scholarly journals Needs in siblings of individuals with Down Syndrome and levels of coping Cali, Colombia

2021 ◽  
Vol 4 (1) ◽  
pp. 101-108
Author(s):  
Cadavid Lina Fernanda Martínez ◽  
Acosta Diana Marcela Gutiérrez ◽  
Montilla Luis Alexander Lovera
Keyword(s):  
Down Syndrome ◽  
Information Needs ◽  
Cross Sectional Study ◽  
Social Needs ◽  
Family Needs ◽  
Cross Sectional ◽  
The Family ◽  
Medium Level ◽  
And Coping ◽  
Nursing Professional

Objective: To determine the needs and level of coping in siblings of people with Down Syndrome. Methods: Descriptive, cross-sectional study, carried out in 2016. Sample consisted of 30 siblings of people with Down Syndrome between 6 and 60 years old. Using non-probability convenience sampling. Two instruments were used to collect the information: a) a validated sociodemographic and needs survey of the siblings, designed by the authors, and b). Callista Roy adaptation and coping survey validated. Results: 60% of the siblings report not having felt judged by other people when presenting their brother/sister with Down syndrome. 73.3% of the siblings did not receive information about Down Syndrome from a nursing professional, the need to strengthen the nursing care provided to the siblings of people with disabilities in this regard is evident. 53.3% of these present a medium level of coping with respect to the condition of having a brother with Down syndrome. Conclusion: Identified needs were: time needs, affective needs, family needs, social needs, economic and access to information needs. Highlighting these needs allows the nursing professional to identify and consider the siblings of people with Down Syndrome have different needs than the rest of the family nucleus. Where interventions aimed at reducing the harmful effects and enhancing those characteristics of gain related with having a brother with Down Syndrome.

scholarly journals Study on disability limitation, rehabilitation and social needs of persons affected by leprosy in Kurnool division of Kurnool district

2018 ◽  
Vol 5 (8) ◽  
pp. 3526
Author(s):  
Visweswara Rao Guthi ◽  
A. Sreedevi
Keyword(s):  
Wound Care ◽  
Self Care ◽  
Cross Sectional Study ◽  
Social Needs ◽  
Health Staff ◽  
Cross Sectional ◽  
Medium Level ◽  
Care Practices ◽  
High Level ◽  
Rehabilitation Needs

AbstractBackground: Leprosy is a chronic infectious disease caused by Mycobacterium leprae. It affects mainly the peripheral nerves. There is very little data on the types of problems faced by people with leprosy-related disabilities (PLD) and the resulting needs. So this study made an attempt to study the disability limitation, rehabilitation needs of persons affected by leprosy and to assess their dehabilitation status.Materials and Methods: This is a community based cross–sectional study conducted in Kurnool district. There were 296 registered persons affected by leprosy between May 2012 to October 2013 out of which 276 registered persons affected by leprosy were available for the study. Information collected was to assess the disability limitation, rehabilitation needs, social needs and to assess their dehabilitation status of the registered cases.Results: This study shown that out of 276 patients affected by leprosy, 65/276 (23.56%) of the study subjects had disabilities. Out of which 9.06 % had only Grade 1 and 14.50% had Grade 2 disability. 65 (100%) of the subjects having deformity needed skin care, 14 (21.53%) needed wound care, 31 (47.69%) needed joint care, 7 (10.76%) needed swelling care, 10 (15.38%) needed nerve care and 2 (3.07%) needed eye care. 15/254 (5.90%) suffered from high level of dehabilitation and 43/254 (16.93%) suffered from medium level of dehabilitation.Conclusions: Knowledge and practice among those needing self care practices were grossly deficient. The general health staff had not informed in most circumstances to persons affected by leprosy about self care practices in leprosy.High level of dehabilitation in the study population was present only in patients having visible deformity.

scholarly journals The Educational Needs of Family of the Patients Discharged from the Intensive Care Units: The Viewpoints of Nurses and the patients’ Families

2019 ◽  
Author(s):  
Asma Hajalizadeh ◽  
Mehdi Ahmadinejad ◽  
Mahlagha Dehghan ◽  
Mansoor Arab
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Self Care ◽  
Educational Needs ◽  
Cross Sectional Study ◽  
Family Needs ◽  
Sectional Study ◽  
Cross Sectional ◽  
The Family ◽  
High Level

Abstract Objectives This study aimed to determine the educational needs of the families of patients discharged from the intensive care units and to compare the views of families and nurses about these needs.Method This was a cross-sectional study. Two hundred eighty nurses and family members of the patients discharged from the intensive care units participated in the survey. A researcher-made questionnaire about the educational needs of the family were used for data collection.Results Nurses significantly estimated the educational needs of families more than what they did (P <0.001). The families and nurses reported the educational needs of self-care as well as nutrition and medicine at the highest level, respectively. Both groups reported the educational needs of defecation at the lowest level.Conclusion Given the high level of family needs, implementing educational and practical interventions is necessary to enhance their skills.

