scholarly journals Experience of Cancer Patients on their Visit to Cancer Outpatient Department: A Qualitative Study from a Regional Hospital in Mauritius

2020 ◽  
Author(s):  
Abhishek Kashyap ◽  
Indrajit Banerjee ◽  
Akash Thakur ◽  
Vaishali Notwani ◽  
Mitanshi Raghuvanshi
Keyword(s):  
Qualitative Study ◽  
Cancer Treatment ◽  
Cancer Patients ◽  
Cancer Care ◽  
Treatment Compliance ◽  
Sampling Technique ◽  
Emotional Reactions ◽  
Care Needs ◽  
Female Ratio ◽  
State Of Mind

Introduction: Cancer care studies suggest that being diagnosed with cancer, the patients and their families face various hardships such as financial crisis, increased mental stress, difficulty in managing their relationships and routine lifestyle activities. Moreover, psycho-oncological studies also describe the intense distress and disbelief experienced by patients on their initial diagnosis. The role of cancer care needs to be understood as well as implemented in cancer treatment, thus further enriching the insights of the treating oncologist about their patient’s state of mind. This ultimately allows for the betterment of treatment compliance. Aim: To study the experience of cancer patients on their visit to the cancer clinic and the emotional turmoil after diagnosis and throughout treatment. Materials and Methods: A descriptive phenomenological qualitative study was designed and conducted from August to September 2019 at the Oncology Department of Victoria Hospital, Mauritius. Participation in the study was voluntary, and written consent was taken from each of the study participants. The data was collected on an in-depth one on one interview basis and was recorded, and the purposive sampling technique was used for collecting the data. Results: Out of 12 patients, the male/female ratio equated to 5:7, these patients were from the ages of 23 to 70 years and the mean age of the participants was 48.2 years. A total of 25 different codes were generated in the study, seven main themes were established there from (Motivational factors, Psychological factors, Society, Message for others, Awareness about the disease, Economic factors and Perception towards the healthcare environment). Conclusion: The main implication that emerged from this study is the notion of the lateral views of informal caregivers, family members and medical professionals, towards the patient’s feelings and emotional reactions in respect to their experience of cancer. It has been noted that the positivity of the caregiver corresponds directly to positive outcomes in the cancer treatment whilst simultaneously decreasing the psychological ramifications of the process.

scholarly journals Domiciliary Care Providers Views on Provision of Palliative Care for their Cancer Patients

2018 ◽  
Vol 4 (1) ◽  
pp. 1-7
Author(s):  
Meegoda MKDL ◽  
Fernando DMS ◽  
Sivayogan S ◽  
Atulomah NOS ◽  
Marasinghe RB
Keyword(s):  
Palliative Care ◽  
Sri Lanka ◽  
Cancer Patients ◽  
Family Care ◽  
Sampling Technique ◽  
Target Population ◽  
Care Providers ◽  
Care Needs ◽  
Domiciliary Care ◽  
Depth Interviews

A qualitative study was conducted to describe views and life experiences of domiciliary care providers in meeting the palliative care needs of adult cancer patients at the National Cancer Institute, Maharagama, Sri Lanka. The target population for this study was Domiciliary Care Providers (DCPs) who were the family care givers of patients at National Institute of Cancer, Maharagam (NICM), Cancer Home (CH), Maharagama, Shantha Sevana Hospice (SSH) and Ceylinco Oncology Unit (COU), Colombo, Sri-Lanka. Purposive sampling technique was used to select participants for the study. In-depth interviews were conducted using validated semi-structured interviewer guide. Data saturation was reached after 15 in-depth interviews with DCPs. Trustworthiness of the study was maintained. Phenomenological-hermeneutic approach was followed to analyze qualitative data and thematic analysis was performed. Data analysis was done concurrently with data gathering. Being reassured, having more expectations, need psychosocial help and inadequate knowledge were the key themes identified. They expect knowledge improvement to provide better care. As patients’ level of satisfaction on domiciliary care provided by DCPs was high, improving their knowledge on palliative care may be a cost effective method of improving palliative care.

scholarly journals ‘Haematological cancers, they’re a funny bunch’: A qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs

2016 ◽  
Vol 23 (11) ◽  
pp. 1464-1475 ◽  
Author(s):  
Brooke Swash ◽  
Nick Hulbert-Williams ◽  
Ros Bramwell
Keyword(s):  
Qualitative Study ◽  
Supportive Care ◽  
Cancer Patients ◽  
Hodgkin’S Lymphoma ◽  
Information Needs ◽  
Supportive Care Needs ◽  
Hodgkin's Lymphoma ◽  
Care Needs ◽  
Non Hodgkin’S Lymphoma ◽  
Non Hodgkin's Lymphoma

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin’s lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.

