Living with Juvenile Idiopathic Arthritis: Children's Experiences of Participating in Home Exercise Programmes

2009 ◽  
Vol 72 (8) ◽  
pp. 357-365 ◽  
Author(s):  
Rachel De Monte ◽  
Sylvia Rodger ◽  
Fiona Jones ◽  
Sarah Broderick
Keyword(s):  
Juvenile Idiopathic Arthritis ◽  
Physical Disabilities ◽  
Home Exercise ◽  
Future Research ◽  
Structured Interviews ◽  
Social Emotional ◽  
Children’S Perspectives ◽  
Exercise Programmes ◽  
Time Required

Juvenile idiopathic arthritis (JIA) is used to describe the different subgroups of arthritis in children. JIA is the most common chronic rheumatic condition in children. The long-term consequences are not limited to physical disabilities but also have an impact on the child's social, emotional and cognitive development. Home exercise programmes are a major part of the complex treatment regimen for JIA. Research to date is limited in providing insights into children's perspectives about JIA. This paper describes a qualitative study undertaken to identify children's perceptions about their participation in home exercise programmes. Using semi-structured interviews, the perspectives of 13 children (aged 8–16 years) about their experiences of living with JIA and specifically about participating in therapist-prescribed exercise programmes were investigated. Two major themes highlighted the pervasive impact of JIA on the children's lives. First, the children described living with JIA and associated feelings of ‘being different’. Secondly, they discussed their understanding of home exercise programmes and the barriers and facilitators to participation. Key barriers were having better things to do, time required, laziness, boredom, forgetfulness and pain. Facilitators included the incorporation of exercises into everyday routines, making them fun and having rewards. Clinical implications and avenues for future research are also outlined.

scholarly journals 346 How Do we Increase Adherence to Home Exercise Programmes? Interviews with Older Adults and Physiotherapists

2019 ◽  
Vol 48 (Supplement_3) ◽  
pp. iii17-iii65
Author(s):  
Siti Khalijah ◽  
Suzanne Timmons
Keyword(s):  
Older Adults ◽  
Cardiovascular Health ◽  
Home Exercise ◽  
Video Content ◽  
Structured Interviews ◽  
Timed Up And Go ◽  
Convenience Sample ◽  
Improve Compliance ◽  
Exercise Programmes ◽  
Purposive Sample

Abstract Background Regular exercise and physical activity can maintain function and cardiovascular health, and prevent cognitive decline, in older adults. However, studies show that there is often poor adherence to home exercise programmes (HEP). The purpose of this study was to explore how HEP are perceived by both older adults and physiotherapists. Methods A convenience sample of 28 older adults attending outpatient physiotherapy clinics were given an exercise journal to record their adherence to the HEP prescribed by their physiotherapists for six weeks. Subsequently, semi-structured interviews were conducted with a purposive sample, and the corresponding prescribing physiotherapists, to achieve maximal variation in terms of HEP adherence, age and sex. The interviews were audio recorded, transcribed, and simple content analysis performed. Results Fourteen participants returned their exercise journal. Median age was 80; half were female; median Berg Balance Score and Timed-up-and-Go-Test were 49 and 16 seconds respectively. Participants exercised a median 79.8% of the prescribed dose, or 5.6 days per week. Seven older adults were interviewed; about half had a positive attitude towards exercise. They were also moderately positive about their HEP (comments ranged from “doable” and “nothing bad about it” to “enjoyable”). Barriers included time, mood, boredom, remembering to do the HEP, and variable health status. Enablers included simple instructions and design, family encouragement, and sense of achievement. Physiotherapists (n=5) perceived that many older adults aren’t compliant with HEPs, but there was some therapeutic nihilism (“you can’t force them”). Their HEP instructions varied from verbal to written instructions/diagrams; one physiotherapist used individualised video content. Notably, participants with good adherence understood their HEP well in terms of content and purpose, although this may be cause or effect. Conclusion To improve compliance with HEP, healthcare professionals need to take time to motivate the recipient, simplify their instructions, and trouble-shoot potential barriers at the time of prescription.

