Can drawings help assessing dementia caregivers' burden? A preliminary study

Dementia ◽  
2018 ◽  
Vol 19 (3) ◽  
pp. 661-675 ◽  
Author(s):  
Perla Werner ◽  
Hanan AboJabel
Keyword(s):  
Physical Disability ◽  
Minority Groups ◽  
Elderly Person ◽  
Self Report ◽  
Dementia Caregivers ◽  
Dementia Caregiving ◽  
Gender And Age ◽  
Israeli Arabs ◽  
Preliminary Study ◽  
Person With Dementia

The use of quantitative self-report methods for assessing the stress associated with dementia caregiving, especially among minority groups, has been lately criticized. The aim of this study was to examine whether Human Figures Drawings might provide a tool for assessing caregivers' burden. Sixty Israeli Arabs – 30 family caregivers of a person with dementia and 30 gender and age-matched non-caregivers – were asked to draw a caregiver of an elderly person with dementia and a caregiver of an elderly person with a physical disability. While no differences were found between the drawings of caregivers and non-caregivers, statistically significant differences were found between all the characteristics of the drawings depicting a caregiver of an elderly person with dementia and a caregiver of an elderly person with a physical disability, as drawn by caregivers. Several of the drawings' characteristics were significantly associated with caregiver burden. By introducing a nonverbal form of expression, Human Figures Drawings might add utility to the assessment of dementia caregivers' burden.

When Ambiguous Loss Becomes Ambiguous Grief: Clinical Work with Bereaved Dementia Caregivers

2020 ◽  
Author(s):  
Abigail Nathanson ◽  
Madeline Rogers
Keyword(s):  
Social Support ◽  
Family Functioning ◽  
Clinical Work ◽  
Ambiguous Loss ◽  
Dementia Caregivers ◽  
Dementia Caregiving ◽  
Person With Dementia

Abstract The experience of caring for someone with dementia can be heartbreaking. The losses inherent to caregiving itself can be difficult to reconcile after the death of a person with dementia, causing challenges in the bereavement stage. Although there is often significant social support to help people process the death of someone close to them, clinicians can struggle to help bereaved dementia caregivers integrate their ambiguous losses from caregiving, such as loss of roles, functions, and relationships, into a postdeath bereavement process. Many socioeconomic, personality, and family functioning factors impact an individual caregiver’s experience, and there are more global influences from the nature of dementia caregiving itself that must be understood to best support a caregiver. Using the lens of the dementia grief model and examples from a case study, this article seeks to illustrate the dynamics inherent in integrating ambiguous losses following the death of a person from dementia, and it proposes clinical goals for working effectively with this population.

scholarly journals DEVELOPING A CONCEPTUAL MODEL OF FAMILY PREPAREDNESS FOR FUTURE DEMENTIA CAREGIVING IN CHINESE FAMILIES

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S467-S467
Author(s):  
Jacky C P Choy
Keyword(s):  
Family Involvement ◽  
Family Members ◽  
Influential Factors ◽  
Spousal Caregivers ◽  
Chinese Society ◽  
Dementia Caregivers ◽  
Chinese Families ◽  
Dementia Caregiving ◽  
The Family ◽  
Person With Dementia

Abstract Dementia is a growing health challenge that demands better public preparedness. Persons with dementia often lack the capacity to make and execute plans such that family involvement in care preparation becomes necessary. It is commonly observed in Chinese societies that there are more than one family members involved in the taking care of the person with dementia. The current qualitative study aims to understand preparedness for dementia caregiving of a family as unit in a Chinese society. In-depth interviews with 10 family units of dementia caregivers were conducted. Participants (4 spousal caregivers; 44 to 80 years old; mean years of caregiving: 3.3) reflected on how prepared their families were before the caregiving began. Thematic analysis was applied to examine the family preparedness and the family dynamics throughout the caregiving journey. As opposed to a crisis-driven involvement, involvement of more family members before crisis was helpful for reducing the damage brought to the family. Furthermore, families that could align their expectation and understanding of the situation, share knowledge and resources, negotiate the allocation of caregiving duties, and provide emotional support among family members were more likely to provide proper care with minimal sacrifice in family wellbeing. Chinese families often worked as a caregiving team, yet, with uneven distribution of caregiving duties and a lack of proper communication to sustain their caregiving role healthily. Timing and quality of family involvement were more influential factors than family resources to successful adaptation to caregiving.

scholarly journals Dementia grief: A theoretical model of a unique grief experience

Dementia ◽  
2016 ◽  
Vol 16 (1) ◽  
pp. 67-78 ◽  
Author(s):  
Kesstan Blandin ◽  
Renee Pepin
Keyword(s):  
Applied Research ◽  
Theoretical Models ◽  
Therapeutic Interventions ◽  
Dementia Caregivers ◽  
Psychological States ◽  
Grief Process ◽  
High Prevalence ◽  
Research Questions ◽  
Stress Burden ◽  
Person With Dementia

Previous literature reveals a high prevalence of grief in dementia caregivers before physical death of the person with dementia that is associated with stress, burden, and depression. To date, theoretical models and therapeutic interventions with grief in caregivers have not adequately considered the grief process, but instead have focused on grief as a symptom that manifests within the process of caregiving. The Dementia Grief Model explicates the unique process of pre-death grief in dementia caregivers. In this paper we introduce the Dementia Grief Model, describe the unique characteristics of dementia grief, and present the psychological states associated with the process of dementia grief. The model explicates an iterative grief process involving three states— separation, liminality, and re-emergence—each with a dynamic mechanism that facilitates or hinders movement through the dementia grief process. Finally, we offer potential applied research questions informed by the model.

