scholarly journals Health of mothers of children with a life-limiting condition: a comparative cohort study

2021 ◽  
pp. archdischild-2020-320655
Author(s):  
Lorna K Fraser ◽  
Fliss EM Murtagh ◽  
Jan Aldridge ◽  
Trevor Sheldon ◽  
Simon Gilbody ◽  
...  

ObjectiveThis study aimed to quantify the incidence rates of common mental and physical health conditions in mothers of children with a life-limiting condition.MethodsComparative national longitudinal cohort study using linked primary and secondary care data from the Clinical Practice Research Datalink in England. Maternal–child dyads were identified in these data. Maternal physical and mental health outcomes were identified in the primary and secondary care datasets using previously developed diagnostic coding frameworks. Incidence rates of the outcomes were modelled using Poisson regression, adjusting for deprivation, ethnicity and age and accounting for time at risk.ResultsA total of 35 683 mothers; 8950 had a child with a life-limiting condition, 8868 had a child with a chronic condition and 17 865 had a child with no long-term condition.The adjusted incidence rates of all of the physical and mental health conditions were significantly higher in the mothers of children with a life-limiting condition when compared with those mothers with a child with no long-term condition (eg, depression: incidence rate ratio (IRR) 1.21, 95% CI 1.13 to 1.30; cardiovascular disease: IRR 1.73, 95% CI 1.27 to 2.36; death in mothers: IRR 1.59, 95% CI 1.16 to 2.18).ConclusionThis study clearly demonstrates the higher incidence rates of common and serious physical and mental health problems and death in mothers of children with a life-limiting condition. Further research is required to understand how best to support these mothers, but healthcare providers should consider how they can target this population to provide preventative and treatment services.

2019 ◽  
Vol 12 (6) ◽  
pp. 483-494
Author(s):  
Kathy Lee Wright ◽  
Karen Verney ◽  
Daryl Brennan ◽  
David Lindsay ◽  
Daniel Lindsay ◽  
...  

Purpose The purpose of this paper is to investigate the long-term conditions affecting the administration workforce of a regional Australian health service, and their self-management of these conditions. Design/methodology/approach A cross-sectional survey design was used. The sample consisted of all administration staff members employed in 2018 across a large regional health service in Northern Australia. Findings Of the 328 respondents, 167 (51 per cent) reported having at least one long-term condition. Of these, 136 (81.4 per cent) indicated a single main condition for which management strategies were used. Musculoskeletal conditions were the most commonly nominated category (59.6 per cent), followed by mental health (10.3 per cent). Respondents with musculoskeletal conditions were statistically more likely to have a co-existing mental health long-term condition, χ2(1) = 95.64, p<0.001. There was also a statistically significant association between respondents reporting a mental health condition and being overweight, χ2(1) = 54.27, p< 0.05. Research limitations/implications The response rate of 35 per cent, whilst relatively low, is a slight increase on similar surveys within this organisation. The reliability of the self-report data, presence of study bias and a weakening of the study’s external validity is acknowledged. Practical implications Targeted workplace intervention strategies, such as holistic wellness programs, should complement personal approaches, promote an ergonomic environment and create opportunities for increased dialogue between employees and their line managers, particularly regarding the complex interplay between long-term physical and mental health. Originality/value This is the first study of self-reported long-term conditions among administration staff within a health service, and augments findings from previous studies involving health professional groups in the same organisation.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S619-S620
Author(s):  
Dorina Cadar ◽  
Lucy Stirland ◽  
Graciela Muniz Terrera

Abstract The close interlink between physical and mental health outcomes has long been recognised in gerontological research. Mental-physical comorbidities – the presence of at least one physical health long term condition, and at least one mental health-related long term condition are common in older age individuals. Numerous studies have shown a positive association between the prevalence of multimorbidity and age so, as the population of older individuals in developed nations continues to grow, multimorbidity is likely to become increasingly higher in ageing populations. A major goal in current gerontological neuropsychology and neuroepidemiological research is to better understand how interindividual differences in cognitive and mental health in old age emerge. Cognitive reserve (a marker of brain resilience) may come into play when facing stressors that affect cognitive decline and mental health, such as suffering from chronic diseases. We present data from three different longitudinal studies of ageing i) the Lothian Birth Cohort of 1921, ii) PREVENT and iii) the English Longitudinal Study of Ageing from the United Kingdom. These studies are ideally placed to address key research questions related to mental ageing, psychological health, terminal decline and their determinants. We explored the following objectives: 1) to investigate the association between an increasing number of chronic physical conditions, medication and mental disorders 2) to assess the role of childhood intelligence and education on the terminal decline in later life 3) to investigate the associations between different markers of cognitive reserve and dementia


2020 ◽  
Vol 5 (10) ◽  
pp. e543-e550 ◽  
Author(s):  
Richard Williams ◽  
David A Jenkins ◽  
Darren M Ashcroft ◽  
Ben Brown ◽  
Stephen Campbell ◽  
...  

