scholarly journals The impact of post-acne scars on the quality of life among young adults in Singapore

2015 ◽  
Vol 8 (3) ◽  
pp. 153 ◽  
Author(s):  
SaiYee Chuah ◽  
CheeLeok Goh
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Acne Scars ◽  
The Impact

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

Predictors of Quality of Life in Young Adults Diagnosed With Cancer

2020 ◽  
Vol 29 (8) ◽  
pp. 587-597
Author(s):  
Charmaine A. McKie ◽  
Adeyinka O. Laiyemo
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Health Status ◽  
Cancer Survivors ◽  
Functional Status ◽  
Cancer Type ◽  
Health Related ◽  
Perception Of Health ◽  
The Impact

A cross-section correlational study was conducted to evaluate the overall quality of life in young adults (AYAs) diagnosed with cancer, and the impact of health-related and non-health-related factors on their quality of life. Fifty-six AYA cancer survivors were recruited to elicit the impact of biological function (cancer type and comorbidity), symptoms, functional status, general perception of health status, gender, and characteristics of the environment on quality of life. Participants experienced higher than average quality of life. Symptoms, functional status, and general perception of health status were significant predictors of quality of life in this group of AYAs diagnosed with cancer. In delivering quality cancer care, nurses must be able to thoroughly assess symptom status, AYA cancer survivors’ perception of their health status, and functioning in order to implement supportive measures to help improve their quality of life.

scholarly journals Psycho-social impact of developmental dysplasia of the hip and of differential access to early diagnosis and treatment: A narrative study of young adults

2019 ◽  
Vol 7 ◽  
pp. 205031211983601 ◽  
Author(s):  
Tina Samantha Gambling ◽  
Andrew Long
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Early Diagnosis ◽  
Well Being ◽  
Developmental Dysplasia ◽  
The Impact ◽  
Dysplasia Of The Hip ◽  
Over Time ◽  
Differential Access

Objectives: Symptomatic developmental dysplasia of the hip can present in the young, active adult patient and can lead to severe pain and disability at a young age. The overall aim of the study was to deepen the understanding of the impact of developmental dysplasia of the hip on young adults’ quality of life and psycho-social well-being, focusing on how differential access to early diagnosis impacted the trajectory of the disease and treatment options. Methods: We conducted semi-structured interviews and gathered online stories from 97 participants. A narrative and thematic analysis was used to integrate the dataset producing a multi-dimensional view. Results: A narrative plot showing how events unfolded over time was identified for each participant. Two common plots were identified: Plot 1 focused around those participants who received a prompt diagnosis and were treated within 12 months of diagnosis (n = 22) and Plot 2 focused around those who experienced a late/delayed diagnosis (mean = 8 years; range = 12–364 months) (n = 75) and thus delayed treatment. Participants in Plot 2 became more debilitated over time and experienced chronic hip pain for a prolonged period before an accurate diagnosis and/or intervention was made. It was clear from the narratives when pain persists over time, participants’ quality of life and psycho-social well-being were affected. Conclusions: Developmental dysplasia of the hip is an under-recognised condition; more research is needed to develop a clear clinical picture that can be used to alert frontline health professionals to the potential for developmental dysplasia of the hip so that they can promptly diagnose patients and refer them to specialist centres. Patients can also experience a profound impact on their quality of life and psycho-social well-being. Patients actively seek information from support groups about all aspects of their condition. Further research is required to determine the long-term impact of developmental dysplasia of the hip to develop evidence-based information for clinicians and patients.

scholarly journals ASSESSMENT OF PSYCHO-SOCIAL IMPACT OF ACNE AMONG YOUNG ADULTS - A CROSS SECTIONAL STUDY AT A TERTIARY CARE HOSPITAL OF RAWALPINDI