Parenting stress among caregivers of children with neurodevelopmental disorders: A cross-sectional study in Bangladesh

2021 ◽  
pp. 174462952110023
Author(s):  
M Atiqul Haque ◽  
Marium Salwa ◽  
Sarmin Sultana ◽  
Anika Tasnim ◽  
Muhammad Ibrahim Ibne Towhid ◽  
...  
Keyword(s):  
Parenting Stress ◽  
Neurodevelopmental Disorders ◽  
Regression Coefficient ◽  
Neurodevelopmental Disorder ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Contributing Factors ◽  
Cross Sectional ◽  
The Family ◽  
And Coping

This cross-sectional study explored stressful situations of caregivers related to life events of their children suffering from neurodevelopmental disorders along with potential contributing factors. A total of 906 caregivers of children with diagnosed neurodevelopmental disorder, from eight administrative districts and two city corporation areas in Bangladesh were interviewed. The Family Stress and Coping Interview scale was used to evaluate parenting stress. The diagnosis of neurodevelopmental disorder at the outset, feelings about the cause of the disorder, future planning for employment and accommodation for the child and dealing with child sexuality were some important stressful situations for parents. Parenting stress is found to be higher among female [regression coefficient (B) = 5.09, p < 0.001] and less educated caregivers [B = 2.69, p < 0.01]. Increasing age of child [B = 0.82, p < 0.001] and diagnosis of neurodevelopmental disorder before child’s second birthday [B = 4.22, p < 0.001] are also associated with higher parenting stress.

Care Giver’s Needs in the Process of Cancer Recovery

2012 ◽  
Vol 11 (1) ◽  
pp. 67
Author(s):  
Bino Thomas ◽  
Marie M Nympha
Keyword(s):  
Psychosocial Care ◽  
Psychological Needs ◽  
Cross Sectional Study ◽  
Social Needs ◽  
Spiritual Needs ◽  
Family Needs ◽  
Psychosocial Needs ◽  
Cross Sectional ◽  
Care Givers ◽  
Care Recipients

Goals of work: The aim of the study is to explore the psychosocial needs of persons taking care of family members suffering from cancer. Materials & Methods: An Sixty care-givers participated in the cross sectional study. An interview schedule was used. The care recipients had heterogeneous cancer diagnosis and were hospitalized for at least a month. Main Result: Their Financial needs were the highest followed by informational needs, family needs, personal needs, social needs, psychological needs and spiritual needs. It is in contrast to their studies from the west where psychological need was supreme. Conclusions: The findings pave way for the development of comprehensive psychosocial care programs for the care-givers. Keywords: Cancer-oncology, caregiver

scholarly journals BURDEN AMONG FAMILY CAREGIVERS OF ADVANCED-CANCER PATIENTS IN INDONESIA

2018 ◽  
Vol 4 (3) ◽  
pp. 295-303 ◽  
Author(s):  
Ike Wuri Winahyu Sari ◽  
Sri Warsini ◽  
Christantie Effendy
Keyword(s):  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Sampling Technique ◽  
Cross Sectional Study ◽  
Advanced Cancer Patients ◽  
Cross Sectional ◽  
Preventative Intervention ◽  
The Family ◽  
Medium Level

Background: There have been various studies into the family caregivers’ experiences in taking care of advanced-cancer patients. But, a study exploring the burden among family caregivers has not yet been conducted in Indonesia, a country which has strong family bonds among family members.Objective: This present study aimed to identify the burden among family caregivers of advanced cancer patients.Methods: This study was a cross-sectional study conducted from December 2016 to February 2017 on 178 consenting family caregivers and advanced cancer patients, selected using a purposive sampling technique. The Caregiver Reaction Assessment (CRA) was used to measure their burden. Data were analyzed using descriptive analyzes and bivariate analyzes.Results: The burden among family caregivers was 2.38 ± 0.38 (mean range 1-5). The highest burden was in the disrupted schedule domain.Conclusion: Our findings identified that the burden among family caregivers was at the medium level. The length of care per day and family support are potential targets for preventative intervention strategies to reduce the burden among the family caregivers.

scholarly journals Domestic violence and coping strategies among married adults during lockdown due to Coronavirus disease (COVID-19) pandemic in India: a cross-sectional study

2021 ◽  
pp. 1-29
Author(s):  
Priyanka Sharma ◽  
Anita Khokhar
Keyword(s):  
Domestic Violence ◽  
Coping Strategies ◽  
Descriptive Analysis ◽  
Cross Sectional Study ◽  
Systematic Research ◽  
Sectional Study ◽  
Cross Sectional ◽  
Frontline Workers ◽  
And Coping ◽  
Study Participants

