scholarly journals Is Down Syndrome Doomed? How State Statutes Can Help Expectant Parents Make Informed Decisions about Prenatal Down Syndrome Diagnoses*

Author(s):  
Teresa Santin

Giving birth to a child with Down syndrome is a choice and one that should be well-informed. It has become a trend for expectant parents to abort fetuses with Down syndrome before fully weighing their options.[1] Expectant parents may automatically assume that an individual with Down syndrome will not lead a worthwhile life and that raising the child will pose too many challenges for them.[2] In order to minimize the number of fetuses with Down syndrome that are being aborted (which may be greater than 90%),[3] expectant parents need access to up-to-date, comprehensive information about all aspects of raising a child with Down syndrome, including the many positive aspects. Whatever decision a parent makes regarding raising a child with Giving birth to a child with Down syndrome is a choice and one that should be well-informed. It has become a trend for expectant parents to abort fetuses with Down syndrome before fully weighing their options.[1] Expectant parents may automatically assume that an individual with Down syndrome will not lead a worthwhile life and that raising the child will pose too many challenges for them.[2] In order to minimize the number of fetuses with Down syndrome that are being aborted (which may be greater than 90%),[3] expectant parents need access to up-to-date, comprehensive information about all aspects of raising a child with Down syndrome, including the many positive aspects. Whatever decision a parent makes regarding raising a child with consent. Part IV examines current state and federal laws that require healthcare providers to give information to expectant mothers who receive a prenatal Down syndrome diagnosis. Part IV also addresses why a law requiring post-Down syndrome diagnosis information is not unduly burdensome. Specifically, Part IV looks closely at the Prenatally and Postnatally Diagnosed Conditions Awareness Act and state statutes in Missouri, New Jersey, Alabama, and Virginia.  Part V discusses why laws already enacted on this issue are inadequate and proposes a model statute that all states can follow in crafting their own similar laws. Finally, Part V addresses potential concerns related to the proposed law like cost, enforcement, and First Amendment rights, and how those issues may be resolved.

2011 ◽  
Vol 36 (5) ◽  
pp. 3205-3213 ◽  
Author(s):  
Şafak Saraydemir ◽  
Necmi Taşpınar ◽  
Osman Eroğul ◽  
Hülya Kayserili ◽  
Nuriye Dinçkan

2018 ◽  
Vol 3 (1) ◽  
pp. 36
Author(s):  
Weiling Liu

It has been a decade since Tim Berners-Lee coined Linked Data in 2006. More and more Linked Data datasets have been made available for information retrieval on the Web.  It is essential for librarians, especially academic librarians, to keep up with the state of Linked Data.  There is so much information about Linked Data that one may wonder where to begin when they want to join the Linked Data community. With this in mind, the author compiled this annotated bibliography as a starter kit.  Due to the many resources available, this list focuses on literature in English only and of specific projects, case studies, research studies, and tools that may be helpful to academic librarians, in addition to the overview of Linked Data concept and the current state of Linked Data evolution and adoption.


2019 ◽  
Vol 17 (3) ◽  
pp. 439-452
Author(s):  
Екатерина Александровна Бороздина ◽  
Анастасия Андреевна Новкунская

The interplay between different institutional logics is a vital topic in contemporary institutional analyses of healthcare. In this paper, we consider relations between professional, bureaucratic, market, and informal logics in the volatile and ever-transforming context of post-Soviet maternity care. We approach this issue from an unconventional angle and study how various logics are interpreted, enacted and manipulated by women-patients. Neo-institutional scholars commonly enlist patients as institutional actors that are involved both in maintaining and changing the institutional order. However, current research neglects the patients’ perspective instead focusing on the practices of healthcare providers. In order to fill this gap, we investigate how expectant mothers make sense of and navigate the complex institutional environment of Russian maternity care. In our analysis we rely on empirical data from fifty-nine qualitative interviews with recent mothers conducted in St. Petersburg in 2015–2017. This data allows us to conclude that the institutional dynamics of maternity care are powered mostly by the rivalry of two logics – one bureaucratic, the other market-driven. The professional logic, meanwhile, remains underrepresented and dominated by the other two. Unlike healthcare practitioners, women perceive the bureaucratic logic as chaotic and unpredictable, while wealthy clients employ a repertoire of actions offered by the market logic to exercise more control of their hospital routine. Different institutional logics compete for dominance, leaving areas of uncertainty in regard to institutional rules. In some cases, patients use informality to manage such ambivalence and challenge the formal order of healthcare facilities. The common character of this strategy prompts us to suggest that informality forms a distinctive fourth logic that frames some actions and interactions within Russian maternity care.


