scholarly journals Adapting A Project-Based Aging Laboratory During a Pandemic

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 107-107
Author(s):  
Troy Andersen ◽  
Linda Edelman
Keyword(s):  
Lived Experience ◽  
Older Adult ◽  
Aging Process ◽  
Family Members ◽  
Student Evaluations ◽  
Degree Programs ◽  
Virtual Technology ◽  
Hospice Patients ◽  
Aging Well ◽  
Virtual Class

Abstract Aging Well in Utah is a competitive 2-semester project-based Honor’s College Praxis Laboratory for 9 students from different degree programs dedicated to deepening understanding of the aging process through a broad gerontological lens. This session will address how the course was adapted during the COVID-19 pandemic, including: 1) scheduling virtual class times with guest lecturers; 2) conducting older adult interviews via Zoom to provide students experience in communicating “what matters most”, one of the 4Ms of Age Friendly HealthCare; 3) adapting a student-designed medical narrative project highlighting stories of transition and healing through the dying process for previously unsheltered residents of a hospice program to focus on the lived experience of hospice patients during COVID-19; and 4) utilizing virtual technology to interview hospice patients, family members and hospice staff. In spite of challenges, student evaluations were above average and reported increased interest in incorporating age-friendly concepts into future careers.

scholarly journals Long-Term Effects of Abuse in Later Life Perpetrated by Family Members

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 444-445
Author(s):  
Naomi Meinertz ◽  
Pi-Ju Liu ◽  
Ron Acierno
Keyword(s):  
Social Support ◽  
Depressive Symptoms ◽  
Family Member ◽  
Older Adult ◽  
Family Members ◽  
Later Life ◽  
Adult Health ◽  
Long Term Effects ◽  
Long Term Impact

Abstract Abuse in later life could potentially lead to lower levels of social support, especially when perpetrated by family members who are charged with protecting the older adult in their care. Using both waves of the National Elder Mistreatment longitudinal data (wave one collected in 2008 and wave two in 2015; N=774), long-term effects of abuse (i.e., physical, emotional, sexual, and financial) on levels of social support, physical health, and clinical depressive symptoms for respondents at or above the age of 60 years were analyzed. A multivariate analysis of variance showed that respondents abused at wave one (n=261) by a family member (B=-0.55, p≤0.001), a spouse or ex-partner (B=-0.349, p=0.02), or a non-relative or stranger (B=-0.301, p=0.026) had lower levels of social support eight years later at wave two. Those abused by a family member at wave one also experienced higher levels of depressive symptoms at wave two (B=-0.187, p=0.01). Perpetrator type did not predict general health at wave two. These results emphasize the long-term impact of abuse on the lives of older adults and highlight the importance trusted relationships, such as with family members, have on older adult health and wellbeing.

Trading Freedoms for Protection: Gender and Localised Protection in Libya

2021 ◽  
pp. 1-23
Author(s):  
Outi Donovan
Keyword(s):  
Lived Experience ◽  
Family Members ◽  
Local Ownership ◽  
Post Intervention ◽  
Governance Capacity

Abstract Much has been written on the 2011 intervention in Libya and its implications to the R2P principle, but we know less about the lived experience of protection in a context where the post-intervention responsibility for protecting civilians was quickly transferred to the interim authorities who had limited governance capacity. This has resulted in ‘localised protection’ where militias, tribal elders, and family members constitute the main actors providing protection to their respective communities. Although this is in line with the growing emphasis on local ownership underwriting UN and donor discourse, a troubling upshot of the localised protection is that it often disempowers, and at times subjects the protected to further insecurity and violence. The aim of this analysis is to explore this dynamic of protection and insecurity. I draw on feminist theorising of the masculine protection logic and argue that civilians in Libya negotiate multiple, gendered protection bargains that often produce perverse outcomes, by subjecting the ‘protected’ to renewed or increased insecurities, rather than reducing them.

