Access to diagnostics and treatment of neuroendocrine tumors (NETs): The difference between patient perception and reality.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e13524-e13524
Author(s):  
Simone Leyden ◽  
Teodora Kolarova ◽  
Catherine Bouvier ◽  
Martyn E. Caplin ◽  
Siobhan Conroy ◽  
...  
Keyword(s):  
Healthcare Professionals ◽  
Peptide Receptor Radionuclide Therapy ◽  
Patient Survey ◽  
Diagnostic Tools ◽  
Online Questionnaire ◽  
Significant Difference ◽  
Treatment Centre ◽  
Patient Advocates ◽  
The Difference ◽  
Gallium 68

e13524 Background: The aim of this global patient survey was to better understand the needs and expectations of patients with NETs regarding access to diagnostic tools and treatment. Methods: In 2017, an online, questionnaire survey of NET patients/family members, patient advocates and healthcare professionals (HCPs) was conducted. Results: In total, 443 participants from 26 countries responded: 338 patients/families; 35 advocates; 70 HCPs. Following NET diagnosis, many patients use patient association (69%) and HCP (48%) websites to fulfill their informational needs. Patients overestimated the availability of key diagnostic tools and treatments compared to HCPs: Gallium-68-Dotatate PET/CT scan was believed available by 28% of patients vs. 14% of HCPs; fluorodeoxyglucose PET by 77% of patients vs. 64% of HCPs; peptide receptor radionuclide therapy by 58% of patients vs. 23% of HCPs; genetic test/precision medicine by 75% of patients vs. 71% of HCPs; and transplantation by 86% of patients vs. 55% of HCPs. Reasons reported by patients and advocates for unavailability of treatment were: not provided by healthcare system (28% & 67%, respectively); non-referral (19% & 33%, respectively), unable to afford treatment (18% & 57%, respectively); treatment not covered by insurance (17% & 24%, respectively); distance to treatment centre (15% & 48%, respectively). Almost a third (30%) of patients had to travel more than 300 km/186 miles for treatment or consultation with a NET specialist, while 34% of patients did not have access to an MDT and those that did may be in contact with them less than once per year (14%). In contrast, advocates and HCPs believe there is wider availability of MDTs (94% and 70%, respectively). Conclusions: Patients are increasingly well-educated about NETs and often travel considerable distances to obtain specialist treatment. However, there remains considerable disparity in what patients feel is available to them in terms of the latest tools and treatments, compared to what is there in reality. This significant difference in perception needs to be managed delicately by both advocates and healthcare professionals.

scholarly journals Access to diagnostics and treatment of neuroendocrine tumors (NETs): The difference between patient perception and reality.

2019 ◽  
Vol 5 (suppl) ◽  
pp. 6-6
Author(s):  
Simone Leyden ◽  
Teodora Kolarova ◽  
Catherine Bouvier ◽  
Martyn E. Caplin ◽  
Siobhan Conroy ◽  
...  
Keyword(s):  
Healthcare Professionals ◽  
Peptide Receptor Radionuclide Therapy ◽  
Patient Survey ◽  
Diagnostic Tools ◽  
Online Questionnaire ◽  
Significant Difference ◽  
Treatment Centre ◽  
Patient Advocates ◽  
The Difference ◽  
Gallium 68

