Relief Work

Tact ◽  
2019 ◽  
pp. 111-141
Author(s):  
David Russell

This chapter explores the work of Walter Pater. It shows that he wanted more from life. His essays raise the question of what this more might be, and where it might come from. They ask how we might become both more at home in and more penetrable by the vivid world. In an early essay, “Diaphaneitè” (1864), Pater rather mysteriously proposed: “He who is ever looking for the breaking of a light he knows not whence about him, notes with a strange heedfulness the faintest paleness in the sky.” All of Pater's subjects seem engaged in this strangely heedful notation, as if on the lookout for a particular quality of life. “The service of philosophy, of speculative culture, towards the human spirit” says Pater, glossing a statement by Novalis, “is to rouse, to startle it to a life of constant and eager observation.” Pater's writing thus speculates at the boundary point of a “quickened sense of life.”

2021 ◽  
pp. 1-9
Author(s):  
K. M. Gicas ◽  
C. Mejia-Lancheros ◽  
R. Nisenbaum ◽  
R. Wang ◽  
S. W. Hwang ◽  
...  

Abstract Background High rates of physical and mental health comorbidities are associated with functional impairment among persons who are homeless. Cognitive dysfunction is common, but how it contributes to various functional outcomes in this population has not been well investigated. This study examines how cognition covaries with community functioning and subjective quality of life over a 6-year period while accounting for the effects of risk and protective factors. Methods Participants were 349 homeless adults (mean age = 39.8) recruited from the Toronto site of the At Home/Chez Soi study, a large Canadian randomized control trial of Housing First. Participants completed up to four clinical evaluations over 6 years. Factor scores were created to index verbal learning and memory (vLM) and processing speed-cognitive flexibility (PSCF). The primary outcomes were community functioning and subjective quality of life. Risk factors included lifetime homelessness, mental health diagnoses, medical comorbidity, and childhood adversity. Linear mixed-effects models were conducted to examine cognition-functional outcome associations over time, with resilience as a moderator. Results Better vLM (b = 0.787, p = 0.010) and PSCF (b = 1.66, p < 0.001) were associated with better community functioning, but not with quality of life. Resilience conferred a protective effect on subjective quality of life (b = 1.45, p = 0.011) but did not moderate outcomes. Conclusions Our findings suggest a need to consider the unique determinants of community functioning and quality of life among homeless adults. Cognition should be prioritized as a key intervention target within existing service delivery models to optimize long-term functional outcomes.


2019 ◽  
Vol 5 (1) ◽  
Author(s):  
Nduka C. Okwose ◽  
Leah Avery ◽  
Nicola O’Brien ◽  
Sophie Cassidy ◽  
Sarah J. Charman ◽  
...  

Abstract Purpose Less than 10% of heart failure patients in the UK participate in cardiac rehabilitation programmes. The present pilot study evaluated feasibility, acceptability and physiological effects of a novel, personalised, home-based physical activity intervention in chronic heart failure. Methods Twenty patients (68 ± 7 years old, 20% females) with stable chronic heart failure due to reduced left ventricular ejection fraction (31 ± 8 %) participated in a single-group, pilot study assessing the feasibility and acceptability of a 12-week personalised home-based physical activity intervention aiming to increase daily number of steps by 2000 from baseline (Active-at-Home-HF). Patients completed cardiopulmonary exercise testing with non-invasive gas exchange and haemodynamic measurements and quality of life questionnaire pre- and post-intervention. Patients were supported weekly via telephone and average weekly step count data collected using pedometers. Results Forty-three patients were screened and 20 recruited into the study. Seventeen patients (85%) completed the intervention, and 15 (75%) achieved the target step count. Average step count per day increased significantly from baseline to 3 weeks by 2546 (5108 ± 3064 to 7654 ± 3849, P = 0.03, n = 17) and was maintained until week 12 (9022 ± 3942). Following completion of the intervention, no adverse events were recorded and quality of life improved by 4 points (26 ± 18 vs. 22 ± 19). Peak exercise stroke volume increased by 19% (127 ± 34 vs. 151 ± 34 m/beat, P = 0.05), while cardiac index increased by 12% (6.8 ± 1.5 vs. 7.6 ± 2.0 L/min/m2, P = 0.19). Workload and oxygen consumption at anaerobic threshold also increased by 16% (49 ± 16 vs. 59 ± 14 watts, P = 0.01) and 10% (11.5 ± 2.9 vs. 12.8 ± 2.2 ml/kg/min, P = 0.39). Conclusion The Active-at-Home-HF intervention is feasible, acceptable and effective for increasing physical activity in CHF. It may lead to improvements in quality of life, exercise tolerance and haemodynamic function. Trial Registration www.clinicaltrials.gov NCT0367727. Retrospectively registered on 17 September 2018.


2015 ◽  
Vol 61 (3) ◽  
pp. 523-528 ◽  
Author(s):  
Eun-Jin Jang ◽  
Eun-Kyong Kim ◽  
Kyeong-Soo Lee ◽  
Hee-Kyung Lee ◽  
Youn-Hee Choi ◽  
...  

