scholarly journals Functioning of a family with a child suffering from cystic fibrosis and short bowel syndrome - case study

2018 ◽  
Vol 19 (2) ◽  
pp. 100-111
Author(s):  
Justyna Świerczyńska ◽  
Agnieszka Mazur ◽  
Izabela Chojnowska-Ćwiąkała ◽  
Agnieszka Podosek

Abstract This article presents the problem of the functioning of a family with a child suffering from two painful, chronic and incurable diseases - cystic fibrosis and short bowel syndrome. Its aim is to learn about the impact of these diseases on the occurrence and course of mental disorders in a child and on the functioning of the whole family in which such a child is brought up. Like any long-term illness of a child, it has influenced changes in the functioning of the family system. The parents’ functioning and the flexibility of the family system conditioned the acceptance of the diagnosis and determined further participation of the family in the treatment process. This article also discusses the risk of unfavorable attitudes of parents towards the child’s illnesses, which may contribute to the development of mental disorders in the child patient, as well as in his/her parents or siblings. In the process of treatment and rehabilitation, the necessity for cooperation of medical staff, the patient and his/her parents has been emphasised.

2021 ◽  
Vol 3 (1) ◽  
Author(s):  
Harish Gupta ◽  
S. Kiran Kumar Reddy ◽  
Mounika Chiluka ◽  
Vamshikrishna Gandla

AbstractIn this study, we demonstrate the impact of the construction of a mega-dam on the nutrient export regime of a large tropical river into the Arabian Sea. Long-term (11 years) fortnight nutrient parameters, upstream and downstream to Sardar Sarovar (SS) Dam, were examined to determine the periodical change in nutrient fluxes from the Narmada River, India. During this 11-year period, the average discharge of the Narmada River upstream to Rajghat (35.3 km3 year−1) was higher than that of downstream at Garudeshwar (33.9 km3 year−1). However, during the same period, the suspended sediment load was reduced by 21 million tons (MT) from 37.9 MT at Rajghat to 16.7 MT at Garudeshwar. Similarly, mean concentrations of dissolved silica (DSi) reduced from 470 (upstream) to 214 µM (downstream), dissolved inorganic phosphate (DIP) from 0.84 to 0.38 µM, and dissolved inorganic nitrogen (DIN) from 43 to 1.5 µM. It means that about 54%, 55%, and 96% flux of DSi, DIP, and DIN retained behind the dam, respectively. The estimated denitrification rate (80,000 kg N km−2 year−1) for the reservoir is significantly higher than N removal by lentic systems, globally. We hypothesize that processes such as biological uptake and denitrification under anoxic conditions could be a key reason for the significant loss of nutrients, particularly of DIN. Finally, we anticipated that a decline in DIN fluxes (by 1.13 × 109 mol year−1) from the Narmada River to the Arabian Sea might reduce the atmospheric CO2 fixation by 7.46 × 109 mol year−1.


Forests ◽  
2021 ◽  
Vol 12 (7) ◽  
pp. 855
Author(s):  
Mark W. Brown

The forest industry tends to plan, and model transportation costs based on the potential payload benefits of increased legal gross vehicle weight (GVW) by deploying different configurations, while payload benefits of a configuration can be significantly influenced by the vehicle design tare weight. Through this research the relative benefit of increased legal GVW of different configurations is compared across Australia over a 13-year period from 2006 to 2019, by examining data collected post operation across multiple operations. This approach is intended to offer realistic insight to real operations not influenced by observation and thus reflect long-term operating behaviour. The inclusion of the three most common configuration classes in Australian forestry over a 13-year period has also allowed the exploration of load management between configurations and potential trends over time. When considering the legal GVW and the tare weight impacts across the fleets, the semi-trailer has an 8 t payload disadvantage compared to B-Doubles and 19.6 t disadvantage compared to road trains.


Geosciences ◽  
2021 ◽  
Vol 11 (8) ◽  
pp. 330
Author(s):  
Bryan A. Oakley

Napatree Point, an isolated barrier in southern Rhode Island, provides a case study of barrier spit migration via storm driven overwash and washover fan migration. Documented shoreline changes using historical surveys and vertical aerial photographs show that the barrier had little in the way of net change in position between 1883 and 1939, including the impact of the 1938 hurricane. The barrier retreated rapidly between 1945 and 1975, driven by both tropical and extra-tropical storms. The shoreline position has been largely static since 1975. The removal of the foredune during the 1938 hurricane facilitated landward shoreline migration in subsequent lower intensity storms. Dune recovery following the 1962 Ash Wednesday storm has been allowed due to limited overwash and barrier migration over the last several decades. Shoreline change rates during the period from 1945–1975 were more than double the rate of shoreline change between 1939 and 2014 and triple the rate between 1883 and 2014, exceeding the positional uncertainty of these shoreline pairs. The long-term shoreline change rates used to calculate coastal setbacks in Rhode Island likely underestimate the potential for rapid shoreline retreat over shorter time periods, particularly in a cluster of storm activity. While sea-level rise has increased since 1975, the barrier has not migrated, highlighting the importance of storms in barrier migration.