6 Background: The aim of this global patient survey was to better understand the needs and expectations of patients with NETs regarding access to diagnostic tools and treatment. Methods: In 2017, an online, questionnaire survey of NET patients/family members, patient advocates and healthcare professionals (HCPs) was conducted. Results: In total, 443 participants from 26 countries responded: 338 patients/families; 35 advocates; 70 HCPs. Following NET diagnosis, many patients use patient association (69%) and HCP (48%) websites to fulfill their informational needs. Patients overestimated the availability of key diagnostic tools and treatments compared to HCPs: Gallium-68-Dotatate PET/CT scan was believed available by 28% of patients vs. 14% of HCPs; fluorodeoxyglucose PET by 77% of patients vs. 64% of HCPs; peptide receptor radionuclide therapy by 58% of patients vs. 23% of HCPs; genetic test/precision medicine by 75% of patients vs. 71% of HCPs; and transplantation by 86% of patients vs. 55% of HCPs. Reasons reported by patients and advocates for unavailability of treatment were: not provided by healthcare system (28% & 67%, respectively); non-referral (19% & 33%, respectively), unable to afford treatment (18% & 57%, respectively); treatment not covered by insurance (17% & 24%, respectively); distance to treatment centre (15% & 48%, respectively). Almost a third (30%) of patients had to travel more than 300 km/186 miles for treatment or consultation with a NET specialist, while 34% of patients did not have access to an MDT and those that did may be in contact with them less than once per year (14%). In contrast, advocates and HCPs believe there is wider availability of MDTs (94% and 70%, respectively). Conclusions: Patients are increasingly well-educated about NETs and often travel considerable distances to obtain specialist treatment. However, there remains considerable disparity in what patients feel is available to them in terms of the latest tools and treatments, compared to what is there in reality. This significant difference in perception needs to be managed delicately by both advocates and healthcare professionals.

scholarly journals PERBEDAAN TINGKAT LITERASI KEUANGAN PARA WIRAUSAHAWAN DAN KARYAWAN ALUMNI UNIVERSITAS KRISTEN MARANATHA

2020 ◽  
Vol 12 (2) ◽  
pp. 16-26
Author(s):  
Surya Setyawan ◽  
Kartika Imasari Tjiptodjojo
Keyword(s):  
Financial Literacy ◽  
Analytical Methods ◽  
Financial Knowledge ◽  
Unexpected Result ◽  
Online Questionnaire ◽  
Christian University ◽  
Significant Difference ◽  
Literacy Level ◽  
The Difference ◽  
A Company

This research discusses about level of financial literacy of Maranatha Christian University alumni who active running his/her own business as an entrepreneur or active as a staff in a company. It also discuss about the difference level of financial literacy between entrepreneur and staff. There are 47 valid respondents as alumni who are asked about financial knowledge via online questionnaire. The measurement for financial literacy level is using descriptive analytical methods; moreover, the comparison between alumni who is an entrepreneur and working as a staff is using difference tests. The unexpected result shows that entrepreneur’s financial literacy level is lower than staff, but there is no significant difference between two groups.

scholarly journals Professional versus public attitudes towards criminal charges in healthcare – registered nurses and a random national panel compared: Dark clouds on the horizon?

2021 ◽  
Vol 107 (01) ◽  
pp. 17-23
Author(s):  
Sigurbjörg Sigurgeirsdóttir ◽  
◽  
Anna María Þórðardóttir ◽  
Elísabet Benedikz ◽  
◽  
...  
Keyword(s):  
Patient Safety ◽  
Healthcare Professional ◽  
Human Error ◽  
Healthcare Professionals ◽  
Public Attitudes ◽  
Dark Clouds ◽  
Significant Difference ◽  
Criminal Charges ◽  
The Difference ◽  
Strongly Agree

INTRODUCTION: The aim of this study is to encourage a discussion on patient safety and public responses to serious incidents in healthcare. Triggered by the first of its kind in Iceland, it addresses the question what characterizes attitudes towards criminal charges for a serious incident in healthcare. MATERIAL AND METHODS: In this comparative study we examined whether attitudes towards culpability of healthcare professionals differed between cohorts from a random national panel and registered Icelandic nurses. Both groups were asked whether a healthcare professional should face criminal charges if causing serious harm or death due to human error, accident, neglect or intent. Answers were given on a Likert scale. RESULTS: When asked if a healthcare professional causing serious harm or death due to human error or by accident should face criminal charges, nurses were significantly more likely to somewhat or strongly disagree, while the panel was significantly more likely to somewhat or strongly agree. The difference was inversely proportional to educational levels among the panel members. When asked whether a healthcare professional should be charged for causing serious harm or death due to neglect or intent, there was no significant difference between the groups. CONCLUSION: The results indicate that healthcare professionals, as represented by Icelandic nurses, do not seek to avoid accountability in serious patient incidents, but implicate the importance of distinguishing between the different nature of incidents. The results show that a more informed public debate on serious health­care incidents is needed in which appropriate measures protecting patient safety as well as professional safety are ensured.

