The psychosocial impact of congenital hand and upper limb differences on children: a qualitative study

2020 ◽  
pp. 175319342096752
Author(s):  
Lucy McDougall ◽  
Joanne Kennedy ◽  
Christopher Coombs ◽  
Anthony Penington
Keyword(s):  
Qualitative Study ◽  
Upper Limb ◽  
Point Of View ◽  
Coping Mechanism ◽  
Structured Interviews ◽  
Level Of Evidence ◽  
Face To Face ◽  
Psychosocial Concerns ◽  
Outcomes For Children ◽  
Guided Questioning

This qualitative study explored the psychosocial concerns of children born with congenital hand and upper limb differences (CHULDs) from the point of view of these children and their parents. Qualitative, in-depth, semi-structured interviews were conducted face-to-face with eight parent–child dyads. Open format questions allowed spontaneous emergence of relevant themes, followed by guided questioning. Thematic analysis of audio-recorded and transcribed interviews found that children as young as 5 years old had unique and meaningful opinions about their CHULD, of which parents were sometimes unaware. Children reported that unsolicited questions from peers caused significant stress, and this increased around the time of surgery. All children used planned responses to peers as an effective coping mechanism. Children also identified positive aspects of their difference, including an increased sense of determination and an appreciation for being unique. Strategies that may improve psychosocial outcomes for children with CHULDs are discussed. Level of evidence: IV

scholarly journals Nurses perception of pharmaceutical care practice: A qualitative approach

2020 ◽  
Vol 19 (4) ◽  
pp. 87-892
Author(s):  
Zelal Kharaba ◽  
Rozina Kousar ◽  
Yassen Alfoteih ◽  
Saira Azhar ◽  
Shujaat Ali Khan ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Pharmaceutical Care ◽  
Healthcare System ◽  
Distribution System ◽  
Care Practice ◽  
Patient Counseling ◽  
Structured Interviews ◽  
Face To Face ◽  
Care Services ◽  
Awareness Programs

Purpose: To evaluate the perception of nurses regarding pharmaceutical care services in the healthcare system of Khyber Pakhtunkhwa (KPK) Province of Pakistan.Methods: This qualitative study was implemented by conducting semi-structured interviews. For data collection, interviews (face-to-face) were conducted after developing an interview guide. The interviewees were 18 nurses and were interviewed at their nursing stations in hospitals.  Interviews were continued until the data reached a saturation point. The respondents signed a written consent form before the start of the interview.Results: From the thematic content analysis, five major themes were extracted as stated here: (a) incognizance of pharmaceutical care; (b) collaboration of nurses and pharmacists; (c) improper distribution system; (d) lack of provision of patient counseling; and (e) pharmacist’s role in reducing prescribing errors.Conclusion: Based to the findings, Pakistani nurses have poor knowledge of pharmaceutical care, thus highlighting the need for organizing pharmaceutical care awareness programs for nurses. On the other hand, nurses have a positive perception of pharmacists’ roles in the healthcare system and want to work with them. Keywords: Perception, Pharmaceutical care, Qualitative study, Nurse, Patient care

scholarly journals Aspects associated with waterpipe smoking in Iranian youths: a qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Hamid Jafaralilou ◽  
Arman Latifi ◽  
Mehdi Khezeli ◽  
Atefeh Afshari ◽  
Farahnaz Zare
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Social Relations ◽  
Eastern Mediterranean ◽  
Waterpipe Smoking ◽  
Structured Interviews ◽  
Face To Face ◽  
Cultural Aspects ◽  
Mediterranean Countries ◽  
Second Category

