Health-Related Communication and Rare Diseases

2022 ◽  
pp. 218-237
Author(s):  
Michaela Liuccio
Keyword(s):  
Information And Communication Technologies ◽  
Rare Diseases ◽  
Genetic Disorders ◽  
Communication Technologies ◽  
Sources Of Information ◽  
Health Related ◽  
Geographical Distances ◽  
Information And Communication ◽  
Low Prevalence ◽  
Physician Patient

Rare diseases are often characterized as diseases with low prevalence in population that stem from genetic disorders or environment conditions. As a result of its low prevalence and lack of knowledge of its causes, symptoms, and/or treatment, patients' access to healthcare, and their quality of life may be affected. A key challenge is also the physician-patient interaction that differs from traditional medical care settings by demanding physicians' experience in dealing, for example, with psychological problems associated with the diagnosis process. Information and Communication Technologies can facilitate the interaction between the sources of information and patients, overcoming geographical distances. This chapter discusses the role of Information and Communication to extract health data in rare diseases and reinforce physician-patient interactions. It argues that Information and Communication are crucial to meet patients' needs, drivers, and decision-making that tend to occur during the patient's journey (pre-diagnosis, diagnosis, and post-diagnosis).

Health-Related Communication and Rare Diseases

2020 ◽  
pp. 87-112
Author(s):  
Michaela Liuccio
Keyword(s):  
Information And Communication Technologies ◽  
Rare Diseases ◽  
Genetic Disorders ◽  
Communication Technologies ◽  
Sources Of Information ◽  
Health Related ◽  
Geographical Distances ◽  
Information And Communication ◽  
Low Prevalence ◽  
Physician Patient

Rare diseases are often characterized as diseases with low prevalence in population that stem from genetic disorders or environment conditions. As a result of its low prevalence and lack of knowledge of its causes, symptoms, and/or treatment, patients' access to healthcare, and their quality of life may be affected. A key challenge is also the physician-patient interaction that differs from traditional medical care settings by demanding physicians' experience in dealing, for example, with psychological problems associated with the diagnosis process. Information and Communication Technologies can facilitate the interaction between the sources of information and patients, overcoming geographical distances. This chapter discusses the role of Information and Communication to extract health data in rare diseases and reinforce physician-patient interactions. It argues that Information and Communication are crucial to meet patients' needs, drivers, and decision-making that tend to occur during the patient's journey (pre-diagnosis, diagnosis, and post-diagnosis).

eHealth Systems, Their Use and Visions for the Future

2009 ◽  
pp. 346-353
Author(s):  
Pirkko Nykänen
Keyword(s):  
Information And Communication Technologies ◽  
Health Professionals ◽  
Care Delivery ◽  
Communication Technologies ◽  
The Internet ◽  
Related Information ◽  
The Future ◽  
Health Related ◽  
Information And Communication ◽  
Physician Patient

eHealth refers to use of information and communication technologies to improve or enable health and healthcare. eHealth broadens the scope of health care delivery, citizens are in the center of services and services are offered by information systems often via the Internet. In this chapter eHealth systems are classified on the basis of their use and their functionality and the use is discussed from the viewpoints of citizens and health professionals. Citizens are increasingly using Internet and eHealth systems to search for medicine or health related information, and they become better informed and may take more responsibility of their own health. Health professionals are more reluctant to use the Internet and eHealth systems in physician-patient communication due to power and responsibility problems of decisions. In the future the socio-technical nature of eHealth should be considered and future systems developed for real use and user environment with user acceptable technology.

E-Health Systems

2011 ◽  
pp. 281-293 ◽  
Author(s):  
Pirkko Nykanen
Keyword(s):  
Information And Communication Technologies ◽  
Health Systems ◽  
Health Professionals ◽  
Healthcare Delivery ◽  
Communication Technologies ◽  
The Internet ◽  
Related Information ◽  
Health Related ◽  
Information And Communication ◽  
Physician Patient

E-health refers to use of information and communication technologies to improve or enable health and healthcare. E-health broadens the scope of healthcare delivery; citizens are in the center of services and services are offered by information systems often via the Internet. In this chapter e-health systems are classified on the basis of their use and their functionality and the use is discussed from the viewpoints of citizens and health professionals. Citizens are increasingly using Internet and e-health systems to search for medicine or health-related information, and they become better informed and may take more responsibility of their own health. Health professionals are more reluctant to use the Internet and e-health systems in physician-patient communication due to the power and responsibility problems of decisions. In the future the sociotechnical nature of e-health should be considered and future systems developed for real use and user environment with user acceptable technology.

