Elaborating the AAIDD Public Policy Framework

2014 ◽  
Vol 52 (1) ◽  
pp. 1-12 ◽  
Author(s):  
Rud Turnbull ◽  
Matthew J. Stowe
Keyword(s):  
Public Policy ◽  
Intellectual Disability ◽  
Social Factors ◽  
Policy Framework ◽  
Policy Outcomes ◽  
Life Outcomes ◽  
Policy And Practice ◽  
Core Concepts ◽  
The Relationship

Abstract The AAIDD's 11th edition of Intellectual Disability: Definition, Classification, and Systems of Support describes a framework for understanding the relationship between public policy and practice. The framework incorporates three inputs into public policy and practice affecting quality-of-life outcomes for individuals and families, society, and systems. The inputs are social factors, the core concepts of disability policy, and changing conceptualizations of disability. We accept the framework's basic premises, but we propose amendments to make the framework more useful for its stated purposes of elaborating on the “context” (Schalock et al., 2010, p. 17) that affects people with intellectual disability and “promot[ing] changes in public policy that will lead to the achievement of desired policy outcomes” (Schalock et al., 2010, p. 171).

scholarly journals Analyzing Nursing Home Complaints: From Substantiated Allegation to Deficiency Citations

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 82-83
Author(s):  
Kallol Kumar Bhattacharyya ◽  
Lindsay Peterson ◽  
John Bowblis ◽  
Kathryn Hyer
Keyword(s):  
Nursing Home ◽  
Quality Of Care ◽  
Nursing Homes ◽  
Staff Training ◽  
Policy And Practice ◽  
Abuse And Neglect ◽  
The Relationship ◽  
Investigation Process

Abstract Complaints provide important information to consumers about nursing homes (NHs). Complaints that are substantiated often lead to an investigation and potentially a deficiency citation. The purpose of this study is to understand the relationship between substantiated complaints and deficiency citations. Because a complaint may contain multiple allegations, and the data do not identify which allegation(s) lead to a complaint’s substantiation, we identified all substantiated single allegation complaints for NHs in 2017. Our data were drawn from federally collected NH complaint and inspection records. Among the 369 substantiated single-allegation complaints, we found most were categorized as quality of care (31.7%), resident abuse (17.3%), or resident neglect (14.1%). Of the deficiency citations resulting from complaints in our sample, 27.9% were categorized as quality of care and 19.5% were in the category of resident behavior and facility practices, which includes abuse and neglect. While two-thirds (N=239) of the substantiated complaints generated from 1 to 19 deficiency citations, nearly one third had no citations. Surprisingly, 28% of substantiated abuse and neglect allegations resulted in no deficiency citations. More surprisingly, a fifth of complaints that were categorized as “immediate jeopardy” at intake did not result in any deficiency citations. We also found a number of asymmetries in the allegation categories suggesting different processes by Centers for Medicare and Medicaid Services (CMS) region. These results suggest that the compliant investigation process warrants further investigation. Other policy and practice implications, including the need for better and more uniform investigation processes and staff training, will be discussed.

Using the Core Concepts Framework to Understand Three Generations of Inclusive Practices

Inclusion ◽  
2014 ◽  
Vol 2 (3) ◽  
pp. 237-247 ◽  
Author(s):  
Karrie A. Shogren ◽  
Michael L. Wehmeyer
Keyword(s):  
Research Policy ◽  
Future Research ◽  
Third Generation ◽  
Inclusive Practices ◽  
Policy And Practice ◽  
Inclusive Practice ◽  
The Core ◽  
Three Generations ◽  
Core Concepts ◽  
The Relationship

Abstract This article analyzes the relationship between the core concepts of disability policy and the three generations of inclusive practices. Specifically, we review the three generations of inclusive practice, highlighting the core concepts that have been most strongly emphasized during each generation of inclusive practices. Because we are early in the third generation of inclusive practices, we conclude by examining how the core concepts can guide and direct third generation inclusive practices and how future research, policy, and practice can actualize the aspirational values of all of the core concepts to enable desired outcomes.

Growing Older with an Intellectual Disability

2000 ◽  
Vol 6 (2) ◽  
pp. 57-66
Author(s):  
Lindsay Gething
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Service Provision ◽  
Service Providers ◽  
Family Care ◽  
Well Being ◽  
The United States ◽  
Aged Care ◽  
Policy And Practice

Both the life expectancy and numbers of older people with intellectual disabilities are growing. Until recently, ageing with a disability had not been a major consideration for Australian policy makers and service providers. The situation was similar in countries such as the United States of America and United Kingdom where, unlike aged care, disability policy and practice had not evolved to meet needs. Ageing with long standing disability has now been specified by the Australian government as a priority area. This paper reports results of consultations held with consumers, their organisations, service providers and government in order to explore quality of life and service provision issues for people with long standing disabilities. It reports these issues and uses themes emerging from consultations to structure previously published information specifically related to ageing with an intellectual disability. Seven broad themes are discussed which relate to: life experiences; attitudes, skills and knowledge of consumers; attitudes skills and knowledge of community and service providers, the nature of service provision; the ageing of family care givers; financial security; and ageing in place. It is concluded that disadvantages and barriers experienced throughout life influence well being and quality of life in old age.