Abstract Background Waterpipe is one of the oldest methods of tobacco smoking, which has become the public health challenge, especially in the Eastern Mediterranean countries such as Iran. This study aimed to investigate the waterpipe smoking (WPS) in the young people of Kermanshah in 2020, using a qualitative method. Methods This was a qualitative study conducted with the approach of content analysis. Participants were young waterpipe user aged 17 to 25 years selected by purposeful sampling method in Kermanshah city, located in the west of Iran. Data were collected through semi-structured interviews in face-to-face and audio-recorded methods based on an interview guideline during June to August 2020. Then researchers transcribed verbatim and analyzed the content of the interviews thematically. Results In this study, 23 young people who were waterpipe users at the time of the study participated. The results showed that social aspects in three sub-categories were involved in WPS including “socio-cultural aspects”, “socio-environmental aspects”, and “social relations”. Individual aspects of waterpipe use as second category also consisted of two sub-categories including “motivational aspects” and “lack of psycho-protective aspects”. Conclusions It seems that the implementation of the policy of reducing access to waterpipe in public environments is effective in reducing waterpipe consumption. It is suggested that educational and interventions, based on targeted models and theories be implemented in order to increase young people’s belief and perception on dangers of WPS, and to improve their self-efficacy to smoking cessation.

scholarly journals A Qualitative Study Using Semi-Structured Interviews: Comparing the Views of Palliative Care Unit Patients and Clinicians on Corneal Donation Discussions

2022 ◽  
Author(s):  
Chirag Patel ◽  
Gregory B Crawford
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
South Australia ◽  
Corneal Opacity ◽  
Structured Interview ◽  
Palliative Care Unit ◽  
Attitudes And Beliefs ◽  
Structured Interviews ◽  
Face To Face ◽  
Corneal Donation

Abstract Background: Blindness from corneal opacity accounts for 12% of cases of blindness worldwide. There is a severe shortage of corneas for donation worldwide for transplantation and research purposes. One group of individuals who could potentially be donors are those who die within the inpatient palliative care unit. The aims of the study were to 1. determine the frequency of corneal donation discussion; 2. determine whether inpatient palliative care unit patients and clinicians were aware of the potential for corneal donation discussions and 3. explore the attitudes and beliefs of inpatient palliative care unit patients and clinicians about corneal donation. Methods: An exploratory qualitative study was designed where inpatient palliative care unit patients and clinicians were invited to a semi-structured interview. A total of 46 face to face interviews were undertaken involving inpatient palliative care unit patients (20) and clinicians (26) in three major inpatient palliative care units in South Australia. Results: Very few patient participants were asked about corneal donations during their time in palliative care. Most inpatient palliative care unit clinicians did not bring up the topic as they felt other areas of care took precedence. Inpatient palliative care unit patients thought if inpatient palliative care unit clinicians did not raise the topic, then it was not important. Conclusions: Findings suggest that patients are receptive to discussing corneal donations, but few discussions are occurring. There were some differences between patient and clinician views, such as preference about who raises the possibility of donation and when the discussion might occur.

Parents’ Perspectives on Their Child’s Music Therapy: A Qualitative Study

2020 ◽  
Vol 57 (1) ◽  
pp. 91-119 ◽  
Author(s):  
Luke Annesley ◽  
Katherine Curtis-Tyler ◽  
Eamonn McKeown
Keyword(s):  
Qualitative Study ◽  
Music Therapy ◽  
Community Setting ◽  
Positive Outcomes ◽  
Structured Interviews ◽  
Music Therapists ◽  
Outcomes For Children ◽  
The Impact ◽  
Perceived Outcomes ◽  
Inductive Thematic Analysis

Abstract This qualitative study explored parents’ perspectives on their child receiving individual music therapy in a community setting in an NHS service in London, UK. Parents of children aged 6–11 receiving or recently discharged from music therapy took part. Data were collected through semi-structured interviews which were digitally recorded, transcribed, and analyzed following procedures of inductive thematic analysis. Music therapy was generally perceived to provide a nurturing environment for children, and communication with music therapists was mostly experienced as helpful, but with some perceived challenges. Parents perceived positive outcomes of music therapy, including children becoming calmer and engaging more with musical activities at home. Understanding of music therapy was perceived as an evolving process for parents. Some parents described a need for more information prior to music therapy. The findings of this study broadly support the model in the service of working with children aged 6–11 without parents generally present during sessions. However, there were indications that, for some families, a more flexible approach might be beneficial for the child. Participants’ commentaries on perceived outcomes for children indicate potential for intervention studies investigating the impact of music therapy, while broader perceptions of the value of music therapy indicate a need for studies exploring reasons for effectiveness.

