scholarly journals Above and beyond: an exploratory study of breast cancer patient accounts of healthcare provider information-giving practices and informational support

2018 ◽  
Vol 2 (2) ◽  
Author(s):  
Andrea L. Meluch
Keyword(s):  
Breast Cancer ◽  
Nurse Practitioners ◽  
Message Framing ◽  
Healthcare Providers ◽  
Informational Support ◽  
Breast Cancer Patients ◽  
Information Giving ◽  
Related Information ◽  
Depth Interviews ◽  
Medical Situation

This qualitative study examines breast cancer patients’ accounts of the characteristics of healthcare providers’ supportive information- giving practices. Twenty-two women diagnosed with breast cancer participated in semi-structured in-depth interviews designed to understand their experiences receiving supportive information from healthcare providers (e.g., oncologists, surgeons, nurse practitioners). Participants’ accounts suggest that providers who spend extensive time discussing cancer-related information and who explain that information thoroughly so that patients can understand their medical situation, are communicating informational support in contrast to merely presenting factual information related to cancer diagnosis and treatments. Participant accounts further suggest that the supportive nature of provider information-giving practices results from message framing, or the provider’s metacommunication.

scholarly journals The sexual lives of breast cancer patients: Coping with changes associated with treatment

2017 ◽  
Vol 6 (1) ◽  
pp. 61
Author(s):  
Ayumi Yoshikawa ◽  
Shinya Saito ◽  
Makiko Kondo ◽  
Yuko Tsuyumu ◽  
Naruto Taira ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Hormone Therapy ◽  
Sexual Activity ◽  
Cancer Patients ◽  
Sexual Life ◽  
Breast Cancer Patients ◽  
Coping Methods ◽  
Virtuous Cycle ◽  
Depth Interviews ◽  
Analyze Data

Objective: To clarify how breast cancer patients undergoing post-surgical hormone therapy cope with changes in their sexual lives and support themselves and their partners during these changes.Methods: Participants were 37 breast cancer patients undergoing post-surgical hormone therapy and attending mammary outpatient clinics. In-depth interviews and grounded theory were used to collect and analyze data, respectively.Results: First, sexual life was divided into four groups: “No complaint” regarding sexual activity, “Slight discord”, “Handicapped in meeting a life partner” and “Uninterested” in sexual activity. Sexual life during surgical-hormone therapy did not change significantly from sexual life before breast cancer. Second, meanings of sexual activity for breast cancer patients were divided into five, “Regaining femininity”, “Confirming love”, “Sharing pleasure”, “Response to partner’s higher desire” and “Procreation”. They differed by group. Third, coping strategies were divided into six, “Virtuous cycle to confirm love and regain lost femininity”, “Struggle to avoid relationship crisis”, “Reconfirmation of partner’s affection by his abstinence”, “Attempt to recover the sexual activity they hope for”, “Pursuing children or assuaging partner’s desire by other means” and “Difficulty making a partner continue to have sexual activity”.Conclusions: Nurses should screen breast cancer patients for changes in their sexual lives and to ascertain what sexual activity means to patients, and support them in selecting appropriate coping methods.

SimBioSys TumorScope: Spatio-temporal modeling of the tumor microenvironment to predict chemotherapeutic response.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e12650-e12650
Author(s):  
John A Cole ◽  
Joseph R Peterson ◽  
Tyler M Earnest ◽  
Micahel J Hallock ◽  
John R Pfeiffer ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Tumor Microenvironment ◽  
3D Model ◽  
Healthcare Providers ◽  
Standard Of Care ◽  
Response To Treatment ◽  
Breast Cancer Patients ◽  
Temporal Modeling ◽  
Early Results ◽  
Spatio Temporal

e12650 Background: One of the most important sources of variability affecting each patient’s response to neoadjuvant chemotherapy (NACT) is drug and nutrient perfusion, The SimBioSys TumorScope is a computational decision-support system that is designed to predict the flow of drugs and nutrients throughout the tumor microenvironment, and the subsequent response of the tumor to treatment. By enabling healthcare providers to simulate a range of different standard-of-care treatment regimens in a realistic 3D model of each patient’s tumor, providers can predict which treatments are most effective, and provide the best possible care for their patients. Methods: SimBioSys TumorScope implements a multi-scale simulation technology that couples several biophysical and biochemical models in order to predict how individual patients' tumors respond to NACT. The simulations explicitly track the 3D morphology of the tumor and surrounding tissues (based on MRI images), as well as the concentrations of key nutrients and drugs as they change over time. At each location within the 3D model, these concentrations are used to predict cell growth and death rates. As different regions of the tumor grow or die, its macroscopic shape changes. Results: SimBioSys TumorScope was retrospectively applied to over 300 breast cancer patients that received NACT. Simulations were initialized with pre-treatment MRI data, and run through the entirety of each patient's specified treatment regimen. Predicted changes in tumor volume and longest dimension were then compared against measured values at several time-points after initiation of therapy, yielding Pearson correlations of over 0.93 for both. Work is underway to extend the technology to lung tumors; early results show very different metabolic behaviors from those of breast tumors, and significantly less response to treatment overall. Conclusions: Through accurate spatio-temporal modeling of drug and nutrient perfusion, metabolic behavior, and the physico-chemical interactions that arise between tissues, the SimBioSys TumorScope for Breast Cancer can accurately predict the response of patients treated with NACT.