2012 ◽  
Vol 24 (6) ◽  
pp. 856-870 ◽  
Author(s):  
Claudia Cooper ◽  
Naaheed Mukadam ◽  
Cornelius Katona ◽  
Constantine G. Lyketsos ◽  
David Ames ◽  
...  

ABSTRACTBackground: People with dementia report lower quality of life, but we know little about what interventions might improve it.Methods: We systematically reviewed 20 randomized controlled trials reporting the effectiveness of non-pharmacological interventions in improving quality of life or well-being of people with dementia meeting predetermined criteria. We rated study validity with a checklist. We contacted authors for additional data. We calculated standardized mean differences (SMD) and, for studies reporting similar interventions, pooled standardized effect sizes (SES).Results: Pooled analyses found that family carer coping strategy-based interventions (four studies, which did not individually achieve significance; n = 420; SES 0.24 (range 0.03–0.45)) and combined patient activity and family carer coping interventions (two studies, not individually significant; n = 191; SES 0.84 (range 0.54–1.14)) might improve quality of life. In one high-quality study, a care management system improved quality of life of people with dementia living at home. Group Cognitive Stimulation Therapy (GCST) improved quality of life of people with dementia in care homes.Conclusion: Preliminary evidence indicated that coping strategy-based family carer therapy with or without a patient activity intervention improved quality of life of people with dementia living at home. GCST was the only effective intervention in a higher quality trial for those in care homes, but we did not find such evidence in the community. Few studies explored whether effects continued after the intervention stopped. Future research should explore the longer-term impact of interventions on, and devise strategies to increase, life quality of people with dementia living in care homes or at home without a family carer.


2021 ◽  
Vol 4 (1) ◽  
pp. 13-29
Author(s):  
Eka Kartika Sari ◽  
Biko Nabih Fikri Zufar

The perception of women as the number two role in society continues to this day. This knowledge has an impact on women's inferiority and subordination. In addition, the conditions of the Covid-19 pandemic have increased the workload for women at home. The workload for women has increased threefold, including earning a living in it. The woman breadwinner in Kampung Kue Rungkut Lor II experienced this during the pandemic. This article uses qualitative research methods and a phenomenological approach, in order to obtain data on the quality of life in the Kampung Kue Rungkut Lor II community. The purpose of this study was to determine descriptively the condition of women breadwinners during the pandemic. As a result, the “Pembatasan Sosial Berskala Besar” (PSBB) affected the economic conditions in the Kampung Kue Rungkut Lor II community, and women also experienced three times more workload than men at home. The pandemic has actually added to the exploitation and oppression of women in the Kampung Kue Rungkut Lor II community. Therefore, it is necessary to have further research on the quality of life of women breadwinners in Kampung Kue Rungkut Lor II before the pandemic to find out the differences in the quality of life of women breadwinners in the same location.


2021 ◽  
Vol 9 (T4) ◽  
pp. 347-353
Author(s):  
Bertha Tesma Wulandari ◽  
Arianti Arianti

BACKGROUND: The condition of middle adult patients with palliative disease is prone to experiencing physical weakness and psychological suffering, disrupting dignity. As a caregiver at home, the family plays an essential role in providing support to maintain patient dignity. AIM: This study aims to determine the image of the dignity of the middle adult patient with palliative care needs by family at home. METHODS: This research is a qualitative study with a phenomenological approach. Participants were seven people with the purposive sampling method. Data collection methods were conducted using in-depth interviews and semi-structured observation. Research instruments included interview guidelines, field notes, and an observation form. Data validity used reference material, rich and thick description, and peer debriefing. Data analysis included data collection, data reduction, data presentation, and conclusion. RESULTS: The results showed that the dignity of patients was considered by six themes; self-esteem went up and down, the meaning of illness and death, family response to the patient, sources of decision-making, an image of the quality of life, and future wishes. CONCLUSION: This study had six themes depicting the dignity of patients that consisted of subthemes. The themes included self-esteem went up and down, the meaning of illness and death, family response to the patient, sources of decision-making, an image of the quality of life, and future wishes.


2021 ◽  
Vol 342 ◽  
pp. 01016
Author(s):  
Maria-Elena Boatca ◽  
Diana Robescu ◽  
Romulus Corlan ◽  
Nicoleta Mirea

For more than a year, the way people work and learn witnessed dramatic changes on the back of the Covid-19 pandemic. While workers were supported and provided with trainings and a variety of sources of information, students did not benefit from the same ‘privilege’. In Romania, students had to adapt to online learning system since March 2020. To properly assess the impact of online learning on students’ health (both physical and mental), the authors conducted a study on students at Politehnica University of Timisoara. As part of this study, subjects were assessed using ‘Rapid Office Strain Assessment’ (ROSA). While some of them learn in ergonomic conditions, there are others exposed to high postural risk (primarily generated by use of inappropriate furniture). This assessment is part of a larger ergonomic intervention focused on educating students on the importance of creating ergonomic conditions at home with the aim to improve quality of life.


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