scholarly journals Necessidades de cuidados de enfermagem do cuidador da pessoa sob cuidados paliativos

2011 ◽  
Vol 64 (1) ◽  
pp. 180-184 ◽  
Author(s):  
João Vicente César Fonseca ◽  
Teresa Rebelo
Keyword(s):  
Palliative Care ◽  
Family Nursing ◽  
Care Family

O objetivo foi identificar as necessidades de cuidados de enfermagem do cuidador da pessoa em fase terminal e respectivas intervenções de enfermagem, recorrendo a uma revisão sistemática da literatura. Foi efectuada uma pesquisa na EBSCO e ProQuest e procurados artigos científicos em texto integral, publicados entre janeiro de 1998 a dez de 2008, usando as seguintes palavras-chave: "Palliative care", "Family", "Nursing" e "Needs". Foi utilizado o método de PI[C]OD e seleccionados 14 artigos do total de 77. As necessidades do cuidador da pessoa em fase terminal são: comunicação; relação de confiança e segurança; reconhecimento e operacionalização de desejos; preparação para o luto; necessidades de informação; capacitação; envolvimento nos cuidados; necessidades emocionais; necessidades espirituais e necessidades de descanso. Concluiu-se que a família apresenta diferentes necessidades que requerem uma intervenção personalizada do enfermeiro, através do estabelecimento de uma relação de confiança

Relação entre equipe de enfermagem e família de pessoas em cuidados paliativos

2013 ◽  
Vol 4 (1) ◽  
pp. 54-57
Author(s):  
Larissa Cinara Brunnquell Pires ◽  
Mara Ambrosina De Oliveira Vargas ◽  
Rosmari Wittmann Vieira ◽  
Flávia Regina Souza Ramos ◽  
Sílvia Ferrazzo ◽  
...  
Keyword(s):  
Qualitative Research ◽  
Palliative Care ◽  
Care Center ◽  
Structured Interview ◽  
Terminal Disease ◽  
Family Nursing ◽  
The Family ◽  
Nursing Team ◽  
Care Family ◽  
Relationship Of

Pesquisa qualitativa, cujos objetivos são analisar a relação entre equipe de enfermagem e familiar de pacientes internados num Núcleo de Cuidados Paliativos (NCP), na perspectiva dos familiares e identificar o entendimento destes sobre o acolhimento como uma das atividades desenvolvidas pela equipe de enfermagem. Dados coletados mediante entrevista semiestruturada com treze familiares de pacientes adultos internados no NCP e analisados por Análise Temática. Identificou-se a contribuição da equipe de enfermagem ao proporcionar qualidade às pessoas com doença terminal e minimizar o sofrimento vivenciado pelo familiar. Apoio, atenção e afeto são marcas definidoras da relação e do acolhimento da equipe.Descritores: Cuidados Paliativos, Família, Equipe de Enfermagem, Cuidado Terminal.Relation between the nursing team and family of people under palliative careA qualitative research, which aims to analyze the relation between the nursing team and family of inpatients being treated in a Palliative Care Center (NCP), in the perspective of their relatives and identify their understanding on the welcoming as one of the activities developed by the nursing team. The data were collected through semi-structured interview with thirteen relatives of adult inpatients being treaded at a NCP and analyzed by Theme Analysis. The contribution of the nursing team by providing quality to people with terminal disease and minimizing the suffering experienced by the family was identified. Support, care, and kindness are determinant factors in the welcoming by and relationship of the team.Descriptors: Palliative care, Family, Nursing Team, Terminal Care.Relación entre equipo de enfermería y familia de personas en cuidados paliativosInvestigación cualitativa, cuyos objetivos son los de analizar la relación entre el equipo de enfermería y familiar de pacientes internados en un Núcleo de Cuidados Paliativos (NCP), en la perspectiva de los familiares e identificar el entendimiento de éstos sobre el acogimiento como una de las actividades desarrolladas por el equipo de enfermería. Datos colectados mediante entrevista semiestructurada con trece familiares de pacientes adultos internados en el NCP y analizados por Análisis Temático. Se identificó la contribución del equipo de enfermería al proporcionar calidad a las personas con enfermedades terminales y minimizar el sufrimiento vivido por el familiar. Apoyo, atención y afecto son marcas definidoras de la relación y del acogimiento del equipo.Descriptores: Cuidados Paliativos, Familia, Equipo de Enfermería, Cuidado Terminal.