scholarly journals Psychological Well-Being of Patients with Breast Cancer: A Descriptive Study

Sainteks ◽  
2020 ◽  
Vol 16 (2) ◽  
Author(s):  
S. Widyaningsih ◽  
A. Istifaraswati
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Support Group ◽  
Healthcare Providers ◽  
Well Being ◽  
Breast Cancer Patients ◽  
Psychological Well Being ◽  
Low Levels ◽  
Relationship Of ◽  
The Relationship

The mental impact of cancer on patients is often severe. Patients who have been recently diagnosed with breast cancer tend to experience depression, emotional stress, disappointment, and even despair which later can damage their psychological well-being. This study aims to describe Psychological Well-being among breast cancer patients.134 breast cancer patients were recruited at the Out Patient Department (OPD) of Tugurejo Hospital Semarang city, Indonesia. The data were collected using Ryff Scale Psychological Well-being (RSPWB) questionnaire. Most of the respondents were middle-aged, married, unemployed and had been diagnosed with early stadium of breast cancer. Results showed approximately half of the total respondents (n=64%, 47.8%) experiencing low levels of psychological well-being over the entire period of the sickness. Among four subscales of psychological well-being, “positive relationship with others” subscale was reported to be very low among those respondents. However, almost two thirds of respondents perceived a higher degree of self-acceptance and life purpose while experiencing the illness. Nurses and healthcare providers need to be aware of the importance of counseling service and family/patients support group to improve the relationship of patients with others.Keywords: psychological well-being, breast cancer

scholarly journals Investigating the healthcare pathway through patients’ experience and profiles: implications for breast cancer healthcare providers

2020 ◽  
Author(s):  
Emna CHERIF ◽  
Elisabeth MARTIN VERDIER ◽  
Corinne ROCHETTE
Keyword(s):  
Breast Cancer ◽  
Quality Care ◽  
Healthcare Providers ◽  
Care Process ◽  
Breast Cancer Patients ◽  
High Quality ◽  
Patient Pathway ◽  
Patients Experience ◽  
Medical Perspective

Abstract Background: Healthcare systems are facing many changes. Particularly, patients are more engaged in the care process. The medical perspective of the process is insufficient to provide patients with high quality care and service personalisation. This research presents an attempt to complete this medical perspective through an experiential perspective, especially for chronic diseases such as cancer. We investigated patients’ experiences and profiles to reach a deeper understanding of their needs and expectations when they confront the disease. The objectives of this research were to model the key stages underling the patient pathway and to identify the challenging touch points of the interactions between patients and healthcare providers. Bringing together findings of patient experience, pathway, and profiles would help all the stakeholders involved to develop better practices for the healthcare process. Methods: A qualitative observational nethnography on a French specialized forum for breast cancer patients “ les Impatientes” was conducted. A total of 967 reviews were collected over a complete year period from all over France. Thematic and lexicometric content analysis were performed according to the experience dimensions, the pathway stages and touch points, as well as the patients’ profiles. Results: Data analysis shows that the healthcare pathway experienced by the patients is built around three stages. The discovery stage is closely related to the emotional dimension regarding the patient and physician relationship. The examination stage is characterized by a more technical and informational needs for the types of treatments. The follow-up and survivorship stage illustrates the patients’ need to assess the treatments’ effectiveness and the quality of the follow-up. Moreover, three profiles of patients were identified. The newcomers, the altruists and the autonomous are characterized by different attitudes depending on the stage of the healthcare pathway they were living. Conclusions: Our research presents an original modelling of the patient pathway and profiles beyond the medical process. It gives practical tracks to improve the healthcare pathway. Patients expect healthcare providers to integrate and strengthen several challenging touch points in order to create satisfactory patient experiences and high quality service.

scholarly journals Social Support of Male Breast Cancer Patients—a Mixed-Methods Analysis

2019 ◽  
Vol 13 (4) ◽  
pp. 155798831987000 ◽  
Author(s):  
Evamarie Midding ◽  
Sarah Maria Halbach ◽  
Christoph Kowalski ◽  
Rainer Weber ◽  
Rachel Würstlein ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Social Support ◽  
Mixed Methods ◽  
Cancer Patients ◽  
Social Environment ◽  
Male Breast Cancer ◽  
Male Breast ◽  
Informational Support ◽  
Breast Cancer Patients ◽  
The Social

The aim of this study is to explore the social support of male breast cancer patients (MBCP) in Germany. In particular, three aspects of social support focus on (a) the used resources within the social environment, (b) the received support, and (c) the differences of used social support between MBCP. A mixed-methods design is applied including data of qualitative interviews ( N = 27 MBCP) and a written questionnaire ( N = 100 MBCP). MBCP use different resources of support from their social environment like partners, family, friends, colleagues, other breast cancer patients, and medical experts. Mostly, MBCP receive emotional and informational support. They often receive emotional support from their partners and informational support from medical experts. Different types of social support usage can be identified dependent on age, occupation, and severity of disease. The older the patients and the less the disease severity, the less social support MBCP use. Within cancer care, partners and the closer social environment should be included more as they are a key resource for MBCP. As health-care professions might also be an important resource of support for MBCP, further research should examine this resource.