Social representation of abuse of persons with severe mental illness in Jakiri, Cameroon: A qualitative study

2020 ◽  
pp. 002076402097243
Author(s):  
Colins B Tanyuy ◽  
Chinyere M Aguocha ◽  
Emeka C Nwefoh ◽  
Mispar G Wankam
Keyword(s):  
Mental Illness ◽  
Qualitative Study ◽  
Emotional Abuse ◽  
Reasoned Action ◽  
Physical Violence ◽  
Social Representation ◽  
Structured Interviews ◽  
Face To Face ◽  
People With Mental Illness ◽  
The Social

Background: People with mental illness are vulnerable to abuse in the community. Cultural and social practices may be contributory. Aim: To explore the social representation of abuse of persons with mental illness among the inhabitants of Jakiri municipality in Cameroon. Method: This was a qualitative study based on the Theory of Reasoned Action, conducted in 2018 among 11 inhabitants of Jakiri municipality, aged above 18 years and who had lived in the town for at least 2 years. In-depth face-to-face semi-structured interviews were conducted. Data were analyzed using the basic thematic approach. Results: The belief that mental illness is incurable, a curse from the gods, a result of witchcraft, and a punishment for violation of core social norms were identified as the reasons for physical violence against persons with mental illness. Beliefs that persons with mental illness were disorganized, destructive, physically aggressive, and dependent on others were identified as reasons for emotional abuse. Conclusion: A misconception of mental illness was the major underlying factor for the abuse of persons with mental illness.

scholarly journals ‘It's a bit of a grey area’: challenges faced by stop smoking practitioners when advising on e-cigarettes

2019 ◽  
Vol 15 (1) ◽  
pp. 44-49
Author(s):  
Dayyanah Sumodhee ◽  
Rachel Povey ◽  
Nikolas Pontikos
Keyword(s):  
Qualitative Study ◽  
Structured Interviews ◽  
Safety Issues ◽  
Face To Face ◽  
Quit Smoking ◽  
Stop Smoking ◽  
Lack Of Information ◽  
Information Safety ◽  
Stop Smoking Services ◽  
Inductive Thematic Analysis

AbstractIntroductionAccording to UK guidelines, stop smoking practitioners are expected to be open and supportive towards e-cigarette users. As adequate support from practitioners can be instrumental for smokers to successfully quit smoking, it is crucial to explore the challenges that stop smoking practitioners face when advising on e-cigarette use.AimThis qualitative study explores the challenges that stop smoking practitioners face when advising patients on e-cigarettes.MethodsA qualitative study was conducted with semi-structured interviews with 10 stop smoking practitioners from four stop smoking services in London. Face to face interviews were recorded and transcribed verbatim. Inductive thematic analysis was conducted to explore practitioners' experiences when advising on e-cigarettes.FindingsTwo themes were noted: practitioners' concerns and practitioner–patient interactions. Practitioners were particularly concerned regarding the lack of information, safety issues and the maintenance of addiction linked with e-cigarettes. They emphasised the difficulty of advising on a product that they cannot prescribe. Overall, practitioners expressed the lack of confidence when advising on e-cigarettes since they were often unprepared and not able to answer patients' questions on e-cigarettes.ConclusionsStop smoking practitioners' lack of confidence and limited knowledge regarding e-cigarettes emphasises the necessity for training and guidance on e-cigarettes to improve their interactions with patients on this subject. In particular, practitioners need to be provided with clear guidance on how to counsel patients about how and where to buy e-cigarettes.

scholarly journals Perspectives and Attitudes of Patients with COVID-19 toward a Telerehabilitation Programme: A Qualitative Study

