People With Intellectual Disabilities in Iceland: A Bourdieuean Interpretation of Self-Advocacy

2009 ◽  
Vol 47 (6) ◽  
pp. 436-446 ◽  
Author(s):  
Kristín Björnsdóttir ◽  
IngólfurÁsgeir Jóhannesson
Keyword(s):  
Qualitative Research ◽  
Young Adults ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Social Status ◽  
Social Participation ◽  
Social Strategies ◽  
Self Advocacy ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities

Abstract There are many barriers to social participation in Iceland for people with intellectual disabilities. This article builds on qualitative research with young adults with intellectual disabilities. The purpose of this article is to develop an approach where the struggles over the meaning of social participation of people with intellectual disabilities are seen as social strategies. In the article, the authors suggest that people with intellectual disabilities are carving out a space where intellectual disability is gaining higher social status. They also posit that people with intellectual disabilities use several social strategies in the emerging field of self-advocacy for the purpose of improving their social position. Thus, the article contributes to a new social understanding of disability and how people with disabilities gain authority over their lives and experiences.

scholarly journals Aspirations held by young adults with intellectual disabilities and their mothers

2020 ◽  
Vol 29 (2) ◽  
pp. 107-116
Author(s):  
Mary McMahon ◽  
Karen Moni ◽  
Monica Cuskelly ◽  
Jan Lloyd ◽  
Anne Jobling
Keyword(s):  
Young Adults ◽  
Intellectual Disability ◽  
Young People ◽  
Intellectual Disabilities ◽  
Small Scale ◽  
Structured Interviews ◽  
Future Aspirations ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities ◽  
Nuanced Understanding

This study reports on Australian small-scale exploratory descriptive research into how young people with intellectual disability and their families construct their futures. The aims of this research were to (a) better understand the future aspirations held by young adults with intellectual disability and their parents, (b) identify enablers and barriers to the achievement of these aspirations, and (c) provide insights for career practitioners who support young people with intellectual disability and their parents to achieve their personal and career goals. Participants were four young people with intellectual disabilities aged between 18 and 30 years and their mothers. Data were collected through semi-structured interviews and analysed thematically. Results provide a nuanced understanding of the issues facing young people with intellectual disabilities and their families in constructing their futures. Suggestions are offered that can inform career development practice and policy.

scholarly journals Project Capabilities and Adults With Intellectual Disabilities: Towards Effective Interviewing for a Better Social Participation

2014 ◽  
Vol 7 (2) ◽  
pp. 115-123
Author(s):  
Stefanie Corona ◽  
Christina Hannum ◽  
Ann-Louise Davidson
Keyword(s):  
Intellectual Disability ◽  
Motivational Interviewing ◽  
Social Networking ◽  
Intellectual Disabilities ◽  
Social Participation ◽  
Qualitative Data ◽  
Mobile Technologies ◽  
Qualitative Interviewing ◽  
Adults With Intellectual Disabilities ◽  
Interviewing Techniques

This practice-based paper presents a series of tips and techniques for interviewing for a better social participation. While we worked on Project Capabilities, we learned valuable lessons we wished to share with practitioners and researchers who work within an inclusive perspective. We argue that qualitative interviewing requires skillful means that are not always an integral part of research preparation, and we share tips and techniques that we developed throughout the process. As we collected the qualitative data through one-on-one interviews, and taught participants to selffilm using iPads, we found that traditional interviewing techniques were too rigid to engage with people living with an intellectual disability. Instead, we used a blend of motivational interviewing and collaborative inquiry techniques, and built rapport with the participants through online social networking. Mobile technologies were also used to build rapport, empowering participants and allowing non-intrusive filming of interviews.

Services Available from Providers in the Disability Field to Older Adults with Intellectual Disabilities

1997 ◽  
Vol 3 (2) ◽  
pp. 65-70
Author(s):  
Laurie Buys
Keyword(s):  
Older Adults ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Older Adult ◽  
Independent Living ◽  
Support Programs ◽  
Community Based ◽  
The Past ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities

As most older adults with intellectual disabilities reside in community based accommodation, the availability of support programs and services becomes important to the maintenance of independent living. Thirty nine community based organisations in Brisbane, Australia that assist people with intellectual disabilities were surveyed regarding the types of programs offered to older adults with intellectual disabilities. The results showed that 75% of the organisations had provided assistance to an older adult with an intellectual disability in the past 12 months. However, none of the agencies surveyed reported that they provided specialised programs or services to older adults with intellectual disabilities.

