since 2002, consensus about the procedures for involving patients in working groups has not been formalized. The objective is to develop a set of recommendations regarding patient research partner (PRP) involvement in research working groups.Methods.We conducted a systematic literature review on recommendations/guidelines of PRP involvement in research; elaborated a structured consensus process involving multiple participants to develop a set of recommendations; and sought endorsement of recommendations by OMERACT.Results.In the 18 articles included in the literature review, there was general agreement on the broad concepts for recommendations covering PRP involvement in research although they were heterogeneous in detail. Most considered PRP involvement in all phases of research with early engagement, training, and support important, but details on the content were scarce. This review informed a larger consensus-building process regarding PRP inclusion in OMERACT research. Three overarching principles and 8 recommendations were developed, discussed, and refined at OMERACT 2014. The guiding principles were endorsed during the OMERACT plenary session.Conclusion.These recommendations for PRP involvement in OMERACT research reinforce the importance of patient participation throughout the research process as integral members. Although the applicability of the recommendations in other research contexts should be assessed, the generalizability is expected to be high. Future research should evaluate their implementation and their effect on outcome development.

Author(s):  
P. Bhavani ◽  
T. G. Amuthavally

The research for the review of literature is one of the first and foremost important steps in the research process. The search for related literature is a time consuming but fruitful phase of any research programme. In this article, the researcher was made an attempt to present findings from the collected related literature on parenting styles and emotional intelligence of adolescents. The main motto behind this article is to review of related literature from 1990 to till date. The paper also summarizes the findings of the studies on Emotional Intelligence and Parenting Styles giving a direction for future research.


2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Faisal Rasool ◽  
Marco Greco ◽  
Michele Grimaldi

Purpose In the previous decade, a substantial amount of research has been undertaken to measure the digitalized supply chain (DSC) performance. This paper aims to present a systematic literature review on DSC performance measurement metrics to apprehend current practices, recognize gaps and advocate future research itineraries. Design/methodology/approach To guarantee a replicable, rigorous and transparent research process, the authors used a systematic literature review methodology to synthesize the research. A combination of 25 keywords was used to obtain 248 scientific studies in the first step. The balance scorecard (BSC) model was used to categorize 299 gathered performance metrics into 4 BSC perspectives. Findings The review highlighted the need for qualitative performance measuring metrics for DSC. During the review, only one study was identified that primarily focused on developing performance metrics for DSC. Additionally, the review identified that metrics related to internal and financial perspectives received the most attention while the “growth and learning” perspective received the least attention. The review also identified that external partners, such as distributors and suppliers, were virtually ignored in previous literature. Originality/value Although numerous literature reviews have been conducted in the past on the performance measuring metrics for supply chain management, no literature review aiming to synthesize the measuring metrics for DSC has yet been undertaken.


Author(s):  
Sandra Sanchez-Gordon

The purpose of this chapter is to present a seven-year journey to understand the barriers that people face when interacting with e-learning and e-health online platforms and to come up with software engineering solutions to make these platforms more inclusive. This chapter per the author presents a set of contributions intended to serve as steppingstones to future research efforts. These contributions include a literature review about accessibility of e-learning platforms; the accessibility audit of e-learning and e-health platforms; the identification of accessibility requirements; the design of architectures, process, and models to improve accessibility; and the definition of a life cycle for the management of accessible online courses. In this context, this chapter relate the evolution of the research process followed and summarize the results obtained so far.


2018 ◽  
Vol 23 (3) ◽  
pp. 294-311 ◽  
Author(s):  
Christian Pieter Hoffmann ◽  
Sandra Tietz ◽  
Kerstin Hammann

PurposeThe purpose of this paper is to present a comprehensive, interdisciplinary review of international investor relations (IR) research published since 1990. It highlights the development of IR research, its disciplinary foundations and key areas of inquiry. Research is shown to reflect the rising importance of IR as a corporate communications function, its interdisciplinary character, and the recognition of its contribution to strategic management.Design/methodology/approachFindings are based on an interdisciplinary systematic literature review focusing on peer-reviewed journal articles published in English since 1990.FindingsThe authors differentiate five strands of research focusing on the organization, strategy, instruments, content and effects of IR. IR research is shown to have strong roots in the business and management, accounting and communications literature. The authors document a rising interest in the topic and a steady development beyond descriptive accounts of the function to distinctive lines of inquiry. The authors summarize the state of the field and derive a number of suggestions for future research.Research limitations/implicationsThe review is limited in scope to the applied research process, including the choice of keywords, databases as well as peer-reviewed journal publications published in English since 1990.Originality/valueThis study contributes to the necessary structuration and consolidation of the emergent field of IR research by identify salient perspectives and common subfields. It provides both a comprehensive overview of the state of research and specific suggestions for future endeavors.


