scholarly journals Dementia Careblazers YouTube: Public Education Tool for Sharing Evidence-Based Dementia Care Information

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 506-506
Author(s):  
Natali Edmonds
Keyword(s):  
Public Education ◽  
Family Caregivers ◽  
Geographic Location ◽  
Dementia Care ◽  
Evidence Based ◽  
Time Zone ◽  
Face To Face ◽  
Care Information ◽  
Youtube Videos ◽  
Education Tool

Abstract Dementia Careblazers, created and hosted by Dr. Natali Edmonds, board certified Geropsychologist, offers weekly YouTube videos to family caregivers of people living with dementia. These free brief videos provide actionable, evidence-based information and resources focused on dementia caregiving. This virtual modality is particularly relevant for caregivers of people living with dementia given the difficulty family caregivers have in finding supervision and care for the person with dementia in their absence and considering recent health risks through face to face interactions. Furthermore, the free archive of Dementia Careblazers videos allows for access to evidence-based dementia care information at any time, regardless of geographic location or time zone. During this session, Dr. Edmonds will discuss the role YouTube videos play in public education and share tips for starting an evidence-based YouTube channel.

scholarly journals Podcasts and YouTube Videos: Innovative Tools for Disseminating Mental Health and Dementia Education to the Public

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 506-506
Author(s):  
Regina Koepp ◽  
Natali Edmonds
Keyword(s):  
Mental Health ◽  
Older Adults ◽  
Public Education ◽  
Evidence Based ◽  
Brain Health ◽  
Face To Face ◽  
The Public ◽  
Youtube Videos ◽  
Access Information ◽  
Dementia Education

Abstract This symposium will discuss two examples of innovative public education tools used to disseminate evidence-based information to the general public about mental health and aging and Alzheimer's Disease and related dementias. The first is the Psychology of Aging Podcast hosted by Regina Koepp, Clinical Geropsychologist. Since it’s launch in April 2020, there have been 50 weekly episodes and more than total 25,000 downloads. The goal of the Psychology of Aging podcast is to facilitate access to information and education about mental health and brain health among older adults with the hope of de-stigmatizing mental health care for older adults, reducing ageism, and promoting access to mental health and dementia care for older adults and their families. The second is Dementia Careblazers, created and hosted by Dr. Natali Edmonds, board certified Geropsychologist. The goal of Dementia Careblazers videos is to offer easy to access information to family members who care for someone with dementia. In her weekly videos, Dr. Edmonds provides actionable, evidence-based information and resources focused on dementia caregiving in brief videos. Since it’s launch on YouTube November 2016, Dementia Careblazers, has 65,000 subscribers, has posted 231 videos, and has had more than 4 million views nationally and internationally. Drs. Koepp and Edmonds will discuss the role podcasts and YouTube videos play in public education and share tips for professionals wanting to start an evidence-based program of their own. This virtual modality may be of increased interest considering recent health risks through face to face interactions and advancements in technology.

scholarly journals Telehealth as a medical education tool during the COVID-19 pandemic: experience report

2021 ◽  
Vol 45 (3) ◽  
Author(s):  
Matheus Augusto Obici Massucato ◽  
Ana Luísa Green Ribeiro ◽  
Juliana Dias Reis Pessalacia ◽  
Vinicius de Jesus Rodrigues Neves ◽  
Vânia Paula Stolte-Rodrigues
Keyword(s):  
Health Care ◽  
Medical Education ◽  
Clinical Reasoning ◽  
Medical Patient ◽  
Experience Report ◽  
Evidence Based ◽  
Face To Face ◽  
Education Experience ◽  
Education Tool ◽  
Teaching Learning

