scholarly journals A Review of the Complex Role of Family Caregivers as Health Team Members and Second-Order Patients

Healthcare ◽  
2019 ◽  
Vol 7 (2) ◽  
pp. 63 ◽  
Author(s):  
Sherman
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Well Being ◽  
Health Care Team ◽  
Second Order ◽  
Team Members ◽  
Physical Decline ◽  
Health Team ◽  
The Family

In Palliative Care, the unit of care is the patient and their family. Although members of the health care team often address the family caregiver’s opinions and concerns, the focus of care remains on the needs of the patient. The readiness and willingness of the family caregiver is often overlooked as they are expected to assume a complex caregiving role. When family caregivers are not intellectually or emotionally prepared or physically capable, the caregiver is at high risk for serious health issues and cognitive, emotional, and physical decline particularly as caregiving extends over time. Family caregivers are often a neglected and at-risk population. Illustrated through the use of a case study, this article addresses the complex role of family caregivers, as both health team members and second-order patients. It emphasizes the importance of family assessment and interventions to balance the burdens and benefits of family caregiving and protect caregivers’ health and well-being.

scholarly journals The Impact of Major Events on the Lives of Family Caregivers of Children with Disabilities

1996 ◽  
Vol 77 (8) ◽  
pp. 502-514 ◽  
Author(s):  
Thomas P. McDonald ◽  
Graciela Couchonnal ◽  
Theresa Early
Keyword(s):  
Family Caregivers ◽  
Emotional Disorders ◽  
Family Caregiving ◽  
Well Being ◽  
Stressful Events ◽  
School Activities ◽  
Children's Behavior ◽  
The Family ◽  
Families With Children ◽  
The Impact

The authors examine the family caregiving experience among families with children with severe emotional disabilities from a perspective that recognizes the importance of the family's views and feelings. This viewpoint anticipates the occurrence of both positive and negative experiences and seeks to illuminate the caregiving process from the perspective of outcomes achieved. Family caregivers of 164 children with serious emotional disorders were asked to identify major pleasant and stressful events that had occurred in the past 12 months. The most frequently described pleasant events related to children's behavior, school activities, and interactions with professionals and friends. Frequently described problem areas included children's behavior, professionals/services, and difficulty with school. The impact of these pleasant and stressful events was examined with respect to caregivers' perceived well-being: (1) overall stress, (2) the ability to fulfill responsibilities, and (3) pleasure experienced in various life domains. Implications of the study findings for supporting family caregivers in their roles are discussed.

scholarly journals Caregiving for Persons Living With Dementia in the New Normal: Family Caregiver’s Perspective

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1036-1036
Author(s):  
Priyanka Shrestha ◽  
Donna Fick ◽  
Marie Boltz ◽  
Susan Loeb ◽  
Andrew High
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Qualitative Methodology ◽  
Well Being ◽  
Intensive Care Admission ◽  
Increased Risk ◽  
The Family ◽  
Poor Outcomes ◽  
Person With Dementia ◽  
The Impact

Abstract Persons living with dementia (PLWD) are at increased risk for COVID-19 and associated poor outcomes, including: incident delirium, hospitalization, severe symptoms, intensive care admission, and even death. PLWD are likely to rely on family caregivers to maintain their health and well-being in the community. Under normal circumstances, caregiving can be stressful and complex, and the COVID-19 pandemic has the potential to change and exacerbate the stresses of family caregiving. As a part of a larger study using descriptive qualitative methodology to explore the family caregiver understanding and experiences related to delirium in caring for a person with dementia, 14 participants (age x̄ =67, SD= 13.8) were asked about the impact of COVID-19 on their caregiving for PLWD. Thematic analysis of the transcribed interviews using Dedoose generated four overarching themes associated with the family caregiver’s perspective of changes in caregiving during the COVID-19 pandemic: 1) Cautious of COVID-19 exposure, 2) We can’t go in, 3) Feeling of isolation for both the PLWD and caregiver, and 4) Six-feet distance. The current study highlights the importance of understanding the needs of PLWD during a pandemic based upon the perspective of their family caregivers and will inform the development of ways to safely incorporate family caregivers in the interdisciplinary care team. Caregivers are integral to the care of PLWD across settings of care and should be partners even during a pandemic. Solutions for care include integrating technology for individualized approaches. Finally, future areas for research will be discussed.

