scholarly journals Factors influencing access to kidney transplantation: a research protocol of a qualitative study on stakeholders’ perspectives

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e032694
Author(s):  
Katja Kloss ◽  
Sohal Ismail ◽  
Steef Redeker ◽  
Lothar van Hoogdalem ◽  
Annemarie Luchtenburg ◽  
...  

IntroductionUnequal access to kidney transplantation is suggested, but no systematic inventory exists about factors influencing access to kidney transplantation. There is an absence of any research that has combined stakeholder perspectives along the complete trajectory of transplantation. The present qualitative study explores the contributing factors from the perspectives of multiple stakeholders in this trajectory, including patients, health professionals and health insurance and financial representatives in the Netherlands. Moreover, stakeholders will be invited to suggesting strategies and solutions for handling the facilitating and hindering factors found. By means of interaction, stakeholder groups will arrive at a consensus for new policymaking in the field of a Dutch transplantation care.Methods and analysisThe different stakeholders’ perspectives and possible solutions will be explored by interviewing in three phases. In the first phase, stakeholders’ group perspectives will be explored with individual interviews and focus group interviews without confrontation of views from other perspectives. In the second phase of focus group interviewing, perspectives will be confronted with the other stakeholders’ perspectives assessed. Finally, in the third phase, stakeholders will be invited to focus group discussions for suggesting solutions to overcome barriers and promote facilitators for improving access to transplantation. Approximately, groups from six to twelve participants per focus group and four to maximal six focus groups will be held per stakeholder, depending on the level of saturation, as prescribed by grounded theory. The interviews will be audio-recorded and transcribed verbatim, and qualitative data will be analysed according to the principles of grounded theory supported by using NVivo software.Ethics and disseminationThe Medical Ethical Committee of Erasmus MC, Rotterdam, The Netherlands, has approved this study. The results will be disseminated in peer-reviewed journals and major international conferences.

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1872-1888 ◽  
Author(s):  
Anna Brorsson ◽  
Annika Öhman ◽  
Stefan Lundberg ◽  
Malcolm P Cutchin ◽  
Louise Nygård

Background People with dementia who live in ordinary housing need to perform activities outside the home such as visiting friends, talking walks and doing grocery shopping. This article identifies and examines characteristics that may influence accessibility in the space of a grocery shop as perceived by people with dementia. Methods This is a qualitative study with a grounded theory approach. The data collection was done with two different methods. It started with photo documentation and continued with focus group interviews in combination with photo elicitation. Data from both photo documentation and focus groups were analysed according to a grounded theory approach. Results The categories “illogical arrangement”, “overload of products, information and people”, “visual illusions” and “intrusive auditory stimuli” showed characteristics in the grocery shop that influenced how accessible and usable the informants experienced a shop to be. Furthermore, personal capacities in relation to the specific characteristics of the grocery shop space had an influence on how accessible and usable the informants experienced the grocery shop to be. Capacities to find, stay focused and concentrated, meet stress, remember, interpret and discriminate sensory impressions through hearing and sight came to the fore as important. Conclusions Characteristics of both the shop and the person need to be taken into account when supporting people with dementia in grocery shopping.


2019 ◽  
Vol 57 (5) ◽  
pp. 1127-1144
Author(s):  
Zeinab Lalegani ◽  
Ali Nasr Isfahani ◽  
Arash Shahin ◽  
Ali Safari

Purpose The purpose of this paper is to develop and analyze a model of factors influencing interpersonal conflicts. Design/methodology/approach This research was conducted using a mixed method approach. In the qualitative study, the conceptual model of the factors affecting interpersonal conflicts was extracted from semi-structured interviews with 17 relevant experts using a theme analysis technique. Then, three hypotheses were developed based on the model and relevant theoretical evidence. Using a researcher-made questionnaire which was developed earlier based on the qualitative results, a quantitative-based survey was performed to assess the interpersonal conflicts and also the standard scale of the level of interpersonal conflicts (Jehn, 1997). The hypotheses were tested on a sample of 160 employees of Chaharmahal and Bakhtiari Province Gas Company (CBPGC). Findings The results of the qualitative study indicated that individual factors including personality dimensions and individual differences; organizational factors including five dimensions of organizational culture, organizational structure, management characteristics, intra-organization factors and human resource systems; and environmental factors influenced the creation of interpersonal conflicts. The results of the quantitative study indicated that organizational factors with an effect size of 0.502 were identified as the most important factor influencing interpersonal conflicts. Research limitations/implications The findings of this study can provide a roadmap to managers of the CBPGC to be aware of the contributing factors to conflict within their organization. Originality/value The use of mixed method to identify the causes and factors of interpersonal conflict and analyzing a context different from previous studies can be considered as the innovations of this study.


2009 ◽  
Vol 30 (1) ◽  
pp. 11-23 ◽  
Author(s):  
ALI ARDALAN ◽  
MONIR MAZAHERI ◽  
KOUROSH HOLAKOUIE NAIENI ◽  
MOHSEN REZAIE ◽  
FARIBA TEIMOORI ◽  
...  