A Preliminary Study on the Development of the Child Well-being Self-Report Scale

2021 ◽  
Vol 16 (1) ◽  
pp. 35-54
Author(s):  
Eun Chae Jung ◽  
A Rin Choi ◽  
Dong Chu Kim
Keyword(s):  
Well Being ◽  
Self Report ◽  
Preliminary Study

scholarly journals Psychometric properties of the HIV/AIDS Knowledge Scale for Spanish adolescents (HIV-KS) / Propiedades psicométricas de la Escala de Conocimientos sobre VIH/SIDA para adolescentes (VIH-KS)

2009 ◽  
Vol 9 (2) ◽  
Author(s):  
José P. Espada ◽  
Tania B. Huedo-Medina ◽  
Mireia Orgilés ◽  
Roberto Secades ◽  
Rafael Ballester ◽  
...  
Keyword(s):  
Factor Structure ◽  
Discriminant Validity ◽  
Reliability And Validity ◽  
Principal Component ◽  
Self Report ◽  
Internal Reliability ◽  
Gender And Age ◽  
Aids Knowledge ◽  
Knowledge Scale ◽  
Hiv Aids

El objetivo de este trabajo consistió en desarrollar y analizar las propiedades psicométricas de una escala multidimensional para evaluar los conocimientos relacionados con el VIH/SIDA en adolescentes (Escala de conocimientos sobre VIH/SIDA, HIV-KS). Tras un estudio piloto se administró un cuestionario de 48 ítems a una muestra de 14 centros escolares de 5 provincias españolas. Se puso a prueba la estructura teórica del cuestionario mediante un análisis de componentes principales al que se le aplicó un análisis confirmatorio. Se analizó la validez convergente y discriminante y la fiabilidad de la escala y, finalmente, se procedió a comprobar su invarianza factorial en función del género y la edad con una muestra de 1216 participantes. La versión final de HIV-KS estuvo compuesta por 10 ítems distribuidos en 3 factores principales. Los factores incluidos fueron (1) Transmisión oral del VIH, (2) Efectos del VIH, y (3) Otras vías de transmisión del VIH. La escala HIV-KS muestra invarianza en función del género y la edad y buena consistencia interna. HIV-KS es una escala capaz de evaluar de forma rápida y eficaz el grado de conocimientos sobre VIH/SIDA en población adolescente.  Absctract This paper aims to describe the development process, the factor structure, the reliability and validity of a multidimensional scale to measure HIV/AIDS-related knowledge for adolescents (HIV/AIDS Knowledge Scale, HIV-KS). After a pilot study of the items, a questionnaire of 28 items was administered to a sample from 14 different schools in 5 counties in Spain. Firstly, Principal-component analysis was used: first, to test a theory-driven structure and second, to develop an empirically derived factor structure for HIV-KS, which was tested with a confirmatory factor analysis. Secondly, reliability and convergent and discriminant validity were examined and finally, the factorial invariance was analyzed according to gender and age with a sample of 1,216 Spanish adolescents.The final version of the HIV-KS consists of 10 items distributed across three major factors. The factors included are: (1) HIV oral transmission, (2) HIV effects, and (3) other HIV transmission methods. The HIV-KS is invariant across gender and age and shows good validity and internal reliability. HIV-KS is a capable and parsimonious self-report scale for assessing main aspects of HIV/AIDS-related knowledge for adolescents.

scholarly journals Conceptualizing caregiver workload: an exploratory study guided by NASA TLX

2019 ◽  
Vol 63 (1) ◽  
pp. 17-21
Author(s):  
R.A. Rutkowski ◽  
S. Ponnala ◽  
J. Gonzalez-Vargas ◽  
A. Gilmore-Bykovskyi ◽  
L. Block ◽  
...  
Keyword(s):  
Exploratory Study ◽  
Assessment Tool ◽  
Assessment Tools ◽  
Formal Training ◽  
Negative Outcomes ◽  
Care Needs ◽  
Dementia Caregivers ◽  
Dementia Caregiving ◽  
Nasa Tlx ◽  
As Stress

Persons with dementia (PwD) are heavily dependent on the support of informal, dementia caregivers to fulfill their day-to-day care needs. Dementia caregivers, often friends and family members of the PwD, are unpaid, non-professional individuals who take on many of the care responsibilities. Due to the lack of formal training, social support, and information resources, among other factors, dementia caregivers are often at risk for negative outcomes such as stress and burden. There have not been any comprehensive assessment tools to predict these negative outcomes. Therefore, we employ the NASA TLX dimensions to conceptualize caregiver workload. This study operationalizes the NASA TLX dimensions in the context of dementia caregiving and illustrates examples for each of the dimensions. The results indicate that the NASA TLX does not include all of the factors necessary to conceptualize caregiver workload and prescribe a need for developing a robust caregiver workload assessment tool.

