Child Diagnosis of Autism - How It Can Change the Family Life

2017 ◽  
Vol 5 (1) ◽  
pp. 498
Author(s):  
Maria Stănescu

The article is about the role of the family in the education and formation of children and, especially, in the life and development of autistic children. It describes the problems their family is facing and the need for counseling to parents with autistic children. The reaction to finding the diagnosis of autism varies from one family to another and may encounter a large variety: from disbelief, anger, guilt, helplessness, devastation, surprise, or even rejection of the child, to understanding and relief when finally the parents have an explanation for their child behaviors. Early intervention is important in psychological sustaining of the parent, as parent involvement in the recovery of the child with autism has a determinant role in his development and in ensuring a high quality of life of the child and the life of the hole family. The response to a child's autism diagnosis varies from one family to another. The family goes through a variety of disbelief, anger, guilt, helplessness, devastation, surprise, or even rejection of the child, to understanding and relief. Early intervention is very important in the psychological support of the parent. Because any change disturbs the family equilibrium. A diagnosis of autism changes not only the life of the diagnosed child, but also the life of family members. All the resources are focused on the need of the child. Although each parent is different, after diagnosing the child with autism, all parents are overwhelmed by confusion, shock and denial. Parents' feelings can be influenced by how their children's situation affects different aspects of life - it has an impact on service, on social life and all their personal life. If we look at the family as a system and when a disturbing factor appears, all parts of the system are affected. The involvement of parents in the recovery of the child with autism has a decisive role in its development and in ensuring a high quality of child's life and family life.

2021 ◽  
pp. 1-3
Author(s):  
Uwe Gieler

<b>Background</b>: Hidradenitis suppurativa is a debilitating disease related to a great psychosocial burden in affected patients and subsequently also people around them. Patients’ partners as caregivers may indirectly experience wide range of devastating effects of the disease on their emotional and social life. <b>Objective:</b> The purpose of this study was to determine the QoL impairment in HS patients’ partners and to identify its aspects that are affected the most. Correlation between QoL burden and disease severity, duration, sex, age and smoking was also assessed. <b>Methods:</b> A total of 50 HS sufferers were assessed according to disease severity and their partners’ QoL was determined using the Family Dermatology Life Quality Index questionnaire. <b>Results:</b> The mean FDLQI for patients’ partners was 8.7 ± 6.8 points, indicating generally a moderate effect of HS on their life. Quality of partners’ life correlated significantly with disease severity but no correlation was found according to other factors. <b>Conclusion:</b> Hidradenitis suppurativa is a highly psychologically devastating disease not only for patients but also for their partners. It occurred to diminish partners’ QoL mostly by increasing daily expenditure but also other problems were often reported. Clinicians should be aware of these psychosocial implications, in order to provide optimal therapy of HS affected families by a multidisciplinary specialized management addressing both, patients and their cohabitants simultaneously.


Autism ◽  
2021 ◽  
pp. 136236132110100
Author(s):  
Jodie Smith ◽  
Rhylee Sulek ◽  
Ifrah Abdullahi ◽  
Cherie C Green ◽  
Catherine A Bent ◽  
...  

Parents from individualist cultures (those focused on autonomy of individuals; that is, Australian) may view their autistic children differently compared to parents from collectivist cultures (where community needs are valued over an individual’s, that is, South-East Asian cultures). As most research on autism and parenting has been undertaken in Western individualist cultures, knowledge of parenting beliefs and mental health within collectivist cultures is lacking. We compared the mental health, quality of life, well-being and parenting sense of competency between families raising an autistic child from two groups: 97 Australian parents and 58 parents from South-East Asian backgrounds. Children from both groups were receiving the same community-based early intervention. No group differences were found on the measures of mental health but, when compared to Australian parents, parents from South-East Asian backgrounds reported higher well-being and less impact on their quality of life resulting from their child’s autism-specific difficulties. Furthermore, a positive association between well-being and quality of life was only observed for South-East Asian parents. Hence, the views of, and responses to, disability for South-East Asian parents may act as a protective factor promoting well-being. This novel research indicates that culture plays a role in parenting autistic children and highlights the need to accurately capture cultural background information in research. Lay abstract We know that parents of autistic children experience poorer mental health and lower well-being than parents of non-autistic children. We also know that poorer mental health among parents of autistic children has been observed across different cultures. Most research focuses on Western cultures, so we know little about parental mental health and well-being of parents from different cultural backgrounds; yet, it is likely that cultural background contributes to how parents view their child’s condition and respond to the diagnosis. Here, we compared mental health, quality of life and well-being between families raising an autistic child from Australian backgrounds to families from South-East Asian backgrounds. All children in the current study were receiving the same community-based early intervention. When compared to the general population, parents had poorer mental health overall, but there were no differences between the two groups of parents. However, parents from South-East Asian backgrounds reported higher well-being and fewer difficulties associated with their child’s autism. These findings suggest that cultural background likely influences not only parent’s view of, and response to, their child’s autism, but also their own sense of well-being. As researchers and clinicians working with families of autistic children, we should more explicitly consider family’s cultural background within our work.


2020 ◽  
Vol 1 (1) ◽  
pp. 180-199
Author(s):  
Awal Rifai ◽  
Usamah Maming

Surah An-Nisa is one of the longest madaniah surah, and is one full of provisions of sharia laws that govern all matters both internal and external ones for Muslims. Among the prominence of this noble surah is that it tells a lot about important things related to women, household, family, country, and social life. In this surah, there are commands and prohibitions in various matters. The purpose of this study was to extract imperative sentences related to family life and then briefly identify the rules that became the base for these commands. The researcher employed an inductive and analytical approach by extrapolating Surah Al-Nisa, taking imperative sentences related to family life, and explaining the law which is concluded from it. Researcher finds, among the most important of the most important ones are as follows: understanding the meaning of al-amr (command) which is a request to do something in the form of superiority. There are two types of amr: direct and indirect. The number of amr related to the family in the surah is seventeen.