scholarly journals COVID-19 pandemic fear and anxiety among healthcare professionals in Pakistan

2020 ◽  
Author(s):  
Zohra Saleem ◽  
Muhammad Mansoor Majeed ◽  
Sara Rafique ◽  
Zarah Siqqiqui ◽  
Dinaz Ghandhi ◽  
...  
Keyword(s):  
Healthcare Professionals ◽  
Sampling Technique ◽  
P Value ◽  
Stressful Situation ◽  
Snowball Sampling ◽  
Multilinear Regression ◽  
Online Questionnaire ◽  
Significant Difference ◽  
Fear And Anxiety ◽  
Anxiety And Fear

Abstract During the current pandemic, Pakistan is badly affected. It has exerted great pressure on vigor as well as the psychology of the healthcare professionals. Limited resources, illiteracy, myths, and not following the proper protocol by the general population may have increased the risk for everyone, and anxiety and fear among the frontline healthcare professionals. Anxiety is a common response to any stressful situation and its the fear of the unknown and it may have multiple consequences.In the current study, we attempted to analyze the fear and anxiety among the healthcare professionals of Pakistan.Methodology: An online questionnaire-based survey was performed using a non-probability snowball sampling technique. The questionnaire was validated and comprised of demographics and 10 questions regarding fear and anxiety as per fear of coronavirus-19 scale (FCV-19S). SPSS 21 was used for data analysis.Data of 404 participants analyzed. A significant difference between gender, age group, and the profession was found (p<0.05). Out of 404 participants, 322 (79.70%) were considered to have high and severe anxiety (p=0.020). Based on the results anxiety was reported higher among the nurses and in females. A significant relationship was observed between fear and anxiety score and the different healthcare professionals with p value< 0.001 (Multilinear regression).Concerning the high occurrence of anxiety and fear among healthcare professionals appropriate psychological/psychiatric intervention necessitates and emphasizes the need to implement urgent measures.

scholarly journals Differences in Perception of Stress of Physiotherapists Employed in Various Departments

2020 ◽  
Vol 4 (1) ◽  
pp. 21-31
Author(s):  
Mia Milojević ◽  
Ivan Brumini ◽  
Ivana Crnković
Keyword(s):  
Perceived Stress ◽  
Age Groups ◽  
Service Level ◽  
Physical Medicine ◽  
Online Questionnaire ◽  
Length Of Service ◽  
Significant Difference ◽  
The Difference ◽  
The Republic ◽  
Monthly Salary

Stress in the workplace represents a specific type of stress, stemming from the work environment. Stressful situations at work can trigger negative emotions that are linked with anxiety, tension, depression, fatigue and lack of working motivation. The aim of this research is to investigate differences in the perception of stress of physiotherapists employed in various departments. The research was conducted using an online questionnaire aimed at 123 physiotherapists in the Republic of Croatia. The results have showed that respondents perceived their workplace as moderately stressful. Considering the difference in the experience and perception of stress with regard to the department where physiotherapists work, the results have showed that there is a statistically significant difference in the level of perceived stress among the respondents with regard to the department in which they are employed. It was found that respondents employed in orthopaedics perceived stress to a lesser extent than those individuals employed in health centres and in the department of physical medicine and rehabilitation. The differences in the perception of stress among the respondents who are employed in other departments have shown no statistically significant difference. It was shown that the respondents of 20–25 years of age were found to exhibit statistically significantly lower levels of perceived stress compared to subjects of 26–36 years of age. There is no noted statistically significant difference in the perception of stress among other age groups. It was determined that participants with a lower net monthly salary exhibit statistically significant greater lever of perceived stress in comparison to participants with a net monthly salary that is greater than the average. The results of the study have shown that there are no statistically significant differences in the level of perceived stress among respondents in terms of gender, length of service, level of education or marital status.