scholarly journals El impacto de la valoración de la importancia en la evaluación de la calidad de vida en adolescentes chilenos

2015 ◽  
Vol 14 (2) ◽  
pp. 723
Author(s):  
Alfonso Urzúa ◽  
Alejandra Caqueo-Urízar ◽  
María Fernanda Bravo ◽  
Karen Carvajal ◽  
Claudio Vera
Keyword(s):  
Quality Of Life ◽  
Self Report ◽  
State Universities ◽  
Quantitative Methodology ◽  
The North ◽  
Calidad De Vida ◽  
Gender And Age ◽  
The Impact ◽  
The City

While self-report of overall quality of life has been widely examined, there are no studies that explore the impact of the relative importance people give to the various categories of their quality of life. Therefore, with a quantitative methodology and a co-relational transverse design, we analyze differences in the assessment when the importance given to each category is evaluated. Participants were 530 students from the city of Antofagasta in the North of Chile, aged between 15 and 18 years. They were from subsidized, public secondary schools and private and state universities in the city who were assessed using the KIDSCREEN-27 questionnaire. Results: Differences were found in the assessment of categories when results were analyzed based on gender and age and when incorporating an assessment of importance. Even when the results were not conclusive, there was evidence of a need to incorporate an importance variable when assessing quality of life.

Stability and predictive value of self-report personality traits pre- and post-electroconvulsive therapy: A preliminary study

1998 ◽  
Vol 39 (4) ◽  
pp. 231-235 ◽  
Author(s):  
Mark A Blais ◽  
John Matthews ◽  
Ronald Schouten ◽  
Sheila M O'Keefe ◽  
Paul Summergrad
Keyword(s):  
Personality Traits ◽  
Electroconvulsive Therapy ◽  
Predictive Value ◽  
Self Report ◽  
Preliminary Study

Physical Activity of Urban Community-Dwelling Older Latino Adults

2011 ◽  
Vol 8 (s2) ◽  
pp. S161-S170 ◽  
Author(s):  
David X. Marquez ◽  
Ruby Hoyem ◽  
Louis Fogg ◽  
Eduardo E. Bustamante ◽  
Beth Staffileno ◽  
...  
Keyword(s):  
Physical Activity ◽  
Urban Community ◽  
Community Dwelling ◽  
Self Report ◽  
Model Program ◽  
Latino Men ◽  
Gender And Age ◽  
Acculturation Level ◽  
Latino Adults ◽  
Healthy Activity

Background:To date, little is known about the physical activity (PA) levels and commonly reported modes of PA of older Latinos, and this information is critical to developing interventions for this population. The purpose of the current study was to examine PA assessed by self-report and accelerometer and to assess the influence of acculturation, gender, and age on the PA of urban community-dwelling older Latino adults.Methods:Participants were self-identified Latinos, primarily women (73%), and individuals aged 50 to 59 (31%), 60 to 69 (30%), and 70+ (39%). PA was measured with an accelerometer and the Community Healthy Activity Model Program for Seniors (CHAMPS) PA questionnaire.Results:Men reported engaging in, and objectively participated in, significantly more minutes of moderate/vigorous PA than women, but women reported greater light intensity household PA. Latinos aged 50 to 59 engaged in significantly more accelerometer-assessed PA than Latinos aged 60 to 69 and 70+, respectively. The majority of participants did not meet the PA Guidelines for Americans. No differences in PA were demonstrated by acculturation level. Older Latino men and women reported walking and dancing as modes of leisure PA.Conclusions:These findings suggest PA interventions should be targeted toward older Latinos, taking into account gender and age.

scholarly journals Cognitive load in intralingual and interlingual respeaking – a preliminary study

2016 ◽  
Vol 52 (2) ◽  
Author(s):  
Agnieszka Szarkowska ◽  
Krzysztof Krejtz ◽  
Łukasz Dutka ◽  
Olga Pilipczuk
Keyword(s):  
Cognitive Load ◽  
Mental Effort ◽  
Self Report ◽  
Preliminary Results ◽  
Two Measures ◽  
Preliminary Study ◽  
Over Time

AbstractIn this paper we present preliminary results of the study on the cognitive load in intralingual and interlingual respeaking. We tested 57 subjects from three groups: interpreters, translators and controls while respeaking 5-minute videos in two language combinations: Polish to Polish (intralingual) and English to Polish (interlingual). Using two measures of cognitive load: self-report and EEG (Emotiv), we found that in most cases cognitive load was higher in interlingual respeaking. Self-reported mental effort that the participants had to expend to complete the respeaking tasks was lower in the group of interpreters, suggesting some parallels between interpreting and respeaking competences. EEG measures showed significant differences between respeaking tasks and experimental groups in cognitive load over time.

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