Caregiver burden and distress

2021 ◽  
pp. 303-310
Author(s):  
Rinat Nissim ◽  
Sarah Hales ◽  
Gary Rodin
Keyword(s):  
Palliative Care ◽  
Family Caregivers ◽  
Personal Growth ◽  
Advanced Disease ◽  
Supporting Evidence ◽  
Care Providers ◽  
Wide Range ◽  
Care Family ◽  
The Common ◽  
Physical Challenges

Caregivers of patients with advanced disease can be seen as both care providers and as receivers of care. Family caregivers frequently face a wide range of their own psychological, spiritual, social, financial, and physical challenges, which may increase in duration due to longer survival and more ambulatory and home care of patients with advanced disease. While support for family caregivers is an integral component of quality palliative care, such support is often unavailable and there is a dearth of evidence-based interventions for caregivers. This chapter will provide an overview of the common issues faced by family caregivers of adults in palliative care, the factors that contribute to or exacerbate these problems, the interventions designed to address them and their supporting evidence, and the potential for personal growth in caregivers. Gaps in clinical practice and research are identified and future directions for clinical attention and research are discussed.

Retrospective review of end-of-life care in the last month of life in older patients with multiple myeloma: what collaboration between haematologists and palliative care teams?

2020 ◽  
pp. bmjspcare-2020-002293
Author(s):  
Thomas Chalopin ◽  
Nicolas Vallet ◽  
Lotfi Benboubker ◽  
Marlène Ochmann ◽  
Emmanuel Gyan ◽  
...  
Keyword(s):  
Multiple Myeloma ◽  
Palliative Care ◽  
End Of Life ◽  
Older Patients ◽  
High Rate ◽  
Palliative Care Teams ◽  
Care Family ◽  
Eol Care

ObjectivesPatients with haematological malignancies (HM) receive more aggressive treatments near the end-of-life (EOL) than patients with solid tumours. Palliative care (PC) needs are less widely acknowledged in patients with multiple myeloma (MM) than in other HM. The main objective of our study was to describe EOL care and PC referral in a population of older patients with MM.MethodsWe retrospectively included deceased inpatients and outpatients with an MM previously diagnosed at the age of 70 and over in two tertiary centres in France. We reported EOL characteristics regarding treatments considered to be aggressive—antimyeloma therapies, hospitalisations, blood product transfusions, intensive care units (ICUs) or emergency admissions—and PC referral.ResultsWe included 119 patients. In their last month of life, 75 (63%) were hospitalised for fever, pain, asthenia, anaemia or bleeding, 49 (41%) were admitted in the emergency department and 12 (10%) in ICU, 76 (64%) still received antimyeloma therapy and 45 (38%) had at least two transfusions. Only 24 (20%) received PC intervention for pain, global care, family support, anxiety, social care or confusion. Median follow-up until death was 20 days.ConclusionsOur study found a high rate of hospitalisations and antimyeloma therapies in the last month of life. The PC referral rate was low, often once specific treatments were stopped. Our results suggest the need for more effective collaboration between PC teams and haematologists in order to respond to the specific needs of these patients and to improve their quality of care at EOL.

Palliative medicine family conferences and caregiver psychological distress during prolonged mechanical ventilation

2020 ◽  
Vol 10 (4) ◽  
pp. 443-451 ◽  
Author(s):  
Yi-Han Lee ◽  
Jiao-Syuan Wang ◽  
Randall Curtis ◽  
Sheng-Jean Huang ◽  
Shy-Shin Chang ◽  
...  
Keyword(s):  
Mechanical Ventilation ◽  
Palliative Care ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Psychological Symptoms ◽  
Prolonged Mechanical Ventilation ◽  
Event Scale ◽  
Quality Of Dying ◽  
Care Family ◽  
The Impact

ObjectivesLittle is known about the experience of family caregivers of patients who require prolonged mechanical ventilation (PMV). We examined the perspectives of caregivers of patients who died after PMV to explore the role of palliative care and the quality of dying and death (QODD) in patients and understand the psychological symptoms of these caregivers.MethodsA longitudinal study was performed in five hospitals in Taipei, Taiwan. Routine palliative care family conferences and optional consultation with a palliative care specialist were provided, and family caregivers were asked to complete surveys.ResultsIn total, 136 family caregivers of 136 patients receiving PMV were recruited and underwent face-to-face baseline interviews in 2016–2017. By 2018, 61 (45%) of 136 patients had died. We successfully interviewed 30 caregivers of patients’ death to collect information on the QODD of patients and administer the Impact of Event Scale (IES), Hospital Anxiety and Depression Scale (HADS) and Center for Epidemiologic Studies Depression (CES-D) scale to caregivers. We observed that more frequent palliative care family conferences were associated with poorer QODD in patients (coefficients: −44.04% and 95% CIs −75.65 to −12.44), and more psychological symptoms among caregivers (coefficient: 9.77% and 95% CI 1.63 to 17.90 on CES-D and coefficient: 7.67% and 95% CI 0.78 to 14.55 on HADS). A higher caregiver burden at baseline correlated with lower psychological symptoms (coefficient: −0.35% and 95% CI −0.58 to −0.11 on IES and coefficient: −0.22% and 95% CI −0.40 to −0.05 on CES-D) among caregivers following the patients’ death. Caregivers’ who accepted the concept of palliative care had fewer psychological symptoms after patients’ death (coefficient: −3.29% and 95% CI −6.32 to −0.25 on IES and coefficient: −3.22% and 95% CI −5.24 to −1.20 on CES-D).ConclusionsPalliative care conferences were more common among family members with increased distress. Higher caregiver burden and caregiver acceptance of palliative care at baseline both predicted lower levels of caregiver distress after death.