scholarly journals Psychological Impact and Sleep Quality in the COVID-19 Pandemic in Brazil, Colombia and Portugal

Duazary ◽  
2021 ◽  
Vol 18 (2) ◽  
pp. 120-130
Author(s):  
Ubaldo Enrique Rodríguez-De Avila ◽  
Fabíola Rodrigues-De França ◽  
Maria de Fátima Jesus Simões
Keyword(s):  
Sleep Quality ◽  
Psychological Impact ◽  
Poor Quality ◽  
South American ◽  
Quality Of Sleep ◽  
Online Questionnaire ◽  
Significant Difference ◽  
The Difference ◽  
Good Sleep

The objective of the study was to evaluate, through an online questionnaire, aspects related to levels of anxiety, suicidal thoughts and quality of sleep during the COVID-19 pandemic period in three countries. With 988 participants from Colombia, Brazil and Portugal. 2.1% of the subjects presented mild anxiety, 85.5% moderate levels, 12% ranged from moderate to severe and 0.3% had an extreme level of anxiety. Suicidal thinking was found at the 57% level; 31.1% moderate, 9.7% marked severe, and 2.2% extreme. Regarding sleep, 14% had good sleep quality, 53.5% poor quality and 32.5% possible sleep disorders. The difference between the values ​​of anxiety and suicidal ideation between countries was not significant. However, there is a significant difference between the distribution of sleep quality values ​​between countries. The differences are mainly between adolescents (<22 years) and other ages. Colombia differs from Brazil and Portugal in terms of quality of sleep. In addition to the health problems brought by the Covid-19 pandemic, this study showed that the adolescent population is more vulnerable to the psychological impacts and quality of sleep in countries of the South American continent.

scholarly journals COVID-19 pandemic fear and anxiety among healthcare professionals in Pakistan

2020 ◽  
Author(s):  
Zohra Saleem ◽  
Muhammad Mansoor Majeed ◽  
Sara Rafique ◽  
Zarah Siqqiqui ◽  
Dinaz Ghandhi ◽  
...  
Keyword(s):  
Healthcare Professionals ◽  
Sampling Technique ◽  
P Value ◽  
Stressful Situation ◽  
Snowball Sampling ◽  
Multilinear Regression ◽  
Online Questionnaire ◽  
Significant Difference ◽  
Fear And Anxiety ◽  
Anxiety And Fear

Abstract During the current pandemic, Pakistan is badly affected. It has exerted great pressure on vigor as well as the psychology of the healthcare professionals. Limited resources, illiteracy, myths, and not following the proper protocol by the general population may have increased the risk for everyone, and anxiety and fear among the frontline healthcare professionals. Anxiety is a common response to any stressful situation and its the fear of the unknown and it may have multiple consequences.In the current study, we attempted to analyze the fear and anxiety among the healthcare professionals of Pakistan. An online questionnaire-based survey was performed using a non-probability snowball sampling technique. The questionnaire was validated and comprised of demographics and 10 questions regarding fear and anxiety as per fear of coronavirus-19 scale (FCV-19S). SPSS 21 was used for data analysis. Data of 404 participants analyzed. A significant difference between gender, age group, and the profession was found (p<0.05). Out of 404 participants, 322 (79.70%) were considered to have high and severe anxiety (p=0.020). Based on the results anxiety was reported higher among the nurses and in females. A significant relationship was observed between fear and anxiety score and the different healthcare professionals with p value< 0.001 (Multilinear regression).Concerning the high occurrence of anxiety and fear among healthcare professionals appropriate psychological/psychiatric intervention necessitates and emphasizes the need to implement urgent measures.

