The Life Tape Project, an existential intervention for cancer patients: A report on perceived benefits and changes in quality of life

2006 ◽  
Vol 24 (18_suppl) ◽  
pp. 8604-8604
Author(s):  
E. H. Rosenbaum ◽  
R. W. Garlan ◽  
A. L. Siegel ◽  
S. Henderson ◽  
N. Hirschberger ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Personal Growth ◽  
Life Story ◽  
Care Program ◽  
Structured Interview ◽  
Repeated Measure ◽  
Perceived Benefits ◽  
Symbolic Immortality

8604 Background: Facing cancer, most patients struggle with mortality and threats to their emotional equilibrium and that of their families. Families may become closer, but often communication difficulties and isolation increase. The Life Tape Project (LTP) is an intervention—involving a two hour video-taped genealogy and life story in the presence of family—designed to help patients and families confront this existential crisis. An important aspect is the cultivation of Symbolic Immortality—that some important part of the person continues to exist symbolically, even after death—helping patients identify with things greater and more enduring than themselves, and providing a sense of what will remain with the family after they are gone. Observation and pilot data suggested patients receive substantial benefits from the LTP. Results from an ongoing study designed to quantify and extend these observations are reported. Method: Adults with any cancer diagnosis are recruited from the general population. Patients complete baseline questionnaires before the LT interview and follow-up packets two and ten weeks after. Measures include the FACT-G for Quality of Life (QOL) and a Perceived Benefits Questionnaire covering eight themes suggested by previous research. A final semi-structured interview probes for unwanted effects. Results: At first follow-up (N = 23 as of 1/8/06) repeated measure t-tests revealed significant increases in FACT-G Functional and QOL (Total) scales; and a majority of patients reported substantial benefits (endorsing “very” or “extremely true for me”) in at least one theme. Final interviews revealed no unwanted effects. Conclusions: The LTP is a powerful, safe, and accessible intervention that can improve family communication and connectedness, promote personal growth, and reduce existential anxiety through the creation of symbolic immortality. Requiring minimal equipment and time, it would make an excellent addition to any supportive care program. [Table: see text] No significant financial relationships to disclose.

The effectiveness of mindfulness on quality of life of women with premature menopause: a quasi-experimental study

2020 ◽  
Author(s):  
Fatemeh Pyri ◽  
Parvin Abedi ◽  
Elham Maraghi ◽  
Maryam Gholamzadeh Jashreh
Keyword(s):  
Quality Of Life ◽  
Experimental Study ◽  
Hot Flashes ◽  
Repeated Measure ◽  
Control Group ◽  
Premature Menopause ◽  
Chi Square ◽  
Quasi Experimental

Abstract Background: Premature menopause may impair the quality of life and expose women to disorders such as cardiovascular disease, osteoporosis, and depression. This study aimed to evaluate the effectiveness of mindfulness on the quality of life of women with premature menopause. Methods: This was a quasi-experimental study in which 62 women were recruited and randomly allocated in two groups of mindfulness and control. The mindfulness group received eight sessions of training. A demographic questionnaire, Menopause-Specific Quality of Life (MENQOL) and a checklist (for assessing frequency and intensity of hot flashes) were used to collect data. The quality of life, frequency, and intensity of hot flashes measured at baseline, after eight weeks and in three months follow-up. The Independent t-test, the chi-square test, and the repeated measure test were used for analyzing data. Results: The score of quality of life was significantly improved after the intervention and in three months follow-up in the mindfulness group compared to the control group (p<0.001). The scores of vasomotor, psychological, physical, and sexual domains also improved significantly in the mindfulness group compared to the control group. The severity and the frequency of hot flashes were significantly reduced in the mindfulness group in comparison to the control group. Conclusion: The results of this study showed that eight weeks of mindfulness training could significantly improve the quality of life and also could reduce the frequency and intensity of hot flashes in women with premature menopause. Using mindfulness for women with premature menopause is recommended.

scholarly journals ACOMPANHAMENTO DOMICILIAR DO RECÉM-NASCIDO DE RISCO: PREPARAÇÃO MATERNA PARA A PROMOÇÃO DA SAÚDE

2018 ◽  
Vol 11 (2) ◽  
pp. 275
Author(s):  
Fernanda Jorge Magalhães ◽  
Karla Maria Carneiro Rolim ◽  
Mirna Albuquerque Frota ◽  
Suzane Passos de Vasconcelos ◽  
Izabela De Sousa Martins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hospital Discharge ◽  
Structured Interview ◽  
Home Health ◽  
Preterm Newborn ◽  
Analysis Software ◽  
Nursing Team ◽  
At Home

The objective was to identify maternal doubts about the care of the newborn (NB) at home and the importance of follow-up consultation using strategies for the preparation of mothers in the promotion of home health. Descriptive, qualitative study in Fortaleza-Ceará-Brazil. A semi-structured interview was carried out containing maternal / child identification data and questions related to the maternal preparation for the hospital discharge of the newborn and the organization of educational workshops for maternal guidance regarding the care and follow-up of the newborn at home. The data were analyzed according to the pertinent reading, organized and presented in tables and speeches extracted from the interviews, with the support of a qualitative analysis software, called webQDA®, being presented in textual discussions. It was verified the need for greater training and sensitization of the nursing team in the maternal preparation for hospital discharge and in the optimization of care and improvement in the quality of life of the preterm newborn.