Older Parents’ and Middle-Aged Children’s Communication as Predictors of Children’s Successful Aging

2018 ◽  
Vol 38 (3) ◽  
pp. 305-328 ◽  
Author(s):  
Quinten S. Bernhold
Keyword(s):  
Path Analysis ◽  
Successful Aging ◽  
Aging Process ◽  
Family Members ◽  
Middle Aged ◽  
Older Parents ◽  
Subjective Perceptions ◽  
Age Related ◽  
Language And Communication

The communicative ecology model of successful aging (CEMSA) examines how people’s language and communication surrounding the aging process (e.g., making age-related excuses) predicts successful aging. Using the CEMSA, this study examined how middle-aged U.S. American children’s and their parents’ age-related communication predicts children’s subjective perceptions of their own successful aging, via children’s aging efficacy. Three communication profiles emerged for children and their parents, namely engaged, bantering, and disengaged agers. Path analysis revealed that parents’ age-related communication predicted children’s successful aging, via children’s aging efficacy. Relative to children with disengaged parents, children with bantering parents were more likely to be efficacious with respect to their aging, which in turn positively predicted successful aging. The language and communication people observe from older family members may be consequential in shaping their aging trajectories for the better or worse.

Specialist Cognitive Behavioral Therapist in NEAD, 6 years’ experience, UK

2020 ◽  
pp. 264-268
Author(s):  
Markus Reuber ◽  
Gregg H. Rawlings ◽  
Steven C. Schachter
Keyword(s):  
Lived Experience ◽  
Family Members ◽  
Cognitive Behavioral ◽  
Growing Up ◽  
Mind And Body ◽  
Epileptic Attack ◽  
The Mind ◽  
Mind And Body Connection

This chapter describes the experience of a specialist cognitive behavioral therapist in Non-Epileptic Attack Disorder (NEAD). Offering therapy for people with NEAD can involve frustrations, difficulties, concerns, and, without a doubt, imposter syndrome. Nevertheless, knowing someone personally growing up with NEAD definitely inspired the therapist to work in this field. The therapist also had an understanding of what NEAD was as a layperson before the therapist became a professional. Moreover, the therapist had lived experience of how this condition affects the person and how it affects family members and friends, relationships, and careers. It creates worry and uncertainty in everyone around, in terms of what the problem is and how to help. Fortunately, the therapist learned quickly about the mind and body connection and how to explain this to patients, and it started to click with people and improve helpful engagement. The more the therapist became experienced, the more the therapist understood, and the less people had episodes in their assessments.

Mapping the experiences and needs of deep brain stimulation for people with Parkinson’s disease and their family members

2019 ◽  
Vol 20 (3) ◽  
pp. 211-225 ◽  
Author(s):  
Jacki Liddle ◽  
Gregory Beazley ◽  
Louise Gustafsson ◽  
Peter Silburn
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Deep Brain Stimulation ◽  
Lived Experience ◽  
Brain Stimulation ◽  
Family Members ◽  
Qualitative Description ◽  
Structured Interviews ◽  
Practical Support ◽  
Deep Brain

AbstractBackgroundDeep brain stimulation (DBS) is an effective treatment for the motor symptoms of Parkinson’s disease (PD). The lived experience of people with PD suggests a process of adjustment follows. This study aimed to explore the adjustment and associated education and support needs of people with PD undergoing DBS and their family members across the continuum of the DBS experience.MethodA structured qualitative description study including semi-structured interviews with people with PD (n = 14), family members (n = 10) and clinicians (n = 11) was conducted to explore lived experiences, needs, perspectives and clinical considerations. Inductive analysis indicated common temporal stages related to undergoing DBS, and the related experiences and needs were mapped.FindingsFour stages, each with unique needs, emerged: Considering DBS involved needs for peer-based education and realistic, meaningful goal setting; Surgery and Support shifted to clinical support related to the surgery and support for the person and their family around immediate changes experienced; Seeking Stability focused on timely clinical and practical support for the person and family around new changes and challenges to symptoms, behaviours and roles; and Next Steps involved direction and support for reengagement in the self-management of the condition, and current and future changes related to PD.All participants with PD and their family members in this study indicated that overall their experiences with DBS had led to positive changes in their symptoms and lives. Consideration of different needs at different times in the process may be applied within clinical practice to support adjustment.

