scholarly journals DEVELOPING A CONCEPTUAL MODEL OF FAMILY PREPAREDNESS FOR FUTURE DEMENTIA CAREGIVING IN CHINESE FAMILIES

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S467-S467
Author(s):  
Jacky C P Choy
Keyword(s):  
Family Involvement ◽  
Family Members ◽  
Influential Factors ◽  
Spousal Caregivers ◽  
Chinese Society ◽  
Dementia Caregivers ◽  
Chinese Families ◽  
Dementia Caregiving ◽  
The Family ◽  
Person With Dementia

Abstract Dementia is a growing health challenge that demands better public preparedness. Persons with dementia often lack the capacity to make and execute plans such that family involvement in care preparation becomes necessary. It is commonly observed in Chinese societies that there are more than one family members involved in the taking care of the person with dementia. The current qualitative study aims to understand preparedness for dementia caregiving of a family as unit in a Chinese society. In-depth interviews with 10 family units of dementia caregivers were conducted. Participants (4 spousal caregivers; 44 to 80 years old; mean years of caregiving: 3.3) reflected on how prepared their families were before the caregiving began. Thematic analysis was applied to examine the family preparedness and the family dynamics throughout the caregiving journey. As opposed to a crisis-driven involvement, involvement of more family members before crisis was helpful for reducing the damage brought to the family. Furthermore, families that could align their expectation and understanding of the situation, share knowledge and resources, negotiate the allocation of caregiving duties, and provide emotional support among family members were more likely to provide proper care with minimal sacrifice in family wellbeing. Chinese families often worked as a caregiving team, yet, with uneven distribution of caregiving duties and a lack of proper communication to sustain their caregiving role healthily. Timing and quality of family involvement were more influential factors than family resources to successful adaptation to caregiving.

Cognitive Decline and the Changing Self in Relationship

2015 ◽  
pp. 61-75
Author(s):  
Darby Morhardt ◽  
Marcia Spira
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Cognitive Decline ◽  
Family Member ◽  
Family Members ◽  
Well Being ◽  
Family Roles ◽  
The Family ◽  
Person With Dementia ◽  
The Impact

When a member of a family is diagnosed with Alzheimer's disease, the impact of the disease reverberates throughout the relationships within the family. This paper explores the challenges and strengths within one family as members manage and cope with Alzheimer's disease. The person with dementia and his family members are individually interviewed and each person explores the consequences of the disease on personal well-being as well as the relationships within the family. The family demonstrates how dementia in one family member demands flexibility in family roles as they navigate life through the challenges of living with dementia.

When Ambiguous Loss Becomes Ambiguous Grief: Clinical Work with Bereaved Dementia Caregivers

2020 ◽  
Author(s):  
Abigail Nathanson ◽  
Madeline Rogers
Keyword(s):  
Social Support ◽  
Family Functioning ◽  
Clinical Work ◽  
Ambiguous Loss ◽  
Dementia Caregivers ◽  
Dementia Caregiving ◽  
Person With Dementia

Abstract The experience of caring for someone with dementia can be heartbreaking. The losses inherent to caregiving itself can be difficult to reconcile after the death of a person with dementia, causing challenges in the bereavement stage. Although there is often significant social support to help people process the death of someone close to them, clinicians can struggle to help bereaved dementia caregivers integrate their ambiguous losses from caregiving, such as loss of roles, functions, and relationships, into a postdeath bereavement process. Many socioeconomic, personality, and family functioning factors impact an individual caregiver’s experience, and there are more global influences from the nature of dementia caregiving itself that must be understood to best support a caregiver. Using the lens of the dementia grief model and examples from a case study, this article seeks to illustrate the dynamics inherent in integrating ambiguous losses following the death of a person from dementia, and it proposes clinical goals for working effectively with this population.