EVERYDAY PRACTICE OF MOTHERS IN A PROVINCIAL SOVIET CITY IN THE 1950–60S

2020 ◽  
pp. 42-51
Author(s):  
Irina V. Bogdashina
Keyword(s):  
Well Being ◽  
Reproductive Behaviour ◽  
Working Mother ◽  
Material Wealth ◽  
The Real ◽  
Raising Children ◽  
Diffi Cult ◽  
The Family ◽  
The Right

The article reveals the measures undertaken by the Soviet state during the “thaw” in the fi eld of reproductive behaviour, the protection of motherhood and childhood. Compilations, manuals and magazines intended for women were the most important regulators of behaviour, determining acceptable norms and rules. Materials from sources of personal origin and oral history make it possible to clearly demonstrate the real feelings of women. The study of women’s everyday and daily life in the aspect related to pregnancy planning, bearing and raising children will allow us to compare the real situation and the course of implementation of tasks in the fi eld of maternal and child health. The demographic surge in the conditions of the economy reviving after the war, the lack of preschool institutions, as well as the low material wealth of most families, forced women to adapt to the situation. In the conditions of combining the roles of mother, wife and female worker, women entrusted themselves with almost overwork, which affected the health and well-being of the family. The procedure for legalising abortion gave women not only the right to decide the issue of motherhood themselves, but also made open the already necessary, but harmful to health, habitual way of birth control. Maternal care in diffi cult material and housing conditions became the concern of women and the older generation, who helped young women to combine the role of a working mother, which the country’s leadership confi dently assigned to women.

Social support and well-being in dementia family caregivers: The mediating role of self-efficacy

2009 ◽  
Vol 13 (5) ◽  
pp. 761-768 ◽  
Author(s):  
Alma Au ◽  
Man-Kin Lai ◽  
Kam-Mei Lau ◽  
Pey-Chyou Pan ◽  
Linda Lam ◽  
...  
Keyword(s):  
Social Support ◽  
Family Caregivers ◽  
Self Efficacy ◽  
Well Being ◽  
Mediating Role

Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Theory Approach ◽  
Face To Face ◽  
The Family ◽  
The Impact

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

MOTIVASI BELAJAR DITINJAU DARI DUKUNGAN KELUARGA DAN SCHOOL WELL-BEING

2021 ◽  
Vol 6 (2) ◽  
pp. 54-61
Author(s):  
Nur Ainy Sadijah
Keyword(s):  
Regression Analysis ◽  
Family Support ◽  
Sampling Method ◽  
Well Being ◽  
Learning Motivation ◽  
High Learning ◽  
Probability Sampling ◽  
Sense Of Security ◽  
The Family