Author(s):  
Galina Eliasberg

The article is devoted to the life and works of I. Teneromo, a participant of the Tolstoyan movement, correspondent of L.N. Tolstoy, the author of memories, journalist and playwright. It deals with works which reflected his understanding of the «family question» close to Tolstoy's views; emphasizes the autobiographical basis of a number of his plays, as well as stories about conversations with Tolstoy. His plays and stories do not pretend to be of special artistic value, they are analyzed taking into account the edifying tasks and moral lessons important for the author, whose views was formed under the influence of the ideas of Tolstoy, Russian social life, and the assimilation processes characteristic of Russian Jewry in the transitional era of the turn of the 19th and 20th centuries.


2005 ◽  
Vol 53 (4) ◽  
pp. 672-690 ◽  
Author(s):  
Nickie Charles ◽  
Charlotte Aull Davies

This article is inspired by Frankenberg's (1990) claim that the best way to understand general social processes is through the study of their manifestation in the details of social life. We look at how studies of community that have been carried out in Wales, particularly Village on the Border and The Family and Social Change ( Rosser and Harris, 1965 ), have accomplished this link between the particular and the general. We then consider the findings of our own research, which is a restudy of Rosser and Harris, showing how they provide a counterbalance to grand theoretical claims about the transformations that are affecting community and family life. We find that although factors such as increasing geographical mobility and women's greater participation in paid work affect people's experiences of community, people continue to place a high value on what they call communities. Such communities are spoken about and defined in different ways but all are based on local social networks of kin, neighbours and friends and/or locally-based associations. They are also gendered, with women playing a key role at both informal and formal levels of community. We suggest that the apparent resilience of local social relations evident in our research may help to explain the continued cultural and political resonance of community in Wales.


2016 ◽  
Vol 33 (2) ◽  
pp. 114-123
Author(s):  
Joanna Ostrouch-Kamińska

Today we observe the dynamic changes in relations between the sexes in the family, which appear as a result of economic, cultural, and social transformation, the growth of women’s economic strength, as well as the level of their education, and the development of the ideas of the equal rights of women and men in the labour market and in social life. Hitherto existing research results show that Poles are increasingly in favour of the egalitarian family model and declare their wish to build their relationships based on equality. In the article I will characterise our cultural context, in which the egalitarian relation of a man and a woman in a family is both an educational space of confrontation between the “old” concept of family life, often rooted in Parsons’ concept of the nuclear family, and the “new” one, specific for the socio-cultural breakthrough in Poland. I will also present the involvement of formal education in fixing stereotypical images of family life, which are in opposition to the changes observed in relations between women and men. At the end I will present my own concept of education for equality in the marital relations, as well as the frame of equality between spouses in marital relations as a value of upbringing, which are a response to the needs of contemporary women and men.


Ethnologies ◽  
2003 ◽  
Vol 24 (1) ◽  
pp. 225-249 ◽  
Author(s):  
Geoff Lightfoot ◽  
Valérie Fournier

Résumé This article explores how space gets mobilised in the performance of “family business”. The very concept of the “family business” collapses some deeply entrenched distinctions in Western modern societies, those between home and work, private and public, family life and business rationality, distinctions that are mapped over space through the creation of boundaries between work space and family space, home and office. The “family business”, especially when run from home, unsticks this ordered sense of space as familial images and business stages are collapsed. Our analysis of small family run boarding kennels focuses on the way space is used to frame different stages of action. In particular, we draw upon theatrical metaphors to explore the work that goes into the staging of identities and social relations. We first discuss the relationships between space, stages, performance and identity through a theatrical lens; we then draw upon material from our study of family run boarding kennels to explore how owner-managers use space as a malleable resource from which they carve out and assemble different stages to perform their business and themselves to different audiences. After going back into the theatre to discuss the role of stages in weaving together coherent stories in the family business or in drama, we close by exploring the limitations of the theatrical metaphor for the analysis of social life.


2013 ◽  
Vol 329 ◽  
pp. 503-506
Author(s):  
Zhe Wen ◽  
Qian Dong

Computer is high-tech equipment in the age of information, and has been widely applied in all industries by relying on its sharing, universality, intelligence and other characteristics. Seen from the structural composition, software and hardware are two core components of computer, and play a decisive role in the quality of computer and its system in the actual work. Software development is a process for building up software system or software of system according to the needs of users; in high-quality software research and development, multiple aspects such as market research, demand analysis, structure design and model debugging are involved, and the quality of products can be ensured only if each operation link is strictly controlled.


2021 ◽  
Vol 6 (2(22)) ◽  
pp. 20-29
Author(s):  
Abdirashid Mamasidikovich Mirzakhmedov ◽  
Khurshid Abdirashidovich Mirzakhmedov ◽  
Nasiba Alizhanovna Abdukholikova

The article presents the results of an anthropological analysis of the social life of a modern family. It is immersed in deep socio-economic and demographic problems, which are complicated by the impact of globalization and information technology. Analyzing the transformational processes of family relations, the author comes to the conclusion that in the modern family there is “alienation” of generations, the gap between parents and children, which affects the traditional ethno-confessional foundations of the family. We are talking about the foundations of the national mentality of the peoples of the region about intergenerational relationships between children and their parents, the transformation from a macro-family to a nuclear one.


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