scholarly journals Exploring Family Caregivers’ Subjective Experience of Positive Aspects in Home-Based Elder Caregiving: From Korean Family Caregivers’ Experience

2020 ◽  
Vol 8 (4) ◽  
pp. 176
Author(s):  
Jung Hee Lee
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Exploratory Study ◽  
Subjective Experience ◽  
Positive Experience ◽  
Cultural Contexts ◽  
Korean Family ◽  
Home Based ◽  
Depth Interviews

Recently research has identified positive dimensions of the caregiving experience. However, there is still a dearth of research into positive aspects of home-based family caregiving for older adults in various cultural contexts. This exploratory study seeks to expand our knowledge in this area by exploring the positive experience of Korean family caregivers who cared for older adults with frailty at home and how they can transform their caregiving experience into positive one despite of many challenges. Eighteen family caregivers were explored through semi-structured in-depth interviews. Participants reported several positive aspects from their home-based elder caregiving experience. The positive aspects were categorized into three groups; relational aspects, personal aspects, and spiritual aspects. Findings indicate that Koran family caregivers of older adults in this study perceive that caregiving experience is challenging but also offers an opportunity for gains.

The Socialization of Unpaid Family Caregivers: A Scoping Review

2021 ◽  
pp. 016402752110050
Author(s):  
Kirstie McAllum ◽  
Mary Louisa Simpson ◽  
Christine Unson ◽  
Stephanie Fox ◽  
Kelley Kilpatrick
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Scoping Review ◽  
Family Caregiving ◽  
Family Processes ◽  
Future Research ◽  
Socialization Process ◽  
Role Negotiation ◽  
Role Learning ◽  
Socialization Agents

As unpaid family caregiving of older adults becomes increasingly prevalent, it is imperative to understand how family caregivers are socialized and how they understand the caregiving role. This PRISMA-ScR-based scoping review examines the published literature between 1995–2019 on the socialization of potential and current unpaid family caregivers of older adults. Of 4,599 publications identified, 47 were included. Three perspectives of socialization were identified: (1) role acculturation; (2) role negotiation and identification; and (3) specialized role learning. The findings show how socialization involves different contexts (e.g., cultures), imperatives for action (e.g., circumstances), socialization agents (e.g., family), processes (e.g., modeling), and internal (e.g., normalization) and external (e.g., identification) consequences for caregivers. Future research could fruitfully explore how caregivers manage key turning points within the socialization process, disengage from the caregiving role, and negotiate the socialization and individualization processes within diverse cultural and funding contexts.

In sickness and in health: The strains and gains of caring for a chronically ill or disabled spouse

2016 ◽  
Vol 13 (2) ◽  
pp. 75-87 ◽  
Author(s):  
Victoria L Solomi ◽  
Rachel E Casiday
Keyword(s):  
Mixed Methods ◽  
Exploratory Study ◽  
Subjective Experience ◽  
Marital Relationship ◽  
Chronically Ill ◽  
Subjective Experiences ◽  
Relational Experiences ◽  
Health Promoting ◽  
Depth Interviews ◽  
Insight Into

Objectives To examine the subjective experiences of spousal carers, focusing on positive, negative, and relational aspects of this role. Methods Mixed-methods exploratory study involving questionnaires ( N = 40) and in-depth interviews ( N = 8) with spousal carers in the southwest of England. Results Participants used a combination of negative and positive terms to describe their experiences, with the cared-for spouse's mental acuity, behavior towards the carer, and amount of care required, impacting on carers' subjective experience. Women were more likely to report neglecting their own health because of being a carer ( p = 0.02). The marital relationship itself was highly significant, and many carers took special measures to maintain and develop their marital bonds. Carers adapted to their roles in various ways, with those finding acceptance of their situation and accessing support appearing to cope best with the demands of the role. Discussion This study, though based on a small and geographically restricted sample, offers insight into the positive, negative, and relational experiences of spousal carers. Support that encourages carers to engage in health-promoting activities, and ideally provides opportunities for both partners to be involved in such activities together, may be particularly beneficial.