E-Health Systems

2011 ◽  
pp. 2314-2322 ◽  
Author(s):  
Pirkko Nykänen
Keyword(s):  
Information And Communication Technologies ◽  
Health Systems ◽  
Health Professionals ◽  
Healthcare Delivery ◽  
Communication Technologies ◽  
The Internet ◽  
Related Information ◽  
Health Related ◽  
Information And Communication ◽  
Physician Patient

E-health refers to use of information and communication technologies to improve or enable health and healthcare. E-health broadens the scope of healthcare delivery; citizens are in the center of services and services are offered by information systems often via the Internet. In this chapter ehealth systems are classified on the basis of their use and their functionality and the use is discussed from the viewpoints of citizens and health professionals. Citizens are increasingly using Internet and e-health systems to search for medicine or health-related information, and they become better informed and may take more responsibility of their own health. Health professionals are more reluctant to use the Internet and e-health systems in physician-patient communication due to the power and responsibility problems of decisions. In the future the sociotechnical nature of e-health should be considered and future systems developed for real use and user environment with user acceptable technology.

Closing the Gap

2010 ◽  
pp. 38-59 ◽  
Author(s):  
Malina Jordanova
Keyword(s):  
Information And Communication Technologies ◽  
Health Sector ◽  
Cost Effective ◽  
Communication Technologies ◽  
Healthcare Services ◽  
World Health ◽  
World Health Assembly Resolution ◽  
Health Related ◽  
Information And Communication ◽  
The Cost

Brought to life by contemporary changes of our world, e-health offers enormous possibilities. In the World Health Organization’s World Health Assembly resolution on e-health, WHO has defined e-health as the cost-effective and secure use of information and communication technologies in support of health and health-related fields, including healthcare services, health surveillance, health literature, and health education (WHO, 2005). It is impossible to have a detailed view of its potential as e-health affects the entire health sector and is a viable tool to provide routine, as well as specialized, health services. It is able to improve both the access to, and the standard of, health care. The aim of the chapter is to focus on how e-health can help in closing one gap - optimizing patient care. The examples included and references provided are ready to be introduced in practice immediately. Special attention is dedicated to cost effectiveness of e-health applications.

scholarly journals The right to information as the basis of media activity in Ukraine

2021 ◽  
pp. 4-8
Author(s):  
Lyubov Pivneva
Keyword(s):  
Information And Communication Technologies ◽  
Private Information ◽  
Communication Technologies ◽  
Document Management ◽  
Necessary Condition ◽  
Sources Of Information ◽  
Legal Information ◽  
Information And Communication ◽  
The Media ◽  
The Law

The article identifies some approaches to identifying the concepts of media and legal information. Some classifications of mass media and their immanent elements are considered. The concept of information and its qualifying legal features are defined. The main Laws of Ukraine concerning information are highlighted. Separate normative-legal laws of Ukraine on information and various forms of information are singled out. Categories of legal, public information and misinformation are considered. The key Law of Ukraine on information dated October 2, 1992 № 2657-XII has been determined. It is investigated, that the main source of legal information is the Constitution of Ukraine in accordance to the Law of Ukraine "On Information". It is proved, that information can exist in an ideal and material form and be the object of commodity relations. Attention is drawn to the Law of Ukraine "On Electronic Documents and Electronic Document Management". It is proved, that in the era of using information and communication technologies, the implementation of e-government makes it possible to operate in an information society. Sources for media information have been identified - state, confidential and anonymous. Attention is drawn to the access of the media to confidential information, to data that are not disclosed or published only by court decision. An example is given of the possibility of disseminating public or private information about a person. Attention is drawn to the need to verify anonymous information. In conclusion, it is emphasized, that the media in Ukraine are trying to follow in the footsteps of the latest information and communication technologies. The use of constitutional and legal acts is a vital necessary condition for building civil society, guaranteeing the constitutionality of democracy, freedom of access of the media to primary sources of information.