Abstract: Introduction: The Covid-19 pandemic interrupted and challenged the traditional structure of medical education, based on face-to-face teaching, and, as a measure of support for the efforts of government agencies to reduce the risk of spreading the disease, distance became necessary. medical/patient care and the increase in the supply of telehealth services by health systems. In Brazil, the telehealth model seeks to improve the quality of care in primary health care (PHC), integrating education and service through tele-education and tele-assistance activities, such as teleconsulting, the Second Formative Opinion (SOF), tele-education and telediagnosis. Thus, this article reports the experience of medical students in telehealth actions during the Covid-19 pandemic in Brazil, seeking to clarify the contributions and limitations of this experience in the teaching-learning process in the context of medical education. Experience report: Participation in the project allowed the experience of various telehealth activities under the supervision and guidance of professors in the health area, in addition to the production of informative and educational materials. The proposed activities allowed for the improvement of clinical reasoning through evidence-based medicine (EBM), especially in helping teleconsultations and frequently asked questions. Discussion: The use of technologies became indispensable during the pandemic, and, within this scenario, a telehealth project proved to be an important and effective strategy for continuing education among professionals and health education for the community, avoiding crowding and preventing the spread of the virus. In addition, remote actions, such as teleconsultations, resolution of frequently asked questions and tele-education, proved to be an important strategy for accessing health care not only in times of pandemic. Conclusion: Our experience made it possible to foster critical thinking and disseminate content in a safe, technical and evidence-based way. The exercise of clinical reasoning led us to an experience of great value and to believe that the inclusion of the practice of telehealth can bring important gains to the curriculum of Medicine courses.

scholarly journals Psychology of Aging Podcast: Public Education Tool for Sharing Evidence-Based Mental Health and Aging Information

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 506-506
Author(s):  
Regina Koepp
Keyword(s):  
Mental Health ◽  
Older Adults ◽  
Health Care ◽  
Health Disparities ◽  
Public Education ◽  
Evidence Based ◽  
Expert Interviews ◽  
Access To Information ◽  
Brain Health ◽  
Education Tool

Abstract Psychology of Aging Podcast, created and hosted by Dr. Regina Koepp, Clinical Geropsychologist, is the first podcast of its kind devoted solely to mental health and aging. The goal of the Psychology of Aging podcast is to facilitate access to information and education about mental health and brain health among older adults with the hope of de-stigmatizing mental health care for older adults, reducing ageism, highlighting diversity, and promoting access to mental health and dementia care. The format includes a combination of expert interviews and “solo-casts”. Topics range from depression and suicide prevention to Alzheimer’s Disease and related dementias to the unique needs of LGTBQ older adults and caregivers to health disparities experienced by African American and Latin-X communities related to dementia and the COVID-19 pandemic. During this session, Dr. Koepp will discuss the role podcasts play in public education and share tips for starting an evidence-based podcast.

scholarly journals INTERVENTION EFFECTS ON TARGET PROBLEMS EXPRESSED BY CAREGIVERS OF HOME-DWELLING PERSONS WITH DEMENTIA

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S550-S551
Author(s):  
Richard H Fortinsky ◽  
Laura N Gitlin ◽  
catherine V Piersol
Keyword(s):  
Family Caregivers ◽  
Behavioral Problems ◽  
Dementia Care ◽  
Daily Activities ◽  
Behavioral Symptoms ◽  
Evidence Based ◽  
Intervention Effects ◽  
Activity Engagement ◽  
Translational Study ◽  
Home Intervention

Abstract Care of Persons with Dementia in their Environments (COPE) is an evidence-based in-home intervention designed to optimize function and activity engagement in persons with dementia (PWD), and teach family caregivers (CG) how to manage dementia care-related problems. In this presentation, we report problems expressed by CGs, and intervention effects on these problems and CG outcomes, in the COPE CT translational study. CGs randomized to COPE who completed the assessment phase (N=134) expressed a total of 409 target problems, grouped as managing PWD behavioral problems (32%), caring for themselves (30%), managing PWD daily activities (24%) and engaging PWD in meaningful activities (14%). Most problems were reduced (75%) or eliminated (21%) among CG completing the intervention. In preliminary outcome analyses, compared to CG not receiving COPE, CG receiving COPE were more likely to report improved ability to manage dementia-related cognitive and behavioral symptoms (p<0.001). Implications for scaling COPE will be discussed.