Identifying cancer patients’ care needs after discharge hospital using health claim data linked with Hospital-based Cancer Registry data in Japan.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e18012-e18012
Author(s):  
Ayako Okuyama ◽  
Yukie Takemura ◽  
Takahiro Higashi
Keyword(s):  
Cancer Patients ◽  
Cancer Registry ◽  
Cancer Care ◽  
Daily Living ◽  
Continuous Treatment ◽  
Care Needs ◽  
Discharge Data ◽  
Control Plan

e18012 Background: In 2018, the 3rd Cancer Control Plan developed in Japan. This plan recommends that we should create a better society for cancer patients to keep living at their homes after leaving hospital. In order to grasp the continuous health care needs, we investigated independence degree of Activities of Daily Living (ADL) at the time of discharge for cancer patients by hospital types. Methods: We analyzed the health insurance claims database linked with the hospital-based cancer registry of 230 cancer care hospitals covered the period from October 2012 to December 2014. Data were abstracted from patients who 1) were diagnosed with breast, lung, liver, colorectal, stomach, pancreas, or prostate cancer in 2013; 2) were 20 years or older at the time of the diagnosis; and 3) received the first course or continuous treatment at the hospital. Ministry of Health, Labor and Welfare designates cancer care hospitals (DCCHs) to provide a high quality of cancer care. In each prefecture, one hospital is designated as Type 1 DCCH, and it has the role of supporting other DCCHs in that prefecture. Remaining DCCHs are Type 2 DCCHs. Hospitals which are not designated as DCCHs are categorized into other hospitals. We assessed the differences of patient’ ADL status by these hospital types. Results: We extracted 37,523 patients’ discharge data (8,271 from Type 1 DCCHs, 28,200 from Type 2 DCCHs, and 1,052 from other hospitals). The mean age (SD) at the time of diagnosis was 65.6 (11.7) at Type 1 DCCHs, 69.1 (11.0) at Type 2 DCCHs, and 70.0 (12.3) at other hospitals. The percentage of clinical stage IV in other hospitals (25.3%) was slightly higher than others (22.5%). In total, 16.2% of patients need all assistance for bathing, while only 3.5% of patients need all assistance for eating. More patients at other hospitals were need assistance for ADL compared to patients at DCCHs. For example, 10.6% of patients need all assistance for bathing in type 1 DCCHs, while 25.2% of patients need it in other hospitals. Conclusions: Many patients discharged in not DCCHs need more assistance for their daily living. We should take these situation into account when we provide appropriate support for cancer patients.

Pastoral care of cancer patients: Defining utilization of services at a comprehensive cancer center.

2020 ◽  
Vol 38 (15_suppl) ◽  
pp. e24171-e24171
Author(s):  
Elizabeth Palmer ◽  
Anghela Paredes ◽  
Madison Hyer ◽  
Timothy M. Pawlik
Keyword(s):  
Pastoral Care ◽  
Cancer Treatment ◽  
Cancer Patients ◽  
Spiritual Care ◽  
Cancer Care ◽  
Comprehensive Cancer Center ◽  
Cancer Center ◽  
Spiritual Needs ◽  
Active Listening ◽  
Patients With Cancer

e24171 Background: Addressing the religious/spiritual needs of patients is an important component of comprehensive cancer care. Patients often report that providers infrequently engage them about their needs during treatment. In addition, providers cite inadequate training as a significant barrier to providing spiritual care. While patients may benefit from the presence of a spiritual care specialist during cancer treatment, the utilization and content of these services are not well defined. We sought to characterize utilization of pastoral care (PC) services, as well as delineate differences in PC utilization among patients with cancer. Methods: Data on patients being treated for cancer at a Comprehensive Cancer Center between 2015-2018 were obtained from the electronic medical record. Overall utilization, type of PC services utilized, as well as factors associated with use of PC were assessed. Analyses included descriptive statistics and logistic regression. Results: Among 14,322 cancer patients, roughly one-third (n = 5166, 36.1%) had at least one PC encounter during their cancer treatment. Interventions most frequently provided by PC included supportive presence (93.5%) and active listening (86.6%), while the most frequently explored topics were treatment expectations (59.8%), issues with faith/beliefs (42.9%), and available coping mechanisms (35.4%). Patients diagnosed with colorectal (OR:1.42, 95%CI:1.07-1.89), liver (OR:2.41, 95%CI:1.80-3.24), or pancreatic cancer (OR:1.43, 95%CI:1.02-2.00) were more likely to utilize PC services compared with other cancers. Patients that identified as Catholic (OR:1.47, 95%CI:1.17-1.84) or Christian (OR:1.73, 95%CI:1.39-2.15) were more likely to request PC services (both p < 0.001) than individuals who had no religious preference/affiliation. Among surgical patients (n = 1,174), the majority of encounters with PC services were in the postoperative setting (n = 801, 70.6%). Patients most often reported that PC helped with verbalization of their feelings (93.6%) and helped reduce stress (76.9%). Conclusions: Over one-third of patients with cancer interacted with PC and received services that often addressed both psychosocial and spiritual concerns. Overall PC utilization and types of PC services rendered varied relative to demographic and religious factors. Providers should be aware of varying patient religious/spiritual needs so as to optimize the entire cancer care experience for patients.