scholarly journals Online Education Status at Dental Colleges During COVID-19 Pandemic in Nepal

2020 ◽  
Vol 18 (2) ◽  
pp. 15-20
Author(s):  
R.M. Shrestha ◽  
S. Shrestha ◽  
A. Acharya ◽  
A. Gupta
Keyword(s):  
Online Education ◽  
Cross Sectional Study ◽  
Online Questionnaire ◽  
Chi Square ◽  
Cross Sectional ◽  
Online Class ◽  
Significant Difference ◽  
Chi Square Test ◽  
E Learning ◽  
The Difference

Background The COVID-19 pandemic has caused lockdown situation impeding all educational institutions including dental colleges. The circumstance demanded online classes as the alternative strategy for continuation of education. Objective To assess current practice and perception about online education among faculties of dental colleges in Nepal. Method A cross-sectional study was conducted among 208 faculties of all dental colleges in Nepal. Data collection was done through structured online questionnaire comprising demographic information, practice and perception of the respondents towards online education. Descriptive statistics surveyed the frequency distribution and Chi-square test assessed the difference in perception among the faculties of different universities. Result The response rate was 74.3%. Faculties commonly used PowerPoint presentation (96.6%) on Zoom platform (83.3%) using laptop (94.7%) with Wi-Fi connection (91.8%). Majority of faculties had good or satisfactory access to internet (94.8%). The faculties believed that the online class environment was interactive (95.2%); but it was not effective (86.5%) as live classroom. Majority of the faculties (79.4%) felt tracking of students’ presence was difficult. There was no significant difference on perception towards online class among the faculties of Kathmandu University, Tribhuvan University and BP Koirala Institute Health Sciences at p < 0.05. Conclusion The COVID-19 pandemic has paved the way for e-learning in dental education in Nepal. Faculties agree to complete the theory syllabus and conduct sessional exams as an alternative during the lockdown period. However, they show strong reservations in carrying out practical/clinical simulations and university exams online. Training on e-learning and institutional strategy for online education is recommended.

Cranial crassicaudiasis in two coastal dolphin species from South Africa is predominantly a disease of immature individuals

2020 ◽  
Vol 139 ◽  
pp. 93-102 ◽  
Author(s):  
MF Van Bressem ◽  
P Duignan ◽  
JA Raga ◽  
K Van Waerebeek ◽  
N Fraijia-Fernández ◽  
...  
Keyword(s):  
South Africa ◽  
Bone Development ◽  
Bottlenose Dolphins ◽  
Fatal Outcome ◽  
Population Level ◽  
Cape Coast ◽  
Osteolytic Lesions ◽  
Immune Mediated ◽  
Significant Difference ◽  
The Difference

Crassicauda spp. (Nematoda) infest the cranial sinuses of several odontocetes, causing diagnostic trabecular osteolytic lesions. We examined skulls of 77 Indian Ocean humpback dolphins Sousa plumbea and 69 Indo-Pacific bottlenose dolphins Tursiops aduncus, caught in bather-protecting nets off KwaZulu-Natal (KZN) from 1970-2017, and skulls of 6 S. plumbea stranded along the southern Cape coast in South Africa from 1963-2002. Prevalence of cranial crassicaudiasis was evaluated according to sex and cranial maturity. Overall, prevalence in S. plumbea and T. aduncus taken off KZN was 13 and 31.9%, respectively. Parasitosis variably affected 1 or more cranial bones (frontal, pterygoid, maxillary and sphenoid). No significant difference was found by gender for either species, allowing sexes to be pooled. However, there was a significant difference in lesion prevalence by age, with immature T. aduncus 4.6 times more likely affected than adults, while for S. plumbea, the difference was 6.5-fold. As severe osteolytic lesions are unlikely to heal without trace, we propose that infection is more likely to have a fatal outcome for immature dolphins, possibly because of incomplete bone development, lower immune competence in clearing parasites or an over-exuberant inflammatory response in concert with parasitic enzymatic erosion. Cranial osteolysis was not observed in mature males (18 S. plumbea, 21 T. aduncus), suggesting potential cohort-linked immune-mediated resistance to infestation. Crassicauda spp. may play a role in the natural mortality of S. plumbea and T. aduncus, but the pathogenesis and population level impact remain unknown.

