scholarly journals A challenge in qualitative research: Family members sitting in on interviews about sensitive subjects

2021 ◽  
Author(s):  
Anna Kathryn Taylor ◽  
Steven Armitage ◽  
Ambareen Kausar
Keyword(s):  
Qualitative Research ◽  
Family Members

Iranian relatives’ attitudes towards culturally profiled nursing homes for individuals living with dementia

Dementia ◽  
2017 ◽  
Vol 18 (6) ◽  
pp. 2206-2219
Author(s):  
Mahin Kiwi
Keyword(s):  
Qualitative Research ◽  
Content Analysis ◽  
Nursing Home ◽  
Nursing Homes ◽  
Informal Caregivers ◽  
Family Members ◽  
Structured Interviews ◽  
Iranian Family

This article discusses Iranian family members’ attitudes towards the culturally profiled nursing home, their relationships with the staff, the obstacles, their hopes and their fears. This study is based on qualitative research using 29 semi-structured interviews with family members who had previously been informal caregivers, as well as using fieldwork, all in the same nursing home. The interviews were analysed by the three steps of content analysis. The results show the identification of three main categories with nine main subcategories. The categories and subcategories in the table clarify and explain how the interviewees tended to compare the situation in Iran with that in Sweden, how they perceived the situation in Sweden and finally how they also saw the culturally profiled nursing home.

Using Written Accounts in Qualitative Research

2005 ◽  
Vol 16 ◽  
pp. 40-47 ◽  
Author(s):  
Jocelyn Handy ◽  
Kirsty Ross
Keyword(s):  
Qualitative Research ◽  
Data Analysis ◽  
Pilot Study ◽  
Family Relationships ◽  
Social Dynamics ◽  
Family Members ◽  
Primary Source ◽  
Research Data ◽  
Face To Face ◽  
Rich Data

AbstractThis article discusses the methodological implications of using written accounts as the primary source of data in qualitative research. Data from a pilot study into family relationships in two families with an anorexic child is presented to illustrate the ways in which this strategy can facilitate the interpretation of different family members' perspectives. Written accounts are shown to be a time-efficient means of gathering good-quality, descriptively rich data. Differences between oral and written modes of communication mean that participants' written accounts are more highly focused and reflective than transcripts from oral interviews, facilitating data analysis and interpretation. Relationships between researchers and researched are more circumscribed than in face-to-face interviewing, which may limit opportunities to explore emergent issues or make informal observations during the interview process. However, the more circumscribed contact between researchers and respondents may also make it easier to manage the complex social dynamics that can emerge when researching families. Whilst written accounts cannot be used as a direct substitute for oral interviews their strengths appear to be undervalued in qualitative research in psychology.

The Arab Family Strength in Qatar, Jordan and Tunisia

2018 ◽  
Author(s):  
Abdallah Badahdah ◽  
◽  
Azza Abdelmoneium ◽  
John DeFrain ◽  
Sylvia Asay ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Preliminary Report ◽  
Family Members ◽  
Community Research ◽  
Family Strengths ◽  
Research Teams ◽  
Family Strength ◽  
The Family ◽  
The World ◽  
Research Findings

All the problems in the world either begin in families or end up in families. Sometimes families create their own problems, and at other times, families are forced to deal with problems that the world has thrust upon them. For this reason, it is imperative that all societies seek to understand families in all their considerable diversity; to protect families; and to help strengthen families through intervention on the level of the family, the immediate community, the nation, and the international community. Research teams were assembled and conducted focus group studies of family members in Qatar, Jordan, and Tunisia. The purpose of this preliminary report is to discuss the qualitative research findings from focus groups with Arab family members in all three countries, revealing their perceptions of Arab family strengths and challenges, and how they see that families under stress can be better supported by society

Patient voice and health education for familial hypercholesterolaemia

2021 ◽  
pp. 001789692110559
Author(s):  
Scott McIntosh ◽  
Cameron Coykendall ◽  
Yifei Sylvia Lin ◽  
Matthew Caufield ◽  
Joe Muller ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Health Education ◽  
Health Knowledge ◽  
Familial Hypercholesterolaemia ◽  
Family Members ◽  
Primary Care Providers ◽  
Diagnosis And Treatment ◽  
Health Priorities ◽  
Care Providers ◽  
Premature Cardiovascular Disease

