scholarly journals GENOGRAM AND ECO-MAP AS TOOLS FOR UNDERSTANDING FAMILY CARE IN CHRONIC ILLNESS OF THE YOUNG

2016 ◽  
Vol 25 (4) ◽  
Author(s):  
Ítala Paris de Souza ◽  
Roseney Bellato ◽  
Laura Filomena Santos de Araújo ◽  
Karla Beatriz Barros de Almeida
Keyword(s):  
Chronic Illness ◽  
Young Patients ◽  
Family Care ◽  
Data Organization ◽  
Family Organization ◽  
Adolescent Cancer ◽  
The Family ◽  
History Of ◽  
Analytical Tools ◽  
Depth Interviews

ABSTRACT The aim of this study was to understand family organization in care nucleus and supporting networks for families of young patients who experienced childhood kidney disease and adolescent cancer. It is a situational study using the history of life by means of in-depth interviews and observation. A genogram and an eco-map were used as analytical tools for data organization and analysis. The genogram showed family composition and the relationships established among its members and the care nucleus, strengthening the continuing and prolonged care required by the youth. The eco-map contrasted the punctual and unlinked work of the supporting network with the implicated, affective, and continuing work from the base network participation in the illness experienced by the youth. These tools allow health professionals to know the family organization in care, and the resources and networks with which they count on for support through the experience of a chronic illness.

scholarly journals Migrant Caregivers of Older People in Spain: Qualitative Insights into Relatives’ Experiences

2020 ◽  
Vol 17 (8) ◽  
pp. 2953
Author(s):  
María José Morales-Gázquez ◽  
Epifanía Natalia Medina-Artiles ◽  
Remedios López-Liria ◽  
José Manuel Aguilar-Parra ◽  
Rubén Trigueros-Ramos ◽  
...  
Keyword(s):  
Older People ◽  
Family Member ◽  
Culture Shock ◽  
Family Members ◽  
Family Care ◽  
Traditional Structure ◽  
Gradual Process ◽  
The Family ◽  
Phenomenological Design ◽  
Depth Interviews

The traditional structure of families is undergoing profound changes, causing the so-called “crisis of family care.” This study describes the experiences and emotions of the family member who hires migrant caregivers for the older people. This is a qualitative study using a phenomenological design with nine women participants between 53 and 72 years of age. The data collection was carried out through two in-depth interviews and a focus group. There were three major topics: (1) the women in this study recognized that they were not able to take care of the family member directly, due to their responsibilities as female workers and mothers. The fact that migrant caregivers were chosen was conjunctural, where economic reasons were more important. (2) The family members supported the caregivers by teaching them about care and also resolving conflicts produced by culture shock. (3) Trusting the caregiver was a gradual process; the family members felt a complex set of emotions (insecurity, gratitude for the help, moral obligation). In conclusion, they wanted a caregiver who would provide the elder dependent with the love and compassion that they, as daughters, would provide if they had time to do so. The family became the caregiver’s managers and assumed the responsibility of training and helping them.

Per una storia dell'affidamento dei malati psichiatrici alle famiglie: Towards a history of the family care of psychiatric patients

2009 ◽  
Vol 18 (1) ◽  
pp. 34-39 ◽  
Author(s):  
Patrizia Guarnieri
Keyword(s):  
Mental Health ◽  
Mentally Ill ◽  
Psychiatric Patients ◽  
Family Care ◽  
Special Role ◽  
The Past ◽  
The Family ◽  
History Of ◽  
Psychiatric Staff

SummaryInserting adults with psychic problems into families has recently been practiced in various European countries and also in Italy, where some mental health departments support such families. Beyond the well known story of Gheel, the etero and omofamily care of psychiatric patients has a forgotten history. Methods – On the basis of unexplored and exceptionally rich sources from the archives of the asylums in Florence, as well as of the Province di Florence, which funded assistance to the mentally ill – this research focuses on the subsidized “domestic custody” of hundreds of psychiatric patients, who had already been institutionalized. Beginning in 1866, outboarding was supported by the provincial administration in Florence with the collaboration of the asylum medical direction. Results – In the late 19th C. and in the early 20th C. prestigious psychiatrists sought alternatives to the institutionalisation. These alternatives involved varied participants in a community (the patients and their families, the administrators and the medical specialists, the neighborhood and the police). The families played a special role that historians of the psychiatry exclusively dedicated to the insane asylums have not really seen. Conclusions – The role of the families in the interaction with the psychiatric staff is not, even on a historiographical level, simply an additional and marginal chapter of the practices and of the culture of the mental health. These archival evidence contradicts some common places on the past of the Italian psychiatry before 1978, and provokes new reflections of possible relevance to the present.