Impacts of tailored, rehabilitation nursing care on functional ability and quality of life in hospitalized elderly patients after rib fractures

2021 ◽  
pp. 026921552110227
Author(s):  
María Granados Santiago ◽  
Marie Carmen Valenza ◽  
Esther Prados Román ◽  
Laura López López ◽  
Natalia Muñoz Vigueras ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Conservative Treatment ◽  
Nursing Care ◽  
Functional Ability ◽  
Care Program ◽  
Rib Fractures ◽  
Control Group ◽  
Significant Difference

Objectives: We aimed to analyze the effects of a tailored rehabilitation nursing care program on functional ability and quality of life in patients with conservative treatment for rib fractures. Design: Randomized controlled trial. Setting: Inpatient rehabilitation hospital. Subjects: Rib fracture patients treated conservatively were randomized into two groups (experimental and control group). Interventions: Patients in control group received Treatment as Usual (TAU) and patients included in experimental group received TAU and an added tailored rehabilitation nursing care program (RNT). Main measures: At baseline, and end of hospitalization treatment, the functional ability was assessed with the Barthel Index, and the quality of life was evaluated with the EuroQol-5D. Additionally, the outcomes were assessed at six-month follow-up. Results: A total of 80 patients were included in the study, whose mean age was 77.19 SD 7.71 in the RNT group and 75.55 SD 9.46 in the TAU group. Our data showed a significant difference in the post-treatment gains in overall quality of life (74.25 SD 20.62 vs 60.28 SD 20.54), and functional ability (71.79 SD 23.85 vs 69.41 SD 24.30) between the RNT group and the TAU group ( P < 0.05). Compared to the TAU group, the RNT group also showed a significant improvement in functional ability and quality of life at six-month follow-up. Conclusions: A tailored rehabilitation nursing care program added to the conservative treatment during hospitalization can improve the functional ability and quality of life of patients after rib fractures at discharge and at six-month follow-up. Trial registration: ClinicalTrial.gov Identifier: NCT04168996

scholarly journals The Effects of the Home-based Self-care Program Follow-up on Re-hospitalization Frequency and Quality of Life in Patients With Chronic Obstructive Pulmonary Disease

2021 ◽  
Vol 19 (2) ◽  
pp. 173-180
Author(s):  
Fatemeh Pazouki Movakher ◽  
◽  
Mohammad Saeed Khanjani ◽  
Mohammad Ali Hosseini ◽  
Enayatollah Bakhshi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Obstructive Pulmonary Disease ◽  
Self Care ◽  
Care Program ◽  
Chronic Obstructive ◽  
Obstructive Pulmonary Disease ◽  
Home Based ◽  
Copd Patients

Objectives: Chronic Obstructive Pulmonary Disease (COPD) impacts the quality of life of the affected patients. The present study aimed to determine the effects of home-based self-care program follow-up on re-hospitalization frequency and quality of life in COPD patients. Methods: This quasi-experimental study was performed on 44 COPD patients at Masih Daneshvari Hospital in Tehran City, Iran, in 2018. For collecting the necessary data, we used demographic data checklist, COPD Assessment Test, and the St. George’s Quality of Life questionnaire. We used SPSS v. 22 for analyzing the obtained data. Results: The present study revealed that the highest age frequency was in the 61-70 years age group. Moreover, the male gender had the highest frequency and most research participants had elementary school education; the highest frequency regarding the disease duration was >5 years. Besides and the hospitalization frequency was once a year. The present study findings indicated that the provided self-care program follow-up reduced the re-hospitalization frequency and increased the quality of life of the explored COPD patients (P<0.001). Discussion: The obtained results revealed that implementing a course of home-based follow-up self-care program could reduce re-hospitalization and increase the quality of life of COPD patients; thus, it is suggested that such follow-up programs be included in COPD treatment plans.

