scholarly journals Caregiving in the U.S. 2020: What Does the Latest Edition of This Survey Tell Us About Their Contributions and Needs?

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 681-681
Author(s):  
Gabriela Prudencio ◽  
Heather Young
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Well Being ◽  
Basic Unit ◽  
Trend Data ◽  
Nationally Representative ◽  
Services And Supports ◽  
The Individual ◽  
National Profile ◽  
The U.S

Abstract Family and friends comprise the most basic unit of any society. For individuals who take on the responsibility of caring for another person through sickness or disability, it can often be challenging to see beyond the individual experience. Yet in the aggregate, family caregivers—whether they be families of kin or families of choice—are woven into the fabric of America’s health, social, economic, and long-term services and supports (LTSS) systems. As the country continues to age, the need to support caregivers as the cornerstone of society will only become more important. A national profile of family caregivers first emerged from the 1997 Caregiving in the U.S. study. Related studies were conducted in 2004, 2009, and 2015 by the NAC in collaboration with AARP. Caregiving in the U.S. 2020 presents a portrait of unpaid family caregivers today. A nationally representative survey (n=1,499), it replicates the methodology used in 2015. Therefore, during this symposium, AARP and NAC will present trend data from 2015 in comparison to 2020, and explore key subgroup differences. The presentation will cover prevalence, demographic characteristics, intensity and duration of care, the well-being of caregivers, the financial impact of family caregiving on caregivers themselves, and the degree to which technology supports caregivers today.

scholarly journals Caregiver Health and Well-Being, and Financial Strain

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 681-682
Author(s):  
Susan Reinhard ◽  
Lynn Feinberg
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Family Care ◽  
Well Being ◽  
Financial Strain ◽  
Caregiver Health ◽  
Financial Impacts ◽  
The Impact ◽  
Health And Well Being ◽  
The U.S

Abstract Family caregivers often face key challenges when caring for a relative or close friend with health or functional needs. This paper presents findings from Caregiving in the U.S. 2020 on the impact of caregiving on the physical health and well-being of family caregivers and the financial impacts of family care. The data suggest that the caregiver’s own health has declined, with 1 in 5 (21%) saying they are in fair to poor health themselves, up from 17 percent in 2015. Nearly 1 in 4 (23%) feel caregiving has made their health worse. Nearly 4 in 10 (38%) family caregivers of adults experience a moderate to a high degree of financial strain from providing care. Forty-five percent have experienced at least one financial impact (e.g., stopped savings, debt, ability to pay bills, and ability to afford necessary expenses, like food). These findings reveal that because family caregiving today is more complex, costly, and stressful than in the past, action is needed to recognize and support family caregivers in the U.S adequately.

Personal and organizational resources of family caregivers ' well-being

2014 ◽  
Vol 43 (3) ◽  
pp. 401-418 ◽  
Author(s):  
Susanna Maria Krisor ◽  
Jens Rowold
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Self Efficacy ◽  
Well Being ◽  
Work And Family ◽  
Organizational Resources ◽  
Content Type ◽  
Important Resource ◽  
Health Related ◽  
Work Family

Purpose – Previous research on the work-family nexus has tended to concentrate on childcare responsibilities. This neglects consideration of an increasing population of employees who care for dependents such as elders, impaired partners or disabled children. Therefore, the aim of this study is to investigate organizational and personal resources as antecedents of work-family conflict (WFC) and irritation in a sample of employed family caregivers. Design/methodology/approach – Data were collected from 508 employees within one organization who had informal family caregiving responsibilities. Findings – The results indicate that a supportive work-family culture was an important resource for reducing WFC and health-related self-efficacy reduced irritation. In sum, when a company fosters a family-friendly culture that includes working in a constructive and understanding manner with employees who have informal family caregiver responsibilities, it becomes easier for the employees to integrate the demands of work and family demands. Moreover, health-related self-efficacy is an important resource that can improve stress and future researchers should give it greater consideration. Originality/value – This study contributes to existing literature by the identification of personal and organizational resources of informal family caregivers with the aim to reduce their stress experiences.

scholarly journals THE ECONOMIC VALUE OF FAMILY CAREGIVING: NEW NATIONAL ESTIMATES AND STATE VARIATION

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S748-S748
Author(s):  
Ari Houser ◽  
Ari Houser
Keyword(s):  
Family Caregiving ◽  
Meta Analysis ◽  
Economic Value ◽  
The United States ◽  
Virgin Islands ◽  
State Variation ◽  
National Estimates ◽  
Total Economic Value ◽  
Nationally Representative ◽  
Services And Supports

Abstract The economic value of family caregiving, by any measure, dwarfs actual expenditures on formal long-term services and supports (LTSS). This presentation discusses new estimates of the number of caregivers, intensity of caregiving, and the total economic value of family caregiving in 2017 in the United States, and in every state, the District of Columbia, Puerto Rico, and the Virgin Islands, based on a meta-analysis of recent nationally representative surveys of family caregivers. Previous analyses of this type have found that the total economic value of family caregiving has increased steadily from $350 billion in 2005 to $470 billion in 2013. State variation in the incidence, intensity, and economic value of caregiving will be discussed, and key predictors of this variation will be identified.

