scholarly journals Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal

2021 ◽  
Vol 34 (13) ◽  
Author(s):  
Bárbara Antunes ◽  
Pedro Pereira Rodrigues ◽  
Irene J. Higginson ◽  
Pedro Lopes Ferreira
Keyword(s):  
Palliative Care ◽  
Mixed Methods ◽  
Data Collection ◽  
Feasibility Study ◽  
Healthcare Professionals ◽  
Web Based ◽  
Data Collection Period ◽  
Hospital Patients ◽  
Field Notes ◽  
Collection Period

Introduction: Evidence shows most patients are not recognised by their attending healthcare professionals as having palliative needs. This feasibility study aimed to aid healthcare professionals identify hospital patients with palliative needs.Material and Methods: Mixed-methods, cross-sectional, observational study. The patient inclusion criteria comprised: age over 18 years old, being mentally capable to give consent judged as such by participating healthcare professionals, and if unable, having a legal substitute to consent, having a diagnosis of an incurable, potentially life-threatening illness. Field notes were taken for reflexive purposes. Outcome measures included: Integrated Palliative Care Outcome scale, surprise question, phase of illness, referral request status, The Eastern Cooperative Oncology Group Performance Status and social needs assessment. An interim data collection period meeting assessed implementation outcomes in each context. A web-based survey was sent to all participating healthcare professionals at the end of data collection period to explore overall experiences of participation and implementation outcomes.Results: Forty-two departments in four hospitals were contacted. The study was presented in nine departments. The field notes were vital to understand the recruitment process and difficulties experienced: time constraints, fear of additional work, department dynamics and organisation, relationships between departments and need of training in palliative care and research. One department agreed to participate. There were six participating healthcare professionals and only 45 patients included. Three participating healthcare professionals responded to the web-based survey.Discussion: The response rate was very low. Legislating palliative care is not enough, and an integrated palliative care plan needs to be implemented at country and institution level.Conclusion: There is an urgent need to provide generalist palliative care training to clinicians.

scholarly journals Speech Acts in the Facebook Status Updates Posted by an Apostate

2018 ◽  
Vol 8 (4) ◽  
pp. 226 ◽  
Author(s):  
Azweed Mohamad ◽  
Radzuwan Ab Rashid ◽  
Kamariah Yunus ◽  
Shireena Basree Abdul Rahman ◽  
Saadiyah Darus ◽  
...  
Keyword(s):  
Social Media ◽  
Data Collection ◽  
Speech Acts ◽  
Speech Act ◽  
Expressive Speech ◽  
Social Actions ◽  
The Social ◽  
Data Collection Period ◽  
Collection Period ◽  
Made In

This paper discusses the speech acts in Facebook Status Updates posted by an apostate of Islam. The Facebook Timeline was observed for a duration of two years (January 2015 to December 2016). More than 4000 postings were made in the data collection period. However, only 648 postings are related to apostasy. The data were classified according to the types of speech acts. Expressive speech act is the most frequent speech act (33%, n=215), followed by the directive (27%, n=177), assertive (22%, n=141), and commissive (18%, n=115), respectively. Based on the speech acts used, it is discernible that the apostate attempts to engage other Facebook users and persuade them into accepting her ideology while gaining their support. This paper is novel in the sense that it puts forth the social actions of an apostate which is very scarce in literature. It is also methodologically innovative as it uses social media postings as a tool to explore the apostate’s social actions in an online space.

Conduct a Scout Survey (Step 6)

2019 ◽  
pp. 111-114
Author(s):  
Edmund M. Ricci ◽  
Ernesto A. Pretto ◽  
Knut Ole Sundnes
Keyword(s):  
Data Collection ◽  
Data Gathering ◽  
Memory Loss ◽  
Background Information ◽  
Primary Data ◽  
Team Members ◽  
Data Collection Period ◽  
Local Officials ◽  
Collection Period ◽  
Disaster Event