Perspectives and Experiences Related to Physical Activity of Elders in Long-Term-Care Settings

2013 ◽  
Vol 21 (1) ◽  
pp. 33-50 ◽  
Author(s):  
Lorraine J. Phillips ◽  
Marcia Flesner
Keyword(s):  
Physical Activity ◽  
Assisted Living ◽  
Situational Factors ◽  
Home Exercise ◽  
Future Research ◽  
Exercise Programs ◽  
Term Care ◽  
Supervised Exercise ◽  
Group Interviews

This qualitative study investigated individual and situational factors influencing physical activity (PA) practices of elders in residential-care/assisted-living (RC/ AL) communities. This article describes the results of focus-group interviews involving 47 residents across 6 RC/AL settings. Thematic analysis revealed 6 themes: staying active, past PA experiences, value of PA, barriers to PA, strategies to facilitate PA, and support needs to promote PA. Staying active meant walking indoors and out, attending chair-exercise programs, performing professionally prescribed home exercises, and using available exercise equipment. Past PA experiences shaped current preferences and practices. Participants agreed that exercise helped maintain physical functioning but recounted cognitive and situational barriers to PA. Lack of dedicated exercise space and short corridors hampered efforts to stay active. Participants wished for individualized home exercise programs and supervised exercise sessions. Future research should examine the extent to which the physical environment and PA programming in RC/AL communities affect elders’ PA.

scholarly journals In the eye of a quiet storm: A critical incident study on the quarantine experience during the coronavirus pandemic

PLoS ONE ◽  
2021 ◽  
Vol 16 (2) ◽  
pp. e0247121
Author(s):  
Ilaria Durosini ◽  
Stefano Triberti ◽  
Lucrezia Savioni ◽  
Gabriella Pravettoni
Keyword(s):  
Critical Incident ◽  
Social Contact ◽  
Future Research ◽  
Critical Events ◽  
Structured Interviews ◽  
Positive Events ◽  
Everyday Activities ◽  
Italian Government ◽  
External Stimuli

Objective In 2020, the COVID-19 appeared in Italy with an exponential transmission capacity and serious consequences for the whole population. To counter the spread of the virus, the Italian government has adopted an extensive lockdown, forcing citizens to stay at home and avoid social contact. The COVID-19 quarantine represents a unique phenomenon in the recent centuries, and its long-term consequences on people’s lives and mental health are still to be understood. This study aimed to explore significant experiences of people who did not contract the virus, yet experienced the quarantine as a potentially stressful condition. Methods Italians who did not contract the COVID-19 were invited to participate in semi-structured interviews employing the Critical Incident Technique. Interviews were designed to capture the significant experiences related to the lockdown period in Italy. Participants were asked to describe the most significant (1) negative and (2) positive critical events that they personally experienced during the ongoing quarantine. Such events were meant to provide information on their experience of the quarantine as a whole. The audio-taped interviews were transcribed verbatim and analyzed following Critical Incident Technique’s indications. Results Twenty two participants described a total of 43 critical events, including 22 negative episodes and 21 positive events experienced during the COVID-19 quarantine. Three categories emerged from the negative episodes and four categories emerged from the positive events described by the participants. Relevant themes both positive and negative concerned mostly relationships (with partners, family, and friends), and the alteration of everyday activities, Also a specific “sensation of emergency” that the participants felt during the pandemic emerged, as an emotionally-charged response to quarantine-related external stimuli. Conclusions To our knowledge this is the first in-depth qualitative study investigating the significant negative and positive events that people experienced during the COVID-19 quarantine. Future research could employ analogous event recollection methods but focus on other populations (e.g., fragile subjects or on other national contests), in order to extend the information on the quarantine experience and its possible long-lasting effects.

scholarly journals Barriers to and Motives for Engagement with respect to Exercise Programmes for Chronic Disease Management

2021 ◽  
Author(s):  
Alison Bourke ◽  
Vikram Niranjan ◽  
Raymond O’Connor ◽  
Catherine Woods
Keyword(s):  
Future Development ◽  
Qualitative Interviews ◽  
Intervention Development ◽  
Premature Death ◽  
Physical And Mental Health ◽  
Structured Interviews ◽  
Factors Affecting ◽  
Exercise Programmes ◽  
Major Factors