scholarly journals STUDI FENOMENOLOGI FAKTOR-FAKTOR YANG BERHUBUNGAN DENGAN KEJADIAN PREEKLAMPSIA

2020 ◽  
Vol 12 (01) ◽  
pp. 20
Author(s):  
Yanti .
Keyword(s):  
Risk Factor ◽  
Health Workers ◽  
Phenomenological Approach ◽  
Maternal Knowledge ◽  
Central Java ◽  
Work Area ◽  
The Family ◽  
History Of ◽  
Hypertension Knowledge ◽  
Depth Interviews

ABSTRAKPendahuluan: Preeklampsia merupakan salah satu penyebab tingginya angka kematian ibu (AKI) di Indonesia. Angka kejadian preeklampsia di Jawa Tengah pada tahun 2018 sebesar 8%, Boyolali merupakan salah satu dari sepuluh wilayah penyumbang AKI teringgi di Jawa Tengah, dengan kejadian preeklampsia sebanyak 33,4% (5 kasus), hal ini menyebabkan preeklampsi menempati urutan pertama penyebab kematian ibu. Faktor yang dapat mempengaruhi kejadian preeklampsia adalah usia, paritas, riwayat preeklampsia, riwayat hipertensi, pengetahuan, dan persepsi Ibu, kebiasaan dan dukungan dari keluarga. Penelitian ini untuk mengetahui fenomena faktor-faktor yang berhubungan dengan kejadian preeklampsia di wilayah kerja Puskesmas Ampel Boyolali Jawa tengah. Metode Penelitian: Penelitian ini adalah penelitian kualitatif dengan pendekatan deskriptif fenomenologi. Informan penelitian terdiri dari informan utama yaitu ibu yang mengalami preeklampsia selama kehamilannya sebanyak 5 orang dan informan pendukung yang terdiri dari 5 tenaga kesehatan, 2 kader kesehatan dan 8 anggota keluarga dari informan utama. Teknik pengumpulan data dilakukan dengan cara wawancara mendalam dan studi dokumentasi. Analisis penelitian ini menggunakan teknik Miles dan Hubberman (1992) dengan analisis tematik. Hasil dan pembahasan: Ada 4 tema sebagai hasil dari penelitian ini yaitu faktor-faktor yang mempengaruhi kejadian preeklampsia, terdiri dari usia ibu, paritas, Riwayat Kesehatan dan kebiasaan ibu. Simpulan: Ibu yang mengalami preeklampsia mayoritas memiliki karakteristik (usia, paritas), riwayat kesehatan dan kebiasaan yang beresiko. Dengan melakukan pendampingan selama masa kehamilan kepada ibu hamil yang beresiko diharapkan dapat menghindari komplikasi yang dapat terjadi akibat keterlambatan penanganan serta mengoptimalkan pemberian edukasi tentang preeklampsia untuk meningkatkan pengetahuan ibu. Kata kunci: Preeklamsia, Fenomenologi. PHENOMENOLOGY STUDY OF THE RISK FACTOR THAT RELATED WITH PREECLAMPSIA ABSTRACTIntroduction : Preeclampsia is one of the causes of the highly maternal mortality (MMR) in Indonesia. The incidence of preeclampsia in the Central java in 2018 was 8%. Boyolali which was one of the ten highest contributor to MMR in Central Java, the incidence of preeclampsia was 33,4% (5 cases), this led to preeclampsia being the first cause of maternal death. Factors that can influence the incidence of preeclampsia are age, parity, history of preeclampsia, history of hypertension, knowledge, and mother's perception, habits and support from the family. This research was to describe the phenomenon of the risk factor related with preeclampsia in the work area of Ampel Public Health Center, Boyoali, Central Java. Research method: This is a qualitative research with a descriptive phenomenological approach. The informants of the study consisted of the main informants, namely mothers who had preeclampsia during their pregnancy as many as 5 people and supporting informants consisting of 5 health workers, 2 health cadres and 8 family members from the main informants. Data collection techniques were carried out by in-depth interviews and documentation studies. The analysis of this study uses the techniques of Miles and Hubberman (1992) with thematic analysis.Result and discussion: The results of the study were identified 4 themes namely factors that influence the incidence of preeclampsia, women’s age, parity, history of health, and women,s daily activity. Conclusion: Mothers who experience preeclampsia have the majority characteristics (women age, parity), history of health and risky habits. By providing assistance during pregnancy for pregnant women who are at risk wish to avoid complications that can occur due to delays in handling and optimizing the provision of education about preeclampsia to improve maternal knowledge. Keywords: Preeclampsia, Phenomenology