ABSTRACTElders have long been recognised as among the most vulnerable people in disaster events. This paper reports a qualitative study of the self-perceived needs of older people in the aftermath of the Bam earthquake in Iran in 2003. A total of 56 people aged from 65 to 88 years were recruited to the study using purposive sampling, including 29 men and 27 women. Six focus group discussions and ten semi-structured individual interviews were conducted. Each focus group involved six to ten people from the cities of Bam and Baravat and their rural suburbs. Content analysis was used to analyse the transcribed data. The analysis identified four major themes among the informants' concerns: inappropriate service delivery, affronts to dignity, feeling insecure and emotional distress. A disaster-prone country like Iran needs to be appropriately prepared with culturally sensitive plans to meet the needs of those who suffer from their effects, not least older people. Emergency relief managers should note that for many older people in a disaster zone, customary forms of relief are neither required nor appropriate, and that their distinctive immediate and long-term needs should be assessed and met. Relief agencies need to be trained to be age-sensitive and should mainstream older people's rights in the planning and implementation of both the response and recovery phases of assistance.


2021 ◽  
Vol 2021 ◽  
pp. 1-7
Author(s):  
Cecilia Amponsem-Boateng ◽  
Timothy Bonney Oppong ◽  
Weidong Zhang ◽  
Tanko Abdulai ◽  
Jonathan Boakye-Yiadom ◽  
...  

Background. Hypertension (HTN) is the second main source of outpatient morbidity in Ghana, and the understanding of a disease is necessary for its prevention and management. Language and communication are contributing factors to HTN in Ghana. No studies have been conducted to assess knowledge/awareness of HTN (in the context of its understanding) among students in Ghana. Following a local name for HTN in Ghana, researchers interviewed students through a focus group to assess their understanding/perception (meaning, cause, and prevention) of the disease. Available literature has concerned itself with clients’ knowledge of their condition (diagnosis) rather than their comprehension of the true nature of what HTN is. The objective of this study is to assess the knowledge/awareness of HTN in the context of its understanding of the meaning, perception, causes, and prevention of hypertension among students of Ghana’s Senior High School (Second Cycle). Semistructured interviews with the use of the theme lists were employed. Focus group conversations and interviews were held in the local Akan (Twi) language, which was later translated, interpreted, and analyzed. Overall, 25 second-cycle students participated. 60% were between 15 and 17 years, 24% were ≥18 years, and 16% were <15 years of age. Males were 44% and females were 56%. Students gave diverse perceptions of their knowledge of HTN. The local language’s translation of HTN has influenced and affected its meaning/understanding among some, thus affecting their perception of causes and prevention.


2020 ◽  
Vol 69 (6) ◽  
pp. 1271-1299
Author(s):  
Atheer Abdullah Mohammed ◽  
Abdul Hafeez Baig ◽  
Raj Gururajan

Purpose The purpose of this paper is to understand the best processes that are currently used in managing talent in Australian higher education (HE) and to examine the policies in terms of talent management processes (TMPs) that are derived from objective one. Pragmatic benefits for academic institutions focused on enhancing talent. Design/methodology/approach This study selects the mixed method as its research design. In the qualitative study, there were three methods: brainstorming, focus group and individual interviews, followed by the quantitative questionnaire study. The sample consisted of 6 participants for brainstorming, 11 in focus group, 6 individual interviews and 286 participants for the quantitative questionnaire, all conducted in nine Australian universities. Findings Three key themes: talent retention, talent development and talent attraction were explored by the qualitative study. The quantitative study tests the level of an importance regarding the three TMPs explored. Practical implications This empirical research is one of the first few studies that extended the previous investigation of TMPs in various industries to the HE sector. This research provides more debates for adding more new ideas in the Australian education strategic plans for HE. Originality/value This study offers a value-add to talent management literature through designing a quantitative measurement of TMPs for the educational sector. Consequently, there is a deficiency of pragmatic evidence in terms of TMPs in the aforementioned sector. Furthermore, this study provides a clear and comprehensive outline of the extant scholarly research of TMPs from the period 2006–2018.


2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S6-S7
Author(s):  
Camerin A Rencken ◽  
Silvanys L Rodríguez-Mercedes ◽  
Khushbu F Patel ◽  
Gabrielle G Grant ◽  
Erin M Kinney ◽  
...  