2021 ◽  
Vol 13 (14) ◽  
pp. 7906
Author(s):  
Nikola Medová ◽  
Lucie Macková ◽  
Jaromir Harmacek

This paper focuses on the dynamic of the recent upheaval in the tourism and hospitality sector due to the COVID-19 epidemic in Greece and Santorini island. It uses the case study of a country one-fourth of whose GDP consists of tourism. We compare the available statistical data showing the change in variables in the previous years with 2020 and look into the new challenges and opportunities posed by the drop in the numbers of visitors and flights. We focus mainly on the economic and social impact on the destination and possible future scenarios for further development in the area. Data show a significant effect of the pandemic on multiple variables, such as the long-term trend of the importance of tourism sector in GDP in Greece, the number of flights and visitors to Greece and Santorini island, and the contribution of tourism and travel to GDP. Based on the available data, we also construct three foresight scenarios that describe the possible futures for Santorini island in terms of the pandemic evolution. These scenarios may help various stakeholders and policymakers to be better prepared for different developments that may appear.


2021 ◽  
Vol 263 (6) ◽  
pp. 206-214
Author(s):  
David Montes-González ◽  
Juan Miguel Barrigón-Morillas ◽  
Ana Cristina Bejarano-Quintas ◽  
Manuel Parejo-Pizarro ◽  
Guillermo Rey-Gozalo ◽  
...  

The pandemic of coronavirus disease (COVID-19) led to the need for drastic control measures around the world to reduce the impact on the health of the population. The confinement of people in their homes resulted in a significant reduction in human activity at every level (economic, social, industrial, etc.), which was reflected in a decrease in environmental pollution levels. Studying the evolution of parameters, such as the level of environmental noise caused by vehicle traffic in urban environments, makes it possible to assess the impact of this type of measure. This paper presents a case study of the acoustic situation in Cáceres (Spain) during the restriction period by means of long-term acoustic measurements at various points of the city.


Author(s):  
Javier Bueno ◽  
Laura García-Martínez ◽  
Susana Redecillas ◽  
Oscar Segarra ◽  
Manuel López

Abstract Background The Serial Transverse Enteroplasty Procedure (STEP) Registry has reported a 47% success to achieve enteral autonomy in pediatric short bowel syndrome (SBS). We have performed the STEP with a technical modification (MSTEP) consisting in stapler application without mesenteric defects that can also be applied to the duodenum. Our experience with this technique is described. Materials and Methods In this study, 16 children with SBS underwent MSTEP (2005–2019). Indications were nutritional autonomy achievement (n = 11, with duodenal lengthening in 5/11) and bacterial overgrowth treatment (n = 5). Results With a median follow-up of 5.8 years (0.7–13.7 years), 5 of 11 (45%) patients achieved enteral autonomy, 4 of them with duodenal lengthening. Four of four who preserved > 50% colon, while only one of seven with < 50% of colon achieved enteral autonomy (p < 0.05). After redo procedures, three of four attained enteral autonomy. Thus, 8 of 11 (73%) progressed to enteral autonomy, including all with duodenal lengthening. One child, already parenteral nutrition free, died due to central line sepsis. All the patients from the bacterial translocation group improved their metabolic/nutritional status, but one required subsequent enterectomy of the lengthened intestine due to multiple ulcers in the staple lines. Conclusion The effectiveness of MSTEP to achieve enteral autonomy seems similar to the classical STEP. It can be applied to the duodenum. The retained colon length may influence the post-STEP enteral autonomy achievement.


2016 ◽  
Vol 77 (12) ◽  
pp. 1202-1208 ◽  
Author(s):  
Walter Miguel Turato ◽  
Helioswilton Sales-Campos ◽  
Camila Bitu Moreno Braga ◽  
Selma Freire Carvalho Cunha ◽  
José Henrique Silvah ◽  
...  

2016 ◽  
Vol 10 (1) ◽  
pp. 45
Author(s):  
Pasquale Mansueto ◽  
Aurelio Seidita ◽  
Salvatore Iacono ◽  
Antonio Carroccio

Short bowel syndrome refers to the malabsorptive state caused by loss of significant portions of the small intestine, whose clinical framework is characterized by malnutrition, diarrhea, dehydration, weight loss, and low-weight-related symptoms/signs. These clinical conditions seem to be related to the length of resection. Twenty-one years ago we reported the clinical case of an infant, who underwent a massive resection of the loops of the small intestine, of the cecum and of part of the ascending colon, due to intestinal malrotation with volvulus. The residual small intestine measured just 11 cm and consisted of the duodenum and a small part of jejunum, in the absence of the ileocecal valve, configuring the case of a <em>ultra-short bowel syndrome</em>. In this report, we update the case, reporting the patient succeeded to obtain a good weight gain and to conduct a quite normal lifestyle, despite the long-term consequences of such resection.


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