scholarly journals 2400 How have characteristics of end-of-life family caregiving changed from 1999 to 2015? Preliminary results from two waves of nationally representative data

2018 ◽  
Vol 2 (S1) ◽  
pp. 82-82
Author(s):  
Judith Vick ◽  
Jennifer Wolff
Keyword(s):  
Older Adults ◽  
End Of Life ◽  
Family Caregivers ◽  
Family Caregiving ◽  
Physical Strain ◽  
Term Care ◽  
Care Survey ◽  
Nationally Representative ◽  
Over Time

OBJECTIVES/SPECIFIC AIMS: Family members are often critical in the delivery of hands-on care and decisions about care for persons approaching end-of-life (EOL). Prompted by concerns about the poor quality and high costs of care at the EOL, recent delivery reform efforts—such as the growth of hospice and palliative care—have been directed at improving EOL care for both patients and family. Trends of the characteristics of EOL family caregivers and care recipients over time have not been well described. The goal of this study is to evaluate changes in EOL family caregiving from 1999 to 2015. METHODS/STUDY POPULATION: This study uses reconciled data from two nationally representative surveys and their linked caregiver surveys: the 1999 wave of the National Long-Term Care Survey (NLTCS) and the Informal Care Survey (ICS), and the 2015 wave of the National Health and Aging Trends Study (NHATS) and the National Survey of Caregiving (NSOC). RESULTS/ANTICIPATED RESULTS: Crude analysis shows that older adults living in the community and receiving help from family caregivers in the last year of life were significantly better educated (72% with greater than 12 years of education vs. 46%), and more diverse (78% White vs. 89%) in 2015 compared with 1999. Family caregivers in the last year of life were less likely to be female in 2015 compared with 1999 (74% vs. 68%, NS) and significantly less likely to be spouses (45% vs. 38%) in 2015. In 2015, a significantly greater proportion of older adults received help with five or more activities of daily living (47% vs. 34%), but family caregivers reported significantly lower levels of caregiving-associated distress: financial strain (80% reporting none in 2015 vs. 53%), emotional (51% vs. 39%), and physical strain (70% vs. 45%). In addition, a significantly greater proportion of EOL family caregivers used respite care in 2015 compared to 1999 (15% vs. 4%). DISCUSSION/SIGNIFICANCE OF IMPACT: Changes in the experience of EOL family caregiving may be impossible to capture in studies of single interventions, but tracking nationally representative trends can be used as an indicator of broader changes that take place cumulatively over time. Although studies of this nature cannot identify causal mechanisms of change, they are important to monitor long-term impact of program implementation and to guide future research, policy, and resource allocation.

scholarly journals COMMUNICATION IN THE CONTEXT OF FAMILY CAREGIVING: AN EXPLORATORY STUDY OF UGANDAN CHILDREN ON ANTIRETROVIRAL THERAPY

2015 ◽  
Vol 48 (5) ◽  
pp. 672-693 ◽  
Author(s):  
P. Kajubi ◽  
Anne R. Katahoire ◽  
David Kyaddondo ◽  
Susan R. Whyte
Keyword(s):  
Antiretroviral Therapy ◽  
Thematic Analysis ◽  
Emotional Support ◽  
Family Caregiving ◽  
Exploratory Study ◽  
Family Dynamics ◽  
Participant Observation ◽  
Diagnosis And Treatment ◽  
Aids Diagnosis ◽  
Depth Interviews