Treatment decision-making for older adults with cancer: A qualitative study

2020 ◽  
pp. 096973302094575
Author(s):  
Ni Gong ◽  
Qianqian Du ◽  
Hongyu Lou ◽  
Yiheng Zhang ◽  
Hengying Fang ◽  
...  
Keyword(s):  
Decision Making ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Members ◽  
Treatment Decision ◽  
Chinese Society ◽  
Decision Making Process ◽  
Treatment Decision Making ◽  
The Family ◽  
Older Cancer Patients

Background: Independent decision-making is one of the basic rights of patients. However, in clinical practice, most older cancer patients’ treatment decisions are made by family members. Objective: This study attempted to analyze the treatment decision-making process and formation mechanism for older cancer patients within the special cultural context of Chinese medical practice. Method: A qualitative study was conducted. With the sample saturation principle, data collected by in-depth interviews with 17 family members and 12 patients were subjected to thematic analysis. Ethical considerations: The study was approved by the ethics committees of Sun Yat-sen University. All participants provided verbal informed consent after being told their rights of confidentiality, anonymity, and voluntary participation. They had the right to refuse to answer questions and could withdraw at any time. Results: Three themes emerged: (1) complex process; (2) transformation of family decision-making power; and (3) individual compromise. Family members inevitably had different opinions during the long process of treatment decision-making for older cancer patients. The direction of this process could be regarded as an extension of the family power relationship. The patient usually compromised the decision to survive, which was made by family members. Conclusion: This study describes the treatment decision-making process of older cancer patients in the context of Chinese culture. The reasons underlying this process are related to the views on life and death and family values. An individual is a part of the family, which is often seen as the minimal interpersonal unit in Chinese society. It is significant that while emphasizing patient autonomy in the decision-making process, health professionals should also pay attention to the important roles of culture and family.

Dancing With Giants: Acquisition and Survival of the Family Firm

2006 ◽  
Vol 19 (4) ◽  
pp. 289-300 ◽  
Author(s):  
Adam Steen ◽  
Lawrence S. Welch
Keyword(s):  
Mergers And Acquisitions ◽  
Family Involvement ◽  
Family Members ◽  
Family Firm ◽  
Wine Industry ◽  
Family Perspective ◽  
The Family

In this article, we examine the responses of family companies to the emerging environment of mergers and acquisitions, specifically within the international wine industry. At issue is the question of how the family perspective influences responses of a family firm to the prospect of merger or takeover. We examine the issue through a case study of the takeover of an Australian wine producer and family firm, Peter Lehmann Wines. The case study demonstrates ways in which the family perspective is critical in driving responses, for example, in the strength and forms of opposition to one of the potential acquirers in the case, indicating just how important the preservation of a family legacy was to key family members. However, the case also illustrates how in a takeover fight the dynamics of the takeover process itself become important in determining outcomes. In addition, the case demonstrates that family involvement and influence can be maintained in spite of takeover.

Ethical aspects of researching subjective experiences in early-stage dementia

2011 ◽  
Vol 18 (5) ◽  
pp. 651-661 ◽  
Author(s):  
Hanna-Mari Pesonen ◽  
Anne M Remes ◽  
Arja Isola
Keyword(s):  
Early Stage ◽  
Family Members ◽  
Subjective Experiences ◽  
Ethical Aspects ◽  
People With Dementia ◽  
The Family ◽  
Research Interviews ◽  
Conducting Research ◽  
Person With Dementia

This article is based on a qualitative longitudinal study that followed the subjective experiences of both people living with dementia and their family members during the early stages of the illness. The purpose of this article is to describe and reflect on the ethical and methodological issues that occurred during data collection. The article focuses on the situation of the person with dementia and the family member and the role of the researcher when conducting the research interviews. Based on the results of this study, conducting research interviews with people with dementia and their family members poses several ethical and methodological challenges that must be addressed. In doing so, ethically sound dementia-specific research methods will be actively developed enhancing our understanding of living with dementia and providing new insights into the care of people with dementia and their family members.

The Family in Family Business

2011 ◽  
Vol 24 (4) ◽  
pp. 343-361 ◽  
Author(s):  
Andrea L. Santiago
Keyword(s):  
Family Involvement ◽  
Family Business ◽  
Comparative Studies ◽  
Family Members ◽  
Management Leadership ◽  
The Family ◽  
Business Experience ◽  
And Performance ◽  
Unique Circle ◽  
Circle Model

Research abounds on the nuances of family business, many comparing management, leadership, and performance of these businesses against those that are not influenced by family involvement. Although comparative studies eventually led to the development of family business definitions, the treatment of in-laws has been surreptitiously left out. In the family business, are in-laws family members, nonfamily members, or perennially in limbo? This article presents that the in-law position, at least in the Philippine setting, is precarious, necessitating a unique circle in Tagiuri and Davis’s three-circle model. The standards of treatment and the measurement of performance depend on which position the in-law occupies in that model. Knowing exactly where everyone fits into the model creates a better understanding of how one should behave for optimal family business experience.