We strongly recommend that a ‘scout survey’ of the disaster site be implemented prior to the initiation of the principal study, in order to obtain the types of detailed information required to prepare a research plan and a plan for working with a full research team during the data collection period. The scout survey step requires that one or two researchers go to the disaster site within two or three weeks following the disaster to prepare for a larger team visit, which would initiate work within two to three months post disaster. ‘Scout team’ visits are an essential mechanism for developing and/or revising the data collection instruments, for securing collaboration of local officials who will facilitate the study, for identifying key informants and members of the stakeholder group, and for obtaining background information needed for the sample design. We believe it is essential that the initial data collection be completed as soon as possible after the disaster event ends, in order to minimize memory loss. It is also of great importance that the primary data collection phase be conducted efficiently, within a period of approximately seven to ten days, although additional data may be added subsequent to the primary data collection period as the need for it becomes apparent. It is also likely that a data gathering effort, such as a survey involving large numbers of individuals, may continue after the main data collection team members have returned to their home institutions. The amount of thorough and detailed planning required to achieve the 7–10 day goal virtually mandates a pre-visit by a scout team.

scholarly journals P05 An audit of proton pump inhibitor prescribing, in adherence with the trust’s guidance, in gastro-oesophageal reflux disease

2020 ◽  
Vol 105 (9) ◽  
pp. e8.1-e8
Author(s):  
Yusuf Asif ◽  
Chi Huynh ◽  
Awais Hussain
Keyword(s):  
Young People ◽  
Data Collection ◽  
Reflux Disease ◽  
Oesophageal Reflux ◽  
Children And Young People ◽  
Oesophageal Reflux Disease ◽  
Data Collection Period ◽  
Collection Period ◽  
Dispersible Tablets ◽  
Outpatient Prescriptions

AimThe effectiveness of proton pump inhibitors (PPIs) have been demonstrated. Nevertheless, the choice of PPI that should be used is less absolute. The clinical effectiveness, availability of the formulation, co-morbidities, route of administration and lowest acquisition cost are all considerations that should be accounted for when determining the appropriate therapy. Current Trust guidance recommends lansoprazole capsules and oral dispersible tablets as the first line PPI, unless other indications preclude its use. Other UK hospitals have audited PPI prescribing and their findings highlight that adherence upon deployment was poor.1 2 This audit aims to assess if written outpatient prescriptions are adhering to the guidelines.MethodThis study was conducted prospectively in the outpatient pharmacy, between February and March 2019. The defined data collection period was 5 weeks, which included a 1-week pilot study. The accumulation of data involved reviewing all outpatient prescriptions, whereby PPIs were prescribed, noting if the Trust’s guidance on PPI prescribing was being adhered to. Data was collected via a structured pro forma to assess the percentage compliance against the three predetermined standards:Standard 1 - Is the PPI prescribed appropriate?Standard 2 - Is there a documented indication for the prescribed PPI?Standard 3 - Is the dose appropriate for the patient?ResultsThere were a total of 84 prescriptions received from 13 different specialties. The age range of patients was 1 month to 16 years with a mean (± median) age of 7.66 ± 7 years. The overall compliance with the Trust’s guidelines for standards 1, 2 and 3 were 76%, 88% and 100% respectively. The infant and toddler age group (28 days – 23 months) showed the least compliance in standard 1, the choice of appropriate PPI (63%). The most common indication was gastro oesophageal reflux disease. Paediatric Gastroenterology received the greatest number of prescriptions over the data collection period. 12% of prescriptions did not have a documented indication and the most common PPI prescribed in the outpatient pharmacy was lansoprazole, which accounted for 64 (77%) of the prescriptions.ConclusionThe findings in this study are synonymous to that of other audits conducted in UK hospitals, where compliance with PPI guidelines were explored. Possible factors that could be attributed to the low levels of adherence are problems with implementation, lack of enforcement of the guidelines, patient/guardian preferences and presence of enteral feeding tubes. Clinicians should monitor their prescribing and where applicable, switch patients who are currently on omeprazole suspension, to lansoprazole oral dispersible tablets/capsules. This could lead to significant monetary savings for the Trust.ReferencesDerbyshire Joint Area Prescribing Committee. Gastro-oesophageal reflux disease: recognition, diagnosis and management in children and young people. 2015.Pan Mersey Area Prescribing Committee. Pharmacological management of gastro-oesophageal reflux disease (GORD) in children and young people in primary and secondary care. 2016.

scholarly journals Is the data collection period of the Large-Scale Biosphere-Atmosphere Experiment in Amazonia representative of long-term climatology?

