Taking care of oneself and others: The emotion work of women suffering from a rare skin disease

2022 ◽  
pp. 136345932110641
Author(s):  
Yannick Le Henaff ◽  
Stéphane Héas ◽  
Pascal Joly
Keyword(s):  
Chronic Illness ◽  
Skin Disease ◽  
Emotion Work ◽  
History Of ◽  
Experience Of Illness ◽  
Feeling Rules ◽  
Taking Care

In this article, we analyze the emotion work of women suffering from pemphigus, a rare skin disease. We suggest that this approach sheds new light on the upheavals caused by illness and more generally on the experience of illness itself. Our study draws on a series of 27 interviews with pemphigus patients whose average age was 57. We show that serious and chronic illness does not radically alter the feeling rules in place with close friends and family, despite the uncertainty and emotional upheaval confronting patients. The emotion work they carry out should be understood in light of roles and places established prior to the onset of the disease. Emotion work is embedded in the broader history of relationships with family and friends and prior episodes of illness help create particular configurations and expectations.

Optegninger af følelser i det militære ledelsesrum – inddragelse og unddragelse

2016 ◽  
Vol 27 (3/4) ◽  
pp. 153-171 ◽  
Author(s):  
Therese Heltberg
Keyword(s):  
Emotional Intelligence ◽  
Military Leadership ◽  
Emotion Work ◽  
Military Leader ◽  
Emotional Demands ◽  
The Military ◽  
Feeling Rules

Denne artikel omhandler optegninger af følelser i det militære ledelsesrum. Gennem en iagttagelse af tre udvalgte, empiriske case-temaer viser artiklen en udspænding imellem fordringer om at besidde og anvende emotionelle kompetencer i det militære ledelsesvirke og muligheder for at unddrage sig disse fordringer. Artiklen undersøger blandt andet, hvordan udvalgte ledelsesteknologier indgår i og bidrager til optegningerne. ENGELSK ABSTRACT: Therese Heltberg: Emotions in Military Leadership This article considers enactments of emotions in military leadership and command. It is based on three cases. The article points to some of the emotional demands on the military leader. It also demonstrates how military doctrines and procedures may enable a contextual suspension of these emotional demands. Keywords: military leadership, emotion work, feeling rules, emotional intelligence, management technologies.

scholarly journals Topical Tofacitinib: A Janus Kinase Inhibitor for the Treatment of Vitiligo in an Adolescent Patient

2021 ◽  
pp. 190-194
Author(s):  
Sineida Berbert Ferreira ◽  
Rachel Berbert Ferreira ◽  
Afonso Cesar Neves Neto ◽  
Silvana Martins Caparroz Assef ◽  
Morton Scheinberg
Keyword(s):  
Case Report ◽  
Skin Disease ◽  
Kinase Inhibitor ◽  
Effective Therapy ◽  
Janus Kinase ◽  
Jak Inhibitor ◽  
Adolescent Patient ◽  
Jak Inhibitors ◽  
Janus Kinase Inhibitor ◽  
History Of

Vitiligo is an autoimmune skin disease presenting with areas of depigmentation. Recent reports suggest that Janus kinase (JAK) inhibitors may be an effective therapy. In this case report, we show our experience with an adolescent patient with a long history of generalized and refractory vitiligo, for which treatment with topical tofacitinib, a JAK inhibitor, associated with phototherapy for 9 months, resulted in near complete repigmentation.

Sticks and Stones May Break My Bones . . . Reasoning About Illness Causality and Body Functioning in Children Who Have a Chronic Illness

PEDIATRICS ◽  
1991 ◽  
Vol 88 (3) ◽  
pp. 608-619
Author(s):  
Ellen C. Perrin ◽  
Aline G. Sayer ◽  
John B. Willett
Keyword(s):  
Chronic Illness ◽  
Age Differences ◽  
Conceptual Development ◽  
Seizure Disorder ◽  
Healthy Children ◽  
Cognitive Reasoning ◽  
Different Types ◽  
Reasoning Skills ◽  
Experience Of Illness ◽  
Different Levels