Healing by design: The influence of an artistic design on the well being of cancer patients—A 10 years follow up

2006 ◽  
Vol 24 (18_suppl) ◽  
pp. 18615-18615
Author(s):  
H. Samonigg ◽  
E. Andritsch ◽  
G. Dietmaier ◽  
T. Bauernhofer ◽  
H. Andritsch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Healing Process ◽  
Well Being ◽  
Structured Interview ◽  
Design Quality ◽  
Positive Effects ◽  
The Impact

18615 Background: The style of the surrounding in which cancer patients, who experience physical as well as high psychological distress are treated, can help them to acquire a sense of security, to reduce their anxiety and depression. Inspired by this model the famous artist F. Hundertwasser created the redesign of the oncological ward with the aim to generate an atmosphere of security by utilizing bright, warm and vivid colours, light and plants. The aim of this study was to investigate in a prospective manner whether the artistic redesign have an influence on the welfare of cancer patients using standardized questionnaires pre and immediately post reconstruction and in a follow up 10 years later. Methods: A total of 261 patients were interviewed (93 before the redesign, 81 immediately and 87 ten years after redesign) to assess the influence of depression (Zerssen Depression Scale, PD-S) quality of life (Spitzer Index)and perceptions of the ward design (semi-structured interview) on wellbeing (Zerrsen Mood Scale, Bf-S). Results: A factor analysis of the semi-structured interview yielded four factors assessed with a MANOVA showing that patients interviewed after redesign reported more positive effects of the ward design (F2;227 = 484.274; p < 0.001). In addition, they were more content with treatment and medical care (F2;227 = 20.103; p < 0.001), more positive in their emotions and thoughts regarding illness (F2;227 = 8.600; p = 0.003) and placed greater importance on the fixtures (F2;227 = 6.067; p = 0.003) than the patients interviewed before the redesign. In a regression analysis depression, the “impact of ward design”, quality of life, gender, “emotions and thoughts regarding illness”, age and education predicted wellbeing with an “R” of 0.0469 (p < 0.05). Conclusions: The results provide important aspects for the discussion if the physical surroundings in which cancer patients are treated serve as a potentially positive factor in the “healing process”. No significant financial relationships to disclose.

25: Quality of Life Outcomes after Robot Assisted Laparoscopic Radical Prostatectomy: 3 Year Follow-Up

2005 ◽  
Vol 173 (4S) ◽  
pp. 7-7
Author(s):  
Caner Dinlenc ◽  
Adam Berman ◽  
Joseph Wagner
Keyword(s):  
Quality Of Life ◽  
Radical Prostatectomy ◽  
Laparoscopic Radical Prostatectomy ◽  
Life Outcomes ◽  
Robot Assisted ◽  
Quality Of Life Outcomes

Changes in arm morbidities and health-related quality of life after breast cancer surgery - a five-year follow-up study

2009 ◽  
pp. 1-8
Author(s):  
Åse Sagen ◽  
Rolf Kåresen ◽  
Leiv Sandvik ◽  
May Arna Risberg
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Surgery ◽  
Breast Cancer Surgery ◽  
Health Related Quality ◽  
Follow Up Study ◽  
Related Quality ◽  
Health Related

Cathartic Effect of Suicide Attempts Not Limited to Depression

Crisis ◽  
2003 ◽  
Vol 24 (2) ◽  
pp. 73-78 ◽  
Author(s):  
Yves Sarfati ◽  
Blandine Bouchaud ◽  
Marie-Christine Hardy-Baylé
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Personality Traits ◽  
Rating Scales ◽  
Suicide Attempts ◽  
World Health ◽  
Life Questionnaire ◽  
Short Term

Summary: The cathartic effect of suicide is traditionally defined as the existence of a rapid, significant, and spontaneous decrease in the depressive symptoms of suicide attempters after the act. This study was designed to investigate short-term variations, following a suicide attempt by self-poisoning, of a number of other variables identified as suicidal risk factors: hopelessness, impulsivity, personality traits, and quality of life. Patients hospitalized less than 24 hours after a deliberate (moderate) overdose were presented with the Montgomery-Asberg Depression and Impulsivity Rating Scales, Hopelessness scale, MMPI and World Health Organization's Quality of Life questionnaire (abbreviated versions). They were also asked to complete the same scales and questionnaires 8 days after discharge. The study involved 39 patients, the average interval between initial and follow-up assessment being 13.5 days. All the scores improved significantly, with the exception of quality of life and three out of the eight personality traits. This finding emphasizes the fact that improvement is not limited to depressive symptoms and enables us to identify the relative importance of each studied variable as a risk factor for attempted suicide. The limitations of the study are discussed as well as in particular the nongeneralizability of the sample and setting.

Quality of Life in Torture Survivors in Kashmir: A Six-Year Follow Up

2008 ◽  
Author(s):  
Zaffar Ali ◽  
Mushtaq Margoob
Keyword(s):  
Quality Of Life ◽  
Torture Survivors
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