2008 ◽  
Vol 113 (G1) ◽  
pp. n/a-n/a ◽  
Author(s):  
Rafael Rosolem ◽  
William James Shuttleworth ◽  
Luis Gustavo Gonçalves de Gonçalves
Keyword(s):  
Data Collection ◽  
Large Scale ◽  
Data Collection Period ◽  
Collection Period

scholarly journals Sensitivity of scale resolving aft-body flow simulations to numerical model parameter variations

2021 ◽  
Author(s):  
Jan-Erik Schumann ◽  
Volker Hannemann ◽  
Klaus Hannemann
Keyword(s):  
Numerical Model ◽  
Data Collection ◽  
Turbulence Model ◽  
Step Size ◽  
Time Step ◽  
Filter Length ◽  
Time Step Size ◽  
Parameter Variations ◽  
Data Collection Period ◽  
Collection Period

AbstractThe sensitivity of hybrid RANS-LES methods like Improved Delayed Detached Eddy Simulation (IDDES) to numerical model parameter variations related to generic space launch vehicle aft-body flows is investigated. In particular, the changes resulting from the choice of the time-step size, the turbulence model, the fluid modelling, the circumferential grid resolution, the filter length definition, and the data collection period is considered. The results are also compared to experimental and numerical data taken from the available literature. The sensitivity to the time-step size and the turbulence model is minuscule with respect to the obtained mean flow field, wall pressure distributions, azimuthal modes, and wall pressure frequency spectra. However, circumferential resolution, fluid model, and filter length definition affect the solution to a higher extent. Buffeting spectra are very sensitive to the data collection period.

scholarly journals Deaf Adults’ Health Literacy and Access to Health Information: Protocol for a Multicenter Mixed Methods Study

10.2196/14889 ◽  
2019 ◽  
Vol 8 (10) ◽  
pp. e14889 ◽  
Author(s):  
Michael M McKee ◽  
Peter C Hauser ◽  
Sara Champlin ◽  
Michael Paasche-Orlow ◽  
Kelley Wyse ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Health Literacy ◽  
Data Collection ◽  
Health Information ◽  
Visual Learning ◽  
Mixed Methods Study ◽  
Web Based ◽  
Literacy Interventions ◽  
Limited Health Literacy ◽  
Limited Health

Background Deaf American Sign Language (ASL) users often struggle with limited health literacy compared with their hearing peers. However, the mechanisms driving limited health literacy and how this may impact access to and understanding of health information for Deaf individuals have not been determined. Deaf individuals are more likely than hearing individuals to use the internet, yet they continue to report significant barriers to health information. This study presents an opportunity to identify key targets that impact information access for a largely marginalized population. Objective This study aims to elucidate the role of information marginalization on health literacy in Deaf ASL users and to better understand the mechanisms of health literacy in this population for the purpose of identifying viable targets for future health literacy interventions. Methods This is an exploratory mixed methods study to identify predictors and moderators of health literacy in the Deaf population. These predictors of health literacy will be used to inform the second step that qualitatively explains the findings, including how Deaf individuals access and understand Web-based health information. Multiple interviewer- and computer-based instruments underwent translation and adaptation, from English to ASL, to make them accessible for the Deaf participants in our study. A planned sample of 450 Deaf ASL users and 450 hearing native English speakers, aged 18 to 70 years, will be recruited from 3 partnering sites: Rochester, NY; Flint, MI; and Chicago, IL. These individuals will participate in a single data collection visit. A subset of participants (approximately 30) with key characteristics of interest will be invited for a second data collection visit to observe and inquire more about their ability to directly access, navigate, and comprehend Web-based health information. The study will help assess how the ways health literacy and information are visualized may differ between Deaf individuals and hearing individuals. The study will also survey participants’ ownership and use of computer and mobile devices and their level of Web-based information use, including health information. Results Adaptation and translation of protocols and instruments have been completed and are now in use for the study. Recruitment is underway and will continue until late 2020. Results from this study will be used to provide a guide on how to structure Web-based health information in a way that maximizes accessibility and improves health literacy for Deaf individuals. Conclusions The results from this mixed methods proposal will advance what is known about health literacy and health information accessibility for Deaf individuals. This innovative study will generate rich data on how to formulate health information and health literacy interventions more accurately to take advantage of visual learning skills. International Registered Report Identifier (IRRID) PRR1-10.2196/14889

scholarly journals N-Gen, the Small Share That Continues to Listen: Reports from Media-Use Online Diaries of Teenage Radio Listeners