scholarly journals Special aspects of medical care for cancer patients during COVID-19 pandemic

2021 ◽  
pp. 2-2
Author(s):  
Mariia Pavlushenko ◽  
Roman Liubota ◽  
Roman Vereshchako ◽  
Nikolay Anikusko ◽  
Irina Liubota
Keyword(s):  
Cancer Treatment ◽  
Medical Care ◽  
World Health Organization ◽  
Cancer Patients ◽  
Cancer Care ◽  
World Health ◽  
Cancer Therapies ◽  
Risk Of Infection ◽  
The World ◽  
Health Organization

The biggest challenge for the World Health Organization today is the fight against the COVID-19 pandemic. The current situation prompted major adjustments in the system of cancer care. In this review, we investigate the aspects of cancer treatment and care during the pandemic, since in this setting oncological services face challenges in determining the feasibility of anticancer treatments while minimizing the risk of infection. Cancer patients are at a higher risk from COVID-19 disease. Therefore, oncological community is discussing on the priorities for providing cancer therapies and care and at the same time minimizing the risk of infection.

scholarly journals Occupational Challenges in the Caregivers of People with Multiple Sclerosis: A Qualitative Study

2020 ◽  
Vol 7 (4) ◽  
Author(s):  
Fatemeh Motaharinezhad ◽  
laleh lajevardi ◽  
Afsoon Hassani Mehraban ◽  
Setareh Ghahari
Keyword(s):  
Multiple Sclerosis ◽  
Qualitative Study ◽  
Neurodegenerative Disorder ◽  
Emotional Reactions ◽  
Care Process ◽  
Care Needs ◽  
Term Care ◽  
Face To Face ◽  
Daily Life Activities ◽  
Time Limitations

Background: Multiple Sclerosis (MS) is a neurodegenerative disorder. The progressive and unpredictable nature of MS indicates the patients’ need for long-term care as well as the increased burden of their primary caregivers’ care and occupational challenges that emerge in their daily life activities. Objectives: The current study aimed to explore the occupational challenges caused by engaging in the care process for the caregivers of people with MS Methods: This qualitative study was conducted on 21 caregivers of MS patients using a content analysis approach. Data were collected through semi-structured face-to-face interviews. Results: Three main themes emerged: Time limitations in occupation implementation, care needs in occupation implementation, and emotional reactions affecting occupations. Conclusions: According to the results, the caregivers of people with MS were faced with a variety of occupational challenges. The time limitations for performing routine occupations and desired activities, unmet patient care-facilitating needs, and the occurrence of psychosocial reactions and behaviors were contributed to these challenges and their exacerbation. Identifying these challenges is both useful for designing interventional programs and to help caregivers to successfully perform their desired occupations in spite of challenges in the care process.

scholarly journals The COVID-19 Pandemic: Role of Supportive Care in Cancer Patients

2021 ◽  
Vol 5 (S1) ◽  
pp. 259-261
Author(s):  
Wasimul Hoda ◽  
Sachidanand Jee Bharati ◽  
Abvinav Kumar ◽  
Sanjay Kumar ◽  
Chandrashekhar Choudhari ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Treatment ◽  
Cancer Patients ◽  
Cancer Care ◽  
Virus Disease ◽  
Healthcare Resources ◽  
Corona Virus ◽  
Difficult Time ◽  
Basic Minimum

Cancer care is adversely affected by the corona virus disease 2019 (COVID-19). Due to increasing number of COVID-19 cases, all healthcare resources are diverted to take care of COIVD-19 patients. This is the most difficult time for cancer patients because cancer treatment is getting delayed or interrupted due to COVID-19. In this tough time, the supportive care can be continued with basic minimum resources and can provide a big relief to cancer patients.

Sign in / Sign up

Export Citation Format

Share Document