2019 ◽  
pp. 096973301988171
Author(s):  
Ina Luichies ◽  
Anne Goossensen ◽  
Hanneke van der Meide

Background: More and more adults in their fifties and sixties are confronted with the need to support their ageing parents. Although many aspects of filial caregiving have been researched, a well-documented and comprehensive overview of the caregiving experience is lacking. Aim: This study aims for a better understanding of the caregiving experience of adult children by generating an overview of main themes in international research. Method: A literature review of qualitative studies, focusing on the experiences of adult children caring for their ageing parents, was performed. The electronic EBSCO databases Academic Search Premier, CINAHL and PsycINFO, and Google Scholar were searched to identify relevant qualitative studies published between 2000 and 2017. The ‘SPIDER’ eligibility criteria directed the approach. The quality of studies included was screened with the assessment sheet designed by Hawker and colleagues. The experiences reported were analysed and themes were synthesized. Ethical consideration: Ethical requirements were respected in every phase of the research process. Findings: Nineteen qualitative studies met the inclusion criteria. The quality of the relationship with the parent appears to be an important determinant of the children’s caregiving experience. Within this context, three themes were found: caregiving as an emotional rollercoaster, a normatively demanding experience and an opportunity for personal development. Discussion: Children caring for their ageing parents have to deal with a wide range of contradicting and conflicting norms and values. Implications for healthcare professionals and future research have been discussed. Conclusion: Caring for ageing parents is a continuous quest for giving the best possible care and living up to one’s personal values, within the context of the parent’s declining health. Professionals who support filial caregivers should address not only practical responsibilities but also the normative questions and moral considerations caregivers are dealing with.


2021 ◽  
Vol 9 (66) ◽  
pp. 15507-15523
Author(s):  
P. Bhavani¹ ◽  
T. G. Amuthavally

The research for the review of literature is one of the first and foremost important steps in the research process. The search for related literature is a time consuming but fruitful phase of any research program. In this article, the researcher made an attempt to present findings from the collected related literature on effect of parenting styles strategies on emotional intelligence and academic achievement of adolescents. The main motto behind this article is to review related literature from 2000 to till date. The paper also summarizes the findings of the studies on effects of parenting styles strategies on emotional intelligence and academic achievement of adolescents giving a direction for future research.


2016 ◽  
Vol 11 (1) ◽  
pp. 5-19 ◽  
Author(s):  
Allison B. Dymnicki ◽  
Suzanne Le Menestrel ◽  
Michelle J. Boyd ◽  
Lisa Lauxman ◽  
Sarah E. Oberlander ◽  
...  

The field of positive youth development (PYD) is at an important crossroads in terms of defining its scope and directions for future research. This paper describes an effective consensus-building process that representatives from 16 federal agencies engaged in to develop a research agenda focused on PYD and the product that resulted from using this approach. During this process, the representatives identified and refined three research domains (conceptual issues related to PYD, data sources and indicators, and program implementation and effectiveness) and key research questions that could benefit from future research. We share lessons learned from our experience to emphasize the importance of organizational systems change efforts and interagency collaborations. A major contribution of this paper is to provide specific areas for future research in PYD from the federal perspective and to describe future implications for PYD policy and interagency collaborations.


2002 ◽  
Vol 7 (3) ◽  
pp. 221-224 ◽  
Author(s):  
Bernhard Wilpert

The paper presents an inside evaluation of the EuroPsyT project, funded by the EU Leonardo Program in 1999-2001. While standard research usually neglects to reflect on the internal and external constraints and opportunities under which research results are achieved, the paper stresses exactly those aspects: starting from a brief description of the overall objectives of the 11 countries project, the paper proceeds to describe the macro-context and the internal strengths and weaknesses of the project team, the internal procedures of cooperation,. and obstacles encountered during the research process. It winds up in noting some of the project's achievements and with a look towards future research.


Author(s):  
Muhammad Yousaf ◽  
Petr Bris

A systematic literature review (SLR) from 1991 to 2019 is carried out about EFQM (European Foundation for Quality Management) excellence model in this paper. The aim of the paper is to present state of the art in quantitative research on the EFQM excellence model that will guide future research lines in this field. The articles were searched with the help of six strings and these six strings were executed in three popular databases i.e. Scopus, Web of Science, and Science Direct. Around 584 peer-reviewed articles examined, which are directly linked with the subject of quantitative research on the EFQM excellence model. About 108 papers were chosen finally, then the purpose, data collection, conclusion, contributions, and type of quantitative of the selected papers are discussed and analyzed briefly in this study. Thus, this study identifies the focus areas of the researchers and knowledge gaps in empirical quantitative literature on the EFQM excellence model. This article also presents the lines of future research.


2020 ◽  
Author(s):  
Quang Ngoc Nguyen

Without a guideline or structure, conducting a literature review on a psychological construct might become a chaotic process . This canvas was built based on the author's experience in order to help psychological researchers classify, organize, and summarize the information relating to the psychological construct of interest into several essential aspects including definition, classification, measurement, sample, predictors and outcomes, mediators and moderators, interventions, and theories. For each aspect, there are some guiding questions which are expected to help researcher decice which information should be focused while examining scientific documents. The completely filled canvas should depict the status quo of the research on the psychological construct of interest, facilitating the research process.


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