SummaryIt is important to consider the complexities of family dynamics when deciding when and how to communicate with HIV-infected children about their illness and treatment. Previous research has focused on providers’ and caregivers’ perspectives on whether, when and how to disclose HIV/AIDS diagnosis and treatment to HIV-infected children. From the perspective of HIV-infected children, communication does not mean just giving information about illness and treatment, but also encompasses emotional and material care. This paper places communication within the broader framework of caregiving in family situations. This exploratory study was conducted in Jinja district, Uganda, between November 2011 and December 2012. Through participant observation and in-depth interviews, communication by, and with, HIV-infected children in the context of family situations was explored from the perspectives of 29 HIV-infected children aged 8–17 years on antiretroviral therapy (ART) using content thematic analysis. Children’s communication with caregivers about their illness and treatment varied depending on whom they were living with and the nature of caregiving. Although a mother’s care was considered best, children described others who cared ‘like a mother’. For some, caregiving was distributed among several relatives and non-relatives, while others felt they had hardly anyone to care for them. Caregiving from the children’s perspective involved emotional support, expressed verbally and explicitly in messages of concern, encouragement conveyed in reminders to take medicines, attention when sick and confidential conversations about the challenges of having HIV and taking ART. Caregiving was also communicated implicitly in acts of provision of food/drinks to take with medicines, counting pills to confirm they had taken the medicines and accompanying children to treatment centres. Children’s communication about their health and medicines and the care they received was to a large extent shaped by the nature of their relatedness to their caregivers, the extent to which caregiving was dispersed among several people and who else in the household was infected with HIV and on medication.

scholarly journals Processes of user participation among formal and family caregivers in home-based care for persons with dementia

Dementia ◽  
2016 ◽  
Vol 16 (2) ◽  
pp. 158-177 ◽  
Author(s):  
Lill Sverresdatter Larsen ◽  
Hans Ketil Normann ◽  
Torunn Hamran
Keyword(s):  
Family Caregivers ◽  
User Participation ◽  
Positioning Theory ◽  
People With Dementia ◽  
Home Based ◽  
Decision Making Processes ◽  
Care Practices ◽  
Home Based Care ◽  
Legal Consent ◽  
Depth Interviews

Scandinavian health policy supports prolonged home-based care for people with dementia. User participation is expected to reduce family burden. The aim of this study was to explore how formal and family caregivers experience collaboration while providing home-based dementia care, with a focus on user participation. Seventeen qualitative in-depth interviews were conducted among formal and family caregivers in rural municipalities. The theme identified during this process was ‘negotiating participation in decisions’. This theme was analysed using positioning theory. Concepts such as user participation are ambiguous, and caregivers negotiate positions during decision-making processes. Such negotiations are caused by the problematic relationships among patients’ legal consent, undefined spokespersons and pragmatic care practices. These constant negotiations enable or obstruct collaboration in several situations. User participation as a concept might contribute to conflicts during collaborations. Dialogues about user participation that focus on consent and spokespersons could reduce the burden created by negotiations in practice.

Stacking the Odds: A Phenomenological Study of Non-problem Gambling in Later Life

2005 ◽  
Vol 24 (4) ◽  
pp. 433-442 ◽  
Author(s):  
Brad Hagen ◽  
Gary Nixon ◽  
Jason Solowoniuk
Keyword(s):  
Older Adults ◽  
Problem Gambling ◽  
Exploratory Study ◽  
Older Persons ◽  
Phenomenological Study ◽  
Social Contact ◽  
Later Life ◽  
Problem Gamblers ◽  
Depth Interviews ◽  
Behavioural Strategies

ABSTRACTThe purpose of this exploratory, phenomenological-hermeneutic study was to explore the experience of non-problem gambling by older adults. Twelve older gamblers were identified as non-problem gamblers using two gambling screens and participated in in-depth interviews about their experience of gambling. Two major themes emerged from the interviews: the attractions of gambling and methods to keep gambling in control. Older persons sought out gambling for a variety of reasons: social contact, the food and the excitement, chances to give to charity, chances to have an inexpensive holiday, and the need for a safe way to be “bad”. Participants also described a number of cognitive and behavioural strategies to keep their gambling from becoming a problem. The results of this small exploratory study suggest that gambling is a popular form of social entertainment for older persons, although the main attractions of gambling have little or nothing to do with gambling itself. Older persons also appear to possess numerous strategies to keep gambling from becoming a problem.

