scholarly journals Social Processes That Can Facilitate and Sustain Individual Self-Management for People with Chronic Conditions

2012 ◽  
Vol 2012 ◽  
pp. 1-8 ◽  
Author(s):  
Elizabeth Kendall ◽  
Michele M. Foster ◽  
Carolyn Ehrlich ◽  
Wendy Chaboyer
Keyword(s):  
Chronic Disease ◽  
Collective Identity ◽  
Social Factors ◽  
Social Engagement ◽  
Chronic Conditions ◽  
Ecological Model ◽  
Medical Model ◽  
Self Management ◽  
Coping Capacity ◽  
Policy Direction

Recent shifts in health policy direction in several countries have, on the whole, translated into self-management initiatives in the hope that this approach will address the growing impact of chronic disease. Dominant approaches to self-management tend to reinforce the current medical model of chronic disease and fail to adequately address the social factors that impact on the lives of people with chronic conditions. As part of a larger study focused on outcomes following a chronic disease, this paper explores the processes by which a chronic disease self-management (CDSM) course impacted on participants. Five focus groups were conducted with participants and peer leaders of the course in both urban and rural regions of Queensland, Australia. The findings suggested that outcomes following CDSM courses depended on the complex interplay of four social factors, namely, social engagement, the development of a collective identity, the process of building collaborative coping capacity, and the establishment of exchange relationships. This study highlights the need for an approach to self-management that actively engages consumers in social relationships and addresses the context within which their lives (and diseases) are enacted. This approach extends beyond the psychoeducational skills-based approach to self-management into a more ecological model for disease prevention.

scholarly journals The social engagement framework for addressing the chronic-disease-challenge

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
T Alhambra-Borrás ◽  
S S Tan ◽  
S Macchione ◽  
V Vasiljev ◽  
O Zanutto ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Social Engagement ◽  
Chronic Conditions ◽  
Healthy Lifestyle ◽  
Self Care ◽  
Cost Effective ◽  
Self Management ◽  
Perceived Effectiveness ◽  
Post Intervention ◽  
The Social

Abstract Background The Social Engagement Framework for Addressing the Chronic-disease-challenge (SEFAC) intends to empower citizens to self-manage chronic conditions by combining mindfulness, social engagement and ICT support. This study evaluates effects in terms of perceived effectiveness, utility, efficiency, sustainability and satisfaction with SEFAC intervention. Methods A prospective cohort study with 6-month pre-post design was conducted in Croatia, Italy and the Netherlands. A total of 270 citizens ≥50 and at risk of or with a chronic condition were recruited. Self-reported effects of SEFAC intervention were assessed post-intervention using 5-point Likert scale [Strongly disagree -Strongly agree] and overall satisfaction on a scale from 1-10. Results Post-intervention analyses of a preliminary sample of 98 participants showed the SEFAC intervention was effective. In particular, perceived effectiveness for stimulating the work towards a healthy lifestyle was found for: mindfulness training (63.3%; n = 62), social engagement (48%; n = 47) and ICT support (40.8%; n = 40). After the intervention, 57.1% participants (n = 56) reported having become more aware of moment-to-moment sensations, thoughts and emotions and being able to better accept them without getting lost in them. Most participants (73.5%; n = 72) found the intervention was beneficial (perceived utility). A total of 78.6% (n = 77) participants found it was worth the investment in time and effort (perceived efficiency) and 61% participants (n = 60) agreed the intervention led to sustainable changes/benefits that will last. Finally, satisfaction with the intervention was high overall (8.5 out of 10). Conclusions This is the first study to develop an intervention combining the concepts of mindfulness, social engagement and ICT support. By this combination, self-reported effects were satisfactory. We expect this intervention to be feasible and cost-effective to promote self-management and self-care of chronic conditions. Key messages This study provides an innovative intervention to promote self-management and self-care of citizens with chronic conditions. This is the first study to develop an intervention combining the concepts of mindfulness, social engagement and ICT support.

scholarly journals Effectiveness of an eHealth self-management tool for older adults with multimorbidity (KeepWell): protocol for a hybrid effectiveness–implementation randomised controlled trial

BMJ Open ◽  
2021 ◽  
Vol 11 (2) ◽  
pp. e048350
Author(s):  
Monika Kastner ◽  
Julie Makarski ◽  
Leigh Hayden ◽  
Jemila S Hamid ◽  
Jayna Holroyd-Leduc ◽  
...  
Keyword(s):  
Older Adults ◽  
Chronic Disease ◽  
Randomised Controlled Trial ◽  
Disease Management ◽  
Chronic Conditions ◽  
Controlled Trial ◽  
Management Tool ◽  
Self Management ◽  
Plain Language ◽  
Randomised Controlled