Structured outpatient palliative care family conferences to enhance early integration of palliative care in advanced cancer.

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 36-36
Author(s):  
Cheruppolil R. Santhosh-Kumar ◽  
Deborah Gray ◽  
Stephanie Struve ◽  
Carol Huibregtse
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Direct Result ◽  
Do Not Resuscitate ◽  
Advanced Directives ◽  
Early Integration ◽  
Early Palliative Care ◽  
Family Conference ◽  
Nurse Navigator ◽  
Care Family

36 Background: Integrating early palliative care with cancer treatment improves quality of life and survival. Effective communication among physicians, patients and their loved ones is crucial to end-of-life, hospice and palliative care discussions. To address the inherent challenges in these discussions, we implemented a structured outpatient palliative care family conference (OFC) program at our community cancer clinic. Methods: A team comprising a hematologist/oncologist, cancer nurse navigator and social worker developed a toolkit for conducting an OFC, recognizing that each family conference is a unique adaptive challenge. New patients with advanced malignancies and limited life expectancy (<12 months) were offered a 90-minute structured OFC attended by the care team, patient and family members and or friends. Pre and post-conference patient satisfaction surveys and other data were collected prospectively. Results: From March 2014 through May 2015, fortyOFC were conducted (16 female and 24 male patients, median age: 67 years). Diagnoses were advanced gastrointestinal (14), lung (12), hematologic (6) and other (8) malignancies. As a direct result of the OFC program, 18 patients ordered do-not-resuscitate bracelets, 15 completed advanced directives, 7 submitted paperwork for disabled parking permits, 7 were referred to hospice and 4 for rehabilitation therapy. Further results are shown in the table. Conclusions: Structured outpatient palliative care family conferences improve satisfaction of end-of-life discussions and facilitate integration of palliative care options. Enhanced communication between providers, patients and loved ones eases the challenges of such discussions. The OFC approach could be a model for integrating palliative care in community cancer clinics. [Table: see text]

Knowing the family: Interpretations of family nursing in oncology and palliative care

2010 ◽  
Vol 14 (2) ◽  
pp. 93-100 ◽  
Author(s):  
Deborah L. McLeod ◽  
Dianne M. Tapp ◽  
Nancy J. Moules ◽  
Mary E. Campbell
Keyword(s):  
Palliative Care ◽  
Family Nursing ◽  
The Family

scholarly journals Assistência de enfermagem no fim da vida: relato de experiência

2021 ◽  
Vol 11 (34) ◽  
pp. 312-317
Author(s):  
Anna Rebeka Oliveira Ferreira ◽  
Wanderson Rocha Oliveira ◽  
Claudia Regina Marchiori Antunes Araújo ◽  
Brenda Melissa Barros Mota dos Santos ◽  
Camila Wohlenberg Camparoto ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Palliative Care ◽  
End Of Life ◽  
Nursing Care ◽  
Life Experience ◽  
Family Orientation ◽  
Care Family ◽  
Terapia Intensiva ◽  
Care Assistance ◽  
The City