Feasibility and Perception of the Impact From Aerobic Exercise in Older Adults With Alzheimer’s Disease

2012 ◽  
Vol 27 (6) ◽  
pp. 397-405 ◽  
Author(s):  
Fang Yu ◽  
Ruth M. Swartwood
Keyword(s):  
Alzheimer’S Disease ◽  
Older Adults ◽  
Alzheimer's Disease ◽  
Aerobic Exercise ◽  
Family Caregivers ◽  
Subjective Experience ◽  
Exercise Intervention ◽  
Exercise Program ◽  
Moderate Intensity ◽  
The Impact

Background: The subjective experience of participating in aerobic exercise is unknown in Alzheimer’s disease (AD). Objective: The purpose of this study was to understand the subjective perceptions of the feasibility and impact of a 6-month, moderate-intensity aerobic exercise intervention by older adults with AD and their family caregivers. Methods: Ten older adults with AD who completed the intervention and their family caregivers participated in four focus group interviews. Results: Four converging themes were identified: “There was no perceived positive change in cognitive symptoms,” “The 6-month exercise program was socially rewarding,” “The 6-month exercise program increased physical strength,” and “Participation in aerobic exercise was a positive experience.” Family caregivers further identified two additional themes: “The exercise program led to improved attitude in older adults with AD” and “The exercise program reduced caregiver stress.” Discussion: Aerobic exercise is a feasible and well-perceived intervention for older adults with AD and their family caregivers.

Boundaries and Connections Between Formal and Informal Caregivers

2002 ◽  
Vol 21 (2) ◽  
pp. 205-216 ◽  
Author(s):  
Catherine Ward-Griffin
Keyword(s):  
Family Caregivers ◽  
Health Professionals ◽  
Family Caregiving ◽  
Older Persons ◽  
Theory Development ◽  
Formal Caregivers ◽  
Field Notes ◽  
Depth Interviews ◽  
Future Theory ◽  
Over Time

ABSTRACTAlthough the experiences of formal and informal caregiving have been discussed and debated in the literature, more is assumed than is actually known (McDaniel & Gee, 1993). This qualitative study explored both informal and formal caregivers' perceptions of their own caregiving and the views of each other's caregiving. Information was collected through the use of in-depth interviews with 23 family caregivers and 15 nurses providing home care to older persons. Analysis of interview transcripts and field notes reveals that both informal and formal caregivers engage in all facets of caring work – physical, intellectual and emotional care – but that they carry out this work in varying degrees, and for different reasons. The reasons given for these differences, namely the nurses' professional knowledge and higher status designation, are key elements that define the boundaries between professional and family caregiving. However, it is apparent that, over time, this demarcation diminishes as family caregivers' knowledge and skill match those of health professionals. Study findings point to implications for future theory development and research.

Life Restoration and Future Care Preparation Among Older Parents in Shanghai Who Have Lost Their Only Adult Child

2019 ◽  
Vol 39 (10) ◽  
pp. 1097-1105 ◽  
Author(s):  
Lin Chen ◽  
Yajun Song ◽  
Yixin You
Keyword(s):  
Older Adults ◽  
Family Caregiving ◽  
Adult Child ◽  
Government Support ◽  
Life Changes ◽  
Child Loss ◽  
Older Parents ◽  
Face To Face ◽  
Future Care ◽  
Depth Interviews

The combination of aging and losing their only adult child challenges an increasing number of older adults in China. Current literature primarily focuses on older parents’ bereavement but seldom examines their effort to cope with subsequent life changes brought about by only-child loss. This study explores how older parents in Shanghai who lost their only adult child restore their lives and prepare for future care. Twenty-four older adults were purposively sampled and participated in face-to-face, in-depth interviews. The findings suggest that participants tried to restore their lives by rationalizing grief and expanding their social networks. Despite their losses, participants remained in favor of family caregiving and reluctantly prepared for future care. Their ambivalent attitudes toward government support call for caution in approaches to service delivery.

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