Abstract Background: There has been a reported increase in cases of domestic violence during the coronavirus disease (COVID-19) pandemic, however systematic research data is still unavailable. This study was conducted to find out domestic violence prevalence and coping strategies among married adults during lockdown due to COVID-19 in India. Methodology: A cross-sectional study was conducted among married men and women in the month of April 2020. Data regarding socio-demographic profile, domestic violence and coping strategies employed during lockdown was collected thorough google forms. 97.9% forms were completely filled by the respondents. Descriptive analysis was done. Results: Out of 94 study participants, about 7.4% (n=7) had faced domestic violence during lockdown. Out of these 7 participants, about 85.7% (n=6) reported increased frequency of domestic violence during lockdown. About half of the victims chose to ignore it (57.1%, n=4) or used yoga/meditation (42.9%, n=3) to cope. Conclusion: With about 7.4% study participants facing domestic violence during lockdown, it is necessary to study its detailed epidemiology in pandemics so that interventions like helpline numbers, screening of patients during tele-consultation, etc. which can be delivered even during lockdown with the help of healthcare and frontline workers could be devised to address this problem.

scholarly journals Patients’ Perspectives about Lifestyle Behaviors and Health in the Context of Family Medicine: A Cross-Sectional Study in Portugal

2021 ◽  
Vol 18 (6) ◽  
pp. 2981
Author(s):  
Rosália Páscoa ◽  
Andreia Teixeira ◽  
Micaela Gregório ◽  
Rosa Carvalho ◽  
Carlos Martins
Keyword(s):  
Family Medicine ◽  
Family Doctor ◽  
Cross Sectional Study ◽  
Demographic Variables ◽  
Future Research ◽  
Lifestyle Behaviors ◽  
Sectional Study ◽  
Self Assessment ◽  
Cross Sectional ◽  
The Family

Lifestyle interventions are recognized as essential in the prevention and treatment of non-communicable diseases. Previous studies have shown that Portuguese patients tend to give more importance to diagnostic and laboratory tests than to lifestyle measures, and seem unaware that behavioral risks are the main modifiable risk factors. The study aimed to analyze patients’ perspectives about lifestyle behaviors and health in the context of family medicine in Portugal. A population-based cross-sectional study was carried out in Portugal (the mainland). A total of 900 Portuguese patients aged ≥20 years, representative of the population, were surveyed using face-to-face questionnaires. Participants were selected by the random route method. Descriptive statistics and non-parametric tests were performed to evaluate differences between the personal beliefs and the personal behavior self-assessment, as well as between the level of importance given to the family doctor to address health behaviors and the reported approach implemented by the family doctor, and its association with bio-demographic variables. The results indicate that the vast majority of this Portuguese cohort has informed beliefs regarding lifestyle behaviors, tends to overestimate their own behavior self-assessment, and strongly agrees that it is important that their family doctor asks/advises on these lifestyle behaviors, although the proportion of those who totally agree that their family doctor usually does this is significantly lower. Differences concerning bio-demographic variables were found. Future research directions should focus on the politics, economics, and policy aspects that may have an impact in this area. It will also be important to understand more broadly the relationships between lifestyle behaviors and clinical, physical, and sociodemographic variables.

Knowledge about biosafety measures in clinical setting during the COVID-19 pandemic: a cross-sectional study with Brazilian dental students

2022 ◽  
pp. 1-25
Author(s):  
Matheus dos Santos Fernandez ◽  
Andreia Morales Cascaes ◽  
Francisco Wilker Mustafa Gomes Muniz ◽  
Nathalia Ribeiro Jorge da Silva ◽  
Camilla Hubner Bielavski ◽  
...  
Keyword(s):  
Clinical Setting ◽  
Knowledge Score ◽  
Cross Sectional Study ◽  
Dental Students ◽  
Control Measures ◽  
Practical Training ◽  
Sectional Study ◽  
Cross Sectional ◽  
Explanatory Variables ◽  
Medium Level

Abstract Objective: To evaluate the knowledge of Brazilian dental students about biosafety measures that should be adopted in the clinical setting during the coronavirus disease-2019 (COVID-19) pandemic. Methods: A cross-sectional study with 1,050 dental students was conducted. A semi-structured questionnaire was shared with students. Mean knowledge score on biosafety guidelines during the COVID-19 pandemic was the outcome, with a maximum of 8 scores. Explanatory variables included sociodemographic and educational characteristics, aspects related to biosafety education, actions adopted by the dental schools during the pandemic, and sources of biosafety information. Multivariate linear regression analyses were performed. Results: Mean knowledge score was 5.19 (1.28). Female students (β=0.346; 95%CI:0.154–0.539), those enrolled in the intermediate (β=0.525; 95%CI:0.167–0.883) or final (β=0.569; 95%CI:0.200–0.937) stage of course, and those who had already received theoretical-practical training in biosafety (β=0.464; 95%CI:0.063–0.866) presented higher mean knowledge scores. Students who did not receive guidance on aerosol control measures before the pandemic (β=-0.324; 95%CI:-0.519–-0.130) had the lowest score. Conclusion: Students presented a medium level of knowledge about dental biosafety measures in the COVID-19 pandemic. Sociodemographic characteristics and those related to the institutional profile of the participants, and access to orientation and training in biosafety may influence their knowledge.

Sign in / Sign up

Export Citation Format

Share Document