scholarly journals Maternal Perception about Neonatal Jaundice in Eastern Nepal: A Qualitative Study

2017 ◽  
Vol 16 (1) ◽  
pp. 1-6 ◽  
Author(s):  
Dinesh Dharel ◽  
Asmita Bhattarai
Keyword(s):  
Neonatal Jaundice ◽  
Neonatal Period ◽  
Health Workers ◽  
District Hospital ◽  
Remedial Measure ◽  
Beliefs And Practices ◽  
The Family ◽  
History Of ◽  
Evil Spirits ◽  
Depth Interviews

Background: Jaundice is a common problem in newborn babies and mothers have different misconceptions about it in Nepal. This study was conducted to explore mother’s perception about the causes, recognition, management and outcome of neonatal jaundice.Methodology: In-depth interviews were conducted with 32 mothers of infants under six months of age with a history of jaundice in the neonatal period attending the outpatient department of Ilam District Hospital. Audio-taped data were transcribed and analyzed thematically.Results: Most of the mothers recognized jaundice in babies from yellow skin but some noticed it after being alerted by health workers or other people. They perceived jaundice in neonates as a serious condition. However, they were unclear about the cause and attributed it to breach in food restrictions, lack of hygiene or effect of evil spirits. Foods consumed by mothers during and after pregnancy were of concern, not only as a cause but also a remedial measure of jaundice. They usually resorted to traditional measures of avoiding certain foods and reported that health workers did not offer specific remedies and that some health workers even approved such practices. The perceptions of mothers were greatly influenced by family and societal beliefs and practices such as applying oil, sunbathing or avoiding various foods by mothers, often irrespective of advice from health workers. Mother-in-law and the health worker have had the prominent influence in mother’s perception.Conclusion: The perceptions of mothers regarding recognition, seriousness, causes and treatment of jaundice in their newborn babies were mostly guided by their own misconceptions and experiences. However, the family and societal beliefs apparently had a big influence.

Some Historical Implications of Kinship Organization for Family-based Politics in the Brazilian Northeast

1979 ◽  
Vol 21 (2) ◽  
pp. 262-292 ◽  
Author(s):  
Linda Lewin
Keyword(s):  
Extended Family ◽  
Civilizing Mission ◽  
Common Life ◽  
Family Organization ◽  
Patriarchal Family ◽  
The Family ◽  
History Of ◽  
Family Based ◽  
The One ◽  
Brazilian Northeast

The still modest literature devoted to the history of the family in Brazil offers two conflicting interpretations of elite family organization. On the one hand, scholars have often ascribed an exaggerated organizing propensity to the elite extended family or parentela. Gilberto Freyre's early identification of ‘patriarchal cohesion’ as the foundation of Brazilian national organization persisted as the conventional wisdom until very recently. For Freyre, the elite patriarchal family assumed a ‘civilizing’ mission by imposing solidarity and order in an otherwise disorganized social milieu. Other commentators have been less impressed with the elite family's achievements over time. For them, Brazil's great families were disorganized, destructively violent, and even ‘schools of vice.’ Oliveira Viana, who probably best summed up the limitations of elite family organization, argued that the extended family (clã parental) lacked a common life except in crisis situations when its solidarity was only ephemerally evident.