Examining the intersection of policy and occupational therapy: A scoping review

2019 ◽  
Vol 86 (3) ◽  
pp. 185-195 ◽  
Author(s):  
Raphael Lencucha ◽  
Keiko Shikako-Thomas
Keyword(s):  
Occupational Therapy ◽  
Scoping Review ◽  
Policy Development ◽  
Policy Framework ◽  
Review Of Literature ◽  
Policy And Practice ◽  
Descriptive Information ◽  
Development Level ◽  
The Relationship ◽  
Action Stage

Background. Policy has direct bearing on occupational therapy practice and is a key dimension of the environment. To date, there has not been a synthesis of how policy is addressed in the occupational therapy literature. Purpose. The purpose of this review is to identify and analyze the ways that policy is addressed in the occupational therapy literature. Method. We conducted a scoping review of literature on policy and occupational therapy. Articles were analyzed deductively using a policy framework and inductively to identify overarching themes. Findings. Sixty-four papers were included for analysis. We present the descriptive information of the included articles according to policy type, sphere of action, stage of policy development, level, and actors. The qualitative analysis uncovered two broad concepts: “awareness” about the relationship between policy and practice and messages pertaining to “action.” Implications. There are numerous areas for further research into the policy–occupational therapy nexus, as policy has numerous pathways to shape practice. Practitioners will benefit from better understanding these pathways and actively engaging to align policy with the values of the profession.

Depression in heart failure

2019 ◽  
Vol 14 (6) ◽  
pp. 1-11 ◽  
Author(s):  
John Sharp ◽  
Monica McCowat
Keyword(s):  
Heart Failure ◽  
Epidemiological Studies ◽  
Life Outcomes ◽  
Cardiac Health ◽  
Prevalence Of Depression ◽  
The Uk ◽  
The Impact ◽  
The Relationship

Heart failure is one of the most prevalent long-term physical health conditions. It is suggested that up to 26 million people are living with it worldwide including approximately 920 000 people in the UK. Evidence has consistently demonstrated the links between cardiac health and mental health; therefore, this article will explain depression and its presentation in heart failure, as these two conditions have been strongly and consistently linked. The prevalence of depression in heart failure will be reviewed from epidemiological studies and an overview of the impact of comorbid depression in heart failure will be provided, with a particular focus on mortality, morbidity and quality of life outcomes. The relationship between depression and heart failure will be discussed by examining pathophysiological and behavioural mechanisms, as well as evidence regarding the appropriate identification and subsequent management of heart failure depression will be reviewed.

Preliminary report on the sociolinguistic survey of multilingual communities, part I: Survey of Cayo District, British Honduras

1972 ◽  
Vol 1 (1) ◽  
pp. 155-172 ◽  
Author(s):  
R. B. Le Page
Keyword(s):  
Social Factors ◽  
Preliminary Report ◽  
Quality Of Education ◽  
General Law ◽  
Verbal Behaviour ◽  
British Honduras ◽  
The Relationship ◽  
Cayo District ◽  
Relevant Factors

The sociolinguistic survey of Cayo District, British Honduras, is planned as one of a series to be carried out by the same methods and as far as possible by the same team, so that comparable results can be obtained from a number of territories, and hypotheses about the relationship between patterns of verbal behaviour and other social factors based on one territory tested in the next. The hypotheses to be tested were formed (somewhat pretentiously) within a general ‘law’ with four riders in ‘Problems of description in multilingual communities’ (Le Page 1968a), and the practical ends of the survey also adumbrated there — viz., to help improve the quality of education in multilingual communities by illuminating the problems, the motives and the performance of children, by training the teachers and by helping in a basic way with the preparation of materials. The scientific aims are to gain an understanding of linguistic processes in relation to other relevant factors and modes of behaviour, so as to improve both linguistic and sociolinguistic theory.

scholarly journals Anxiety, depression and quality of life in mothers of intellectually disabled children

2018 ◽  
Vol 6 (2) ◽  
pp. 28-35
Author(s):  
N Sapkota ◽  
A K Pandey ◽  
BK Deo ◽  
MK Shrivastava
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Poor Quality ◽  
Anxiety And Depression ◽  
Disabled Children ◽  
Intellectually Disabled ◽  
Icd 10 ◽  
Anxiety Depression ◽  
The Relationship

Introduction: Studies have shown that there is an association between Anxiety, Depression in mothers of children having Intellectual disability with poor quality of life (QOL) in mothers of such children. This study was carried with the objectives to describe the clinico-socio-demographic profile of mothers of intellectually disabled children and to investigate the relationship among anxiety and depression with quality of life in mothers with intellectually disabled children.Material And Method: Mothers (N=31), whose children's IQ score was below 70, were enrolled in to the study with their informed consent. Depression and Anxiety disorders were diagnosed as per ICD 10. Severity of depression was measured with BDI and Anxiety symptoms with STAI. WHOQOL-BREF was used to assess Quality of life. The relationship among anxiety, depression and QOL were analysed using diagonal matrix, ANOVA and Pearson correlation test.Results: The mean age of participants was 50.23 (S.D= 6.11), BDI score was 13.65(S.D= 11.301), STAI score was 53.90 (SD= 15.821), WHOQOL- BREF in all four domains was 290.90 (S.D=49.42). There was significant correlation between BDI and STAI (P=0.01, r:0.651 ) and the three domains of WHOQOL- BREF(P=0.01, r:0.821, 0.843, 0.635 respectively) scale except Environment domain. Among the participants, 48.4% (ICD 10) had depression of varying degree along with 54.8% depression as per BDI cut off score. Anxiety disorder was seen in 22.6% as per ICD 10 but as per STAI it was 53.90(SD=15.821) which was statistically significant (p:0.01, r: -0.507). Depression when compared with no diagnosis persons has poor quality of life in WHOQOL-BREF physical domain (p:0.002) but with compared to Anxiety or both it was not statistically significant.Conclusion: The findings of this study revealed that mothers of children having Intellectual disability have high level of Anxiety and Depression which indeed had impact in quality of life. J Psychiatrists’ Association of Nepal Vol. 6, No. 2, 2017 Page: 28-35

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