Mobile Technology in a Developing Context

2009 ◽  
pp. 56-72
Author(s):  
Pammla Petrucka ◽  
Sandra Bassendowski ◽  
Thomas F. James ◽  
Hazel Roberts ◽  
June Anonson
Keyword(s):  
Global Health ◽  
Information And Communication Technologies ◽  
Mobile Technology ◽  
Communication Technologies ◽  
Mobile Technologies ◽  
Promising Practices ◽  
Roles And Responsibilities ◽  
Health Related ◽  
Information And Communication ◽  
The Impact

This chapter presents the imperatives of mobile technologies in healthcare as these impact (or potentially) impact on development. It presents the contextual overview in development of the diffusion, penetration, and uptake of health-related mobile technologies. A consideration of the roles and responsibilities of the diaspora in the embracing of information and communication technologies is emphasized. The emphasis is on the impact of technologies, generally, and mobile technologies, specifically, in the global health context. The authors provide key exemplars of mobile technologies in development to increase understanding and demonstrate promising practices in this emergent field.

scholarly journals EXPERIENCE ON THE IMPLEMENTATION OF INFORMATION AND COMMUNICATION TECHNOLOGIES OF EDUCATION (ICTN) AT LEARNING PHILOSOPHY IN PROFESSIONAL PREPARATION FOR FUTURE PROFESSIONAL EDUCATION PEDAGOGES (LABOR PROTECTION)

2020 ◽  
Vol 1 (190) ◽  
pp. 29-33
Author(s):  
Inna Levchenko ◽  
Keyword(s):  
Information And Communication Technologies ◽  
Professional Education ◽  
Professional Training ◽  
Communication Technologies ◽  
Educational Process ◽  
Labor Protection ◽  
Sources Of Information ◽  
Information And Communication ◽  
Methods Of Learning ◽  
Independent Work

The article deals with theoretical and practical aspects of the use of information and communication technologies of training in philosophy classes in the process of professional training of future specialists in labor protection. The author analyzed the use of information and communication technologies during training sessions - lectures and seminars on philosophy, preparation of abstracts and scientific works on the specified discipline. It is revealed that the systematic use of information and communication technologies of teaching allows creating a fundamentally new information educational sphere, thus providing wide opportunities for educational activities, greatly affects the redistribution of roles among its participants, increases motivation, develops autonomy, provides individualization and differentiation of the educational process , contributes to the modernization of the traditional education system. All this makes it possible to improve the quality of learning. The article states that the inclusion of information and communication technologies in the educational process creates a network environment in which education becomes a sequence of social contacts, each of which is communication. Thanks to the use of modern information and communication technologies, in particular in philosophy classes, the teacher has the opportunity to use all the necessary tools for effective assimilation and perception of the researched issues. Lectures become more saturated with factual material, and students listen more, rather than writing under dictation, which is positively perceived by listeners. Modern multimedia technologies, opening students access to non-traditional sources of information, increase the efficiency of independent work in philosophy, provide completely new opportunities for creativity, finding and consolidating new professional skills, allow to implement fundamentally new forms and methods of learning, which certainly has a positive effect on the common activities of teacher and student in the process of studying philosophy.

scholarly journals The use of information and communication technologies when teaching students with hearing impairment at a technical university

2021 ◽  
Vol 52 (4) ◽  
pp. 418-435
Author(s):  
Julia V. Krasavina ◽  
◽  
Ekaterina P. Ponomarenko ◽  
Yulia V. Serebryakova ◽  
Olga V. Zhuikova ◽  
...  
Keyword(s):  
Hearing Impairment ◽  
Information And Communication Technologies ◽  
Reading Skills ◽  
Writing Skills ◽  
Communication Technologies ◽  
Hearing Impaired ◽  
Sources Of Information ◽  
Electronic Board ◽  
Information And Communication ◽  
Technical University