Children's concepts about illness causality and bodily functioning change in a predictable way with advancing age. Differences in the understanding of these concepts in healthy children vs children with a chronic illness have not been clearly delineated. This study included 49 children with a seizure disorder, 47 children with an orthopaedic condition, and 96 healthy children, all with normal intelligence and ranging in age from 5 to 16 years. It demonstrates systematic differences in children's general reasoning skills and in their understanding of concepts about illness causality and bodily functioning, as a function of their age and experience of illness. At all ages, children who had a condition with orthopaedic involvement reported less sophisticated general reasoning and concepts about illness than did healthy children; children with a seizure disorder reported similar general reasoning skills to those of healthy children, but considerably less sophisticated concepts about illness. children's concepts about body functioning did not differ as a function of the presence of a chronic illness. When their different levels of general cognitive reasoning were statistically controlled, children with a chronic illness had somewhat more sophisticated concepts about bodily functioning than did healthy children. Differences in conceptual development among children with different types of illnesses lead to interesting speculations with regard to the effects of particular illness characteristics on children's cognitive development.

Childhood Chronic Illness and Visual Motor Perceptual Development

1969 ◽  
Vol 36 (1) ◽  
pp. 39-42 ◽  
Author(s):  
Clyde W. Shepherd
Keyword(s):  
Chronic Illness ◽  
Early Reading ◽  
Reading Difficulty ◽  
Second Grade ◽  
Motor Tasks ◽  
Perceptual Development ◽  
Factors Associated ◽  
Childhood Chronic Illness ◽  
History Of ◽  
Visual Motor

The visual motor perceptual development of 47 second grade children having a history of chronic illness was investigated. Relationships between factors associated with the chronic illness and visual perceptual development are cited and discussed. The results suggest that children having a history of chronic illness perform significantly below expected levels on visual motor tasks and experience early reading difficulty.

scholarly journals PENGARUH PENYAKIT KRONIS DAN GAYA HIDUP TERHADAP KINERJA VERBAL FLUENCY KATEGORIK PADA LANSIA

2019 ◽  
Vol 37 (1) ◽  
Author(s):  
Jessica Alysia ◽  
Yvonne Suzy Handajani ◽  
Nelly Tina Widjaja ◽  
Yuda Turana
Keyword(s):  
Risk Factors ◽  
Cardiovascular Disease ◽  
Cognitive Impairment ◽  
Chronic Illness ◽  
Chronic Diseases ◽  
Verbal Fluency ◽  
Cross Sectional Study ◽  
Education Level ◽  
Cross Sectional ◽  
History Of

CHRONIC DISEASES AND LIFESTYLE IMPACT TO CATEGORY VERBAL FLUENCY PERFORMANCE IN ELDERLYABSTRACTIntroduction: In recent studies, chronic illness and sedentary lifestyle were found to bea risk factors for cognitive impairment. Verbal fluency (VF) is one of the most used instruments.Aim: To determine cognitive impairment using VF and its correlation with risk factors (chronic illness and lifestyle) in elderly.Method: This cross-sectional study was conducted toward 121 elderly respondents in August–September 2017 at Pusaka, West Jakarta. Cognitive impariment was assessesed using VF. VF otherwise disturbed if the value <16.03. Heart disease and stroke were determined by anamnesis. Blood pressure was determined using Riester tensimeter. that has been calibrated. Cholesterol and blood sugar were determined using laboratory result by CHOD-PAP method. Smoking was determined by asking the history of smoking. Physical activity was determined by 24-hour activity recall. Nutrition Intake was determined by food record.Results: There were 63.6% subjects wno had VF impairment. Most respondent were over 65 years old (71.9%), female (66.1%) and education level more than 6 years (72.7%). VF had a significant assosiation with education level (p=0.020; OR=3.792), and without cardiovascular disease (p=0.023; OR=0.111).Discussion: The mayority of respondents had VF impairment, lower education was consistenly as a risk factors while no history of cardiovascular disease as a protective factors of language impairment.Keywords: Chronic diseases, cognitive impairment, lifestyle, verbal fluencyABSTRAKPendahuluan: Pada beberapa penelitian terbaru ditemukan bahwa faktor risiko seperti penyakit kronis dan gaya hidup buruk meningkatkan risiko terkena gangguan fungsi kognitif. Salah satu instrumen yang sering digunakan adalah verbal fluency (VF).Tujuan: Mengetahui gambaran fungsi kognitif dengan instrumen VF dan hubungannya dengan faktor risiko (penyakit kronis dan gaya hidup) pada lansia.Metode: Penelitian potong lintang ini dilaksanakan pada 121 responden lansia pada bulan Agustus-September 2017 di Pusaka Jakarta Barat. Gangguan fungsi kognitif dinilai menggunakan instrumen VF. Verbal fluency dikatakan terganggu dengan nilai <16,03. Penyakit jantung dan stroke didapatkan dari anamnesis. Tekanan darah dari hasil pengukuran menggunakan tensimeter yang telah dikalibrasi sebelumnya. Pengukuran kolesterol dan gula darah didapatkan dari hasil laboratorium dengan metode CHOD-PAP. Merokok didapat dari anamnesis. Aktivitas fisik dinilai dari 24-hour activity recall. Asupan nutrisi dinilai dari kuisioner food record.Hasil: Hasil penelitian ini menunjukkan subjek dengan gangguan VF sebanyak 63,6%. Mayoritas responden berusia diatas 65 tahun (71,9%), dengan jenis kelamin wanita (66,1%) dan tingkat pendidikan diatas 6 tahun (72,7%). Hasil analisis menunjukan bahwa instrumen VF memiliki hubungan bermakna dengan tingkat pendidikan rendah (p=0,020; RO=3,792), dan tidak berpenyakit jantung (p=0,023; RO=0,111).Diskusi: Mayoritas responden memiliki gangguan bahasa, pendidikan rendah diketahui secara konsisten sebagai faktor risiko sementara tidak ada riwayat penyakit jantung sebagai faktor protektif untuk gangguan fungsi bahasa.Kata kunci: Gangguan fungsi kognitif, gaya hidup, penyakit kronis, verbal fluency