Application of the Non-adoption, Abandonment, Scale-up, Spread and, Sustainability (NASSS) Framework to evaluate the role of technology in the Pathways to Comorbidity Care (PCC) implementation project to improve management of comorbid substance use and mental disorders

2020 ◽  
Author(s):  
MariaGabriela Uribe Guajardo ◽  
Andrew James Baillie ◽  
Eva Louie ◽  
Vicki Giannopoulos ◽  
Katie Wood ◽  
...  
Keyword(s):  
Substance Use ◽  
Clinical Supervision ◽  
Mental Health Problems ◽  
Scale Up ◽  
Structured Interview ◽  
Barriers And Facilitators ◽  
Self Report ◽  
Evidence Based ◽  
Face To Face ◽  
Drug And Alcohol

Abstract (250 words)In substance use treatment settings, there is a high prevalence of comorbid mental health problems. Yet an integrated approach for managing comorbidity, implementation of evidence-based intervention in drug and alcohol settings remains problematic. Technology can help the adoption of evidence-based practice and successfully implement effective treatment health care pathways. This study sought to examine aspects of electronic resources utilisation (barriers and facilitators) by clinicians participating in the PCC training. MethodA self-report questionnaire and a semi-structured interview was designed to measure overall satisfaction with the PCC portal and e-resources available throughout the 9-month intervention for participating clinicians. An adapted version of the ‘Non-adoption, Abandonment, Scale-up, Spread and, Sustainability’ (NASSS) framework was used to facilitate discussion in regards to the study findings. ResultsA total of 20 clinicians from drug and alcohol services responded to all the measures. Facilitators of portal use included: i. clinician acceptance of the PCC portal; ii. guidance from the clinical supervisor or clinical champion that encouraged the use of e-resources. Some of the barriers included: i. complexity of the illness (condition), ii. clinicians’ preference (adopter system) for face-to-face resources and training modes (e.g. clinical supervision, clinical champion workshops), and iii. lack of face-to-face training on how to use the portal (technology and organisation).ConclusionBased on the NASSS framework, we were able to identify several barriers and facilitators including such as the complexity of the illness, lack of face-to-face training and clinician preference for training mediums. Recommendations include ongoing consultation of clinicians to assist in the development of tailored e-health resources and offering in-house training on how to operate and effectively utilise these resources.

Evidence-based eHealth interventions for caregivers of people with dementia (Myinlife and Partner in Balance): Evaluation of implementations in municipality contexts (Preprint)

2020 ◽  
Author(s):  
Hannah Liane Christie ◽  
Lizzy Mitzy Maria Boots ◽  
Huibert Johannes Tange ◽  
Frans Rochus Josef Verhey ◽  
Marjolein Elizabeth de Vugt
Keyword(s):  
Self Efficacy ◽  
Measurement Instrument ◽  
Implementation Process ◽  
Successful Implementation ◽  
Evidence Based ◽  
Multiple Sources ◽  
Target Groups ◽  
Face To Face ◽  
People With Dementia ◽  
Implementation Context

BACKGROUND Very few evidence-based eHealth interventions for caregivers of people with dementia are implemented into practice. Municipalities are one promising context to implement these interventions, due to their available policy and innovation incentives regarding (dementia) caregiving and prevention. In this study, two evidence-based eHealth interventions for caregivers of people with dementia (Partner in Balance and Myinlife) were implemented in eight municipalities in the Euregion Meuse-Rhine. OBJECTIVE This study’s objectives were to (1.) evaluate this implementation and (2.) investigate determinants of successful implementation. METHODS This study collected eHealth usage data, Partner in Balance coach evaluation questionnaires, and information on implementation determinants. This was done by conducting interviews with the municipality officials, based on the Measurement Instrument for Determinants of Implementation (MIDI). This data from multiple sources and perspectives was integrated and analysed to form a total picture of the municipality implementation process. RESULTS The municipality implementation of Partner in Balance and Myinlife showed varying levels of success. In the end, three municipalities planned to continue the implementation of Partner in Balance, while none planned to continue the implementation of Myinlife. The two Partner in Balance municipalities that did not consider the implementation to be successful, viewed the implementation as an external project. For Myinlife, it was clear that more face-to-face contact was needed to engage the implementing municipality and the target groups. Successful implementations were linked to implementer self-efficacy CONCLUSIONS The experiences of implementing these interventions suggested that this implementation context was feasible regarding the required budget and infrastructure. The need to foster sense of ownership and self-efficacy in implementers will be integrated into future implementation protocols, as part of standard implementation materials for municipalities and organisations implementing Myinlife and Partner in Balance.