scholarly journals The family accompaniment of persons with dementia seen through the lens of the capability approach

Dementia ◽  
2016 ◽  
Vol 18 (1) ◽  
pp. 55-79 ◽  
Author(s):  
Catherine Le Galès ◽  
Martine Bungener
Keyword(s):  
Capability Approach ◽  
Family Members ◽  
The Past ◽  
People With Dementia ◽  
The Social ◽  
The Family ◽  
And Gender ◽  
Person With Dementia ◽  
The Capability Approach

Using the capability approach initially developed by A Sen as a theoretical framework, this paper analyses both what people with dementia and their families do in response to difficulties in their daily life brought about by the disease, and the reasons they give for acting as they do. Individual and collective interviews and ethnographic observations with 15 persons with dementia and one or more of their family members were conducted. Follow-up interviews were possible for nine families. Results highlight a great diversity in ways of doing things and in accompaniment by family members. Daily adjustments are often hidden or minimized, at least at the onset of the dementia. Later, they become more frequent, repetitive and indispensable but remain influenced by the social and gender roles that existed prior to the illness. The inventiveness of families, in a context marked by various kinds of constraints, is primarily motivated by their desire to maintain the apparently intact abilities of the person with dementia but especially to preserve forms of liberty and what counted for the person, what that person valued before the disease. There are some ways of living with dementia, even when accompanied, which may long remain preferable to others, which better answer to the past and present aspirations of persons with dementia and the purposes of the accompanying persons. It is thus essential that health professionals, as well as society in general, recognize and address this issue.

scholarly journals ‘And so I took up residence’: The experiences of family members of people with dementia during admission to an acute hospital unit

Dementia ◽  
2016 ◽  
Vol 18 (1) ◽  
pp. 36-54 ◽  
Author(s):  
Kay de Vries ◽  
Jenny Drury-Ruddlesden ◽  
Chris Gaul
Keyword(s):  
New Zealand ◽  
Family Members ◽  
Acute Hospital ◽  
Hospital Unit ◽  
People With Dementia ◽  
The Family ◽  
Hospital Beds ◽  
Acute Hospital Admission ◽  
Primary Focus ◽  
Person With Dementia

It is estimated that a quarter of acute hospital beds are in use by older people with dementia at any one time. Little empirical research has been carried out that has specifically examined the day-to-day input of family members into the care of people with dementia during an acute hospital admission. In this article, we present the results of analysis of interviews with 26 family members of people with dementia about their experiences of supporting an admission of a person with dementia to an acute hospital unit in New Zealand. For all family members, the desire to support the person with dementia during their admission was at the forefront and was their primary focus. The theme, ‘And so I took up residence’, exemplifies fully the experiences of all of the family member participants. This study provides evidence that family members are a resource that may be unrecognised, untapped and unsupported in the event of hospitalisation of people with dementia.

scholarly journals 器官捐獻的家庭同意原則: 儒家倫理的現代應用

2008 ◽  
Vol 6 (1) ◽  
pp. 51-75
Author(s):  
Mingxu WANG ◽  
Wen ZHANG ◽  
Xueliang WANG
Keyword(s):  
Organ Donation ◽  
Family Involvement ◽  
Family Members ◽  
Organ Transplant ◽  
Confucian Ethics ◽  
Next Of Kin ◽  
The Family ◽  
The Gift ◽  
The Individual ◽  
The Right