A Transformative Impact of Theory in Clinical Practice: A Study in a Cardiogenetics Clinic

2020 ◽  
Vol 34 (2) ◽  
pp. 129-143
Author(s):  
Esma D. Paljevic
Keyword(s):  
New York ◽  
Lived Experience ◽  
Family Member ◽  
Phenomenological Study ◽  
Family Members ◽  
Phenomenological Approach ◽  
Genetic Profile ◽  
Delivery Of Care ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study

Background and PurposeThis qualitative phenomenological study explored the lived experiences of family members who have been referred to a cardiogenetics clinic following the loss of a family member to sudden cardiac death (SCD). These family members were evaluated in a Cardiogenetics Clinic in a Children's Hospital in the New York region, which utilizes an interprofessional approach to care.MethodsA qualitative phenomenological approach was used to explore the lived experience of family members that were referred following the SCD of a family member. The researcher used hermeneutic dialectics and interviewed family members that attended the Cardiogenetics Clinic.ResultsInsights gained through discussion were discussed in the following themes: stories of feelings being heard, stories of meaningfulness, and stories of mutual process. This led to the transformation of the typical linear clinic process to a transformative and dynamic model for integrated delivery of care.Implications for PracticeThis interprofessional model of care offers information regarding SCD, a genetic profile to determine risk for SCD, an integrative collaborative approach to care as well as nursing, medical interventions, psychological support, and counseling for families.

scholarly journals CONSTRUCTION AND VALIDATION OF AN EDUCATIONAL MANUAL FOR FAMILY CAREGIVERS OF OLDER ADULTS AFTER A STROKE

2021 ◽  
Vol 30 ◽  
Author(s):  
Ana Cláudia Fuhrmann ◽  
Carla Cristiane Becker Kottwitz Bierhals ◽  
Naiana Oliveira dos Santos ◽  
Diani de Oliveira Machado ◽  
Fernanda Peixoto Cordova ◽  
...  
Keyword(s):  
Older Adults ◽  
Focus Group ◽  
Family Caregivers ◽  
Older Adult ◽  
Family Members ◽  
Target Population ◽  
Methodological Study ◽  
Second Stage ◽  
Specialist Nurses ◽  
Face Validation

ABSTRACT Objective to construct and validate an educational manual for family caregivers of older adult dependent on care after a stroke. Method a methodological study with four stages: focus group with five family caregivers, to identify doubts and difficulties regarding home care for older adults with stroke; preparation of the manual by six researchers; content validation by 18 specialist nurses, and face validation by 12 family caregivers. For data analysis, thematic analysis was performed, the Content Validity Index (CVI) was calculated, and the consensus of the target population was verified. Results from the focus group, the experiences and challenges faced by the caregivers in caring for aged family members with a stroke were identified, which supported the elaboration of an educative manual, in the second stage. In the expert consensus, a global CVI of 0.97 was obtained and, in face validation, a consensus of 95.51% by the target population. Conclusion an educational manual for family caregivers of older adults after a stroke was built, which was validated in terms of content and appearance. In view of this, it can be used as complementary material to the guidelines of the professionals, enabling improvement of the care provided by family members to the older adult dependent on care after a stroke.

scholarly journals Family members’ experiences of caring for a person with dementia at end-of-life

2021 ◽  
Author(s):  
◽  
Lucy Hester Nunns
Keyword(s):  
Lived Experience ◽  
End Of Life ◽  
Family Member ◽  
Terminal Illness ◽  
Living Arrangement ◽  
Family Members ◽  
Phenomenological Approach ◽  
Care Needs ◽  
Optimal Care ◽  
People With Dementia

<p>Dementia is now recognised as a progressive terminal illness causing significant health-care needs for people with dementia and challenges to their family member caregivers. The purpose of this study was to understand the lived experience of family member caregivers of people with dementia at end-of-life. The research was conducted using a phenomenological approach and data were analysed using Colaizzi’s framework. Five family members were interviewed about their experiences of caregiving for six people with dementia. Four themes were revealed. These were: ‘Being at the Coalface’ with subthemes of overload, and experiencing guilt, shame and resentment; ‘Moving Heaven and Earth’ with subthemes of love and preserving dignity; ‘Facing the Change’ with subthemes of loss of the person, living arrangement transitions, and one dimensional conversations; and the fourth theme was ‘Finding the Answers’ with subthemes of diagnosis and preparedness. All the themes are closely interrelated and throughout all of the participants’ narratives, ‘love’ was the one constant that wove the themes together. This study gives voice to the inner experiences of the family caregivers who were supporting people with dementia in New Zealand. The findings of this study have elucidated many implications for practice and areas for innovation in supporting family member caregivers of people with dementia. This study has identified that the areas in most need of improvement are timely diagnosis, access to wrap-around support services, advance care planning opportunities and optimal care at end-of-life.</p>

Sign in / Sign up

Export Citation Format

Share Document