Abstract Introduction Pediatric burn injuries can alter the trajectory of the survivor’s entire life. Patient-centered outcome measures are helpful to capture and assess their unique physical and psychosocial needs and long-term recovery. This study aimed to develop a conceptual model framework to measure outcomes most important to pediatric burn survivors aged 5 to 12 years as a part of the SA-LIBRE5-12 Computer Adaptive Test (CAT) development. Methods This study used a systematic literature review guided by the WHO International Classification of Functioning – Child and Youth. Previously established domains in the American Burn Association/Shriners Hospitals for Children Burn Outcomes Questionnaire5-18 further guided framework development. Individual interviews with parents and clinicians were conducted to obtain perspectives on domains most important to assess following a burn injury in children aged 5 to 12 years. One clinician focus group was completed to identify gaps in the preliminary framework, and semi-weekly expert consensus meetings were conducted to solidify the framework. Qualitative data were analyzed by grounded theory methodology in NVivo 12 software. Results The literature review identified 82 articles. Eight parents and seven clinicians participated in individual interviews, four clinicians participated in one focus group, and three consultants were included in the expert consensus meetings. The consultants included a burn surgeon, psychiatrist, and health services researcher. Three major domains emerged from the grounded theory approach, including: 1) Physical Functioning: fine motor and upper extremity, gross motor and lower extremity, pain, skin sensitivity, sleep and fatigue, and physical resilience; 2) Psychological Functioning: cognitive, behavioral, emotional, resilience, and body image; and 3) Family and Social Functioning: school, peer relations, community participation, family relationships, and parental satisfaction. Conclusions The comprehensive literature review, clinician and parent individual interviews, clinician focus group, and expert consensus meetings resulted in a conceptual model framework for parent-reported health outcomes after a burn injury in school-aged children aged 5 to 12 years. The framework will be used to develop item banks for a CAT-based assessment of school-aged children’s health and developmental outcomes.


Author(s):  
Laurence Artaud ◽  
Amal Abdel-Baki ◽  
Marie Nolin ◽  
Cécile Rousseau

Drawing from the perspectives of 18 youth (characterized as adherent, ambivalent, nonadherent), 13 relatives and 8 clinicians, this qualitative study, using semi-structured individual interviews and a focus group, explores why individuals suffering from early psychosis accept or refuse treatment. Identity and relationships, understanding of the diagnosis and significance given to treatment are key themes. Varying degrees of ambivalence and nonadherence can be seen as normal stages of a process to rebuild their sense of self and construct their identity. A trusting relationship may facilitate gradual resolution of ambivalence, promoting the individuals’ sense of ownership and empowerment in the context of treatment.


BMJ Open ◽  
2019 ◽  
Vol 9 (4) ◽  
pp. e024534
Author(s):  
Ping Ji ◽  
Hongling Chu ◽  
Chao Zhang ◽  
Ping Xiao ◽  
Min Liu ◽  
...  

ObjectivesTo better understand the strengths and weaknesses, and to propose policy recommendations, regarding conducting high-quality clinical research in Shenzhen, China.DesignA qualitative study conducted from August to November 2016 using a semistructured interview format involving both focus group interviews and individual interviews.SettingShenzhen, China.ParticipantsStratified purposive and convenience sampling were used. Thirty individuals experienced in conducting and managing clinical research were selected from key stakeholder groups, comprising 11 from local hospitals, 14 from pharmaceutical/medical device companies and 5 from government agencies.MethodsA semistructured interview guide was developed by the study group and used by experienced interviewers in focus group discussions and individual interviews. The interviewees were encouraged to share their opinions freely and discuss their own topics of interest during the interviews. Thematic analysis was used for analysis and all data were coded and extracted using NVivo V.11.0 software.ResultsFavourable driving factors for clinical research in Shenzhen identified by all stakeholders included the recent trend of increased governmental funding for clinical research, supportive governmental policies, wide recognition of the value of clinical research and high demands from local industry. The major challenges include a lack of technical infrastructure, weak human research subject protection and a lack of capable research resources.ConclusionsDespite the established strengths, Shenzhen still needs to develop suitable technical platforms, human resources training programmes and strong human research subject protection programmes pertaining to clinical research. This would facilitate the establishment of a functional system that can be expected to lead to increased medical research innovation in Shenzhen.


2020 ◽  
Author(s):  
Shinji Matsumura ◽  
Makiko Ozaki ◽  
Tetsuya Kanno ◽  
Tomomi Iioka ◽  
Seiji Bito

Abstract Background: Information exchange between hospitals and primary care physicians is suboptimal. Most physicians are dissatisfied with the current referral process, and poor communication leads to negative care transition outcomes.Methods: To identify the key information needed in referral letters for successful transition of care. We conducted a qualitative study using consecutive, semi-structured in-person interviews and focus group sessions. We recruited 5 participants for individual interviews and 16 participants for focus groups. All participants were engaged in clinical work. We analyzed all data using qualitative thematic analysis. Interview transcripts were analyzed inductively and reflectively. All results were returned to the participants and modified based on their feedback. Results: The five individual interviews provided a general picture of the current referral process and a useful interview guide for the following focus group sessions. The focus group discussions were used to identify the essential care transition information needed at admission and discharge from the hospital. Essential information on hospital admission were: 1) Basic medical and care information, 2) Care resources available at home, 3) The purpose of admission and the goals of care during hospitalization, and 4) Status of advance care planning (ACP) and patient’s will in an emergency. Essential information on hospital discharge were: 1) Clinical course, 2) Explanation of medical condition during hospitalization, 3) Status of ACP and patient’s will in an emergency, and 4) Medical procedures to be continued at home. Conclusion: We identified the essential information needed for successful transition of care in Japan, particularly on admission to and discharge from acute hospitals. The clinical effectiveness of a template that contains the information identified in our study warrants investigation.


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