scholarly journals Prevalence of scabies and its associated factors among school age children in Arba Minch zuria district, Southern Ethiopia, 2018

2020 ◽  
Author(s):  
Abayneh Tunje ◽  
Chuchu Churko ◽  
Desta Haftu ◽  
Amsalu Alagaw ◽  
Eyayou Girma
Keyword(s):  
Bacterial Infection ◽  
Skin Disease ◽  
General Health ◽  
Associated Factors ◽  
School Age Children ◽  
Southern Ethiopia ◽  
School Age ◽  
The World ◽  
History Of ◽  
Considerable Impact

AbstractBackgroundScabies, a common human skin disease with a prevalence range of 0.2% to 71.4% in the world. It can have considerable impact on general health leading to illness and death not only through direct effect of its infestation and as a result of secondary bacterial infection. The aim of this study was to assess the prevalence of scabies and its associated factors among school age children in Arba Minch zuria district, Gamo zone, Southern Ethiopia.MethodsA community based cross sectional study was carried out in 845 school age children from February 20 to March 30, 2018. Multi-stage sampling technique was used to select study populations. Logistic regression an analysis was used to identify factors associated with scabies. Findings were presented using 95% CI of Crude Odds Ratios (COR) and Adjusted Odds Ratios (AOR. To declare statistical significance, p-value less than 0.05 was used.ResultA total of 825 children participated in the study with response rate of 97.6%. The overall prevalence of scabies was 16.4% [95% CI: 13.9%, 18.9%]. overcrowding index, family history of itching in the past two weeks, wealth index, knowledge of scabies, climatic zone, frequency of washing body, frequency of washing clothes, finger nails cutting practice, history of skin contact with scabies patient, washing hair more than once weekly, and sharing of clothes were significantly associated scabies disease.ConclusionIn conclusion, the prevalence of scabies in Arba Minch lies at 16.4% in the global scabies range 0.2% to 71.4%. The prevalence was highest in highlands followed by midland and then lowland. This represents a significant scabies burden which we recommend warrants health service intervention.Authors summaryScabies, a common human skin disease with a prevalence range of 0.2% to 71.4% in the world. It can have considerable impact on general health leading to illness and death not only through direct effect of its infestation and as a result of secondary bacterial infection. Conducting a research on this neglected tropical disease would contribute in designing a policies and strategies on prevention and control measures in the study area. Therefore, the aim of this study was to assess the prevalence of scabies and its associated factors among school age children in Arba Minch zuria district, Gamo zone, Southern Ethiopia.