2021 ◽  
Vol 71 (4) ◽  
pp. 1171-74
Author(s):  
Zubaida Rashid ◽  
Syed Fawad Mashhadi ◽  
Imtenan Sharif ◽  
Syeda Urooj Zaidi ◽  
Saira Maroof ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Social Life ◽  
Well Being ◽  
Strong Positive Correlation ◽  
Care Hospital ◽  
Self Perception ◽  
Cross Sectional ◽  
The Impact

Objective: To assess the psychosocial impact of acne and to evaluate the quality of life in relation to severity of symptoms among young adults. Study Design: Cross-sectional – analytical study. Place and Duration of Study: Outpatient Department, Pak Emirates Military Hospital, Rawalpindi, from Sep 2018 to Feb 2019. Methodology: We included 300 individuals visiting the hospital and their quality of life was assessed using Acne quality of life Index questionnaire. Data was analyzed using SPSS-23. Results: Total scores were calculated for three domains of Quality of life in patients with Acne i.e. Self-perception, Emotional well-being and Social life. Out of these three domains, Social Life was most affected by acne (mean score 15.61 ± 7.37out of a total of 30) and Self-Perception was seen to be least affected (mean score 16.90 ± 8.20). There was a strong positive co-relation between the increasing severity of symptoms and impact on Self Perception (r=-0.58, p<0.01), between severity and Impact on Social life (r=-0.581, p<0.01) and between severity of symptoms and Impact on emotional well-being of the patients (r=-0.551, p<0.01). A significant difference was seen between the two genders with reference to the impact on “Social Life”, the meanscore for Males being 13.96 ± 7.55 while that for Females being 17.29 ± 6.81 (p<0.01). Conclusion: Acne has significant impact on the quality of life of patients treated by primary care physicians. The severity of symptoms had strong positive correlation with self-perception, social and emotional domains.

Quality of life Evaluation in patients receiving Steroids (the QuESt tool): initial development in children and young people with acute lymphoblastic leukaemia

2015 ◽  
Vol 101 (3) ◽  
pp. 241-246 ◽  
Author(s):  
M Adams ◽  
M Robling ◽  
J Grainger ◽  
J Tomlins ◽  
A Johnson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Acute Lymphoblastic Leukaemia ◽  
Family Relationships ◽  
Lymphoblastic Leukaemia ◽  
Cognitive Interviewing ◽  
Initial Development ◽  
Children And Young Adults ◽  
The Impact

BackgroundThe powerful cytotoxic and immunomodulatory effects of corticosteroids are an important element of the success that has been achieved in the treatment of acute lymphoblastic leukaemia (ALL). In addition to physical side effects, corticosteroids can adversely influence behaviour, cognitive function and mood leading to significantly impaired quality of life (QoL). A number of tools exist for assessing QoL, but none of these specifically examines changes attributable to steroids.MethodsChildren and young adults aged 8–24 years and parents of children receiving maintenance therapy for ALL from four UK centres were invited to participate. The study comprised three stages carried out over 2 years: (1) focus groups and interviews where participants were asked to describe their experiences of dexamethasone; (2) analysis of questionnaires sent to healthcare professionals and patients to evaluate the importance and relevance of the questions; and (3) cognitive interviewing.ResultsInterpretative phenomenological analysis of focus group and interview transcripts identified that dexamethasone adversely influenced behaviour, appetite, body image, mood and family relationships. 157 electronic survey responses were analysed leading to further item development. Cognitive interviewing confirmed face validity and internal consistency. QuESt comprises 28 questions within four domains and has three age-specific versions.ConclusionsQuESt is the first treatment-specific QoL measure for children and young adults receiving corticosteroids. It can be completed in 10–15 min by children aged ≥8 years. Further validity and reliability testing will be undertaken. Although the initial application is for ALL, QuESt may also be a valuable tool for understanding the impact of corticosteroids in other paediatric conditions.