2021 ◽  
Author(s):  
◽  
Nina Helen Finigan

<p>Environmental sustainability is becoming an increasingly essential component of modern life. The contemporary museums’ role as public educators, and as guardians of tangible and intangible culture, places them in a unique position to address the various issues surrounding environmental sustainability, from climate change, to bio-diversity loss, to conservation. There is increasing momentum behind the idea that museums should not only engage with environmental sustainability, but that they indeed have a responsibility to. Although museums throughout New Zealand are addressing environmental sustainability, there is currently no thorough examination of how they are doing this. Therefore, the aim of this dissertation was so find out the current state of environmental sustainability in New Zealand museums, and specifically how staff are approaching it. Through engaging in a case study of Te Manawa Museum, Gallery and Science Centre, Palmerston North, and specifically the environmentally themed exhibition Te Awa/The River: Heart of the Manawatu, this dissertation analyses and discusses the realities of addressing institutional environmental sustainability. While the previous literature surrounding this topic has addressed the many reasons why museums should engage with environmental sustainability, this dissertation has expanded on this by analysing and discussing the realities of addressing environmental sustainability from a staff perspective. Through interviews with five Te Manawa staff members, this dissertation has revealed that while museum professionals agree that engagement with environmental sustainability should become part of bottom line holistic sustainable development, the status of museums as trusted democratic institutions can place them in a conflicted space ‘in-between’ when dealing with polarising issues such as the environment. This is particularly relevant to the discussion around new-museological theory, and the importance of local context and reflexive community engagement, where the community essentially help drive museological direction and content.</p>


2014 ◽  
Vol 32 (4) ◽  
pp. 315-330 ◽  
Author(s):  
Michelle C. Brennan ◽  
Alison J. Cotgrave

Purpose – Despite the surge of interest in construction sustainability and the many Government initiatives encouraging reform in the UK construction industry (CI), the prevalence of sustainable development (SD) in the industry is still largely lagging behind that of other industries. Given the amount of focus and activity identified nationally in this area, the purpose of this paper is to investigate the reasons why this is not being translated into action and to seek counsel from industry professionals as to how they believe change can be achieved with a particular focus on how they believe higher education institutions (HEIs) can contribute. Design/methodology/approach – An explorative, qualitative study using three focus groups was of construction professionals. Findings – Despite a lack of action, many in industry support sustainability and actively attempt to engage in sustainable practices but a number of barriers preclude successful implementation. Government initiatives are having a positive impact, with participants believing that both Government and HEIs are imperative in driving the sustainability agenda forward. Research limitations/implications – Whilst limited in scale, this paper highlights the current state of the CI in relation to SD and evidences that progress is being made albeit slowly. The findings may help both Government and HEIs alongside industry in achieving how this can be overcome. Originality/value – Previous research in this area has generally adopted a quantitative approach. Adopting a qualitative approach provides a more in depth view as to why the status quo remains with regards to SD in the CI.


Author(s):  
Quintin Colville ◽  
James Davey

This introduction gives on overview of the sub-discipline of naval history since its emergence in the early eighteenth-century. It outlines the various social, cultural and political influences that have shaped the subject over the past three centuries, and discusses its relationship with the wider historical profession. The second half of the introduction sums up the current state of naval history, describing the many historiographies that now have a bearing on how the subject is conducted. Each contribution to the volume is introduced in this context, offering a precis of the chapters that follow.


2012 ◽  
pp. 216-230
Author(s):  
Joshua Azriel

This chapter examines the First Amendment’s challenges to bloggers in the United States and highlights the potential legal consequences for victimizing someone online. While the First Amendment protects an overall right to free speech, there are certain boundaries to this right. Federal Internet-related speech laws, libel, invasion of privacy, copyright, trademark, and others are analyzed within the context of blogging. The author discusses the potential legal consequences to blogging at work or after hours and how personal blogs can negatively impact the work environment. Several Supreme Court cases are discussed to assist bloggers in understanding the scope of contemporary Internet free speech laws. An analysis of U.S. federal laws restricting online speech and an overview of the following areas of speech law are provided: libel, invasion of privacy, protection for confidential sources, copyright, trademark, true threats, and obscenity.


2020 ◽  
pp. 219-232
Author(s):  
Jim Host ◽  
Eric A. Moyen

The epilogue turns its attention to Host’s perception of current events and issues about which he is passionate. He addresses problems that are keeping Kentucky from making greater progress, as well as his role in Shaping Our Appalachian Region (SOAR), Kentucky Wired, and the Lexington Urban League. Host expresses his desire for the commonwealth to provide greater support to the University of Kentucky, with a view to making it an elite research university. He also shares his opinions on the current state of NCAA athletics and its governance structure and voices his support for student athletes’ right to control their own likenesses and promote commercial products. Host argues that this would encourage student athletes to stay in school rather than leaving college to become professional athletes. Host concludes the epilogue by thanking the many individuals who have played an important role in his life and professional career.


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