Introduction. The use of information and communication technologies (ICT) in education provides promising opportunities for individual learning. However, one can question the efficiency of using electronic resources for certain students, e.g. hearing-impaired students, if their special cognitive characteristics were not considered while designing these resources. The aim of the research presented in the publication is to develop a scientific basis and the methodology for the effective teaching of basic disciplines using various sources of information. Methodology and research methods. The presented research results were obtained using standard and adapted methods (‘10 words’ adapted technique, Schulte tables, standardized methods for studying reading skills), questionnaires, analysis of written works based on the developed criteria. A series of experiments involved students majoring in Engineering at Kalashnikov Izhevsk State Technical University: 98 students participated in experiments with the adapted "10 words" method and Schulte tables (19 of them were hearing impaired); for the analysis of writing skills, the works of 116 students were collected (27 of them-with hearing impairment); 12 students with hearing impairment took part in experiments on reading skills. Results. For short-term memory, the results turned out to be better when demonstrating words from the electronic board than from printed sources (students with health standard: electronic board – 7.24 words; printed source – 6.39; for deaf and hard of hearing students: 6.2 and 5.8 words respectively). Based on the results of the attentiveness test (adapted Schulte tables), this indicator is better when working with tables in paper form (Student's t-test: tcr=1.97 (p≤0.05), tcr=2.61(p≤0.01), temp = 2.3). For reading skills, research has shown that students did a better job with keyword and abstracting when working with printed text (tcr=2.07 (p≤0.05), tcr=2.82(p≤0.01), temp= 2.4). As for the monitoring of writing skills, for hearing impaired students, the main monitoring criterion is emotionality (expressiveness); some features of visual perception of the sentences arrangement are also noted. Scientific novelty. The analysis of the results of these experiments will allow us to clarify the features of comparing the cognitive skills dealing with the information perception from different media when teaching people with hearing impairment. Practical significance. The results obtained allowed us to conclude that in the learning process it is recommended to combine sources of information on different media.

scholarly journals Producción científica sobre integración de TIC a la Educación Física. Estudio bibliométrico en el periodo 1995-2017 (Scientific production on the integration of ICT to Physical Education. Bibliometric study in the period 1995-2017)

Retos ◽  
2019 ◽  
pp. 748-754
Author(s):  
Juan Francisco Cabrera Ramos
Keyword(s):  
Physical Education ◽  
Information And Communication Technologies ◽  
Communication Technologies ◽  
Scientific Production ◽  
Sources Of Information ◽  
Scientific Publications ◽  
Information And Communication ◽  
The Subject ◽  
High Degree ◽  
Productive Authors

En las dos últimas décadas, la literatura ha aportado argumentos de forma sistemática sobre la utilidad de la integración de las Tecnologías de la Información y la Comunicación (TIC) en la Educación Física. El objetivo de la presente investigación es describir el comportamiento de la producción científica en el área de las TIC y la Educación Física en el período de 1995 a 2017. El estudio se basa en el análisis bibliométrico de publicaciones recopiladas en diversos repositorios de publicaciones científicas. Se recolectó un total de n=521 contribuciones, que incluyen artículos científicos, presentaciones en eventos científicos, tesis, libros y capítulos de libros. Se determinan los autores más productivos, las principales fuentes de información, las principales líneas de investigación y las contribuciones más influyentes. Se encuentra un alto grado de colaboración nacional, un bajo nivel de colaboración internacional y un limitado número de autores con más de una publicación en el tema. En el análisis sobre la madurez del dominio se considera que estamos ante un dominio de conocimientos en fase de crecimiento. Abstract. In recent decades, scientific literature has provided arguments about the integration of Information and Communication Technologies (ICT) in Physical Education in a systematic way. The objective of this research is to describe the trend of scientific production in the area of ICT and Physical Education in the period from 1995 to 2017. The study is based on the bibliometric analysis of publications collected in various databases of scientific publications. A total of n = 521 contributions were collected, including scientific articles, presentations at scientific events, theses, books, and book chapters. The most productive authors, the main sources of information, the main areas of research, and the most influential contributions were determined. There is a high degree of national collaborations but a low level of international ones, and a low number of authors with more than one publication on the subject. In the domain maturity analysis, we can consider this topic as in a growth phase.

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