Objective: Familial hypercholesterolaemia (FH), an autosomal dominant disorder causing elevated low-density lipoprotein (LDL) cholesterol from birth resulting in premature cardiovascular disease, is only diagnosed in 10% of affected patients. This study involved partnering with patients with FH and with primary care providers (PCPs) to understand health priorities and translate them into hypotheses for future research and enhancement of health practices via electronic health records (EHRs). The goal was to strengthen genetic health education for clinicians and for patients and their families, including improved diagnosis, knowledge and treatment. Perceptions regarding genetic health education and healthcare related to FH facilitated by the use of an EHR for diagnosis and treatment have not been studied. Design: Mixed-methods exploratory qualitative research and surveys. Setting: Qualitative research included five focus groups, 34 semi-structured key informant interviews and open-ended survey items with patients and PCPs at a large medical centre in Western New York. Method: Data were thematically coded to identify themes as formative work for the improvement of relevant EHR features, diagnosis, treatment and genetic health education via information sharing between clinicians and patients. Results: Themes included genetic health knowledge; the importance of being diagnosed; communication between patients, family members and medical professionals; outreach via patients’ own advocacy; and treatment, technology, motivation, trust, outside resources (for further genetic health education and support) and awareness of effective treatments. Conclusion: Patients and clinicians can contribute to the development of EHR support for the genetic health education of patients and their families, and for improved diagnosis and treatment of FH. Using their ideas in the development of effective strategies could improve the currently low rate of FH diagnosis and cascade screening (for family members), as well as enhance physician and patient genetic health knowledge and self-empowerment.

scholarly journals What Is the Experience of Practitioners in Health, Education or Social Care Roles Following a Death by Suicide? A Qualitative Research Synthesis

2019 ◽  
Vol 16 (18) ◽  
pp. 3293
Author(s):  
Hilary Causer ◽  
Kate Muse ◽  
Jo Smith ◽  
Eleanor Bradley
Keyword(s):  
Systematic Review ◽  
Qualitative Research ◽  
Health Education ◽  
Service User ◽  
Social Care ◽  
Family Members ◽  
Research Synthesis ◽  
Safe Practice ◽  
Cultural Contexts ◽  
Close Family

Recent research has highlighted that the number of people impacted by a death by suicide is far greater than previously estimated and includes wider networks beyond close family members. It is important to understand the ways in which suicide impacts different groups within these wider networks so that safe and appropriate postvention support can be developed and delivered. A systematic review in the form of a qualitative research synthesis was undertaken with the aim of addressing the question ‘what are the features of the experiences of workers in health, education or social care roles following the death by suicide of a client, patient, student or service user?’ The analysis developed three categories of themes, ‘Horror, shock and trauma’, ‘Scrutiny, judgement and blame’, and ‘Support, learning and living with’. The mechanisms of absolution and incrimination were perceived to impact upon practitioners’ experiences within social and cultural contexts. Practitioners need to feel prepared for the potential impacts of a suicide and should be offered targeted postvention support to help them in processing their responses and in developing narratives that enable continued safe practice. Postvention responses need to be contextualised socially, culturally and organisationally so that they are sensitive to individual need.

scholarly journals Cancer repercussions on play in children: implications for nursing care

2014 ◽  
Vol 23 (4) ◽  
pp. 935-943 ◽  
Author(s):  
Liliane Faria da Silva ◽  
Ivone Evangelista Cabral
Keyword(s):  
Qualitative Research ◽  
Discourse Analysis ◽  
Cancer Treatment ◽  
Childhood Cancer ◽  
Nursing Care ◽  
Family Members ◽  
Oncological Treatment ◽  
Data Production ◽  
Thematic Units ◽  
The Right

The study aimed to identify cancer repercussions on play among children in oncological treatment. This was qualitative research implemented according to a creative and sensible method. Twenty-two family members of seven children in ambulatory cancer treatment in a hospital from Rio de Janeiro participated. Data production occurred in family members' houses, from September 2011 to May 2012. The data were analyzed according to discourse analysis. Two thematic units emerged: childhood cancer - a happening about play; and playing in the course of the child's illness and treatment: a possibility to rescue care of maintaining life. Maintaining play is a child's need that demands nursing care of a different nature, to assure the right to play during treatment, in order to reduce traumas and damage to their development.