LANGUAGE NOTE | Document text in Chinese; abstract also in English.從儒家倫理的視角解讀中國新實施的《人體器官移植條例》，以第8 條中“共同表示同意”為著力點，認為，儒家的家庭倫理不僅深刻地影響者中國人的思維方式和行為方式，而且至今被人們認為是構建家庭倫理的最根本原則，有著廣泛的社會基礎和現實根據。分析了儒家倫理支持器官捐獻的理據，結合案例指出：家庭的知情同意並不違背個人的知情同意；應當在儒家的家庭倫理的基礎上探討這一條例的相關問題，從而幫助完善和實施這一條例，使我國有關人體器官移植和屍體捐獻的立法更加完備，為推動器官移植技術的發展建立更為有效的法律保障機制。並提出在在條例實施過程中還有五個相關問題需要澄清和解決。Organ donation is the gift of an organ to help someone else who needs a transplant. Hundreds of people’s lives are saved each year by organ transplants. Yet the question remains: Who should give the priority in terms of donation procedures - the individual who feels a strong, personal commitment to offer his/her organ or the legal next-of-kin, i.e., the priority order of the family members? This has been greatly debated bioethical issue in China in recent years. Rather than emphasizing the right of individuals to decide what will happen after they die, or removing the burden of making a decision about organ donation from families dealing with the traumatic death of a loved one, the policy of family consent indicates the signif icant role of family in making the decision. That is to say, the consent, or lack of objection, of those closest to the patient is always sought before organs can be donated. The family involvement could avoid discomfort with the process on the one hand, but also cause conf licts when there is a disagreement between the donor and family members on the other.This paper focuses its discussion on the context and impacts of the“ Rules regarding Organ Transplant” implemented in China since 2007. Then, it turns to traditional Confucian ethics to talk about the meaning of life and Confucian concept of family to show that Confucianism would support the idea of organ transplant. To prove the claim, the paper offers two recent examples of organ donation. Organ transplant should be advocated but the rules should be tighten in order to prevent unqualified doctors and profithungry hospitals from abusing patients and organ donors.DOWNLOAD HISTORY | This article has been downloaded 301 times in Digital Commons before migrating into this platform.

scholarly journals Upaya Keluarga Dalam Penyembuhan Pasien Penyakit Jiwa; Studi Pada Pasien Penyakit Jiwa di RSJ HB. Sa’anin Padang

2016 ◽  
Vol 5 (2) ◽  
pp. 102
Author(s):  
Yenni Melia
Keyword(s):  
Mental Illness ◽  
Psychiatric Hospital ◽  
Family Involvement ◽  
Qualitative Method ◽  
Psychiatric Symptoms ◽  
Psychiatric Patients ◽  
Family Members ◽  
The Family ◽  
Mutual Communication

Madness is a symptom of a disease caused by psychiatric symptoms. Many factors become the cause of insanity, therefore need many approaches in healing. The process of healing the family involvement factor is an important factor. This study discusses family efforts to support the cure of psychiatric patients at psychiatric hospital of Prof. HB. Sa’anin. The research was conducted by qualitative method by following the steps suggested by Miles and Huberman. Data were collected using observation techniques, interviews and documentation studies. The informant consists of the main informant, the family of the mental illness patient and the supporting informant, the hospital officer. The results reveal the efforts provided by the family in the healing of mental illness patients, among others, by providing motivation to return to normal conditions. Another factor that causes healing is the economic and educational factor of family members. What is unique is that ethnic role factors have an effect on patient healing. Strategies that can be done to involve the family in healing is to establish mutual communication and the resignation nature of family members. Gila adalah gejala penyakit yang disbabkan oleh gejala kejiwaan. Banyak faktor yang menjadi penyebab kegilaan, oleh karena itu perlu banyak pendekatan dalam penyembuhannya. Dalam proses penyembuhan tersebut faktor keterlibatan keluarga adalah faktor penting dalam proses penyembuhan. Studi ini membahas tentang upaya keluarga dalam mendukung penyembuhan pasien sakit jiwa di rumah sakti jiwa Prof. HB. Sa’anin. Penelitian dilakukan dengan metode kulitatif dengan mengikuti langkah-langkah yang disarankan Miles dan Huberman. Data dikumpulkan dengan menggunakan teknik observasi, wawancara dan studi dokumentasi. Informan penelitian terdiri dari informan utama, yaitu keluarga pasien penyakit jiwa dan informan pendukung, yaitu petugas rumah sakit. Hasil penelitian mengungkapkan upaya yang diberikan oleh keluarga dalam penyembuhan pasien penyakit jiwa antara lain dengan memberikan motivasi untuk kembali ke kondisi normal. Faktor lain yang menjadi penyebab kesembuhan adalah faktor ekonomi dan pendidikan anggota keluarga. Yang unik adalah, faktor peran etnis ikut berpengaruh dalam upaya penyembuhan pasien. Strategi yang dapat dilakukan untuk melibatkan keluarga dalam penyembuhan adalah dengan menjalin komunikasi timbal balik dengan sesama anggota keluarga dan sifat pasrah anggota keluarga.

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