scholarly journals Facing the Journey Together: Using Digital Media to Support Dementia Care Among Asian Americans

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 542-542
Author(s):  
Angelica Yeh ◽  
Marie Mayen-Cho
Keyword(s):  
Los Angeles ◽  
Digital Media ◽  
The United States ◽  
Dementia Care ◽  
Pacific Islanders ◽  
Japanese American ◽  
Culturally Appropriate ◽  
Care Partners ◽  
Care Information ◽  
Depth Interviews

Abstract Asians and Pacific Islanders (APIs) in the United States have limited access to dementia care information that is linguistically and culturally appropriate. Alzheimer’s Los Angeles created “Faces of Caregiving”, a video project available with English/Japanese subtitles, documenting in-depth interviews with 7 Japanese/Japanese-American familial care partners of individuals living with dementia. It touched on the personal yet universal aspects of each journey embedded in a particular family context. The 5 video profiles were subsequently shown at 3 community sites to attendees comprised of mostly older-adult APIs. Among 85 attendee responses, approximately 90% stated they were more likely to seek out information on and support for Alzheimer’s disease, felt more open to talking about the disease, and were more likely to advocate and raise awareness for the disease. This program could be replicated for other API communities, allowing individuals to learn more effectively from a peer-to-peer experience in a culturally familiar setting. Part of a symposium sponsored by the Aging Among Asians Interest Group.

scholarly journals Utilizing asynchronous email interviews for health research: overview of benefits and drawbacks

2021 ◽  
Vol 14 (1) ◽  
Author(s):  
Michelle Amri ◽  
Christina Angelakis ◽  
Dilani Logan
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Data Quality ◽  
Health Research ◽  
Geographic Location ◽  
Public Health Research ◽  
Data Accuracy ◽  
Global Public Health ◽  
Snowball Sampling ◽  
Face To Face

Abstract Objective Through collating observations from various studies and complementing these findings with one author’s study, a detailed overview of the benefits and drawbacks of asynchronous email interviewing is provided. Through this overview, it is evident there is great potential for asynchronous email interviews in the broad field of health, particularly for studies drawing on expertise from participants in academia or professional settings, those across varied geographical settings (i.e. potential for global public health research), and/or in circumstances when face-to-face interactions are not possible (e.g. COVID-19). Results Benefits of asynchronous email interviewing and additional considerations for researchers are discussed around: (i) access transcending geographic location and during restricted face-to-face communications; (ii) feasibility and cost; (iii) sampling and inclusion of diverse participants; (iv) facilitating snowball sampling and increased transparency; (v) data collection with working professionals; (vi) anonymity; (vii) verification of participants; (viii) data quality and enhanced data accuracy; and (ix) overcoming language barriers. Similarly, potential drawbacks of asynchronous email interviews are also discussed with suggested remedies, which centre around: (i) time; (ii) participant verification and confidentiality; (iii) technology and sampling concerns; (iv) data quality and availability; and (v) need for enhanced clarity and precision.

scholarly journals How Well Do Videos on YouTube Meet Information Needs of ADRD Family Caregivers? A Qualitative Analysis

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 273-274
Author(s):  
Shinyi Wu ◽  
Katherine Foster ◽  
Magaly Ramirez ◽  
Haomiao Jin ◽  
Elizabeth Joe
Keyword(s):  
Family Caregivers ◽  
Selection Criteria ◽  
Information Needs ◽  
Rating Scale ◽  
Healthcare Services ◽  
Community Resources ◽  
Healthcare Organizations ◽  
Term Care ◽  
Community Stakeholders ◽  
Youtube Videos