IntroductionIn response to the burden of chronic disease among older adults, different chronic disease self-management tools have been created to optimise disease management. However, these seldom consider all aspects of disease management are not usually developed specifically for seniors or created for sustained use and are primarily focused on a single disease. We created an eHealth self-management application called ‘KeepWell’ that supports seniors with complex care needs in their homes. It incorporates the care for two or more chronic conditions from among the most prevalent high-burden chronic diseases.Methods and analysisWe will evaluate the effectiveness, cost and uptake of KeepWell in a 6-month, pragmatic, hybrid effectiveness–implementation randomised controlled trial. Older adults age ≥65 years with one or more chronic conditions who are English speaking are able to consent and have access to a computer or tablet device, internet and an email address will be eligible. All consenting participants will be randomly assigned to KeepWell or control. The allocation sequence will be determined using a random number generator.Primary outcome is perceived self-efficacy at 6 months. Secondary outcomes include quality of life, health background/status, lifestyle (nutrition, physical activity, caffeine, alcohol, smoking and bladder health), social engagement and connections, eHealth literacy; all collected via a Health Risk Questionnaire embedded within KeepWell (intervention) or a survey platform (control). Implementation outcomes will include reach, effectiveness, adoption, fidelity, implementation cost and sustainability.Ethics and disseminationEthics approval has been received from the North York General Hospital Research and Ethics Board. The study is funded by the Canadian Institutes of Health Research and the Ontario Ministry of Health. We will work with our team to develop a dissemination strategy which will include publications, presentations, plain language summaries and an end-of-grant meeting.Trial registration numberNCT04437238.

scholarly journals EFFICHRONIC study protocol: a non-controlled, multicentre European prospective study to measure the efficiency of a chronic disease self-management programme in socioeconomically vulnerable populations

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e032073
Author(s):  
An L D Boone ◽  
Marta M Pisano-Gonzalez ◽  
Verushka Valsecchi ◽  
Siok Swan Tan ◽  
Yves-Marie Pers ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Vulnerable Populations ◽  
Chronic Conditions ◽  
Healthcare Services ◽  
Management Programme ◽  
Self Management ◽  
The European Union ◽  
Scientific Publications ◽  
General Data Protection Regulation ◽  
The Uk

IntroductionMore than 70% of world mortality is due to chronic conditions. Furthermore, it has been proven that social determinants have an enormous impact on both health-related behaviour and on the received attention from healthcare services. These determinants cause health inequalities. The objective of this study is to reduce the burden of chronic diseases in five European regions, hereby focusing on vulnerable populations, and to increase the sustainability of health systems by implementing a chronic disease self-management programme (CDSMP).Methods and analysis2000 people with chronic conditions or informal caregivers belonging to vulnerable populations, will be enrolled in the CDSMP in Spain, Italy, the UK, France and the Netherlands. Inclusion of patients will be based on geographical, socioeconomic and clinical stratification processes. The programme will be evaluated in terms of self-efficacy, quality of life and cost-effectiveness using a combination of validated questionnaires at baseline and 6 months from baseline.Ethics and disseminationThis study will follow the directives of the Helsinki Declaration and will adhere to the European Union General Data Protection Regulation. The project’s activities, progress and outcomes will be disseminated via promotional materials, the use of mass media, online activities, presentations at events and scientific publications.Trial registration numberISRCTN70517103; Pre-results.

scholarly journals PROMOTING SUCCESSFUL CHRONIC DISEASE SELF-MANAGEMENT THROUGH COMMUNITY-BASED INTERVENTIONS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S68-S69
Author(s):  
Tiffany R Washington ◽  
Laura N Gitlin ◽  
Matthew L Smith
Keyword(s):  
Older Adults ◽  
Chronic Disease ◽  
Chronic Conditions ◽  
Health Management ◽  
Negative Impact ◽  
Self Management ◽  
Community Based Interventions ◽  
Community Based ◽  
Factors Affecting ◽  
Management Interventions

Abstract Persistent chronic conditions are among the top leading causes of death in the U.S. The majority of older adults live with two or more chronic conditions. When poorly managed, chronic conditions can result in negative psychosocial and health outcomes such as low quality of life, diminished mood, workforce withdrawal, high healthcare utilization, and disability. Fortunately, chronic disease self-management interventions show promise in reducing the negative impact of chronic conditions on health status. This symposium will highlight formative work and recent findings of community-based interventions that promote successful self-management. To start, presenter one will describe findings from four studies that constitute the formative work necessary to inform implementation of self-management interventions in community and healthcare settings. Next, presenter two will report findings from an effectiveness trial of a technology-based intervention to support hypertension self-management. Then, presenter three will describe findings on the feasibility of a Health Passport tool to promote self-health management among individuals with physical limitations. Finally, presenter four will describe factors affecting attendance among African Americans with arthritis who participated in a national dissemination of Chronic Disease Self-Management Education programs. Collectively, these presentations will provide practical evidence and science-based recommendations for ways to increase successful chronic disease self-management and ultimately improve population health among older adults.