Cancer information acquisition differs by patient characteristics

2006 ◽  
Vol 24 (18_suppl) ◽  
pp. 16008-16008
Author(s):  
S. W. Gray ◽  
A. Romantan ◽  
B. Kelly ◽  
S. Ramirez ◽  
R. Stevens ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Decision Making ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Information Acquisition ◽  
Patient Characteristics ◽  
Cancer Information ◽  
Breast Cancer Patients ◽  
Related Information ◽  
Stage 1

16008 Background: While cancer patients have access to multiple sources of information, including mass media, the internet and personal and professional contacts, little is known about use of these sources in decision making. Methods: 43 patients with one of three cancer types (37% breast, 28% colon and 35% prostate, 58% stage 1) randomly recruited through the Pennsylvania Cancer Registry completed semi-structured in-person interviews about cancer related information acquisition and decision making. (Median age 59 (range 40–71), 47% male, 79% white, 74% married, mean education 14.6 years (SD = 2.48). Separate analyses were performed for actively looking for information (seeking) vs. passively coming across information (scanning). The primary endpoint was patient use of information sources in cancer related decision making. Results: All cancer patients reported use of both interpersonal and mass media information sources in making cancer related decisions. Patients with more advanced cancer (stage 3 vs. stage 1 or 2), higher education, and younger age were more likely to actively seek cancer information (χ2 = 4.7, p = .095, χ2 = 10, p = .04 and χ2 = 8.6, p = .07). Breast cancer patients and women were more likely to report passively coming across information (χ2 = 9.1, p = .058 and χ2 = 5.1, p = .078). Conclusions: Cancer information acquisition varied according to patient characteristics. Seeking was reported more in younger patients and those with higher formal education, and more advanced cancer. Highly educated and younger patients may be better at navigating the information environment; patients with more advanced cancer may have increased anxiety causing them to actively seek information. Scanning was more common among breast cancer patients and women. Women may attend to general health related information more than men or information about breast cancer may be more accessible and pervasive than information on colon or prostate cancer. No significant financial relationships to disclose.

scholarly journals Support for Metastatic Breast Cancer Patients—a Systematic Review

2020 ◽  
Vol 35 (6) ◽  
pp. 1061-1067
Author(s):  
Justyna Bochenek-Cibor ◽  
Magdalena Górecka ◽  
Dawid Storman ◽  
Małgorzata M. Bała
Keyword(s):  
Breast Cancer ◽  
Metastatic Breast Cancer ◽  
Cancer Patients ◽  
Healthcare Providers ◽  
Metastatic Breast ◽  
Breast Cancer Diagnosis ◽  
Breast Cancer Patients ◽  
Study Objective ◽  
Need For Support

AbstractOur study objective was to evaluate existing evidence on different types of support received by metastatic breast cancer patients as well as the need for support expressed by such patients. We searched Medline and EMBASE up to January 2019 for survey studies that aimed to assess any type of support among women of any age, with metastatic breast cancer diagnosis. Two reviewers independently screened titles and abstracts, then full texts of retrieved records against inclusion/exclusion criteria, and extracted the data and assessed the quality of included studies with AXIS tool. From a total of 2876 abstracts, we selected 100 potentially eligible full-text articles, and finally, we included 12 records reporting on 11 studies. Due to the variability of methods used to measure and define support, it was not possible to quantitatively synthesize data; therefore, we synthesized them narratively. The quality of the included studies was moderate. We found that most patients are satisfied with the received psychosocial, emotional, informational, and medical support. In the analysis of any support received from a certain type of group of people, we found that the majority of patients reported receiving sufficient support from their family, friends, and healthcare providers. Ten studies showed a high need for informational support. If asked about the need for psychosocial, medical, and sexual support, women also declared the need for such support. Our review revealed that the patients generally receive support from their community but they express high need for information and treatment choice. PROSPERO CRD42019127496

Adjuvant chemotherapy in elderly women with breast cancer: patients' perspectives on information giving and decision making

2013 ◽  
Vol 22 (12) ◽  
pp. 2729-2735 ◽  
Author(s):  
Helena Harder ◽  
Rachel Ballinger ◽  
Carolyn Langridge ◽  
Alistair Ring ◽  
Lesley J. Fallowfield
Keyword(s):  
Breast Cancer ◽  
Decision Making ◽  
Adjuvant Chemotherapy ◽  
Cancer Patients ◽  
Elderly Women ◽  
Breast Cancer Patients ◽  
Information Giving
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