The role of the family has the influence to overcome all obstacles both from internal and external students in realizing all the ideals and hopes. Family support can increase learning motivation, sense of security and attention of students who are still in school. The form of family expression through empathy and acceptance helps students with enthusiasm to manifest individual enthusiasm in the learning process. High learning motivation is also caused by school well-being which is used by school institutions to understand all the basic needs for students and hope that individuals feel satisfaction, well-being and comfort in school with all the processes so as to reduce low learning motivation, this makes students feel prosperous, happy, happy in studying at school. This study aims to determine the effect of family support and school well-being on learning motivation in students of SMP Negeri 1 Telukjambe Timur Karawang. The number of samples used was 205 students of SMP Negeri 1 grades 7 and 8 East Telukjambe using probability sampling method. Based on the multiple regression analysis test that there is an influence between family support and school well-being on the learning motivation of students of SMP Negeri 1 Telukjambe Timur Karawang grades 7 and 8 with a Sign value. 0.000 <0.005, which means that family support and school well-being affect students' learning motivation by 23.1%. Keywords: Learning motivation, family support, school well-being Peran keluarga memiliki pengaruh untuk mengatasi segala rintangan baik dari internal maupun ekternal siswa dalam mewujudkan semua cita-cita dan harapan. Dukungan keluarga mampu meningkatkan motivasi belajar, rasa aman dan perhatian siswa yang masih duduk dibangku sekolah. Bentuk ungkapan keluarga melalui empati dan penerimaan membantu siswa dengan semangat untuk mewujudkan semangat individu dalam proses belajarnya. Motivasi belajar yang tinggi juga di sebabkan oleh school well-being yang, dijadikan oleh institusi sekolah untuk memahami segala kebutuhan mendasar bagi siswa dan berharap individu merasakan kepuasan, kesejahteraan dan kenyamanan di sekolah dengan segala prosesnya sehingga mengurangi rendahnya motivasi belajar hal ini membuat siswa merasa sejahtera, senang, bahagia di dalam menuntut ilmu di sekolah. penelitian ini bertujuan untuk mengetahui pengaruh dukungan keluarga dan school well-being terhadap motivasi belajar pada siswa SMP Negeri 1 Telukjambe Timur Karawang. Jumlah sampel yang digunakan 205 siswa SMP Negeri 1 kelas 7 dan 8 Telukjambe Timur dengan menggunakan metode probability sampling. Berdasarkan uji analisis regresi berganda bahwa terdapat pengaruh antara dukungan keluarga dan school well-being terhadap motivasi belajar siswa SMP Negeri 1 Telukjambe Timur Karawang kelas 7 dan 8 dengan nilai Sign. 0,000 < 0,005 yang artinya dukungan keluarga dan school well-being mempengaruhi motivasi belajar siswa sebesar 23.1%. Kata Kunci: Motivasi belajar, dukungan keluarga, school well-being

The Moderation Role of Being Valued by Teachers Over the Association Between School Children Motivation and Need for Competition

SAGE Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. 215824402110441
Author(s):  
Cristina Maria Bostan ◽  
Tudor Stanciu ◽  
Răzvan-Lucian Andronic
Keyword(s):  
School Children ◽  
Social Constructivism ◽  
Social Economic ◽  
Economic Status ◽  
Well Being ◽  
Social Economic Status ◽  
Motivation For Learning ◽  
The Social ◽  
The Family

Concordant with classical theoretical guidelines (i.e., social facilitation, social constructivism theory, and the Pygmalion effect) we tested the need for competition and perception of being valued by teachers to be better motivated for learning in school. We extend knowledge by testing these associations mediated by the social economic status given by the well-being of the family (i.e., controlling for gender and socio-economic status). A total of 214 Romanian students (45.3% boys) with ages between 13 and 17 years were administered the PEER questionnaire (i.e., perception of being valued by teachers, school-children motivation, and the need for competition). Results show a positive relation between the need for competition and motivation for learning. We also found positive relations between the perception of being valued by the teacher and motivation for learning and the need for competition. We conclude that motivation is higher when the need for competition is higher and the perception of being valued by teachers is higher.

Personal and organizational resources of family caregivers ' well-being

2014 ◽  
Vol 43 (3) ◽  
pp. 401-418 ◽  
Author(s):  
Susanna Maria Krisor ◽  
Jens Rowold
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Self Efficacy ◽  
Well Being ◽  
Work And Family ◽  
Organizational Resources ◽  
Content Type ◽  
Important Resource ◽  
Health Related ◽  
Work Family