2017 ◽  
Vol 2 (4) ◽  
pp. 105
Author(s):  
Phulia Widya Negara ◽  
Nora Nailul Amal
Keyword(s):  
Data Collection ◽  
New Media ◽  
Media Use ◽  
Audience Research ◽  
Radio Broadcasting ◽  
Data Collection Period ◽  
Collection Period ◽  
Media Habits ◽  
Listening Behaviors ◽  
The City

The rise of television and new media have caused decline in the number of radio listeners. In Indonesia, the number of studies that focus on radio also has plummeted. The nature of radio broadcasting reach, as well as the decline in the number of listeners, has made audience research difficult and expensive. This paper attempts to fill this gap. This paper examines young radio listeners’ media habits in Solo – a city in Java Island Indonesia – in detail. Employing daily journals, 30 teenagers who admitted still listening to the radio agreed to participate in the research. Among the small share of teenage radio listeners aged 14-19 in the city, only about 56% reported listening to the radio during one week that represented the data collection period. Herein, we provide details on the stations and on the talk and music formats that the subjects listened to as well as places and listening motivation and listening behaviors. Suggestions for further research are also discussed.

scholarly journals Empathy, Awareness and Attitudes toward Violence among Elementary School Students

2020 ◽  
Vol 26 (2) ◽  
pp. 164-172 ◽  
Author(s):  
So Ra Kang ◽  
Haeryun Cho ◽  
Shin-Jeong Kim
Keyword(s):  
Elementary School ◽  
Data Collection ◽  
Violence Prevention ◽  
Elementary School Students ◽  
Sixth Grade ◽  
School Students ◽  
Attitudes Toward Violence ◽  
Sixth Grade Students ◽  
Data Collection Period ◽  
Collection Period

Purpose: The purpose of this study was to investigate empathy, awareness, and attitudes toward violence among elementary school students. Methods: The participants were 195 fifth and sixth grade students in Y elementary school. The data collection period was from June 24 to July 4, 2019. Results: Empathy scores significantly differed according to participants' gender and need for education on violence prevention. Attitudes towards violence (permissive and neglectful) significantly differed according to students' grade and need for education on violence prevention. Empathy was negatively correlated with permissive attitudes toward violence (r=-.26, <i>p</i><.001) and neglectful attitudes toward violence (r=-.24, <i>p</i>=.001). Conclusion: The results of this study are expected to be utilized as basic data for education on violence prevention through empathy.

Challenges in the Provision of Pediatric Palliative Care in Mexico: A Cross-Sectional Web-Based Survey

2021 ◽  
pp. 082585972110627
Author(s):  
Elena Solveig Grüneberg ◽  
Jorge Ramos-Guerrero ◽  
Tania Pastrana
Keyword(s):  
Palliative Care ◽  
Working Conditions ◽  
Work Experience ◽  
Healthcare Professionals ◽  
Pediatric Palliative Care ◽  
Snowball Sampling ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Middle Income ◽  
Web Based

Objective: An enormous need for pediatric palliative care (PPC) has been reported, especially in low- and middle-income countries (LMICs). However, the access to PPC is limited. This study identifies the current challenges in the provision of PPC and their severity from the perspective of healthcare professionals. Method: We conducted a web-based descriptive cross-sectional survey among healthcare professionals treating children in need of palliative care in Mexico in 2019. We used convenience sampling and snowball sampling to acquire participants. Results: Seventy healthcare professionals from Mexico participated. Participants were 64.3% female, on average 45.8 (SD = 10.9) years old, had an average of 15.84 (SD = 10.4) years of work experience and worked in 15 states. The three most severe barriers reported were: (1) Few teams and/or networks of out-of-hospital/domestic support; (2) Absence of training centres and continuing medical/paramedical education in PPC; and (3) Lack of legal, labor, and economic protection for parents who must stop working to be with their children. The barriers related to a lack of awareness and commitment, a lack of support, legal factors, and working conditions were rated highest. Participants considered increased awareness and better knowledge of PPC for all as the top priority, and particularly emphasized the need for better education and training of health professionals. Conclusion: We have identified several barriers to successful palliative care (PC) provision for children. Primarily, these are lack of awareness and commitment, especially of the health authorities and the medical professions, lack of personal and financial support, legal factors, and working conditions. The need to change and improve care exists at the policy level, the health professional level, and the public societal level.

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