2021 ◽  
Vol 18 (15) ◽  
pp. 7845
Author(s):  
Carlos Bernal-Utrera ◽  
Ernesto Anarte-Lazo ◽  
Elena De-La-Barrera-Aranda ◽  
Laura Fernandez-Bueno ◽  
Manuel Saavedra-Hernandez ◽  
...  
Keyword(s):  
Public Health ◽  
Health Systems ◽  
Point Of View ◽  
Medical Assistance ◽  
Analysis Software ◽  
Structured Interviews ◽  
Technical Aspects ◽  
Face To Face ◽  
Public Health Systems ◽  
Objective Model

The total isolation of patients with coronavirus disease 2019 (COVID-19) requires non-face-to-face medical assistance. There is evidence of the efficacy of home treatments with exercises in patients with respiratory disorders which could become the therapeutic method of choice for the treatment and supervision of patients isolated due to infection during home confinement. This study’s objective was to analyse the experience and opinions of isolated patients with COVID-19 included in a programme of telerehabilitation exercises for 14 days and it is intended to reflect, from a qualitative point of view, the viability and usefulness of telerehabilitation tools in the management of these patients. Twenty-five participants of a telerehabilitation programme were interviewed by telephone through semi-structured interviews, following a positivist and objective model. The data were categorised and analysed through NVIVO qualitative analysis software. The information obtained was classified into four main topics (telerehabilitation programme, perception of clinical benefit, psychological aspects and level of health care) and six subtopics (technical aspects, communication, improvement aspects, exercise plan, motivation and applicability to public health systems). The telerehabilitation programme established in patients confined by COVID-19 is very well received, without considerable technical difficulties and generates physical and psychological improvements. Patients highlight the importance of applying this type of programme in public health systems.

scholarly journals How concerned significant others experience Community Reinforcement and Family Training (CRAFT) – a qualitative study

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Rikke Hellum ◽  
Randi Bilberg ◽  
Gallus Bischof ◽  
Anette Søgaard Nielsen
Keyword(s):  
Qualitative Study ◽  
Positive Reinforcement ◽  
Heavy Drinking ◽  
Significant Others ◽  
Alcohol Problems ◽  
Structured Interviews ◽  
Face To Face ◽  
The Face ◽  
Concerned Significant Others ◽  
Group Sessions

Abstract Introduction Heavy drinking causes serious harm, not only to the drinker but also to relationships and concerned significant others (CSOs). Community Reinforcement and Family Training (CRAFT) is an intervention developed to help the CSOs of substance users. The aim of this study was to investigate the drivers and aims underlying CSO participation in CRAFT, as well as their experience of the intervention itself and their module preferences. Method This is a qualitative study based on data from semi-structured interviews with 11 female help-seeking CSOs of individuals with alcohol problems. The participants were recruited from an RCT study of a variety of CRAFT delivery formats (group sessions + written material, individual sessions + written material or self-delivered CRAFT with written material only). The interviews were audio-recorded, transcribed, and analyzed by Interpretative Phenomenological Analysis. Results CSOs reported CRAFT helpful when both delivered by means of individual sessions or group sessions. The “Communication Element” in CRAFT, the module focusing on positive reinforcement and acquiring a clearer understanding of AUD, appeared to be particularly helpful elements of CRAFT. Furthermore, being met with acceptance and non-judgmental attitudes seemed to count highly for the CSOs. The written material a helpful supplement to the face-to-face interventions. The written material a helpful supplement to the face-to-face interventions. Conclusion CSOs who participated in the CRAFT intervention felt helped by its components, irrespective of delivery format.

scholarly journals Exploring the experiences of stroke patients treated with transcranial magnetic stimulation for upper limb recovery: a qualitative study

2020 ◽  
Author(s):  
Eline van Lieshout ◽  
Lilliane Jacobs ◽  
Maaike Pelsma ◽  
Rick Dijkhuizen ◽  
Anne Visser-Meily
Keyword(s):  
Transcranial Magnetic Stimulation ◽  
Qualitative Study ◽  
Upper Limb ◽  
Magnetic Stimulation ◽  
Controlled Trial ◽  
Therapeutic Benefit ◽  
Negative Consequences ◽  
Structured Interviews ◽  
Stroke Patients ◽  
Positive Experiences