scholarly journals A STUDY OF PHYSICAL ACTIVITY LEVELS AND QUALITY OF LIFE IN YOUNG ADULTS DURING THE COVID-19 PANDEMIC

2021 ◽  
Vol 74 (6) ◽  
pp. 1405-1408
Author(s):  
Mariia A. Ovdii ◽  
Kateryna M. Solomakha ◽  
Mykola O. Yasynetskyi ◽  
Nataliia P. Ponomarenko ◽  
Yurii M. Rydzel
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Young Adults ◽  
Short Form ◽  
Activity Levels ◽  
Role Functioning ◽  
Physical Activity Levels ◽  
Insufficient Physical Activity ◽  
The Impact

The aim: To investigate the impact of the COVID-19 pandemic on the level of physical activity and quality of life in young adults. Materials and methods: A survey of 327 young people aged 18-25 years was conducted; the SF-36 (Medical Outcomes Study-Short Form) questionnaire was used to determine the quality of life; a questionnaire taking into account the WHO Global Recommendations on Physical Activity for Health in order to determine the level of physical activity was applied. Results: Young adults men 88 (27%) and 239 women (73%), mean age 21.4±1.8 y.o., the survey showed that 52% of those studied did not engage in physical activity at all, 28% had insufficient physical activity, only 20% had an adequate level of physical activity. There was a decrease in all quality of life indicators during the pandemic period compared to the previous period, especially the physical role functioning indicator (p = 0.0002), general health (p = 0.0004), emotional role functioning indicator (p = 0.0001) and mental health indicator (p = 0.0004). Conclusions: The COVID-19 pandemic has had a significant impact on the quality of life and physical activity levels of young adults and most of this is due to the restrictive measures of the pandemic.

scholarly journals The impact of type 1 diabetes on young adults’ health-related quality of life

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Madelon B. Bronner ◽  
Mariëlle A. C. Peeters ◽  
Jane N. T. Sattoe ◽  
AnneLoes van Staa
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Young Adults ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

scholarly journals Influence of juvenile idiopathic arthritis on the quality of life of young adults in the transition period to adult rheumatologic care

2017 ◽  
Vol 2 (4) ◽  
pp. e020478
Author(s):  
Marta Dzhus
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Juvenile Idiopathic Arthritis ◽  
Transition Period ◽  
Disease Onset ◽  
Cross Sectional Study ◽  
Control Group ◽  
Cross Sectional ◽  
The Impact

Background Young adults with juvenile idiopathic arthritis (JIA) often have an active disease with significant functional impairment in adulthood that can affect their physical and mental functions Aim To determine the impact of JIA on quality of life (QoL) in young adults with JIA during the transition healthcare Materials and methods The cross-sectional study of 89 young adults aged 16 to 22 years with a history of JIA regardless of the presence or absence of active inflammation at the time of the survey was performed in the Oleksandrivsky Central Clinical Hospital in Kyiv, Ukraine in the period between April 2015 and February 2017. 25 age- and sex-matched controls (without rheumatic disease) were included. There was performed an evaluation of the age at disease onset, duration, JIA activity, received therapy and quality of life Results Out of 89, 37 (41,6%) patients were considered to be in remission. Juvenile idiopathic arthritis had a large impact on the physical scales of quality of life. Patients with JIA had worse (p <0.001) physical health in comparison with the control group. The pain was the most important factor affecting the quality of life in cases of juvenile idiopathic arthritis. The indices responsible for the physical (p<0.001), role (borderline significance, p=0.04) functioning, and intensity of pain (p<0.001) were decreased, compared with the control group. However, the indicators responsible for psychological function in patients with JIA did not differ from the control group. The correlation analysis revealed significant negative association between disability severity (HAQ) and physical function (r=-0,56, p<0.001), role function (r=-0,33, p<0.001), pain intensity (r=-0,60, p<0.001), general health (r=-0,40, p=0.01), vital activity (r=-0,46, p<0.001), social function (r=-0,48, p<0.001), mental health (r=-0,42, p<0.001) Conclusion In our transitional cohort of patients at the era of biological therapies, juvenile idiopathic arthritis had a larger effect on the physical than mental SF-36 subscale. The pain was the main factor influencing the quality of life

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