2008 ◽  
Vol 21 (2) ◽  
pp. 239-242 ◽  
Author(s):  
Tina Dorn ◽  
Joris C. Yzermans ◽  
Peter M. M. Spreeuwenberg ◽  
Agatha Schilder ◽  
Jouke van der Zee

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e044463
Author(s):  
Danielle Borg ◽  
Kym Rae ◽  
Corrine Fiveash ◽  
Johanna Schagen ◽  
Janelle James-McAlpine ◽  
...  

IntroductionThe perinatal–postnatal family environment is associated with childhood outcomes including impacts on physical and mental health and educational attainment. Family longitudinal cohort studies collect in-depth data that can capture the influence of an era on family lifestyle, mental health, chronic disease, education and financial stability to enable identification of gaps in society and provide the evidence for changes in government in policy and practice.Methods and analysisThe Queensland Family Cohort (QFC) is a prospective, observational, longitudinal study that will recruit 12 500 pregnant families across the state of Queensland (QLD), Australia and intends to follow-up families and children for three decades. To identify the immediate and future health requirements of the QLD population; pregnant participants and their partners will be enrolled by 24 weeks of gestation and followed up at 24, 28 and 36 weeks of gestation, during delivery, on-ward, 6 weeks postpartum and then every 12 months where questionnaires, biological samples and physical measures will be collected from parents and children. To examine the impact of environmental exposures on families, data related to environmental pollution, household pollution and employment exposures will be linked to pregnancy and health outcomes. Where feasible, data linkage of state and federal government databases will be used to follow the participants long term. Biological samples will be stored long term for future discoveries of biomarkers of health and disease.Ethics and disseminationEthical approval has been obtained from the Mater Research Ethics (HREC/16/MHS/113). Findings will be reported to (1) QFC participating families; (2) funding bodies, institutes and hospitals supporting the QFC; (3) federal, state and local governments to inform policy; (4) presented at local, national and international conferences and (5) disseminated by peer-review publications.


BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e045879
Author(s):  
Bina Ram ◽  
Anna Chalkley ◽  
Esther van Sluijs ◽  
Rachel Phillips ◽  
Tishya Venkatraman ◽  
...  

IntroductionSchool-based active mile initiatives such as The Daily Mile (TDM) are widely promoted to address shortfalls in meeting physical activity recommendations. The iMprOVE Study aims to examine the impact of TDM on children’s physical and mental health and educational attainment throughout primary school.Methods and analysisiMprOVE is a longitudinal quasi-experimental cohort study. We will send a survey to all state-funded primary schools in Greater London to identify participation in TDM. The survey responses will be used for non-random allocation to either the intervention group (Daily Mile schools) or to the control group (non-Daily Mile schools). We aim to recruit 3533 year 1 children (aged 5–6 years) from 77 primary schools and follow them up annually until the end of their primary school years. Data collection taking place at baseline (children in school year 1) and each primary school year thereafter includes device-based measures of moderate-to-vigorous physical activity (MVPA) and questionnaires to measure mental health (Strengths and Difficulties Questionnaire) and educational attainment (ratings from ‘below expected’ to ‘above expected levels’). The primary outcome is the mean change in MVPA minutes from baseline to year 6 during the school day among the intervention group compared with controls. We will use multilevel linear regression models adjusting for sociodemographic data and participation in TDM. The study is powered to detect a 10% (5.5 min) difference between the intervention and control group which would be considered clinically significant.Ethics and disseminationEthics has been approved from Imperial College Research Ethics Committee, reference 20IC6127. Key findings will be disseminated to the public through research networks, social, print and media broadcasts, community engagement opportunities and schools. We will work with policy-makers for direct application and impact of our findings.


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