Abstract Background: Transcranial magnetic stimulation (TMS) treatments have shown promise in improving arm recovery in stroke patients. Currently, little is known about patients’ experiences with TMS treatment, and this lack of knowledge may affect optimal implementation in clinical practice. The aim of this explorative study was to gain insight in the perceived effects and experiences of the design and delivery of a TMS treatment for upper limb recovery from the perspectives of stroke patients. Methods: This qualitative study was conducted as part of a randomized controlled trial (RCT) in a specialized rehabilitation center. Data were collected through face-to-face semi-structured interviews with 13 stroke patients who completed a 10-day TMS intervention for upper limb recovery. The interviews were recorded, transcribed verbatim and analyzed using thematic analysis. Results: The major themes that emerged from the patients’ feedback were the following: physical and psychological experienced effects (receiving something, sense of purpose, and recovery as a motivator), positive experiences (comfort, power of communication and information, interest and curiosity, no burden, no unpleasant aspects), concerns (uncertainty, equipment, logistics), and likeliness to participate in an RCT (personal drive and beliefs, and altruism). Important components related to the positive experience of the design and delivery of the treatment included comfort (i.e. moment of relaxation) and the sensation of a painless treatment without side-effects. Key concerns included uncertainty and anxiety about possible negative consequences and group allocation. Conclusions: This study demonstrates that TMS is well accepted by stroke patients with an upper limb paresis. Besides the expectation of a therapeutic benefit, the patients reported various psychological effects. Positive experiences, such as the provision of a short moment of relaxation each day, could have practical implications for clinical stroke rehabilitation settings aimed at improving patient satisfaction. Explanation about and feedback from routine motor recovery progression monitoring at fixed times post-stroke is also valued by patients. Negative emotions may be limited or avoided by clear, transparent and recurrent information delivery in future trials. Trial registration: NL5952 Registered November 28, 2016.

scholarly journals Mothers’ experience of caring for home-quarantined children after close contact with COVID-19 in Korea: an exploratory qualitative study

2021 ◽  
Vol 27 (3) ◽  
pp. 220-229
Author(s):  
Hyeyeon Lee ◽  
Mihui Kim ◽  
Ocksim Kim ◽  
Sue Kim ◽  
Seongmi Choi
Keyword(s):  
Qualitative Study ◽  
Thematic Analysis ◽  
Close Contact ◽  
Social Stigma ◽  
Psychosocial Issues ◽  
Structured Interviews ◽  
Face To Face ◽  
School Aged Children ◽  
The Social ◽  
Psychosocial Difficulties

Purpose: The world saw a shift into a new society consequent to the coronavirus disease 2019 (COVID-19), which made home quarantine mandatory for a person in close contact with those who tested positive. For children, however, home quarantine was not limited only to themselves but the involvement of parents, even mothers were required to quarantine. This qualitative study aims to explore and understand mothers’ experience and their related psychosocial issues while caring for their school-aged children who had to home quarantine after coming in close contact with COVID-19 positive individuals in Korea. Methods: Data were collected from October 2020 to January 2021 via in-depth, semi-structured interviews with nine mothers of children who had to home quarantine. Interviews were conducted face-to-face in an independent space near the participant’s home or workplace (n=5) or via online platforms or telephone (n=4). The data were analyzed using thematic analysis through several iterative team meetings.Results: Thematic analysis revealed the following four themes: “Unable to be relieved due to uncertain situations surrounding me,” “Blame and hurt toward me, others, and one another,” “Pulling myself together for my children in my broken daily life,” and “Changes in the meaning of life amid COVID-19.”Conclusion: The narratives show that mothers experienced psychosocial difficulties while caring for their children during home quarantine. It is necessary to reduce the social stigma toward individuals in home quarantine and establish policies to ensure the mothers’ work and family’s compatibility.

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