The Prevalence of Hereditary Antithrombin-III Deficiency in Patients with a History of Venous Thromboembolism

1985 ◽  
Vol 54 (04) ◽  
pp. 744-745 ◽  
Author(s):  
R Vikydal ◽  
C Korninger ◽  
P A Kyrle ◽  
H Niessner ◽  
I Pabinger ◽  
...  
Keyword(s):  
Venous Thrombosis ◽  
Antithrombin Iii ◽  
Positive Family History ◽  
Normal Range ◽  
The Family ◽  
History Of ◽  
Antithrombin Iii Deficiency ◽  
Recurrent Venous Thrombosis ◽  
Antithrombin Iii Activity ◽  
Slight Deficiency

SummaryAntithrombin-III activity was determined in 752 patients with a history of venous thrombosis and/or pulmonary embolism. 54 patients (7.18%) had an antithrombin-III activity below the normal range. Among these were 13 patients (1.73%) with proven hereditary deficiency. 14 patients were judged to have probable hereditary antithrombin-III deficiency, because they had a positive family history, but antithrombin-III deficiency could not be verified in other members of the family. In the 27 remaining patients (most of them with only slight deficiency) hereditary antithrombin-III deficiency was unlikely. The prevalence of hereditary antithrombin-III deficiency was higher in patients with recurrent venous thrombosis.

Can a Narcissist Ever Marry?: James Fisher and The Uninvited Guest

2014 ◽  
Vol 4 (1) ◽  
Author(s):  
Brett Kahr
Keyword(s):  
Clinical Material ◽  
Couple Relationships ◽  
Cocktail Party ◽  
False Self ◽  
Winter's Tale ◽  
Pathological Narcissism ◽  
The Family ◽  
History Of ◽  
Marital Partners

Few books in the burgeoning field of couple psychoanalysis have garnered as much admiration as James Fisher's The Uninvited Guest: Emerging from Narcissism towards Marriage. In this memorial essay, the author pays tribute to the late Dr Fisher and to his perennial book which explores the ways in which pathological narcissism, among other factors, inhibit the development of spousal intimacy, often destroying partnerships entirely. The author describes the creative way in which Fisher drew upon great works of literature, most notably William Shakespeare's A Winter's Tale, and T. S. Eliot's The Cocktail Party, as well as long-forgotten clinical material from Fisher's predecessors at the Family Discussion Bureau (forerunner of the Tavistock Centre for Couple Relationships), in order to understand the ways in which marital partners struggle with false self couplings. The author assesses the importance of Fisher's contribution in the context of the history of couple psychoanalysis.

Voices and Visions: Mind, Body and Affect in Medieval Writing

2018 ◽  
Author(s):  
Corinne Saunders
Keyword(s):  
Medical Humanities ◽  
Family Care ◽  
Literary Texts ◽  
Cultural Perspective ◽  
Historical Sources ◽  
Disease Treatment ◽  
History Of Disease ◽  
Health And Illness ◽  
History Of ◽  
Cultural Texts

A properly critical medical humanities is also a historically grounded medical humanities. Such historical grounding requires taking a long cultural perspective, going beyond traditional medical history – typically the history of disease, treatment and practice – to trace the origins and development of the ideas that underpin medicine in its broadest sense – ideas concerning the most fundamental aspects of human existence: health and illness, body and mind, gender and family, care and community. Historical sources can only go so far in illuminating such topics; we must also look to other cultural texts, and in particular literary texts, which, through their imaginative worlds, provide crucial insights into cultural and intellectual attitudes, experience and creativity. Reading from a critical medical humanities perspective requires not only cultural archaeology across a range of discourses, but also putting past and present into conversation, to discover continuities and contrasts with later perspectives. Medical humanities research is illuminated by cultural and literary studies, and also brings to them new ways of seeing; the relation is dynamic. This chapter explores the ways mind, body and affect are constructed and intersect in medieval thought and literature, with a particular focus on how voice-hearing and visionary experience are portrayed and understood.

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