Chronic disease self-management in patients living in lower socio-economic areas: A WA perspective

2003 ◽  
Vol 9 (3) ◽  
pp. 150 ◽  
Author(s):  
Marny Lishman
Keyword(s):  
Type 2 Diabetes ◽  
Cardiovascular Disease ◽  
General Practice ◽  
Chronic Disease ◽  
Chronic Conditions ◽  
Self Management ◽  
Management Project ◽  
General Practices ◽  
Additional Support

The WA HealthPartners self-management project involves patients over 50 with Type 2 diabetes and/or cardiovascular disease who live in the lower socio-economic areas of Perth. This paper will explore the challenges and successes in trying to recruit GPs and their patients to the HealthPartners program. The paper also outlines the process and progress of the five HealthPartners interventions and the strategies used to ensure sustainability. HealthPartners now have over 12 general practices on board with over 150 general practice patients enrolled in the project. In addition, over 100 people regularly attend the Live Life Club. The growing number of referrals into the project are indicative of the need for additional support for patients with chronic conditions.

The process of implementing the Stanford Model Chronic Disease Self-Management Program: The Northern Hospital experience

2003 ◽  
Vol 9 (3) ◽  
pp. 127 ◽  
Author(s):  
M Murph y ◽  
J Saunder s ◽  
M Campbel l ◽  
B Jackso n ◽  
D Berlowit z
Keyword(s):  
Chronic Disease ◽  
Adjuvant Therapy ◽  
Chronic Conditions ◽  
Management Program ◽  
Self Management ◽  
Research Centre ◽  
Australian Population ◽  
Admission Rates ◽  
Successful Program ◽  
Stanford Model

In March 2002, The Northern Clinical Research Centre (NCRC), Epping, implemented the Stanford model Chronic Disease Self-Management Program (CDSMP). The NCRC is the first health facility to implement the CDSMP for all cause chronic conditions in the northern suburbs of Melbourne. This paper outlines the establishment, marketing, co-ordination and personnel for a successful program as identified by the NCRC. Barriers to participation in a program were identified by the NCRC and steps to minimise these were implemented. The evaluation of this program in a scientific manner enables the effect of this adjuvant therapy to be examined in the Australian population. Fifty-two participants have graduated from the CDSMP at The Northern Hospital since the program commenced. This paper reviews the unplanned re-admission rates for people who have participated in the CDSMP as part of an ongoing study.

scholarly journals The Effectiveness of a Chronic Disease Self-Management Program for Elderly People: a Systematic Review

2020 ◽  
Author(s):  
Khairunnisa Mansoor ◽  
Hussain Maqbool Ahmed Khuwaja
Keyword(s):  
Systematic Review ◽  
Chronic Disease ◽  
Elderly People ◽  
Chronic Conditions ◽  
Experimental Studies ◽  
Health Behaviours ◽  
Chronically Ill ◽  
Management Program ◽  
Self Management ◽  
The Impact

Introduction: Elderly population is increasing in Pakistan. Majority of people aged 50 – 64, suffer from two or more chronic conditions. Care of elderly people is sub-optimal. Healthcare system has limited resources to provide healthcare support to elderly people. Thus, there is need to empower the elderly to self-manage their health conditions. Chronic Disease Self-Management Program (CDSMP) is the most widely accepted self-management patient education program. It is designed to help people to gain confidence and skills to better manage their chronic conditions. Evidence of the effectiveness of CDSMP specifically for elderly people aged 60 years and above is lacking. Therefore, the aim of this systematic review was to determine the effects of the program among chronically ill elderly people. Methods: MEDLINED, CINHAL, EMBASE, PSYINFO, JBI and ASSIA were searched between April and May, 2020 for studies that tested the effects of generic CDSMP. A total of 750 articles were identified, of which 5 were included in the core review (four randomized controlled trials and one quasi-experimental).  Results: Eligible 5 studies yielded 2971 participants (mean aged 60.4 to 76.0 years). Elder people who participated in CDSMP improved their self-efficacy to manage disease in general and to manage symptoms. The effects on health status were mixed. Self-rated health and health distress showed significant improvement. Some health behaviours showed improvement, particularly exercise component showed significant improvement. For health services utilization, there was no improvement.  Conclusion: The result of this review suggests that CDSMP is beneficial for elderly people who attended the structured CDSMP either through a trained care provider or layman. Experimental studies in low and middle income countries, with large sample sizes are suggested to further understand the impact of CDSMP.  

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