Abstract Background: Insufficient physical activity (PA) is a leading risk factor for premature death worldwide. The Health Service Executive (HSE) National Exercise Referral Framework (NERF) aims to improve PA levels to manage NCDs. ULMedX is one such NERF centre offering an exercise-based cardiac rehabilitation (EBCR) programme with the aim of intervention development to maximise adherence for optimal health benefits. Aim: The purpose of this study was to explore participants’ experiences of the motives and barriers faced for programme commitment. Identifying areas for future development were also prioritized. Design & setting: Qualitative interviews were conducted with long-term participants and people who have dropped-out (PWDO) at ULMedX.Methods: Guided by the Theory of Planned Behaviour the 1-1 semi-structured interviews were performed, transcribed, and evaluated through thematic analysis. Results: Analysis was performed on 14 participants (50% female; mean age 67.3 years), comprising long term adherers (n=7; 13-month duration, 64% of classes) and PWDO (n=7; 2.8 month duration, 22% of classes). Three major factors affecting attendance emerged: social support, perceived outcomes from participation and practical barriers to attendance. Areas for future development included provision of evening and advanced classes, psychological support, more exercise variety, more educational seminars, new members start as their own group. Conclusion: Individuals were more likely to have had a better experience and commit to the programme if they believed involvement would benefit their physical and mental health, increase their exercise motivation by engendering a positive attitude to exercise, and that the ability to attend was within their control.

scholarly journals Collaborative innovation: catalyst for a destination’s event success

2018 ◽  
Vol 30 (6) ◽  
pp. 2499-2516 ◽  
Author(s):  
Peter Schofield ◽  
Phil Crowther ◽  
Leo Jago ◽  
John Heeley ◽  
Scott Taylor
Keyword(s):  
Success Factors ◽  
Single Case ◽  
Future Research ◽  
Multiple Perspectives ◽  
Structured Interviews ◽  
Content Type ◽  
Collaborative Innovation ◽  
Targeted Marketing

PurposeThis paper aims to contribute to theory concerning collaborative innovation through stakeholder engagement with reference to Glasgow City Marketing Bureau’s (GCMB’s) management strategies, which represent UK best practice in events procurement, leveraging and destination branding.Design/methodology/approachThe research adopts a case study design to facilitate an in-depth evaluation of the destination marketing organisation’s (DMO’s) critical success factors. Multiple perspectives on GCMB’s collaborative innovation are achieved through semi-structured interviews with senior managers from the bureau, key stakeholders and other DMOs.FindingsGCMB’s success results from long-term, extensive, collaborative engagement, a unique institutional structure and sustained political and financial support through to transformational leadership, strategic event selection and targeted marketing through “earned” distribution channels.Research limitations/implicationsThe study takes a single case study approach and focusses on GCMB’s event-led branding strategy. Given the importance but relative neglect of long-term inter-personal relationships in collaborative innovation, future research should focus on the development of social capital and adopt a longitudinal perspective.Practical implicationsThe paper provides insights into the collaborative innovation process with a range of stakeholders, which underpins GCMB’s events strategy and its leveraging of the city brand. In particular, the study highlights the need for entrepreneurial leadership and the development of long-term relationships for effective engagement with stakeholders.Originality/valuePrevious research has focussed on outcomes and neglected pre-requisites and the process of collaborative innovation between destination stakeholders. This study examines this issue from the perspective of a successful DMO and presents a conceptual framework and new engagement dimensions that address this gap in knowledge.

scholarly journals Znaczenie determinacji w nauce języka angielskiego jako obcego na poziomie zaawansowanym

Neofilolog ◽  
2021 ◽  
pp. 9-22
Author(s):  
Mirosław Pawlak ◽  
Joanna Zawodniak ◽  
Mariusz Kruk
Keyword(s):  
Individual Differences ◽  
Second Language Acquisition ◽  
Personality Trait ◽  
Future Research ◽  
Structured Interviews ◽  
Research Directions ◽  
Related Research ◽  
Future Research Directions ◽  
The Relationship

Second language acquisition (SLA) researchers have long been engaged in investigating the effect of a range of learner individual differences (IDs, e.g., motivation, anxiety and aptitude) on L2 learning and achievement. At the same time, there are no more than a few studies focusing of on learner personality and its place in SLA and the relationship between personality traits and other ID variables. One such underappreciated and thus poorly recognized personality trait is grit, understood as a combination of perseverance and passion for long-term goals. The present paper reports a study in which grit was investigated among advanced university students majoring in English with the help of a language-specific grit scale and semi-structured interviews. The empirical considerations are preceded by a small number of theoretical comments on the nature of grit and related research that was conducted to date. The paper ends with the discussion of future research directions and possible pedagogical implications.