scholarly journals The Effect of a Pilot Group Psycho-education Program on the Death Attitude and Life Perception in the Case of an Adult with Intellectual Disabilities

Educatia 21 ◽  
2020 ◽  
pp. 154-161
Author(s):  
Alexandra Fodor ◽  
Carmen Costea-Bărluțiu
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Case Presentation ◽  
Psychoeducational Program ◽  
Complex Emotions ◽  
Life Issues ◽  
Group Members ◽  
People With Intellectual Disabilities ◽  
End Of Life Issues ◽  
Adults With Intellectual Disabilities

Often people with intellectual disabilities are protected from exposure to death, dying and end-of-life issues, but this protection leaves the person unprepared for the grieving of unavoidable losses, and unaware of the changes implied by the old age of their caregivers. Considering the person with an intellectual disability as an immature being, lacking the ability to feel complex emotions, contributes to the tendency that both professionals and families have to avoid speaking with them about the difficult topic of death. Our goal is to design and implement a psychoeducational program that approaches the topic of death as a natural stage in life, for adults with intellectual disabilities. The effects that psychoeducation about death had on both death attitude and the perception of life are discussed based on a case presentation of one of the group members.

An investigation into the implementation of Annual Health Checks for people with intellectual disabilities

2011 ◽  
Vol 15 (3) ◽  
pp. 157-166 ◽  
Author(s):  
Jan Walmsley
Keyword(s):  
Intellectual Disabilities ◽  
Advocacy Group ◽  
Self Advocacy ◽  
Health Checks ◽  
Legal Duty ◽  
Potential Benefits ◽  
Slow Progress ◽  
General Practices ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities

This project, conducted during 2010 by a researcher working with a self-advocacy group, investigated the implementation of Annual Health Checks (AHCs) for people with intellectual disabilities in Oxfordshire, where only 26.1 percent of AHCs were completed in 2009–10 (national average 41 percent). AHCs were introduced in England in 2008 as a response to findings that people with intellectual disabilities have significantly worse health care than other groups. GP practices are financially incentivized to offer AHCs. This study found that slow progress in implementing AHCs was attributable to: uncertainty over who was eligible; limited awareness in general practices about the legal duty to make ‘reasonable adjustments’ to facilitate access; limited awareness of AHCs and their potential benefits amongst carers and adults with intellectual disabilities; and in some cases scepticism that AHCs were either necessary or beneficial. The article also explores the benefits of undertaking this project in partnership with a self-advocacy group.

Research and intellectual disability nursing

2018 ◽  
pp. 525-546
Author(s):  
Owen Barr ◽  
Bob Gates
Keyword(s):  
Qualitative Research ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Ethical Issues ◽  
Research Process ◽  
Nursing Research ◽  
Quantitative And Qualitative Research ◽  
Key Concepts ◽  
People With Intellectual Disabilities ◽  
Methodological Approaches

This chapter examines research and nursing for people with intellectual disabilities. This chapter is an introduction to some of the key concepts in nursing research that are most relevant to nursing for people with intellectual disabilities. The major methodological approaches to quantitative and qualitative research are outlined, to help in identifying and evaluating their use in practice. The key stages of the research process are outlined, so that students and practitioners will know what to look for when reading research and with what to start if they want to pursue their own research ideas. Finally, the chapter examines some of the issues that are important to research for nurses for people with intellectual disabilities. These include ethical issues that are fundamental to all research, as well as working collaboratively with people with intellectual disabilities, carers, and children in research.

scholarly journals Factors leading to effective social participation promotion interventions for people with intellectual disability: a protocol for a systematic review

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Andrés Aparicio ◽  
Paulina Arango ◽  
Rosario Espinoza ◽  
Vicente Villate ◽  
Marcela Tenorio
Keyword(s):  
Systematic Review ◽  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Social Participation ◽  
Meta Analysis ◽  
Grey Literature ◽  
Well Being ◽  
Controlled Trials ◽  
Decision Making Processes ◽  
People With Intellectual Disabilities