scholarly journals 2400 How have characteristics of end-of-life family caregiving changed from 1999 to 2015? Preliminary results from two waves of nationally representative data

2018 ◽  
Vol 2 (S1) ◽  
pp. 82-82
Author(s):  
Judith Vick ◽  
Jennifer Wolff
Keyword(s):  
Older Adults ◽  
End Of Life ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Physical Strain ◽  
Term Care ◽  
Care Survey ◽  
Nationally Representative ◽  
Over Time

OBJECTIVES/SPECIFIC AIMS: Family members are often critical in the delivery of hands-on care and decisions about care for persons approaching end-of-life (EOL). Prompted by concerns about the poor quality and high costs of care at the EOL, recent delivery reform efforts—such as the growth of hospice and palliative care—have been directed at improving EOL care for both patients and family. Trends of the characteristics of EOL family caregivers and care recipients over time have not been well described. The goal of this study is to evaluate changes in EOL family caregiving from 1999 to 2015. METHODS/STUDY POPULATION: This study uses reconciled data from two nationally representative surveys and their linked caregiver surveys: the 1999 wave of the National Long-Term Care Survey (NLTCS) and the Informal Care Survey (ICS), and the 2015 wave of the National Health and Aging Trends Study (NHATS) and the National Survey of Caregiving (NSOC). RESULTS/ANTICIPATED RESULTS: Crude analysis shows that older adults living in the community and receiving help from family caregivers in the last year of life were significantly better educated (72% with greater than 12 years of education vs. 46%), and more diverse (78% White vs. 89%) in 2015 compared with 1999. Family caregivers in the last year of life were less likely to be female in 2015 compared with 1999 (74% vs. 68%, NS) and significantly less likely to be spouses (45% vs. 38%) in 2015. In 2015, a significantly greater proportion of older adults received help with five or more activities of daily living (47% vs. 34%), but family caregivers reported significantly lower levels of caregiving-associated distress: financial strain (80% reporting none in 2015 vs. 53%), emotional (51% vs. 39%), and physical strain (70% vs. 45%). In addition, a significantly greater proportion of EOL family caregivers used respite care in 2015 compared to 1999 (15% vs. 4%). DISCUSSION/SIGNIFICANCE OF IMPACT: Changes in the experience of EOL family caregiving may be impossible to capture in studies of single interventions, but tracking nationally representative trends can be used as an indicator of broader changes that take place cumulatively over time. Although studies of this nature cannot identify causal mechanisms of change, they are important to monitor long-term impact of program implementation and to guide future research, policy, and resource allocation.

Spinal cord injury and family caregivers: A description of care and perception of service need

2005 ◽  
Vol 11 (1) ◽  
pp. 91 ◽  
Author(s):  
Michele Foster ◽  
Delena Amsters ◽  
Glenys Carlson
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Survival Rates ◽  
Well Being ◽  
Service Planning ◽  
Term Care ◽  
Personal Support ◽  
Cord Injury

As survival rates and life expectancies of individuals experiencing acquired disabilities such as spinal cord injury improve, greater demands are placed on health, rehabilitation and long-term care services. Further, family caregivers are assuming much of the caring responsibilities. This paper examines family caregiving in relation to individuals with spinal cord injury (SCI) in an Australian context. The paper is based on a descriptive survey conducted with 206 individuals with SCI, referred to a specialist SCI outreach service in Queensland, and 179 family caregivers. The survey collected social and demographic information and details of the type of care provided by family caregivers. It also explored family caregivers' perceptions of the types of services they require to assist them in their caring roles. Family caregiving typically involved physical, practical, and emotional support, and in many cases this occupied in excess of three hours a day, with no additional source of caregiving provided. The most frequently reported service types required by family caregivers included respite, personal support, information services, and health professional services. Mapping caregiver needs in this area establishes a critical basis for service planning and more importantly provides a guide for the development of a range of services dedicated to maintaining the health and well-being of family caregivers of individuals with SCI.

Family Caregivers of Adults With Intellectual and Developmental Disabilities: Outcomes Associated With U.S. Services and Supports

2014 ◽  
Vol 52 (2) ◽  
pp. 147-159 ◽  
Author(s):  
Heather J. Williamson ◽  
Elizabeth A. Perkins
Keyword(s):  
Developmental Disabilities ◽  
Family Caregivers ◽  
Service System ◽  
Care Delivery ◽  
Intellectual And Developmental Disabilities ◽  
Physical Health Outcomes ◽  
Services And Supports ◽  
Caregiving Roles ◽  
Mental And Physical Health ◽  
The U.S

Abstract Individuals with intellectual and developmental disabilities (IDD) in the U.S. predominantly live with their family caregivers. As care delivery and support systems vary widely globally, consideration of caregiver outcomes specifically in the U.S. context is needed. A systematic literature review was conducted to identify U.S. family caregiver outcomes and their association with existing services and supports for family caregivers of adults with IDD. Twenty-four articles were compiled using the PubMed, Web of Knowledge, PsychInfo, and CINAHL databases. Studies report economic, mental, and physical health outcomes from caregiving roles. The need for comprehensive caregiver assessment is discussed. Understanding and responding to the changing needs of family caregivers is vital to the U.S. disability service system to effectively prioritize formal resources and services.