Perbedaan Penggunaan Antikoagulan K2EDTA DAN K3EDTA Terhadap Hasil Pemeriksaan Indeks Eritrosit

2018 ◽  
Vol 1 (2) ◽  
pp. 114
Author(s):  
Wahdaniah Wahdaniah ◽  
Sri Tumpuk
Keyword(s):  
Screening Test ◽  
Venous Blood ◽  
The Body ◽  
Ethylene Diamine ◽  
P Value ◽  
Cross Sectional ◽  
Significant Difference ◽  
Ethylene Diamine Tetra Acetate ◽  
The Difference ◽  
Index Value

Abstract: Routine blood examination is the earliest blood test or screening test to determine the diagnosis of an abnormality. Blood easily froze if it is outside the body and can be prevented by the addition of anticoagulants, one of which Ethylene Diamine Tetra Acetate (EDTA). Currently available vacuum tubes containing EDTA anticoagulants in the form of K2EDTA and K3EDTA. K3EDTA is usually a salt that has better stability than other EDTA salts because it shows a pH approaching a blood pH of about 6.4. The purpose of this research is to know the difference of erythrocyte index results include MCH, MCV and MCHC using K3EDTA anticoagulant with K2EDTA. This research is a cross sectional design. This study used venous blood samples mixed with K2EDTA anticoagulant and venous blood mixed with K3EDTA anticoagulants, each of 30 samples. Data were collected and analyzed using paired different test. Based on data analysis that has been done on MCH examination, p value <0,05 then there is a significant difference between samples with K3EDTA anticoagulant with K2EDTA to erythrocyte index value. Then on the examination of MCV and MCHC obtained p value <0.05 then there is no significant difference between samples with K3EDTA anticoagulant with K2EDTA to erythrocyte index value.Abstrak: Pemeriksaan darah rutin merupakan pemeriksaan darah yang paling awal atau screening test untuk mengetahui diagnosis suatu kelainan. Darah mudah membeku jika berada diluar tubuh dan bisa dicegah dengan penambahan antikoagulan, salah satunya Ethylene Diamine Tetra Acetate (EDTA). Dewasa ini telah tersedia tabung vakum yang sudah berisi antikoagulan EDTA dalam bentuk  K2EDTA dan  K3EDTA. K3EDTA  biasanya berupa garam yang mempunyai stabilitas yang lebih baik dari garam EDTA yang lain karena menunjukkan pH yang mendekati pH darah yaitu sekitar 6,4. Tujuan dari penelitian ini adalah untuk mengetahui perbedaan hasil indeks eritrosit meliputi MCH, MCV dan MCHC menggunakan antikoagulan K3EDTA dengan K2EDTA. Penelitian ini merupakan penelitian dengan desain cross sectional. Penelitian ini menggunakan sampel darah vena yang dicampur dengan antikoagulan K2EDTA dan darah vena yang dicampur dengan antikoagulan K3EDTA, masing-masing sebanyak 30 sampel. Data dikumpulkan dan dianalisis menggunakan uji beda berpasangan. Berdasarkan analisis data yang telah dilakukan pada pemeriksaan MCH didapatkan nilai p < 0,05 maka ada perbedaan yang signifikan antara sampel dengan antikoagulan K3EDTA dengan K2EDTA terhadap nilai indeks eritrosit. Kemudian pada pemeriksaan MCV dan MCHC didapatkan nilai p < 0,05 maka tidak ada perbedaan yang signifikan antara sampel dengan antikoagulan K3EDTA dengan K2EDTA terhadap nilai indeks eritrosit.

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