Purpose – Previous research on the work-family nexus has tended to concentrate on childcare responsibilities. This neglects consideration of an increasing population of employees who care for dependents such as elders, impaired partners or disabled children. Therefore, the aim of this study is to investigate organizational and personal resources as antecedents of work-family conflict (WFC) and irritation in a sample of employed family caregivers. Design/methodology/approach – Data were collected from 508 employees within one organization who had informal family caregiving responsibilities. Findings – The results indicate that a supportive work-family culture was an important resource for reducing WFC and health-related self-efficacy reduced irritation. In sum, when a company fosters a family-friendly culture that includes working in a constructive and understanding manner with employees who have informal family caregiver responsibilities, it becomes easier for the employees to integrate the demands of work and family demands. Moreover, health-related self-efficacy is an important resource that can improve stress and future researchers should give it greater consideration. Originality/value – This study contributes to existing literature by the identification of personal and organizational resources of informal family caregivers with the aim to reduce their stress experiences.

The experiences of grandparents raising grandchildren in Indonesia

2019 ◽  
Vol 23 (1) ◽  
pp. 17-26
Author(s):  
Rista Fauziningtyas ◽  
Retno Indarwati ◽  
Delisa Alfriani ◽  
Joni Haryanto ◽  
Elida Ulfiana ◽  
...  
Keyword(s):  
Well Being ◽  
Grandparents Raising Grandchildren ◽  
Content Type ◽  
Cultural Aspects ◽  
Cultural Aspect ◽  
Supportive Role ◽  
The Family ◽  
Rest Time ◽  
Depth Interviews

PurposeThe raising of grandchildren by grandparents is a global phenomenon, and it is common in Indonesia. This is because parents are often unable or unwilling to raise their own children. However, the debate around “grandparenting” is still limited in Indonesia. The purpose of this paper is to gain a better understanding of the experience and views of grandparents on “grandparenting.”Design/methodology/approachThe methodology employed was qualitative and informed by phenomenology. The authors conducted in-depth interviews with 13 grandparents who were raising their grandchildren who were under five years old. The data were analyzed using thematic content analysis.Findings5 main themes and 13 subthemes emerged from the analysis of the data. The themes were responses, strategies for overcoming negative responses, the grandparents’ role, the reason for raising grandchildren, and the cultural aspect of “grandparenting” in Java. All of the grandparents enjoyed their roles as grandparents. They felt that they helped fulfill their grandchildren’s physical and educational needs.Social implicationsThe experience of raising a grandchild can be both positive and negative, depending on the cultural aspects in the Java and the family as a whole system. Grandparents require healthcare and informal support to maintain their well-being.Originality/valueThis paper provides new insights into “grandparenting” closely related to social and cultural aspect within the community. Grandparents enjoy being a part of the Javanese tradition. The supportive role of grandparents in Indonesia is important. However, older adults need to balance the role of “grandparenting” and rest time so that they remain healthy and happy.

scholarly journals Familjen i välfärdspolitiken

2020 ◽  
Vol 26 (3-4) ◽  
Author(s):  
Maria Stanfors
Keyword(s):  
Gender Equality ◽  
Time Allocation ◽  
Family Policy ◽  
Welfare Policy ◽  
Well Being ◽  
Unpaid Work ◽  
Family Status ◽  
Long Run ◽  
The Family

The role of the family in Swedish welfare policyIn the present article, I discuss the role of the family in Swedish welfare policy, from both theoretical and empirical perspectives. I analyse men’s and women’s time use and focus on the organization of paid and unpaid work. I describe how time allocation varies with gender, family status, and life cycle. The analysis shows that the family plays a more important role in practice than in theory, mainly through the fact that women perform more unpaid work (housework and caregiving) than men, which affects both their income and their well-being negatively. I argue that gender equality must be given a more prominent position in Swedish welfare policy. For example, family policy must be reformed, with gender equality on the labour market and in the home as an explicit goal. The present situation for working parents is different from that of previous decades when Swedish family policy was formulated. Reforms are thus necessary for safeguarding welfare and population well-being in the short and long run.

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