Abstract Family caregivers need access to information, education, and support for taking care of individuals with Alzheimer’s disease and other dementia (ADRD). As YouTube is increasingly being used for sharing health information, videos regarding the disease and caregiving are becoming an important source of information to support family ADRD caregivers. This study aimed to assess the types and quality of information available on YouTube videos related to ADRD caregiving. A framework categorizing information needs of family ADRD caregivers was developed through a qualitative study with caregivers (N=21) and with healthcare and community stakeholders (N=6). The framework was used to conduct content analysis of YouTube videos. Nineteen categories of information needs were identified, including information about ADRD, healthcare services and treatment, available community resources, caregiving skills, and short- and long-term care. YouTube videos that met the keywords, language, and view selection criteria were evaluated by two coders on a developed rating scale to measure their relevance and helpfulness. A neurologist verified the ratings in 10% of the coded videos for quality assurance. There were 48 English and 23 Spanish videos met the selection criteria. More English (89.6%) than Spanish (56.5%) videos provided tips on handling specific ADRD symptoms. The majority categories of information needs (15 of the 19) were absent in most videos (87.0%, 89.6%). Many of the most watched videos were not rated as helpful. Community-based providers and healthcare organizations are encouraged to make high quality needed information in commonly accessed videos sharing service to support ADRD family caregivers.

scholarly journals Facilitators and barriers to implement nurse-led interventions in long-term dementia care: a qualitative interview study with Swiss nursing experts and managers

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Julian Hirt ◽  
Melanie Karrer ◽  
Laura Adlbrecht ◽  
Susi Saxer ◽  
Adelheid Zeller
Keyword(s):  
Nursing Home ◽  
Nursing Homes ◽  
Public Perception ◽  
Dementia Care ◽  
Term Care ◽  
Face To Face ◽  
People With Dementia ◽  
Qualitative Interview Study ◽  
Facilitators And Barriers

Abstract Background To support the implementation of nurse-led interventions in long-term dementia care, in-depth knowledge of specific supporting factors and barriers is required. Conditions and structures of caring for people with dementia differ widely, depending on the country and the care context. Our study aimed to describe the experiences and opinions of nursing experts and managers with regard to facilitators and barriers to the implementation of nurse-led interventions in long-term dementia care. Methods We conducted a qualitative descriptive study using individual interviews based on qualitative vignettes as a useful stimulus to generate narrations allowing to study peoples’ perceptions and beliefs. The study took place in nursing homes in the German-speaking part of Switzerland and in the Principality of Liechtenstein using purposive sampling. We intended to conduct the interviews face-to-face in a quiet room according to the participant’s choice. However, due to the lockdown of nursing homes during the COVID-19 pandemic in spring 2020, we performed interviews face-to-face and by video. We analysed data thematically following Braun and Clarke to achieve a detailed, nuanced description. To verify our interpretation and to ensure congruence with participants’ perspectives, we conducted member checks. The Standards for Reporting Qualitative Research (SRQR) served to structure our manuscript. Results Six dyads of nursing home managers and nursing experts from six nursing homes took part in our study (n = 12). Our thematic analysis yielded seven themes reflecting facilitators and barriers to implementing nurse-led interventions in long-term dementia care: «A common attitude and cohesion within the organization», «Commitment on several levels», «A needs-oriented implementation», «The effect and the public perception of the intervention», «A structured and guided implementation process», «Supporting knowledge and competencies», as well as «Resources for implementing the intervention». Conclusions To support the implementation of nurse-led interventions in long-term dementia care, active commitment-building seems essential. It is necessary that the value of the intervention is perceptible.Commitment-building is the precondition to reach the persons involved, such as nursing home managers, nursing staff, residents and relatives. Furthermore, nurses should precisely inform about the intervention. It is necessary that the value of the intervention is perceptible. In addition, nurses should adjust the interventions to the situational needs of people with dementia, thus. Therefore, it is important to support dementia-specific competencies in long-term care. Findings indicate that the barrier is determined by the intervention and its implementation – and not by the behaviour of the person with dementia.

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