Trata-se de um relato de experiência com o objetivo de descrever o processo de identificação e discussão das principais dificuldades vivenciadas durante a assistência ao paciente no fim da vida na Unidade de Terapia Intensiva. Este relato foi desenvolvido em um hospital do município de Maringá, com quatro enfermeiras, vinte e cinco técnicos de enfermagem e seis estagiários de enfermagem. Após o aprofundamento teórico, foi aplicado um questionário para a identificação das principais dificuldades da equipe na realização dos cuidados paliativos e realizado uma aula dialogada sobre o tema. Verificamos que os profissionais possuíam dúvidas principalmente sobre a classificação em cuidados paliativos, orientação a família e nutrição do paciente, o que possibilitou a padronização e classificação da assistência no setor. A aula contribuiu para que o profissional tivesse um maior embasamento na realização de uma assistência integral de qualidade para o paciente e família.Descritores: Assistência no Fim da Vida, Cuidados de Enfermagem, Sistematização da Assistência. Nursing care at the end of life: experience reportAbstract: This is an experience report with the aim of describing process of identification and discussion of the main occurrences experienced during patient care at the end of life in the Intensive Care Unit. This report was developed in a hospital in the city of Maringá, with four nurses, twenty-five nursing technicians and six nursing interns. After the theoretical deepening, a questionnaire was applied to identify the main difficulties of the team in carrying out palliative care and a lecture on the topic was held. We verified that the professionals had doubts about the classification in palliative care, family orientation and patient nutrition, what made possible the to standardize and classify assistance in the sector. The class contributes so that the professional has a greater basis in carrying to provide better quality comprehensive care for patient and family.Descriptors: End of Life Assistance, Nursing Care, Assistance Systematization. Apoyo de la enfermería al final de la vida: informe de experienciaResumen: Este es un informe de experiencia con el objetivo de describir el proceso de identificación y discusión de las principales dificultades experimentadas durante la atención pacientes que se encuentran en la fase final de su vida en la Unidad de Terapia Intensiva. Este informe fue desarrollado en un hospital de la ciudad de Maringá, con cuatro enfermeras, veinticinco técnicos de enfermería y seis pasantes de enfermería. Después de profundización teórica, se aplicó un cuestionario para identificar las principales dificultades del equipo en la realización de cuidados paliativos, y se realizó una clase dialogada sobre el tema. Comprobamos que los profesionales tenían dudas principalmente sobre la clasificación en cuidados paliativos, orientación a la familia y nutrición del paciente, lo que hizo posible lestandarizar y clasificar la asistencia el sector. El aula contribuyó para que el profesional tuviera una mayor base en la realización de una atención integral de mejor calidad para el paciente y familia.Descriptores: Asistencia al Final de la Vida, Cuidado de Enfermería, Sistematización de la Asistencia.

scholarly journals Educational programs for patients and persons providing palliative care as a way to improve its quality in geriatrics

2015 ◽  
Vol 96 (4) ◽  
pp. 567-571
Author(s):  
I P Ponomareva ◽  
E V Tkachenko
Keyword(s):  
Palliative Care ◽  
Care Management ◽  
Educational Programs ◽  
Professional Staff ◽  
Social Characteristics ◽  
Raising Awareness ◽  
Care Family ◽  
Severe Pathology ◽  
The One ◽  
The Cost

The efficiency of educational programs implementation in geriatrics in managing the palliative care training was explored. The article presents the literature review devoted to the problem of performing educational programs for patients and their relatives on the palliative care management in geriatrics. Currently there is an unresolved contradiction: on the one hand - the growing number of elderly and senile patients with severe pathology, accompanied by a significant dependency on others, on the other hand - the lack of professional staff and the lack of care, family problems in the competent care management, lack of specialized training and information programs. The situation is aggravated by the lack of interagency cooperation, and the inability to realize in practice the main principle of palliative care - multidisciplinary approach. Review of the literature demonstrated that the development and implementation of educational programs in palliative care, raising awareness of patients and their families are able to solve not only medical, but also economic problems, reducing the number of hospitalizations by twice, number of ambulance calls by twice as well. Introducing the information and education programs for patients with chronic conditions significantly reduces the risk of complications and, consequently, the cost of treatment and rehabilitation. Features of palliative care programs in geriatrics is teaching not only the patients, but their relatives by specialists with medical education, as well as and training of volunteers, social service professionals by academic specialists, taking into account the clinical, psychological and social characteristics of older patients.

scholarly journals A Qualitative Study About How Nurses in Belgium Offer Relationship Support to Couples in Palliative Care

2019 ◽  
Vol 26 (1) ◽  
pp. 38-51
Author(s):  
Charlotte Benoot ◽  
Paul Enzlin ◽  
Lieve Peremans ◽  
Johan Bilsen
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Daily Practice ◽  
Observational Research ◽  
Relationship Functioning ◽  
Advanced Illness ◽  
Care Environment ◽  
Family Nursing ◽  
Depth Interviews ◽  
Do So

Although palliative care nurses are identified as key players in supporting couples during advanced illness, there is a lack of evidence about their knowledge and experiences with this particular role. The aim of the study was to explore palliative care nurses’ attitudes, roles, and experiences in addressing relationship functioning of couples in daily practice. A qualitative study was conducted using in-depth interviews, observational research, and peer debriefing groups with palliative care nurses in Flanders, Belgium. Nurses support relationship functioning by creating a couple-positive care environment, by being present/acknowledging feelings, and by rectifying imbalances between couples. They do so in a proactive way, backed up by team support. Nurses hesitate toward explicitly unraveling and intervening in relationship problems, in favor of providing comfort or offering a strengths-based approach. The findings offer an urgent call to enhance the educational programs for palliative care nurses by integrating the theories and practice frameworks that guide relational assessment and intervention, which are being used in family nursing.

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