Body weight satisfaction among New Zealand adolescents: findings from a national survey

2012 ◽  
Vol 24 (2) ◽  
Author(s):  
Amanda Wood ◽  
Jennifer Utter ◽  
Elizabeth Robinson ◽  
Shanthi Ameratunga ◽  
Theresa Fleming ◽  
...  
Keyword(s):  
Body Weight ◽  
New Zealand ◽  
Body Dissatisfaction ◽  
Body Satisfaction ◽  
Well Being ◽  
School Students ◽  
Weight Satisfaction ◽  
Zealand Secondary School ◽  
Nationally Representative ◽  
The Individual

Abstract Body dissatisfaction has been extensively studied but, recently, the importance of body satisfaction and its attributing factors has received significant recognition. Also, there is an increasing awareness of the need for research examining body dissatisfaction and satisfaction in youth other than North American females. Thus, the current research examined the prevalence of, and the individual, social, and familial factors associated with, body-weight satisfaction among New Zealand male and female adolescents (n=9107). Data were analysed from Youth ’07, a nationally representative survey of New Zealand secondary school students. Overall, half of students were happy with their weight, with significantly more males than females reporting body-weight satisfaction. Students happiest with their weight were most likely to report healthy and supportive social and family environments, as well as higher levels of well-being. These findings are consistent with a growing body of research that suggests creating positive peer and family environments may lead to better developmental outcomes, such as body satisfaction, and also higher levels of well-being.

scholarly journals A Review of the Complex Role of Family Caregivers as Health Team Members and Second-Order Patients

Healthcare ◽  
2019 ◽  
Vol 7 (2) ◽  
pp. 63 ◽  
Author(s):  
Sherman
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Well Being ◽  
Health Care Team ◽  
Second Order ◽  
Team Members ◽  
Physical Decline ◽  
Health Team ◽  
The Family

In Palliative Care, the unit of care is the patient and their family. Although members of the health care team often address the family caregiver’s opinions and concerns, the focus of care remains on the needs of the patient. The readiness and willingness of the family caregiver is often overlooked as they are expected to assume a complex caregiving role. When family caregivers are not intellectually or emotionally prepared or physically capable, the caregiver is at high risk for serious health issues and cognitive, emotional, and physical decline particularly as caregiving extends over time. Family caregivers are often a neglected and at-risk population. Illustrated through the use of a case study, this article addresses the complex role of family caregivers, as both health team members and second-order patients. It emphasizes the importance of family assessment and interventions to balance the burdens and benefits of family caregiving and protect caregivers’ health and well-being.

Elder Care as Family Labor

1991 ◽  
Vol 12 (2) ◽  
pp. 229-247 ◽  
Author(s):  
JEFFREY W. DWYER ◽  
KAREN SECCOMBE
Keyword(s):  
United States ◽  
Gender Differences ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Representative Sample ◽  
Elder Care ◽  
The United States ◽  
Family Labor ◽  
Frail Elders ◽  
Nationally Representative

This research indicates that gender differences in the performance of specific caregiving tasks and the amount of time spent providing care by family caregivers of frail elders should be considered in the context of family position-related norms and expectations. Using a nationally representative sample of noninstitutionalized impaired elderly people in the United States ( N = 813), the results show that husbands (when compared to wives) and daughters (when compared to sons) report spending more time and performing a greater number of caregiving tasks. The authors suggest that family position may confound interpretations regarding the association between gender and family caregiving.

scholarly journals The Impact of Major Events on the Lives of Family Caregivers of Children with Disabilities

1996 ◽  
Vol 77 (8) ◽  
pp. 502-514 ◽  
Author(s):  
Thomas P. McDonald ◽  
Graciela Couchonnal ◽  
Theresa Early
Keyword(s):  
Family Caregivers ◽  
Emotional Disorders ◽  
Family Caregiving ◽  
Well Being ◽  
Stressful Events ◽  
School Activities ◽  
Children's Behavior ◽  
The Family ◽  
Families With Children ◽  
The Impact

The authors examine the family caregiving experience among families with children with severe emotional disabilities from a perspective that recognizes the importance of the family's views and feelings. This viewpoint anticipates the occurrence of both positive and negative experiences and seeks to illuminate the caregiving process from the perspective of outcomes achieved. Family caregivers of 164 children with serious emotional disorders were asked to identify major pleasant and stressful events that had occurred in the past 12 months. The most frequently described pleasant events related to children's behavior, school activities, and interactions with professionals and friends. Frequently described problem areas included children's behavior, professionals/services, and difficulty with school. The impact of these pleasant and stressful events was examined with respect to caregivers' perceived well-being: (1) overall stress, (2) the ability to fulfill responsibilities, and (3) pleasure experienced in various life domains. Implications of the study findings for supporting family caregivers in their roles are discussed.

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