Abstract Background People with intellectual disabilities have been historically excluded from decision-making processes. Previous literature indicates that increasing social participation may be an effective way to address this exclusion, but no systematic review of interventions designed to increase social participation of people with intellectual disabilities have been conducted. This study aims to identify and organize the factors associated with interventions that increase the social participation of people with intellectual disabilities and to provide a set of best of practices for future interventions. Methods/design The databases Web of Science, Scopus, LILACS, and PubMed will be searched for articles from January 2004 onwards; grey literature search will be identified through searching additional databases (such as Google Scholar and EBSCO databases). Randomized controlled trials, nonrandomized controlled trials, and controlled pre–post studies will be included. Noncontrolled pre–post studies will also be included. Observational or qualitative studies will be excluded. The primary outcomes are measures of social participation. Secondary outcomes include measures of well-being, stigma, knowledge about rights, and advocacy processes. Two reviewers will independently screen articles, extract relevant data, and assess the quality of the studies. We will provide a meta-analysis of included studies if possible, or a quantitative narrative synthesis otherwise. Discussion This systematic review will add to our understanding of effective social participation interventions for people with intellectual disability. It will allow us to identify and organize which factors lead to an increase in social participation and help us define a set of best practices to be followed by future interventions. Systematic review registration PROSPERO CRD42020189093

scholarly journals ‘It’s our everyday life’ – The perspectives of persons with intellectual disabilities in Norway

2018 ◽  
Vol 24 (2) ◽  
pp. 143-157
Author(s):  
Aud Elisabeth Witsø ◽  
Brit Hauger
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Everyday Life ◽  
Community Participation ◽  
Social Participation ◽  
Policy Development ◽  
Social Inclusion ◽  
Support Staff ◽  
Working Together ◽  
People With Intellectual Disabilities

This study illuminates how adults with intellectual disabilities understand and describe their everyday life and its shortcomings when it comes to equal rights in the context of Norwegian community living. An inclusive research design, including nine persons with mild intellectual disability, two university researchers and two intellectual disability nurses from the municipality, was undertaken. An inductive thematic analysis of data identified three key themes: everyday life – context, rhythm and structure, social participation and staff – an ambiguous part of everyday life. Results show that service provision had institutional qualities; participants experienced lack of information and reduced possibilities for social inclusion and community participation like everyone else. More attention on the role of policy development, support staff and leadership, in relation to facilitating an everyday life with more user involvement, social inclusion and community participation of people needing support, is essential. Participatory, appreciative, action and reflection in workshops for persons with intellectual disabilities and support staff represent a promising approach to promote the voices and interests of persons with intellectual disabilities. This article tells you about the everyday life of people with intellectual disabilities living in Norway. Nine people with intellectual disabilities worked together with two university researchers and two intellectual disability nurses in the community, in workshops. The people with intellectual disabilities liked to have their own apartment and going to work every day. They said that they wanted more social participation with friends and more participation in activities in the community, just like everyone else. They wanted to be treated with more respect by their staff. All participants in the project saw great value in working together and some of them are working together in a new project about involvement in the improvement of support services for people with intellectual disabilities.

Intellectual disability and dementia: perspectives on environmental influences

2019 ◽  
Vol 20 (4) ◽  
pp. 179-189
Author(s):  
Alisa Jordan Sheth
Keyword(s):  
Intellectual Disability ◽  
Intellectual Disabilities ◽  
Environmental Influences ◽  
Nominal Group Technique ◽  
Ecological Systems ◽  
Nominal Group ◽  
Content Type ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities ◽  
Group Technique

Purpose The purpose of this paper is to improve understandings of environmental influences on participation in routine and familiar activities for people with intellectual disabilities and dementia from first-person and caregiver perspectives. Design/methodology/approach Four adults with intellectual disabilities and dementia participated in 2 nominal group technique sessions and 12 family and staff caregivers participated in 5 standard focus groups. Transcripts were analyzed utilizing thematic analysis centering the findings from nominal group technique sessions and an ecological systems lens. Findings Participants with intellectual disabilities and dementia identified six important themes: activity access, caregiver assistance, social interactions, responsibilities, privacy, and health and wellness. Their perspectives focused primarily at an immediate environment level, while caregiver input added additional understandings from broader ecological systems levels. Originality/value This study provides a beginning point to establishing a framework for creating supports and addressing barriers to participation for adults with intellectual disability and dementia based on direct input from potential service consumers and their caregivers. People with intellectual disabilities and dementia provide valuable insights into their experiences through engagement in accessible research.

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