Negotiating Responsibilities

2019 ◽  
pp. 89-99
Author(s):  
Marian A. Verkerk
Keyword(s):  
Family Member ◽  
Family Relationships ◽  
Family Care ◽  
Social Good ◽  
Moral Case ◽  
Special Responsibilities ◽  
History Of ◽  
Normative Expectations ◽  
Taking Care

In this chapter a moral case is made for family care. Two arguments are put forward in defense of this position: first, there is a moral familial responsibility and second, in taking care of a family member, a certain social good is derived that cannot be obtained otherwise. Family can be understood as a caring practice in which special responsibilities are distributed and negotiated. While family relationships count, the history of that relationship and the particulars of the situation also count in determining the moral weight of responsibilities that we have toward each other. If and how we have a particular responsibility toward a family member depends on the moral shape of the situation. Political and social considerations, such as considerations of justice and equity, are also part of this moral shape. The practice of assigning responsibilities is only intelligible against the background of existing practices and the normative expectations arising from them—practices that themselves need to be evaluated. In sum, family care can be seen as a contested practice in which responsibilities to care are negotiated.

scholarly journals GENOGRAM AND ECO-MAP AS TOOLS FOR UNDERSTANDING FAMILY CARE IN CHRONIC ILLNESS OF THE YOUNG

2016 ◽  
Vol 25 (4) ◽  
Author(s):  
Ítala Paris de Souza ◽  
Roseney Bellato ◽  
Laura Filomena Santos de Araújo ◽  
Karla Beatriz Barros de Almeida
Keyword(s):  
Chronic Illness ◽  
Young Patients ◽  
Family Care ◽  
Data Organization ◽  
Family Organization ◽  
Adolescent Cancer ◽  
The Family ◽  
History Of ◽  
Analytical Tools ◽  
Depth Interviews

ABSTRACT The aim of this study was to understand family organization in care nucleus and supporting networks for families of young patients who experienced childhood kidney disease and adolescent cancer. It is a situational study using the history of life by means of in-depth interviews and observation. A genogram and an eco-map were used as analytical tools for data organization and analysis. The genogram showed family composition and the relationships established among its members and the care nucleus, strengthening the continuing and prolonged care required by the youth. The eco-map contrasted the punctual and unlinked work of the supporting network with the implicated, affective, and continuing work from the base network participation in the illness experienced by the youth. These tools allow health professionals to know the family organization in care, and the resources and networks with which they count on for support through the experience of a chronic illness.

scholarly journals What's in a Name? Can Mullein Weed Beat TB Where Modern Drugs Are Failing?

2011 ◽  
Vol 2011 ◽  
pp. 1-7 ◽  
Author(s):  
Eibhlín McCarthy ◽  
Jim M. O'Mahony
Keyword(s):  
Skin Disease ◽  
Pathogenic Bacteria ◽  
Mycobacterial Disease ◽  
Verbascum Thapsus ◽  
Medicinal Use ◽  
History Of ◽  
Common Mullein

Common mullein weed (Verbascum thapsus) has a large number of synonyms and old local “nick names” which connect the plant with mycobacteria. A strong history of medicinal use has been uncovered for the treatment of tuberculosis, tubercular skin disease, leprosy, and mycobacterial disease in animals. Here, we examine problems encountered in treating such diseases today, the historical and scientific links between mullein and pathogenic bacteria, and the possibility that this common weed could harbour the answer to beating one of the world's biggest infectious killers.

“To Help a Million Sick, You Must Kill a Few Nurses”: Nurses’ Occupational Health, 1890–1914

2012 ◽  
Vol 20 (1) ◽  
pp. 14-45 ◽  
Author(s):  
Deborah Palmer
Keyword(s):  
Occupational Health ◽  
Health Risk ◽  
Local History ◽  
National Context ◽  
Health Issues ◽  
Cultural Issues ◽  
History Of ◽  
The Subject ◽  
Experience Of Illness

Although nursing is recognized today as a serious occupational health risk, nursing historians have neglected the theme of occupational health and individual nurses’ experience of illness. This article uses the local history of three case study institutions to set nurses’ health in a national context of political, social, and cultural issues, and suggests a relationship between nurses’ health and the professionalization of nursing. The institutions approached the problem differently for good reasons, but the failure to adopt a coherent and consistent policy worked to the detriment of nurses’ health. However, the conclusion that occupational health was somehow neglected by contemporary actors was, nevertheless, erroneous and facilitated omission of the subject from historical studies concentrating on professional projects and the wider politics of nursing. This article shows that occupational health issues were inexorably connected to these nursing debates and cannot be understood without reference to professional projects.

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