scholarly journals The experiences of affected family members: A summary of two decades of qualitative research

2010 ◽  
Vol 17 (sup1) ◽  
pp. 44-62 ◽  
Author(s):  
Jim Orford ◽  
Richard Velleman ◽  
Alex Copello ◽  
Lorna Templeton ◽  
Akanidomo Ibanga
Keyword(s):  
Qualitative Research ◽  
Family Members

scholarly journals Psychiatric hospitalization of alcoholists from rural areas in a general hospital: expectations of families

2019 ◽  
Vol 72 (6) ◽  
pp. 1442-1449
Author(s):  
Andréa Noeremberg Guimarães ◽  
Jacó Fernando Schneider ◽  
Márcio Wagner Camatta ◽  
Cíntia Nasi ◽  
Lucimare Ferraz ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Family Member ◽  
General Hospital ◽  
Rural Areas ◽  
Psychiatric Hospitalization ◽  
Family Members ◽  
Post Discharge ◽  
Phenomenological Sociology ◽  
Discharge Care ◽  
The Family

ABSTRACT Objective: to know the expectations of family members of alcoholics living in rural areas under treatment in a Psychiatric Hospitalization Unit. Method: qualitative research, through interviews with 15 relatives of alcoholics living in rural areas and hospitalized in a Psychiatric Unit. Information was interpreted in the light of Phenomenological Sociology. Results: two concrete categories emerged: Expectations that the family member quits using alcohol and Projects of family members for the alcoholic after discharge. Relatives expected the alcoholic to maintain abstinence and planned post-discharge care, which involved everything from welcoming them to projects with a prospect of control or even fear of not being able to care for the alcoholic. Final considerations: most participants have positive expectations regarding psychiatric hospitalization, but some relatives are not confident about caring for the alcoholic and mentioned alternatives such as hiring a caregiver or nursing homes.

Reflections on the research process

2020 ◽  
pp. 181-188
Author(s):  
Natalie Booth
Keyword(s):  
Qualitative Research ◽  
Ethical Issues ◽  
Family Members ◽  
Research Process ◽  
Social Position ◽  
Personal Reflection ◽  
Depth Data ◽  
The Family ◽  
Conducting Research

This chapter provides some brief reflections on the realities of conducting research with the caregiving kin. While this openness enhances the ‘credibility’ of the qualitative research, it can also help future researchers learn about the complexities and messiness of fieldwork. The chapter then discusses the practical challenges of recruiting participants, the ethical issues of managing implicit withdrawal, and a more personal reflection about how the researcher considers their own identity to have shaped the data collected. Ultimately, what is most important is that the fieldwork produced original, rich, in-depth data that are grounded in the lives and experiences of the family members, and informed by their accounts of maternal imprisonment. It is one of very few studies that has engaged directly with relatives looking after children whose mothers are serving a custodial sentence in England, producing insights that detail the ‘family sentence’ that they serve from a ‘disenfranchised’ social position.

scholarly journals COVID-19: Boredom in the Family

2021 ◽  
pp. 106648072098649
Author(s):  
Hasan Latif ◽  
Engin Karaman
Keyword(s):  
Qualitative Research ◽  
Information Technologies ◽  
Family Members ◽  
Active Life ◽  
The Family ◽  
The Subject ◽  
At Home

This research is focused on the subject of boredom in the families during the stay-at-home process forced by coronavirus disease 2019 pandemic. The literature on boredom was reviewed, and then the qualitative research was designed with the open-ended questions appropriate for the subject and purpose. The research was conducted between April 20 and 29, 2020, in Istanbul, Turkey, with the participation of 264 families. The most significant findings of the research showed that family members accustomed to active life experienced boredom more during the stay-at-home process, they utilized information technologies very often to overcome boredom, the importance of time spent at home increased, involuntary behaviors such as overeating and snacking became common, the livelihood difficulties and fear of unemployment increased boredom, nevertheless, no conflict occurred between the family members, and the process taught to be patient and strong.

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