Perceived Discrimination and Emotional Reactions in People with Different Types of Disabilities: A Qualitative Approach

2018 ◽  
Vol 21 ◽  
Author(s):  
Daniel Pérez-Garín ◽  
Patricia Recio ◽  
Alejandro Magallares ◽  
Fernando Molero ◽  
Cristina García-Ael
Keyword(s):  
Physical Disabilities ◽  
Leisure Activities ◽  
Visual Impairments ◽  
Emotional Responses ◽  
Emotional Reactions ◽  
Future Research ◽  
Hearing Impairments ◽  
Structured Interviews ◽  
Different Types ◽  
People With Physical Disabilities

AbstractThe purpose of this study is to assess the discourse of people with disabilities regarding their perception of discrimination and stigma. Semi-structured interviews were conducted with ten adults with physical disabilities, ten with hearing impairments and seven with visual impairments. The agreement between the coders showed an excellent reliability for all three groups, with kappa coefficients between .82 and .96. Differences were assessed between the three groups regarding the types of discrimination they experienced and their most frequent emotional responses. People with physical disabilities mainly reported being stared at, undervalued, and subtly discriminated at work, whereas people with hearing impairments mainly reported encountering barriers in leisure activities, and people with visual impairments spoke of a lack of equal opportunities, mockery and/or bullying, and overprotection. Regarding their emotional reactions, people with physical disabilities mainly reported feeling anxious and depressed, whereas people with hearing impairments reported feeling helpless, and people with visual impairments reported feeling anger and self-pity. Findings are relevant to guide future research and interventions on the stigma of disability.

scholarly journals Why it takes an ‘ontological shock’ to prompt increases in small firm resilience: Sensemaking, emotions and flood risk

2018 ◽  
Vol 36 (6) ◽  
pp. 712-733 ◽  
Author(s):  
Tim Harries ◽  
Lindsey McEwen ◽  
Amanda Wragg
Keyword(s):  
Climate Change ◽  
Flood Risk ◽  
Small Firms ◽  
Social Identities ◽  
Future Research ◽  
External Shocks ◽  
Structured Interviews ◽  
Information Campaigns ◽  
Low Levels

This article uses a sensemaking approach to understand small firms’ responses to the threat of external shocks. By analysing semi-structured interviews with owners of flooded small firms, we investigate how owners process flood experiences and explore why such experiences do not consistently lead to the resilient adaptation of premises. We, conclude that some of the explanation for low levels of adaptation relates to a desire to defend existing sensemaking structures and associated identities. Sensemaking structures are only revised if these structures are not critical to business identity, or if a flood constitutes an ‘ontological shock’ and renders untenable existing assumptions regarding long-term business continuity. This article has implications for adaptation to the growing risk of flooding, climate change and external shocks. Future research analysing external shocks would benefit from using a sensemaking approach and survey studies should include measurements of ‘ontological’ impact as well as material and financial damage. In addition, those designing information campaigns should take account of small firms’ resistance to information that threatens their existing sensemaking structures and social identities.

scholarly journals Perspectives of ESCAPE-Pain Programme for Older People With Knee Osteoarthritis in the Community Setting

2021 ◽  
Vol 8 ◽  
Author(s):  
Muhammad Kamil Che Hasan ◽  
Emma Stanmore ◽  
Chris Todd
Keyword(s):  
Health Care ◽  
Knee Osteoarthritis ◽  
Health Care System ◽  
Healthcare Professionals ◽  
Home Exercise ◽  
Future Research ◽  
Structured Interviews ◽  
Framework Analysis ◽  
Knee Oa ◽  
Care System

Background: Functional limitationscommonly affect patients with knee osteoarthritis (OA) which reduces quality of life. The Enabling Self-management and Coping with Arthritic Pain using Exercise (ESCAPE-pain) is an evidence-based programme identified to be suitable for adaptation for the Malaysian health care system. It is important to understand the acceptance from a sociocultural context of the ESCAPE-pain programme from the perspectives of patients with knee OA and healthcare professionals. This qualitative study aims to explore the perspectives of stakeholders to inform the adaptation of the ESCAPE-pain programme into the Malaysian health care system.Method: Semi-structured interviews using interview guides were conducted with 18 patients with knee OA and 14 healthcare professionals including nurses, physiotherapists, occupational therapists, medical doctors, and orthopedic surgeons. The data were transcribed and analyzed using framework analysis.Results: The findings show that patients and healthcare professionals positively accept the programme into their daily living activities and recommend some modifications related to the Malaysian context. This study also highlights strategies to adopt when providing ESCAPE-pain to patients with knee OA.Conclusion: The findings reveal how sociocultural considerations could facilitate uptake and engagement with the ESCAPE-pain programme for home exercise among patients with knee osteoarthritis. These findings may benefit t patients with knee OA in the Malaysian healthcare system, although future research is recommended.

Sign in / Sign up

Export Citation Format

Share Document